SclerodermaRF's profile picture. Scleroderma Unit @royalfreenhs
Tweets by long term #dcSSc patient, Nicola Whitehill, volunteer https://royalfreecharity.org/news/fundraising/nicolas-story/

SclerodermaRF

@SclerodermaRF

Scleroderma Unit @royalfreenhs Tweets by long term #dcSSc patient, Nicola Whitehill, volunteer https://royalfreecharity.org/news/fundraising/nicolas-story/

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FDA Approves 1st new Fibromyalgia drug in 15 yrs - Tonmya (cyclobenzaprine HCl sublingual) as treatment of fibromyalgia in adults. Based on 2 phase 3 trials and 1400+ pts. Dose 2.8 mg tabs 1-2 SL qhs (peak concentration 4.3 hours; t1/2 life = 36 hrs, longer w/ elderly, liver dz)…

RheumNow's tweet image. FDA Approves 1st new Fibromyalgia drug in 15 yrs - Tonmya (cyclobenzaprine HCl sublingual) as treatment of fibromyalgia in adults.  Based on 2 phase 3 trials and 1400+ pts. Dose 2.8 mg tabs 1-2 SL qhs (peak concentration 4.3 hours; t1/2 life = 36 hrs, longer w/ elderly, liver dz)…

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Nailfold videocapillaroscopy (NVC) in Dx of systemic sclerosis - study of 258 NVCs found giant capillaries (specificity 98%) & capillary density to be best at defining a scleroderma pattern (39%). Density ≤8 capillaries/mm best defined dropout (AUC 0.911); having both = 91%…

RheumNow's tweet image. Nailfold videocapillaroscopy (NVC) in Dx of systemic sclerosis - study of 258 NVCs found giant capillaries (specificity 98%) & capillary density to be best at defining a scleroderma pattern (39%). Density ≤8 capillaries/mm best defined dropout (AUC 0.911); having both = 91%…

Study of 74 systemic sclerosis pts shows nailfold videocapillaroscopy (capillary disorganization, late pattern changes) predicts ILD progression, worsening PFTs & mRSS in SSc over 2 yrs. KL-6 correlates w/ NVC findings & PFT decline. ILD incr from 38 to 51% in 2yrs…

RheumNow's tweet image. Study of 74 systemic sclerosis pts shows nailfold videocapillaroscopy (capillary disorganization, late pattern changes) predicts ILD progression, worsening PFTs & mRSS in SSc over 2 yrs. KL-6 correlates w/ NVC findings & PFT decline. ILD incr from 38 to 51% in 2yrs…


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Happy #WorldSclerodermaDay 🌻 #SclerodermaAwarenessMonth 'Living with a rare disease without a cure, is most character building that's for sure'. #Research offers #HOPE #SclerodermaFreeWorld #RaynaudsFreeWorld #Research #Scleroderma #SystemicSclerosis #BePartOfResearch #NoCure

cosmicfairy444's tweet image. Happy #WorldSclerodermaDay 🌻
#SclerodermaAwarenessMonth
'Living with a rare disease without a cure, is most character building that's for sure'. #Research offers #HOPE
#SclerodermaFreeWorld #RaynaudsFreeWorld #Research #Scleroderma #SystemicSclerosis #BePartOfResearch #NoCure

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