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SclerodermaM's profile picture. Scleroderma research at the University of Manchester & Salford Royal Hospital. For nailfold capillaroscopy research from our group, check out @McrNCM

SclerodermaSalfordManchester

@SclerodermaM

Scleroderma research at the University of Manchester & Salford Royal Hospital. For nailfold capillaroscopy research from our group, check out @McrNCM

140貼文 199位跟隨者 79個跟隨中
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SclerodermaSalfordManchester 已轉發
cristianasieiro's profile picture.
Cristiana Sieiro Santos
 @cristianasieiro
年10月11日

📢 Participate in the @Worldsclerofnd Very Early Diagnosis of Systemic Sclerosis (VEDOSS) Survey! Your insights will: ✔️ Identify key challenges ✔️ Highlight unmet needs ✔️ Shape future education & research 🔗 it.surveymonkey.com/r/8W59D8N

cristianasieiro's tweet image. 📢 Participate in the @Worldsclerofnd Very Early Diagnosis of Systemic Sclerosis (VEDOSS) Survey! Your insights will: ✔️ Identify key challenges ✔️ Highlight unmet needs ✔️ Shape future education & research 🔗 it.surveymonkey.com/r/8W59D8N
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SclerodermaSalfordManchester 已轉發
scarlettrosep97's profile picture.
Scarlett Prentice
 @scarlettrosep97
年8月1日

So exciting all my fundraising merchandise has arrived, for my first London Marathon 💚 🇬🇧 for @WeAreSRUK Time to make a difference💙 #scleroderma #raynauds donate below or share if you can 🙏🏻 💪🏻 2026tcslondonmarathon.enthuse.com/pf/scarlett-pr…

scarlettrosep97's tweet image. So exciting all my fundraising merchandise has arrived, for my first London Marathon 💚 🇬🇧 for @WeAreSRUK Time to make a difference💙 #scleroderma #raynauds donate below or share if you can 🙏🏻 💪🏻 2026tcslondonmarathon.enthuse.com/pf/scarlett-pr…
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SclerodermaM's profile picture.
SclerodermaSalfordManchester
 @SclerodermaM
年7月16日

Excellent work from our group with help from colleagues in Leeds and Santiago, Chile

NCAresearchNHS's profile picture. Research & Innovation at Northern Care Alliance NHS Foundation Trust-Salford, Oldham, Fairfield, Rochdale. Also at https://t.co/alxEttueS8.
NCA Research NHS
 @NCAresearchNHS
年7月16日

Latest from our experts @ncalliance_nhs @sclerodermaM Thermographic abnormalities associate with electrocardiogram/echocardiographic changes and mortality in systemic sclerosis, suggesting a way forward in detecting cardiac involvement in Ssc academic.oup.com/rheumatology/a…

academic.oup.com

Thermographic abnormalities associate with electrocardiogram/echocardiographic changes and mortal...

AbstractObjectives. Cardiac involvement is common in SSc and is associated with high mortality, yet is challenging to detect. Our aim was to investigate re

來源: academic.oup.com
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SclerodermaM's profile picture.
SclerodermaSalfordManchester
 @SclerodermaM
年6月20日

🚨Patients with systemic sclerosis survey alert 🚨 Questionnaire on ORAL HEALTH 👄 needs of people with systemic sclerosis (on behalf of the SCTC Orofacial in SSc Working Group) docs.google.com/forms/d/e/1FAI… @WeAreSRUK @Worldsclerofnd @EUSTAR_org @delgaldoFrances @alessia_alunno

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SclerodermaSalfordManchester 已轉發
WeAreSRUK's profile picture.
SRUK | Scleroderma & Raynaud's UK
 @WeAreSRUK
年6月11日

Our Head of Research, Ula is at @eular_org in Barcelona, kicking off with powerful insights on ILD, digital ischemia, GI involvement & more in systemic sclerosis. A vital reminder of how far we’ve come and what’s still to come. #EULAR2025 #SystemicSclerosis #Scleroderma

WeAreSRUK's tweet image. Our Head of Research, Ula is at @eular_org in Barcelona, kicking off with powerful insights on ILD, digital ischemia, GI involvement & more in systemic sclerosis. A vital reminder of how far we’ve come and what’s still to come. #EULAR2025 #SystemicSclerosis #Scleroderma
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SclerodermaM's profile picture.
SclerodermaSalfordManchester
 @SclerodermaM
年3月21日

Great to lead hybrid digital ulcer consensus meeting yesterday @OfficialUoM. Expert panel (including remote colleagues in Italy and Australia) discussing and assessing photographs to provide training data for machine learning/AI. @NCAresearchNHS

SclerodermaM's tweet image. Great to lead hybrid digital ulcer consensus meeting yesterday @OfficialUoM. Expert panel (including remote colleagues in Italy and Australia) discussing and assessing photographs to provide training data for machine learning/AI. @NCAresearchNHS
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SclerodermaM's profile picture.
SclerodermaSalfordManchester
 @SclerodermaM
年3月18日

SURVEY! Seeking clinicians perspectives on oral drug treatment for SSc Raynaud's. Important Discrete Choice Experiment on how clinicians choose treatment (Dr Michael Hughes and @sclerodermaUM). survey.1000minds.com/23338/wb9vpmp2… @WeAreSRUK @Worldsclerofnd @EUSTAR_org @alessia_alunno

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SclerodermaSalfordManchester
 @SclerodermaM
年2月26日

Just published in Microvascular Research: "Imaging the microvasculature using nailfold capillaroscopy in patients with Corona virus disease-2019; a cross-sectional study". Free access to our paper until April 17th 2025: authors.elsevier.com/c/1kgO85~Wz6eRV @NCAresearchNHS

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SclerodermaM's profile picture.
SclerodermaSalfordManchester
 @SclerodermaM
年2月26日

JOB ALERT! Our group is recruiting for a part-time (0.5FTE) research assistant to work on an exciting international study of digital ulcers in systemic sclerosis. jobs.manchester.ac.uk/Job/JobDetail?… @WeAreSRUK @VersusArthritis @Worldsclerofnd @EUSTAR_org @NCAresearchNHS

SclerodermaM's tweet card. Research Assistant in '100 DU’ Study:Manchester
Research Assistant in '100 DU’ Study:Manchester
來源: jobs.manchester.ac.uk
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SclerodermaM's profile picture.
SclerodermaSalfordManchester
 @SclerodermaM
年1月13日

NEW SURVEY for patients with systemic sclerosis (scleroderma) on the role of environmental and occupational factors in SSc. soscisurvey.de/OccupationalSS… @WeAreSRUK @Worldsclerofnd @VersusArthritis @alessia_alunno @delgaldoFrances @eular_org @FarrSue01 @NCAresearchNHS @RheumatologyUK

SclerodermaM's tweet image. NEW SURVEY for patients with systemic sclerosis (scleroderma) on the role of environmental and occupational factors in SSc. soscisurvey.de/OccupationalSS… @WeAreSRUK @Worldsclerofnd @VersusArthritis @alessia_alunno @delgaldoFrances @eular_org @FarrSue01 @NCAresearchNHS @RheumatologyUK
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SclerodermaSalfordManchester 已轉發
NCAresearchNHS's profile picture.
NCA Research NHS
 @NCAresearchNHS
年12月30日

National survey explores rheumatologists’ awareness, approaches to diagnosis & management, & training needs within systemic sclerosis Dr Michael Hughes from @salfordco_nhs is the senior author on this @wearesruk survey academic.oup.com/rheumap/articl… @SclerodermaM

NCAresearchNHS's tweet card. AbstractObjectives. Patients’ outcomes and experiences can be affected by rheumatologist knowledge and awareness of systemic sclerosis (SSc). Our survey, d
A Scleroderma and Raynaud’s UK (SRUK) national survey to explore rheumatologists’ awareness,...
來源: academic.oup.com
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SclerodermaSalfordManchester 已轉發
NCAresearchNHS's profile picture.
NCA Research NHS
 @NCAresearchNHS
2024年9月30日

This study particularly needs females aged 52-59 currently - the research appointment @salfordco_nhs only takes an hour and could help to improve care for people with systemic sclerosis (we're looking for people without the condition)

Research_Future's profile picture. Research for the Future is an NHS-supported campaign helping people find out about and take part in health and care #research across north-west England.
Research for the Future
@Research_Future
2024年6月18日

🔵 𝗥𝗲𝗰𝗿𝘂𝗶𝘁𝗶𝗻𝗴 𝗻𝗼𝘄 – MISDOSS Healthy participants aged 40+ years to help develop an imaging system to measure oxygenation in the skin of the hands and better manage people with scleroderma. Message us or visit: researchforthefuture.org/studies/misdoss

Research_Future's tweet image. 🔵 𝗥𝗲𝗰𝗿𝘂𝗶𝘁𝗶𝗻𝗴 𝗻𝗼𝘄 – MISDOSS Healthy participants aged 40+ years to help develop an imaging system to measure oxygenation in the skin of the hands and better manage people with scleroderma. Message us or visit: researchforthefuture.org/studies/misdoss
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SclerodermaSalfordManchester 已轉發
RheumatologyUK's profile picture.
BSR
 @RheumatologyUK
2024年9月12日

🚨 We are delighted to share the newly updated Systemic Sclerosis guideline, published today! Key updates include interstitial lung disease, pulmonary hypertension, and more. Read more: bit.ly/3XnMSHO @WeAreSRUK

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SclerodermaSalfordManchester 已轉發
NCAresearchNHS's profile picture.
NCA Research NHS
 @NCAresearchNHS
2024年9月13日

Great to see this work published - contributors include Drs Nuala O'Donoghue, Michael Hughes & Muditha Samaranayaka from @salfordco_nhs @SclerodermaM. Salford Royal is a referral centre for patients with #SystemicSclerosis & many of our patients have taken part in research.

RheumatologyUK's profile picture. The UK's leading specialist medical society for adult and paediatric #rheumatology and #msk health professionals. Note: we're unable to answer patient queries.
BSR
 @RheumatologyUK
2024年9月12日

🚨 We are delighted to share the newly updated Systemic Sclerosis guideline, published today! Key updates include interstitial lung disease, pulmonary hypertension, and more. Read more: bit.ly/3XnMSHO @WeAreSRUK

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SclerodermaSalfordManchester 已轉發
WeAreSRUK's profile picture.
SRUK | Scleroderma & Raynaud's UK
 @WeAreSRUK
2024年9月12日

Learn more about the role Physiotherapy can play in scleroderma in our brand new webinar. On September the 27th at 12:00, we will be joined by guest speaker Will Gregory, a physiotherapist who will talk about pain management and exercises. Sign up now! bit.ly/3TtaHg3

WeAreSRUK's tweet image. Learn more about the role Physiotherapy can play in scleroderma in our brand new webinar. On September the 27th at 12:00, we will be joined by guest speaker Will Gregory, a physiotherapist who will talk about pain management and exercises. Sign up now! bit.ly/3TtaHg3
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SclerodermaSalfordManchester 已轉發
RGouldingUoM's profile picture.
Dr Rebecca Goulding
 @RGouldingUoM
2024年7月9日

NEW SURVEY: We are looking for current patients of #Rheumatology outpatient departments in the UK NHS/HSC. We want to know what you think about clinic letters and who they are written to. To complete our survey, or for more information, please visit: bit.ly/W2Pptsurvey

RGouldingUoM's tweet image. NEW SURVEY: We are looking for current patients of #Rheumatology outpatient departments in the UK NHS/HSC. We want to know what you think about clinic letters and who they are written to. To complete our survey, or for more information, please visit: bit.ly/W2Pptsurvey
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SclerodermaSalfordManchester 已轉發
WeAreSRUK's profile picture.
SRUK | Scleroderma & Raynaud's UK
 @WeAreSRUK
2024年6月29日

Today is #WorldSclerodermaDay! ✨ As we celebrate resilience and patient empowerment, and transforming #scleroderma care: Let's work together to advocate for innovative models that prioritise patient ownership, foster collaboration and drive positive change! 🤝

WeAreSRUK's tweet image. Today is #WorldSclerodermaDay! ✨ As we celebrate resilience and patient empowerment, and transforming #scleroderma care: Let's work together to advocate for innovative models that prioritise patient ownership, foster collaboration and drive positive change! 🤝
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SclerodermaM's profile picture.
SclerodermaSalfordManchester
 @SclerodermaM
2024年5月15日

We have really enjoyed hosting Dr Masrurul Haque, a Scleroderma Clinical Trials Consortium-funded visiting fellow from Bangladesh at Salford Royal over the last month. We send him home with our best wishes. @NCAresearchNHS @NCAlliance_NHS

SclerodermaM's tweet image. We have really enjoyed hosting Dr Masrurul Haque, a Scleroderma Clinical Trials Consortium-funded visiting fellow from Bangladesh at Salford Royal over the last month. We send him home with our best wishes. @NCAresearchNHS @NCAlliance_NHS
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SclerodermaSalfordManchester 已轉發
Research_Future's profile picture.
Research for the Future
@Research_Future
2024年5月9日

🔵 𝗥𝗲𝗰𝗿𝘂𝗶𝘁𝗶𝗻𝗴 𝗻𝗼𝘄 – MISDOSS Healthy participants aged 40+ years to help develop an imaging system to measure oxygenation in the skin of the hands and better manage people with scleroderma. Message us or visit: researchforthefuture.org/studies/misdoss

Research_Future's tweet image. 🔵 𝗥𝗲𝗰𝗿𝘂𝗶𝘁𝗶𝗻𝗴 𝗻𝗼𝘄 – MISDOSS Healthy participants aged 40+ years to help develop an imaging system to measure oxygenation in the skin of the hands and better manage people with scleroderma. Message us or visit: researchforthefuture.org/studies/misdoss
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SclerodermaM's profile picture.
SclerodermaSalfordManchester
 @SclerodermaM
2024年4月25日

Great to hear the latest in nailfold capillaroscopy from @a_schofie , Dr Clare Pain, and @DinsdaleGraham at the SIG this morning. Special thanks to our patient volunteers for giving up their time for a live capillaroscopy demonstration! @cosmicfairy444 @NCAresearchNHS #bsr24

SclerodermaM's tweet image. Great to hear the latest in nailfold capillaroscopy from @a_schofie , Dr Clare Pain, and @DinsdaleGraham at the SIG this morning. Special thanks to our patient volunteers for giving up their time for a live capillaroscopy demonstration! @cosmicfairy444 @NCAresearchNHS #bsr24
SclerodermaM's tweet image. Great to hear the latest in nailfold capillaroscopy from @a_schofie , Dr Clare Pain, and @DinsdaleGraham at the SIG this morning. Special thanks to our patient volunteers for giving up their time for a live capillaroscopy demonstration! @cosmicfairy444 @NCAresearchNHS #bsr24
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