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Friends, family & strangers, please sign and share this form far and wide. My life depends on funding for #ACTforALS meanwhile I'm #DyingWaiting for #Drugsinbodies #FckALS @clebeaux @asortarican @rmwdmw @KathyKmilagros and many that I'm missing.
Want to help get ACT for ALS fully funded? Then fill out this form. I AM ALS' Legislative Affairs Community Team will then be in touch with you soon! iamals.org/action/help-th…
Now that there is a new FDA Commissioner it is time to move forward on the petition below. While 36K signatures may seem impressive. It is not. We had 50K for AMX0035. Sign. Retweet. Let’s f’ing do this. iamals.org/action/brainst…
Too cute! @clebeaux @camjordan94 @SteveGleason @TeamGleason Who dat?
Betty White’s impact was felt everywhere! Someone sent me this reminder of when she introduced the Saints on a Monday Night Football appearance.
This is how the #LSU coaching search went down, and you can’t convince me otherwise… bring on all the smoke.
Thanks to @SenDuckworth for sponsoring #S1813. #Veterans are grateful for your leadership to give them access to #healthcare stuck in clinical trials. 49 Senators & 330 House members on #ACTforALS. @MilitaryTimes @TaskandPurpose @starsandstripes @chicagotribune @bsw5020
.@SenTedCruz .@JohnCornyn please co-sponsor #S1813. How can you not co-sponsor when your constituents are #DyingWaiting for #Drugsinbodies
“Is there anyone who dares vote no?” @RepAnnaEshoo 326 bipartisan cosponsors in the House 🇺🇸 #ACTforALS 41 senators support S1813. We’re coming for the other 59. It’s not partisan; it’s not political; it’s a human & life issue. If you believe in life then #ALS lives matter
Thank you for all that you, Brian and all that are fighting for us do daily!
.@SenTedCruz please co-sponsor #S1813 - #ACTforALS. We would love to schedule a call with #IamALS patient advocates & your office so that we can explain the importance of the act and the time limitations, (i.e. death), we face.
@SenTedCruz A few years ago you accepted the #ALS Ice Bucket Challenge. I am grateful that you and Heidi both support #ALS research. The time to take action is now. You can make a difference in #ALS research by cosponsoring #S1813, the #ACTforALS youtu.be/i7E0Zcxi_Jc
#S1813 #ACTforALS @JohnCornyn @SenTedCruz won't you please save your constituents lives?
I would like everyone to pray that @senrobportman @SenSherrodBrown decide to save our lives. Pray they cosponsor S1813 ( the ACT for ALS). Pray they urge the FDA to approve NurOwn immediately. Please help us Senators! Day 76 of begging for our lives.
“Hi FOX Sports, welcome to my RV.” @thewilderthings takes you on an exclusive tour through the sanctuaries of @LSUfootball’s most legendary tailgaters 🚌 (Sponsored by @DosEquis #GetADos)
We're #DyingWaiting for #Drugsinbodies #NurOwnWorks #NurOwnNow .@FDACBER .@DrWoodcockFDA @SenTedCruz @JohnCornyn please support S1813 #IamALS
DIED WAITING: Another soul needlessly lost to #ALS because of @US_FDA lack of action. When we say people are #DyingWaiting we are not just chanting random catchy phrases. When is enough enough? @FDACBER @US_FDA approve #NurOwn now! #NoTimeToDie
#TakeAction We need all the support we can get to get our Texas senator's on board!
🔊 CALLING ALL TEXANS AND FLORIDIANS!! Are you in? The race is ON to see which state can build the most Senate support for critical ACT for ALS legislation! Click here to do your part and put your state in the lead! bit.ly/3uDtF69 #TakeAction #ACTforALS #IAMALS
I'm one of those Texans! .@JohnCornyn .@SenTedCruz #S1813 #ACTforALS Thanks @SenDanSullivan for thinking my life matters! #Prolifeincludesadults
Thank you @SenDanSullivan for cosponsoring #S1813 the #ACTforALS. The 30,000 Americans dying from #ALS appreciate your support. @SenTedCruz and @JohnCornyn - #Texans are dying, too. Please add your name to the growing list of cosponsors for #S1813.
Saints officials say the Superdome fire burned longer than it should have because the 911 operator was an NFL referee and he kept missing the call.
Did you know most ALS drugs are developed by small companies that can’t afford expanding access beyond a clinical trial. So patients suffer. #ACTforALS changes that. Join us in making it real. Drop a reply below when you do so we can say thank you. iamals.org/legislation/ac…
.@AHS_Warranty I will not be rude to your call takers. How is 7+ weeks (54 days) an acceptable wait to get a refrigerator repaired/replaced? 2nd refrigerator doesn't matter. Have 2 + freezer for a reason. Waiting on @Sears for ordered parts isn't an acceptable excuse! @clebeaux
I'm fighting so my family doesn't have to add my name to this list. Until then I'm #DyingWaiting to get #Drugsinbodies
This first Sunday of ALS Awareness Month I want to take a moment to remember those we’ve lost to ALS. The mothers, fathers, sons, daughters, grandparents, family and friends whose stories drive many of you to fight. Share their name and something about them👇. #WeFightForThem
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