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Thank you Christine, I didn't know about this, but it's no surprise. Project 2025 is all about the govt. controlling our lives, bodies and choices. We should respect people with #ALS and stand for their personal choices.
If you have #ALS or another terminal illness, please read page 482 of Project 2025. It states legalizing physician assisted suicide (their term for Death with Dignity) is a grave mistake that endangers the weak and vulnerable. They say it betrays human dignity. 🧵
Karla Ortiz describes the reality of genAI theft and exploitation so well. Please read her post and stand with human artists. #createdontscrape #justdrawit #noAI @kortizart @POTUS @VP @Tim_Walz
Wanted to share thoughts on Youtube Art drama I saw these few weeks, especially as my name and thoughts were brought up a bit! 🫣🥴 Tl;dr: I don’t wish ill on anyone. I think folks with a platform should use it for good. Let’s fight for our rights & livelihoods! Solidarity! 🙌
Another day, another heartbreaking #ALS loss, another family crushed. Neurologists, what are you doing to CURE this terminal illness? Why are paralyzed people who can't talk or write fighting red tape alone using eye gaze? @MinoShah @AANmember #nurown
Johnny was only 13 years old when #ALS stole his life. Because ALS has no cure, no treatment, never will Johnny go to high school, drive a car, dance at prom, attend college, have a job, a family, kids or a wife. The tragedy of juvenile ALS is shattering. This fight that we…
Hi @MinoShah, thank you for sharing your process w/ eye gaze. This is very helpful. We did not have this tech 20 years ago when my dad was struggling and we thought a cure was around the corner. Hard to believe we STILL don't have one! @AANmember pls fight for your #ALS patients!
Here is the ALS mass email campaign instructional video that I did with eye gaze. With working hands, it would be extremely quick. If you choose not to participate, be comfortable with the fact that ALS is forgotten at the FDA & Congress and NOTHING is being done to fight for…
Hi Steve, thank you for sharing this video to let people with #ALS know what equipment is available to help them. Also thank you for the glimpse into your daily life so more people can understand the unique struggles of this disease. We need a cure!
As ALS Awareness Month comes to a close, I’m sharing another video to give you a glimpse of life with the disease. This one is a shootout to the Ontario Ventilator Equipment Pool, which helps keep me alive. The vital service is run by Kingston Health Sciences Centre.
Hi Karla, thank you for taking the time to put this thread together. It's one of the sharpest answers to OpenAI's thief engine yet! @miramurati exhibits zero understanding of art or the work of artists. It's clear their intent is to displace artists. @digelsrud @JonLamArt @POTUS
1/ I did not expected OpenAi’s CTO to somehow make a worse statement than that of last week but I was wrong. The statement below is steeped in arrogance, embarrassing talking points, contradictions and above all, a deep misunderstanding of the creative journey and its ecosystem
Could this treatment lead to a breakthrough for Alzheimer's, Parkinson's and #ALS? Irvine biotech company gets green light from FDA to continue promising treatment. @MinoShah @HaterAls @als_now @iamalsorg @ScottsFight youtu.be/Dk05Zcfs_PY?si…
youtube.com
YouTube
Santa Ana biotech company gets green light from FDA to continue...
and a liar! Artists, designers & storytellers are the LAST people who need tech to replace them w/ their own stolen work. "we worked closely w/ artists, designers, and storytellers, trying to build a tool that fits into their creative process & helps bring their visions to life."
Right, millions of jobs are already lost! I'm sorry you are one of them.☹️ Who will pay federal and state taxes next year? Not unemployed ex-workers, and certainly not the AI that took their jobs... @POTUS @VP @linakhanFTC
LENGTHY MY ASS!!!! Devs been LAID OFF RIGHT NOW 2023 ACTUALLY...my last job, UBISOFT. soooooo uuuuh why are ppl trying to say this is some FUTURE hurt...it happened to almost 10000 game devs last year alone. God ppl pissing me off.
This generative model era is just full of extremely wealthy corporations, stealing tons of data, compressing it into statistical models, stamping "intelligence" on it then shoving it down everyone's throat that never asked for such always-on-spyware-like software baked in the OS.
It’s personal, powerful, and private—and it’s integrated into the apps you rely on every day. Introducing Apple Intelligence—our next chapter in AI. apple.com/newsroom/2024/…
I spent tens of thousands of dollars paying photographers, studios, models, makeup artists, costume designers, prop makers, and assistants to create our Stock assets. I loved this work and invested everything I could give. Adobe used their ToS to scrape my IP, and gave it to…
Hi Scott, I'm glad your team respects your choices. It's so important! I hope they will continue asking you what you want even if communication gets more difficult in the future. Whatever you choose is best for you!
Big pulmonary appointment today. I contiue to hold the trache/no trache debate in my head, as well as with my people. All of them have now decided to support whatever choice I choose. A far different situation than 6 months ago. The only one left on the fence is me. #ALS
Thank you very much for honoring our loved ones with #ALS. I submitted my father's information for a flag... Are there any pictures of the individual flags or confirmation he was included? I didn't get anything after the data chart update email. How long will they be displayed?
We are here on the mall and the flag display is in the ground!! Thank you so much to all the volunteers who braved both sun and a little rain to help us out! #ALSinDC
So in other words, @Meta won't allow you to opt-out until AFTER they abuse you? @kyletwebster @anninosj
Meta's opt-out option is a piece of (abusive) performance art. The company puts you through a ridiculous maze of confusion to even arrive at the op-out request form, wasting your time, and then if you actually submit successfully, they reject the request.
You nailed it @JonLamArt , as usual! 💯
The Promise of Ai, we’ll steal your life’s work and gaslight you, we’re bleeding finances, to gain a monopoly, we’ll spew out false facts, destroy the internet and the environment. We’re unprofitable, but let’s ask AGI…someday. Fuck UBI, howbout Universal Basic Compute?
Thanks so much @ConanOBrien ! #ALS community desperately needs research for treatment (no cures yet), funding for care of patients and support for families. Thank you ALS Therapy Devt. Inst. Best wishes to Maria & Jules. <3
Join me in battling #ALS by donating to the ALS Therapy Development Institute: als.net/donate. If you're unable to donate, spreading the word also helps - use the hashtag #ALS to help raise awareness and support the cause. Big shout out and much love to Maria and Jules!
Tears for another beautiful family who lost a brave parent due to #ALS w/no treatment or cure. #FDA denied people w/ #RealWorldEvidence of #Nurown efficacy to speak at Adcomm hearing. Biased @US_FDA won't help #pALS. @AdamSchiff paralyzed patients can't fight city hall, pls help!
The CORRUPT @US_FDA starting with Big Pharma shill @DrCaliff_FDA & Peter Marks of the @FDACBER have a tremendous amount of #ALS blood on their hands There is NO ACCOUNTABILITY when they deny approval of an undeniably effective small biotech company ALS treatment called #Nurown,…
Where are the neurologists fighting for paralyzed #ALS patients' access to treatments that work? Seriously, start doing something that will HELP. 🧐 #Nurown proven results.
I now have heard of two neurologists who actually founded the #ALS Centers in their academic institutions only to be diagnosed & die of ALS years later Richard Olney, M.D. of UCSF & Arthur Hudson, M.D. of Western University I ask that @AANmember retract the SHAMEFUL letter that…
This is great Tom! Everybody - please bring help to people with #ALS by filling in this call to action.
I made this Call To Action website that notifies our representatives of the infractions that occurred during the #NurOwn AdComm. It’s an easy form to fill out that emails your member of Congress and both senators & gives you further info to contact them. justiceforals.com
This is SO frustrating. People with #ALS need new fierce advocates who have pull in government. Dying, paralyzed patients and their families with PTSD can't do it. We don't have the medical knowledge or political understanding to make a change. #ALSA is not working for us!
My sadness & anger at the politics in #ALS that made neurologists, orgs, & fake "ALS advocates" like @alsadvocacy show up in full support of Amylyx, which had NOT EVEN 1 patient-reported outcome that rivaled the MANY with #Nurown. If you went silent or are healthy & actively…
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