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NDPHaware.org (New Daily Persistent Headache)

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NDPHaware.org (New Daily Persistent Headache) reposted

As proud members of the @AHDAorg we are participating in the 18th Annual #HeadacheOnTheHill on March 17th & 18th. Together we’ll advocate for equitable policies for those impacted by #headachedisorders. Apply by Dec. 15th at qrco.de/hoh2025 #HOH2025

Cluster_buster's tweet image. As proud members of the @AHDAorg we are participating in the 18th Annual #HeadacheOnTheHill on March 17th & 18th. Together we’ll advocate for equitable policies for those impacted by #headachedisorders. Apply by Dec. 15th at qrco.de/hoh2025
#HOH2025

NDPHaware.org (New Daily Persistent Headache) reposted

🎉 Applications are OPEN for Headache on the Hill 2025! Join us in DC on March 17-18 to advocate for better headache & migraine care. No experience needed! 🚨 State Captain apps due by Nov 30th. All other applications due Dec 15th. Apply here 👉 forms.allianceforheadacheadvocacy.org/a/hoh2025 #HOH2025

AHDAorg's tweet image. 🎉 Applications are OPEN for Headache on the Hill 2025! Join us in DC on March 17-18 to advocate for better headache & migraine care. No experience needed! 🚨 State Captain apps due by Nov 30th. All other applications due Dec 15th.

Apply here 👉 forms.allianceforheadacheadvocacy.org/a/hoh2025

#HOH2025

NDPHaware.org (New Daily Persistent Headache) reposted

The Psychedelics & Pain Symposium will be recorded and available for replay for both the FREE Day 1 attendees and the Sliding Scale Day 2 of Professional content.


NDPHaware.org (New Daily Persistent Headache) reposted

Hosted by REMAP | Psychedelics & Pain Association, the Symposium elevates the body of knowledge in psychedelics for pain, neurodegeneration, and physical conditions. Day 1 is FREE to all, Day 2 is for advanced learning and is offered on a sliding scale. symposium2025.planningpod.com

REMAPTherapy's tweet image. Hosted by REMAP | Psychedelics & Pain Association, the Symposium elevates the body of knowledge in psychedelics for pain, neurodegeneration, and physical conditions. Day 1 is FREE to all, Day 2 is for advanced learning and is offered on a sliding scale. symposium2025.planningpod.com

NDPHaware.org (New Daily Persistent Headache) reposted

Joe McKay @Cluster_buster & Court Wing @REMAPTherapy share their own stories of using psychedelics to treat chronic pain @PAINWEEK in their new psychedelic track. Sept 3-6 in Las Vegas, CME credit offered. Use code “PPA200” to get $200 off registration. painweek.org/conferences/pa…

REMAPTherapy's tweet image. Joe McKay @Cluster_buster & Court Wing @REMAPTherapy share their own stories of using psychedelics to treat chronic pain @PAINWEEK in their new psychedelic track.  Sept 3-6 in Las Vegas, CME credit offered. Use code “PPA200” to get $200 off registration. painweek.org/conferences/pa…

NDPHaware.org (New Daily Persistent Headache) reposted

This coming week: CB’ Board Member Joe McKay is sharing his personal story of using psychedelics to treat his cluster headache @PAINWeek in their new psychedelic track. Sept 3-6, Las Vegas. CME credit offered. Use code “PPA200” for $200 off registration. painweek.org/conferences/pa…

Cluster_buster's tweet image. This coming week: CB’ Board Member Joe McKay is sharing his personal story of using psychedelics to treat his cluster headache @PAINWeek in their new psychedelic track.  Sept 3-6, Las Vegas. CME credit offered. Use code “PPA200” for $200 off registration. painweek.org/conferences/pa…

NDPHaware.org (New Daily Persistent Headache) reposted

New article from our Policy Director on how psychedelics can help clusterheads and many other people living with chronic pain conditions: Can Psychedelics Be a New Option for Pain Management? painnewsnetwork.org/stories/2024/8…


NDPHaware.org (New Daily Persistent Headache) reposted

The Clusterbusters family cordially invites you to the wedding of Rhonda Card & Dan Pace at the 2024 Clusterbusters Conference on Saturday, September 14, 6:00 pm at the conferece hotel. Woodstock Themed Reception to follow. More info & registration! cbrosemont2024.planningpod.com

Cluster_buster's tweet image. The Clusterbusters family cordially invites you to the wedding of Rhonda Card & Dan Pace at the 2024 Clusterbusters Conference on Saturday, September 14, 6:00 pm at the conferece hotel. Woodstock Themed Reception to follow.

More info & registration!
cbrosemont2024.planningpod.com

NDPHaware.org (New Daily Persistent Headache) reposted

This life-changing event is virtual this year and 100% free. Register today to empower your patient voice! #RetreatMigraine #EmpowerYourPatientVoice #RM24 headachemigraine.org/retreatmigraine

CoalitionCHAMP's tweet image. This life-changing event is virtual this year and 100% free. Register today to empower your patient voice!
#RetreatMigraine #EmpowerYourPatientVoice #RM24
headachemigraine.org/retreatmigraine

Celebrating NDPHaware’s 2 year Anniversary It's been an interesting and exciting 2 years. Since starting NDPHaware, we have much to celebrate and be proud of. We need your support to continue our advocacy. ndphaware.org/donate/ ndphaware.org/survey/ ndphaware.org/newsletters/

ndphaware.org

Newsletters - NDPHaware

Newsletters - NDPHaware


NDPHaware.org (New Daily Persistent Headache) reposted

African Americans bear the brunt of existing healthcare challenges, especially when related to headache diseases. CHAMP has gathered resources for the black community in hopes that it helps on your headache journey: headachemigraine.org/black-resources #MHAM #MythTruthAction #Juneteenth


The presentation on the NDPH Patient Experience Survey at the American Headache Society Scientific Meeting this past weekend went great. Here is a copy of the presentation. Remember, this is an initial look at the data. drive.google.com/file/d/1054wuL…


NDPHaware.org (New Daily Persistent Headache) reposted

MYTH: Children don't have migraine. TRUTH: More than 13 MILLION youth in the U.S. are living with migraine. Let’s reduce migraine stigma in a single generation! #MHAM #MHAM2024 #MythTruthAction #migraineawareness #pediatricmigraine #pediatricneurology


NDPHaware.org (New Daily Persistent Headache) reposted

Jamie wants teachers and educators to know that kids and teens have #migraine too. She is going to debunk this myth during #MHAM by educating teachers. Thank you Jamie for spreading the truth! #MythvsTruth #MythVsFact

amfmigraine's tweet image. Jamie wants teachers and educators to know that kids and teens have #migraine too. She is going to debunk this myth during #MHAM by educating teachers. Thank you Jamie for spreading the truth!

#MythvsTruth #MythVsFact

NDPHaware.org (New Daily Persistent Headache) reposted

Get your copy of Psychedelic Outlaws today! Joanna Kempner, PhD tells how people debilitated by excruciating pain made their own medicine from home-grown psilocybin mushrooms. This book will resonate with anyone who battles pain & a broken medical system. tinyurl.com/yx4mn4pc

Cluster_buster's tweet image. Get your copy of Psychedelic Outlaws today! Joanna Kempner, PhD tells how people debilitated by excruciating pain made their own medicine from home-grown psilocybin mushrooms. This book will resonate with anyone who battles pain & a broken medical system.
tinyurl.com/yx4mn4pc

NDPHaware.org (New Daily Persistent Headache) reposted

🌟 June is Migraine and Headache Awareness Month! Help us raise awareness by contacting your local government to declare June as Migraine and Headache Awareness Month. Use our #MHAM Proclamation toolkit and make a difference today. docs.google.com/document/d/1ek…

AHDAorg's tweet image. 🌟 June is Migraine and Headache Awareness Month! Help us raise awareness by contacting your local government to declare June as Migraine and Headache Awareness Month. Use our #MHAM Proclamation toolkit and make a difference today. docs.google.com/document/d/1ek…

If you're going to the AHS conference. Please attend this presentation on Saturday, June 15th 11:45 AM - 11:55 AM Grand Ballroom 10-12 'Onset, characteristics, treatments, and burden of New Daily Persistent Headache: Initial data from the NDPH Patient Experience Survey'


NDPHaware.org (New Daily Persistent Headache) reposted

Join CB & @CoalitionCHAMP during June for #MHAM! The theme is #MythTruthAction. Let's tell the truth about headache diseases & steer people to different ways they can take action to improve the lives of people living with these illnesses. Get involved: migraineheadacheawarenessmonth.org

Cluster_buster's tweet image. Join CB & @CoalitionCHAMP during June for #MHAM! The theme is #MythTruthAction. Let's tell the truth about headache diseases & steer people to different ways they can take action to improve the lives of people living with these illnesses. Get involved: migraineheadacheawarenessmonth.org

NDPHaware.org (New Daily Persistent Headache) reposted

We kick off #MHAM by recognizing Headache & Migraine at Work Day to raise awareness for the need for employer accommodations for people living and working with headache diseases, such as migraine. Annually, more than 157million workdays are lost in the United States to migraine.


NDPHaware.org (New Daily Persistent Headache) reposted

June 1 begins #MHAM! The theme is #MythTruthAction. Let's tell the truth about headache diseases and steer people toward different ways that they can take action to improve the lives of people living with these illnesses. How to get involved: MigraineHeadacheAwarenessMonth.org

CoalitionCHAMP's tweet image. June 1 begins #MHAM! The theme is #MythTruthAction. Let's tell the truth about headache diseases and steer people toward different ways that they can take action to improve the lives of people living with these illnesses. How to get involved: MigraineHeadacheAwarenessMonth.org

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