thoughtsofelamarie
@thoughtsofelam1
Disability Advocate, RSD/CRPS Patient, Lover of All Animals, Devil's Advocate, Always Opinionated, Not Always Right, Youngest of 8, Aunt to Many
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This is super important! Anyone effected needs to respond. #ChronicPain #chronicillness #DisabilityTwitter #CRPS
Updated #CDC Guidelines. How to comment and suggestions about what to say: thedoctorpatientforum.com/resources/arti… Info from @life_is_art___ @CMerandi and @ibdgirl76…❥ #chronicpain #opioids #opioidhysteria #cpp
“False ideas about #opioids will do even more harm to pain #patients—a group that has suffered more than any of us could imagine… We do not have an #opioidcrisis, we have an illegal drug crisis.” More Anti-Opioid Tripe… buff.ly/3JeR1Fg #opioidhysteria #cpp
“While you may have never heard of my #RareDisease, do not doubt its magnitude. The truth is, anyone living with a disease is facing adversity and we should all be recognised for our raging courage and strength—even if we don’t always feel strong.” buff.ly/31TIEio #CRPS
#ChronicPain #spoonie #Spoonies #pain #opioidcrisis I was knocked out of the saddle by NC medical board, no patient care charges. They were told I was dangerous. I am back in the saddle! Please watch the 4 min tweet and retweet like mad! Be heard! youtu.be/iGjKHrD1OW0
“Although #opioid prescribing has fallen significantly…overdoses have risen to record highs. The vast majority involve illicit fentanyl and other street drugs, not prescription #opioids.” Judge Finds ‘No Evidence’ #Pain Relievers Caused #OpioidCrisis buff.ly/3yFdOG9 #cpp
“#OpioidEpidemic is outdated…inaccurate… Most people will automatically think "pills." But pills are a minor contributor; it is illegal street drugs—esp. illicit fentanyl—that’s (by far) driving the surge in overdoses…#Pain #patients suffer needlessly.” buff.ly/3yHc2nV
“This false narrative is parroted by a lazy, compliant media, so that people—even medical professionals—still wrongly believe that the so-called #opioidepidemic is a direct result of a lax prescription practice. This is demonstrably false.” buff.ly/3lX18VV #opioidhysteria
”These charts demonstrate that over-prescribing did not cause—and is not sustaining—our ‘#opioidepidemic’ but the CDC has actively refused to publish this data together in one place to allow an assessment of the implications.” buff.ly/3D8qPcJ #opioidhysteria #opioids #cpp
“‘#Opioids are the only treatment that allows me a life.’ The #CDC study adds to a growing body of evidence that the controversial opioid guideline has been ineffective and misdirected… Many pain #patients now live with untreated or poorly treated #pain.” buff.ly/3BCzzq9
“AMA called for CDC to remove arbitrary limits on opioid prescribing given the lack of evidence that these have improved outcomes… Rather they have increased stigma for #patients with #pain & resulted in legitimate pain care being denied.” buff.ly/3GjdHDv #opioidhysteria
Say it from the rooftops!
“It is #pain specialists who should develop treatment guidelines for treating pain… Government officials—even if they have medical degrees—should not be making treatment decisions or creating guidelines for #specialists and their #patients.” buff.ly/3vCI5CE #opioids #cpp
“The effects on my physical, #mentalhealth and #qualityoflife have been devastating… These CDC guidelines are destroying the lives of #chronicpain #patients! We are losing quality of life and the ability to function.” buff.ly/3lOBO4L @PainNewsNetwork #opioidhysteria #cpp
“‘#Opioids are the only treatment that allows me a life.’ The #CDC study adds to a growing body of evidence that the controversial opioid guideline has been ineffective and misdirected… Many pain #patients now live with untreated or poorly treated #pain.” buff.ly/3Fvn82s
“It isn’t easy to love a body that holds you back. I had so many dreams and aspirations… Being unable to do very much by myself, leaves me feeling incredibly unproductive and worthless. I feel trapped in the prison of my body.” buff.ly/3flCjQg @serenebutterfly #spoonie
It's so important to understand that the opiate overdose crisis is caused by illegal drugs not by legally prescribed medication. #ChronicPain #CRPS #opioidcrisis
“Researchers concluded that, for over a decade, “millions of Americans” were “misled” by the #CDC, politicians and the media to believe that the drug overdose crisis was driven by deaths caused by prescription #opioids.” buff.ly/3zLbehK #opioidhysteria #cpp
I have never been "high"! I just want enough pain relief to be able to have some semblance of a life. Is that too much to ask? #DisabilityTwitter #ChronicPain
“Like most people who are in severe, constant pain, I have never gotten a “high” feeling from my medication… To us, they are vital treatments for a gravely serious disease…pain medication is a lifesaving treatment. Period.” buff.ly/3zQcNKL #opioidhysteria #chronicpain
“CDC claimed that #opioid analgesics are not effective in managing long-term #pain. This is an obvious, outright lie… If the shortage of long-term trials data for #opioids was a concern…it should also have been a concern for non-opioid [treatment].” buff.ly/3gFFlPM #cpp
Exactly! So much faking but not faking sick, faking being ok or "normal".
“We do not fake being sick…We fake being well. We put on our social masks and smile through our struggling to make others feel comfortable… We are desperate to be a part of the world and feel some semblance of normalcy—even for a brief respite.” buff.ly/2RUjew4 #spoonie
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