#clcn4awarenessweek 搜尋結果
🌟 Kick off the first CLCN4 Awareness Week with us! 🗓️ Throughout this week, we'll be sharing key facts about the condition, uplifting patient stories, and the impactful work of our charity, Cure CLCN4! #cureclcn4 #clcn4awarenessweek
CLCN4-NDC is rare—only about 200 diagnosed worldwide, but many remain undetected due to low awareness and limited genetic testing. Let's boost awareness and research to improve diagnosis and treatments. Together, we can make a difference. 💙 #cureclcn4 #clcn4awarenessweek
Join Gina Tan as she shares the journey & inspiration behind the founding of Cure CLCN4 and how we're striving to make a difference ✨ #cureclcn4 #clcn4awarenessweek #ourstory
Today we celebrate some of Cure CLCN4's milestones! From the generation of research tools and the award of our first research grant 🔬, to uniting families 💜 and connecting scientists 🤝 through events, we're building a strong community. 🔊 Sound ON! #clcn4awarenessweek
No two people with #CLCN4 are alike—even in the same family, symptoms can vary widely. Common issues include developmental delays, intellectual disabilities, seizures, behavioural challenges, and speech/language difficulties #cureclcn4 #clcn4awarenessweek
🎯 Our Goals at Cure CLCN4: Raise Awareness, Support Families, & Propel Scientific Research! 💪💡🔬 Sound on 🔊 To learn more please visit: cureclcn4.org #cureclcn4 #clcn4awarenessweek
💛 It's #CLCN4AwarenessWeek! We're grateful to our friends at @CureCLCN4 for their partnership. 🌟 Thanks to their support, we have 48 participants with CLCN4-related syndrome in #SimonsSearchlight. 🧬 Explore resources, gene guides, and research at bit.ly/CLCN4Report.
🧬💛 We’re proud to join @CureCLCN4 in celebrating #CLCN4AwarenessWeek! Thanks to their support, 61 individuals with CLCN4-related syndrome are part of the #SimonsSearchlight community. 🔗 bit.ly/CLCN4Report #CLCN4 #RareDiseaseResearch #CareForRare
🌟 One of the biggest ways you can make a difference is by setting up a recurring monthly donation. Setting it up is easy – just click on the donate button on the following link, enter your desired amount & select 'Monthly' 👉 cureclcn4.org/donate/ 💜 #clcn4awarenessweek
Teegan, born in 1986, lived years undiagnosed but pursued her dreams relentlessly. From a local café job to a special needs college, she blazed her trail. Now, she lives independently with her dog, Fudge, inspiring many. Read more: cureclcn4.org/meet-teegan/💙#clcn4awarenessweek
There are many ways you can make a difference, for example, by donating, fundraising, or helping raise awareness of CLCN4-related condition. Every effort counts. 💜 Ready to help? Learn more and donate here: cureclcn4.org/donate/ #clcn4awarenessweek #cureclcn4
🧬💛 We’re proud to join @CureCLCN4 in celebrating #CLCN4AwarenessWeek! Thanks to their support, 61 individuals with CLCN4-related syndrome are part of the #SimonsSearchlight community. 🔗 bit.ly/CLCN4Report #CLCN4 #RareDiseaseResearch #CareForRare
🌟 One of the biggest ways you can make a difference is by setting up a recurring monthly donation. Setting it up is easy – just click on the donate button on the following link, enter your desired amount & select 'Monthly' 👉 cureclcn4.org/donate/ 💜 #clcn4awarenessweek
There are many ways you can make a difference, for example, by donating, fundraising, or helping raise awareness of CLCN4-related condition. Every effort counts. 💜 Ready to help? Learn more and donate here: cureclcn4.org/donate/ #clcn4awarenessweek #cureclcn4
Today we celebrate some of Cure CLCN4's milestones! From the generation of research tools and the award of our first research grant 🔬, to uniting families 💜 and connecting scientists 🤝 through events, we're building a strong community. 🔊 Sound ON! #clcn4awarenessweek
🎯 Our Goals at Cure CLCN4: Raise Awareness, Support Families, & Propel Scientific Research! 💪💡🔬 Sound on 🔊 To learn more please visit: cureclcn4.org #cureclcn4 #clcn4awarenessweek
Teegan, born in 1986, lived years undiagnosed but pursued her dreams relentlessly. From a local café job to a special needs college, she blazed her trail. Now, she lives independently with her dog, Fudge, inspiring many. Read more: cureclcn4.org/meet-teegan/💙#clcn4awarenessweek
Join Gina Tan as she shares the journey & inspiration behind the founding of Cure CLCN4 and how we're striving to make a difference ✨ #cureclcn4 #clcn4awarenessweek #ourstory
CLCN4-NDC is rare—only about 200 diagnosed worldwide, but many remain undetected due to low awareness and limited genetic testing. Let's boost awareness and research to improve diagnosis and treatments. Together, we can make a difference. 💙 #cureclcn4 #clcn4awarenessweek
💛 It's #CLCN4AwarenessWeek! We're grateful to our friends at @CureCLCN4 for their partnership. 🌟 Thanks to their support, we have 48 participants with CLCN4-related syndrome in #SimonsSearchlight. 🧬 Explore resources, gene guides, and research at bit.ly/CLCN4Report.
No two people with #CLCN4 are alike—even in the same family, symptoms can vary widely. Common issues include developmental delays, intellectual disabilities, seizures, behavioural challenges, and speech/language difficulties #cureclcn4 #clcn4awarenessweek
🌟 Kick off the first CLCN4 Awareness Week with us! 🗓️ Throughout this week, we'll be sharing key facts about the condition, uplifting patient stories, and the impactful work of our charity, Cure CLCN4! #cureclcn4 #clcn4awarenessweek
🌟 Kick off the first CLCN4 Awareness Week with us! 🗓️ Throughout this week, we'll be sharing key facts about the condition, uplifting patient stories, and the impactful work of our charity, Cure CLCN4! #cureclcn4 #clcn4awarenessweek
💛 It's #CLCN4AwarenessWeek! We're grateful to our friends at @CureCLCN4 for their partnership. 🌟 Thanks to their support, we have 48 participants with CLCN4-related syndrome in #SimonsSearchlight. 🧬 Explore resources, gene guides, and research at bit.ly/CLCN4Report.
No two people with #CLCN4 are alike—even in the same family, symptoms can vary widely. Common issues include developmental delays, intellectual disabilities, seizures, behavioural challenges, and speech/language difficulties #cureclcn4 #clcn4awarenessweek
🧬💛 We’re proud to join @CureCLCN4 in celebrating #CLCN4AwarenessWeek! Thanks to their support, 61 individuals with CLCN4-related syndrome are part of the #SimonsSearchlight community. 🔗 bit.ly/CLCN4Report #CLCN4 #RareDiseaseResearch #CareForRare
CLCN4-NDC is rare—only about 200 diagnosed worldwide, but many remain undetected due to low awareness and limited genetic testing. Let's boost awareness and research to improve diagnosis and treatments. Together, we can make a difference. 💙 #cureclcn4 #clcn4awarenessweek
🌟 One of the biggest ways you can make a difference is by setting up a recurring monthly donation. Setting it up is easy – just click on the donate button on the following link, enter your desired amount & select 'Monthly' 👉 cureclcn4.org/donate/ 💜 #clcn4awarenessweek
Teegan, born in 1986, lived years undiagnosed but pursued her dreams relentlessly. From a local café job to a special needs college, she blazed her trail. Now, she lives independently with her dog, Fudge, inspiring many. Read more: cureclcn4.org/meet-teegan/💙#clcn4awarenessweek
There are many ways you can make a difference, for example, by donating, fundraising, or helping raise awareness of CLCN4-related condition. Every effort counts. 💜 Ready to help? Learn more and donate here: cureclcn4.org/donate/ #clcn4awarenessweek #cureclcn4
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