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💡 Did you know there is a specific #EuropeanReferenceNetwork for rare 𝗻𝗲𝘂𝗿𝗼𝗺𝘂𝘀𝗰𝘂𝗹𝗮𝗿 𝗱𝗶𝘀𝗼𝗿𝗱𝗲𝗿𝘀? @euro_nmd is a network of healthcare centres that works to boost research and improve the standards of care for these pathologies 👉 share4rare.org/news/euro-nmd-…

Share4Rare's tweet image. 💡 Did you know there is a specific #EuropeanReferenceNetwork for rare 𝗻𝗲𝘂𝗿𝗼𝗺𝘂𝘀𝗰𝘂𝗹𝗮𝗿 𝗱𝗶𝘀𝗼𝗿𝗱𝗲𝗿𝘀?

@euro_nmd is a network of healthcare centres that works to boost research and improve the standards of care for these pathologies 👉 share4rare.org/news/euro-nmd-…

Opening of the #EndoGA2024 of @RareEndoERN, the largest #EuropeanReferenceNetwork, by @AlbertoMPereir1 and Olaf Hiort in Milano, Italy : two days of conferences, updates and meetings - glad to represent France !

FIRENDOFrance's tweet image. Opening of the #EndoGA2024 of @RareEndoERN, the largest #EuropeanReferenceNetwork, by @AlbertoMPereir1 and Olaf Hiort in Milano, Italy : two days of conferences, updates and meetings - glad to represent France !

🌐 It's #SaferInternetDay! Did you know the #EuropeanReferenceNetwork's secure Clinical Patient Management System is revolutionising patient care in the EU? 🚀 Read more here: eurogen-ern.eu/what-we-do/vir… #RareDisease #UroSoMe #SoMe4PedSurg #PedUro #FPMRS #UroOnc

ERN_eUROGEN's tweet image. 🌐 It's #SaferInternetDay! Did you know the #EuropeanReferenceNetwork's secure Clinical Patient Management System is revolutionising patient care in the EU? 🚀 Read more here: eurogen-ern.eu/what-we-do/vir…
#RareDisease #UroSoMe #SoMe4PedSurg #PedUro #FPMRS #UroOnc

New #ERNsOnAir! In this episode, @BarbaraBrunmair of @SIOPEurope discusses techniques her #EuropeanReferenceNetwork has employed to fast-track patients to vital, virtual, specialist advice. Listen now! 🎧 go.eurordis.org/0AhtQC


As soon as I heard your #europeanreferencenetwork was @ERNIthaca I had to find you this from actual Ithaca!

rachsail's tweet image. As soon as I heard your #europeanreferencenetwork was @ERNIthaca I had to find you this from actual Ithaca!

Great opportunity to join a #EuropeanReferenceNetwork as #ProjectManager ! More info below 👇

📢#WeAreHiring ‼️ ERN EURO-NMD is looking for a : 👉 Project Manager (M/F)👈 🫂Come and work with a great team in the heart of an amazing European capital city ! APPLY NOW ! 📲👉ern-euro-nmd.eu/job-vacancies/

euro_nmd's tweet image. 📢#WeAreHiring ‼️
ERN EURO-NMD is looking for a :
👉 Project Manager (M/F)👈
🫂Come and work with a great team in the heart of an amazing European capital city !

APPLY NOW ! 📲👉ern-euro-nmd.eu/job-vacancies/


Victoria Hedley presented an importance and role of #EuropeanReferenceNetwork in the future research activities. "It's necessary to cooperate with industry, however, there are still obstacle to this cooperation." #HealthOfEurope

david_kolar_cz's tweet image. Victoria Hedley presented an importance and role of #EuropeanReferenceNetwork in the future research activities. "It's necessary to cooperate with industry, however, there are still obstacle to this cooperation." #HealthOfEurope

Prof. Milan Macek @FnMotol introduced the #EuropeanReferenceNetwork. It is necessary to support further development of #EuropeanReferenceNetwork to bring the value for both patients and healthcare professionals #HealthOfEurope

david_kolar_cz's tweet image. Prof. Milan Macek @FnMotol introduced the #EuropeanReferenceNetwork. It is necessary to support further development of #EuropeanReferenceNetwork to bring the value for both patients and healthcare professionals #HealthOfEurope

📢 ERN-EuroBloodNet Co-coordinator Béatrice Gulbis is present at the 17th meeting of the #EuropeanReferenceNetwork coordinators with the @EU_Commission and representants of the 24th #ERN! ➡️The achievements & challenges of the #ERNeu actions are being discussed. #RareDiseases

ERNEuroBloodNet's tweet image. 📢 ERN-EuroBloodNet Co-coordinator Béatrice Gulbis is present at the 17th meeting of the #EuropeanReferenceNetwork coordinators with the @EU_Commission and representants of the 24th #ERN! 
➡️The achievements & challenges of the #ERNeu actions are being discussed.
 #RareDiseases
ERNEuroBloodNet's tweet image. 📢 ERN-EuroBloodNet Co-coordinator Béatrice Gulbis is present at the 17th meeting of the #EuropeanReferenceNetwork coordinators with the @EU_Commission and representants of the 24th #ERN! 
➡️The achievements & challenges of the #ERNeu actions are being discussed.
 #RareDiseases
ERNEuroBloodNet's tweet image. 📢 ERN-EuroBloodNet Co-coordinator Béatrice Gulbis is present at the 17th meeting of the #EuropeanReferenceNetwork coordinators with the @EU_Commission and representants of the 24th #ERN! 
➡️The achievements & challenges of the #ERNeu actions are being discussed.
 #RareDiseases
ERNEuroBloodNet's tweet image. 📢 ERN-EuroBloodNet Co-coordinator Béatrice Gulbis is present at the 17th meeting of the #EuropeanReferenceNetwork coordinators with the @EU_Commission and representants of the 24th #ERN! 
➡️The achievements & challenges of the #ERNeu actions are being discussed.
 #RareDiseases

📢Live from Brussels The 17th meeting of the #EuropeanReferenceNetwork coordinators with the European Commission is underway! VASCERN Coordinator @JondeauG is present. The accomplishments & #challenges of the #ERNeu, #registry + more are being discussed. #RareDiseases

vascern's tweet image. 📢Live from Brussels 
The 17th meeting of the #EuropeanReferenceNetwork coordinators with the European Commission is underway! 

VASCERN Coordinator @JondeauG is present. The accomplishments & #challenges of the #ERNeu, #registry + more are being discussed. 

#RareDiseases

Eurosurveillanc: RT @EU_HaDEA: 📣#EuropeanReferenceNetwork healthcare professionals Would you like to take your collaboration to the next level with visits, trainings, knowledge sharing? Apply to the #ERN exchange programme! Hear from past participants to learn more 👉htt…


📣#EuropeanReferenceNetwork healthcare professionals Would you like to take your collaboration to the next level with visits, trainings, knowledge sharing? Apply to the #ERN exchange programme! Hear from past participants to learn more 👉audiovisual.ec.europa.eu/en/video/I-230…


A new paper recently published on registries "An overlook on the current registries rare and complex connective tissue diseases and the future scenario of TogethERN ReCONNET". @ern_reconnet is a great #EuropeanReferenceNetwork

DTaruscio's tweet image. A new paper recently published on registries "An overlook on the current registries rare and complex connective tissue diseases and the future scenario of TogethERN ReCONNET". 
@ern_reconnet is a great #EuropeanReferenceNetwork

We are the #EuropeanReferenceNetwork for rare and complex epilepsies. But what constitute a rare and/or complex #epilepsy ? See Prof. Arzimanoglou’ slide below 👇🏻 Still time to meet us room C at the #EEC2022 for more info! @IlaeWeb

EpiCARE_ERN's tweet image. We are the #EuropeanReferenceNetwork for rare and complex epilepsies. 

But what constitute a rare and/or complex #epilepsy ? See Prof. Arzimanoglou’ slide below 👇🏻 

Still time to meet us room C at the #EEC2022 for more info!

@IlaeWeb

The Endo-ERN newsletter is out now! Read more about the joint webinar from ESE, Endo-ERN and ESPE, upcoming webinar, CPMS Newsletter, ESPE 2022, Call 4 new ePAG Advocates and much more! buff.ly/3yVXEtQ #EuropeanReferenceNetwork #RareDisease

RareEndoERN's tweet image. The Endo-ERN newsletter is out now! Read more about the joint webinar from ESE, Endo-ERN and ESPE, upcoming webinar, CPMS Newsletter, ESPE 2022, Call 4 new ePAG Advocates and much more! buff.ly/3yVXEtQ
#EuropeanReferenceNetwork #RareDisease

La semana pasada, nuestras alumnas del master de #NeuroOftalmología Carla Guantay y Belen Olguin participaron en Birmingham en la reunión del #EUNOS (European Neuro-Ophthalmology Society) donde estuvieron con Steffen Hamann de la #EuropeanReferenceNetwork. #IOBA #Oftalmología

IobaUVa's tweet image. La semana pasada, nuestras alumnas del master de #NeuroOftalmología Carla Guantay y Belen Olguin participaron en Birmingham en la reunión del #EUNOS (European Neuro-Ophthalmology Society) donde estuvieron con Steffen Hamann de la #EuropeanReferenceNetwork.
#IOBA #Oftalmología
IobaUVa's tweet image. La semana pasada, nuestras alumnas del master de #NeuroOftalmología Carla Guantay y Belen Olguin participaron en Birmingham en la reunión del #EUNOS (European Neuro-Ophthalmology Society) donde estuvieron con Steffen Hamann de la #EuropeanReferenceNetwork.
#IOBA #Oftalmología

Up first, Martin Dorazil @EU_Health on the evaluation of the Cross-Border Directive and #EuropeanReferenceNetwork experience. Join the discussions ➡️ bit.ly/3tPnyfK @GasteinForum @OBShealth

EHUInitiative's tweet image. Up first, Martin Dorazil @EU_Health on the evaluation of the Cross-Border Directive and #EuropeanReferenceNetwork experience.

Join the discussions ➡️ bit.ly/3tPnyfK

@GasteinForum @OBShealth

Very proud to become a new member of @TransplantChild #EuropeanReferenceNetwork and host its 10th Board in @HospitalUVRocio in Sevilla, Spain

PacodelaCerda_'s tweet image. Very proud to become a new member of @TransplantChild #EuropeanReferenceNetwork and host its 10th Board in @HospitalUVRocio in Sevilla, Spain

La semana pasada, nuestras alumnas del master de #NeuroOftalmología Carla Guantay y Belen Olguin participaron en Birmingham en la reunión del #EUNOS (European Neuro-Ophthalmology Society) donde estuvieron con Steffen Hamann de la #EuropeanReferenceNetwork. #IOBA #Oftalmología

IobaUVa's tweet image. La semana pasada, nuestras alumnas del master de #NeuroOftalmología Carla Guantay y Belen Olguin participaron en Birmingham en la reunión del #EUNOS (European Neuro-Ophthalmology Society) donde estuvieron con Steffen Hamann de la #EuropeanReferenceNetwork.
#IOBA #Oftalmología
IobaUVa's tweet image. La semana pasada, nuestras alumnas del master de #NeuroOftalmología Carla Guantay y Belen Olguin participaron en Birmingham en la reunión del #EUNOS (European Neuro-Ophthalmology Society) donde estuvieron con Steffen Hamann de la #EuropeanReferenceNetwork.
#IOBA #Oftalmología

Another day, another meeting: today is all ERNs coordinators and the PMs! Here are Alexis Arzimanoglou, EpiCARE coordinator and Laurène Mathey, coordination manager and manager of European Affairs at the @CHUdeLyon. #EuropeanReferenceNetwork #ERNeu #RareDiseases

EpiCARE_ERN's tweet image. Another day, another meeting: today is all ERNs coordinators and the PMs!

Here are Alexis Arzimanoglou, EpiCARE coordinator and Laurène Mathey, coordination manager and manager of European Affairs at the @CHUdeLyon. 

#EuropeanReferenceNetwork #ERNeu #RareDiseases

Opening of the #EndoGA2024 of @RareEndoERN, the largest #EuropeanReferenceNetwork, by @AlbertoMPereir1 and Olaf Hiort in Milano, Italy : two days of conferences, updates and meetings - glad to represent France !

FIRENDOFrance's tweet image. Opening of the #EndoGA2024 of @RareEndoERN, the largest #EuropeanReferenceNetwork, by @AlbertoMPereir1 and Olaf Hiort in Milano, Italy : two days of conferences, updates and meetings - glad to represent France !

.@LHONrussell accepting his EURORDIS Volunteer Award 2019 this evening “I’d like to thank everyone involved in the #EuropeanReferenceNetwork project” @ErnEyeEU #EURORDISAwards2019 #BlackPearl

eurordis's tweet image. .@LHONrussell accepting his EURORDIS Volunteer Award 2019 this evening “I’d like to thank everyone involved in the #EuropeanReferenceNetwork project” @ErnEyeEU #EURORDISAwards2019 #BlackPearl

Check out the🆓review 📑 "The added value of a #EuropeanReferenceNetwork on rare and complex connective tissue and musculoskeletal #diseases: insights after the first 5 years of the #ERNReCONNET" on @clinexprheum ➡️clinexprheumatol.org/abstract.asp?a…🔗 ERN ReCONNET. More than a network.

ern_reconnet's tweet image. Check out the🆓review 📑

"The added value of a #EuropeanReferenceNetwork on rare and complex connective tissue and musculoskeletal #diseases: insights after the first 5 years of the #ERNReCONNET" on @clinexprheum 

➡️clinexprheumatol.org/abstract.asp?a…🔗

ERN ReCONNET. More than a network.

We are the #EuropeanReferenceNetwork for rare and complex epilepsies. But what constitute a rare and/or complex #epilepsy ? See Prof. Arzimanoglou’ slide below 👇🏻 Still time to meet us room C at the #EEC2022 for more info! @IlaeWeb

EpiCARE_ERN's tweet image. We are the #EuropeanReferenceNetwork for rare and complex epilepsies. 

But what constitute a rare and/or complex #epilepsy ? See Prof. Arzimanoglou’ slide below 👇🏻 

Still time to meet us room C at the #EEC2022 for more info!

@IlaeWeb

Prof. Milan Macek @FnMotol introduced the #EuropeanReferenceNetwork. It is necessary to support further development of #EuropeanReferenceNetwork to bring the value for both patients and healthcare professionals #HealthOfEurope

david_kolar_cz's tweet image. Prof. Milan Macek @FnMotol introduced the #EuropeanReferenceNetwork. It is necessary to support further development of #EuropeanReferenceNetwork to bring the value for both patients and healthcare professionals #HealthOfEurope

On @PurpleDay we'd like to introduce ourselves: #EpiCARE is a #EuropeanReferenceNetwork for rare and complex #epilepsies. Our aim is to aid diagnosis & treatment of #epilepsy patients, #EpilepsyAwareness and #research. We are 28 specialist hospitals in 13 EU countries #PurpleDay

EpiCARE_ERN's tweet image. On @PurpleDay we'd like to introduce ourselves: #EpiCARE is a #EuropeanReferenceNetwork for rare and complex #epilepsies. Our aim is to aid diagnosis & treatment of #epilepsy patients, #EpilepsyAwareness and #research. We are 28 specialist hospitals in 13 EU countries #PurpleDay

European health systems aim to provide quality and cost-effective healthcare. Which is especially difficult in case of rare, low prevalence or complex diseases and, at the same time, affect the daily lives of 30 million European citizens. 👌 #ERN #EuropeanReferenceNetwork

eHAction_3rdJA's tweet image. European health systems aim to provide quality and cost-effective healthcare. Which is especially difficult in case of rare, low prevalence or complex diseases and, at the same time, affect the daily lives of 30 million European citizens. 👌 #ERN #EuropeanReferenceNetwork

As soon as I heard your #europeanreferencenetwork was @ERNIthaca I had to find you this from actual Ithaca!

rachsail's tweet image. As soon as I heard your #europeanreferencenetwork was @ERNIthaca I had to find you this from actual Ithaca!

On Tue 12 Jan 1800-1900 CET! Sofia Sjöström & Gundela Holmdahl will present for @ERN_eUROGEN on Posterior Urethral Valves: Treatment & follow-up in pediatric urology. Register for free ➡️ow.ly/Qq3650D0cNH. #urology #raredisease #EuropeanReferenceNetwork @Uroweb @EupsaOffice

ERN_eUROGEN's tweet image. On Tue 12 Jan 1800-1900 CET! Sofia Sjöström & Gundela Holmdahl will present for @ERN_eUROGEN on Posterior Urethral Valves: Treatment & follow-up in pediatric urology. Register for free ➡️ow.ly/Qq3650D0cNH. #urology #raredisease #EuropeanReferenceNetwork @Uroweb @EupsaOffice

This morning at #EURORDISWinterSchool Vicky Hedley of @RareDiseasesEU leads a discussion on how #EuropeanReferenceNetwork can drive research. @ERNIthaca coordinator @gm_jill calls for #EU to create IT interface for registries to support research through ERNs. @EU_Health

eurordis's tweet image. This morning at #EURORDISWinterSchool Vicky Hedley of @RareDiseasesEU leads a discussion on how #EuropeanReferenceNetwork can drive research. @ERNIthaca  coordinator @gm_jill calls for #EU to create IT interface for registries to support research through ERNs. @EU_Health

Reconstructive Surgery Following Penile Cancer: the next @ERN_eUROGEN webinar by @VijaySangar1. Tuesday, 9 Feb, 1800-1900 CET. Register for free ➡️ ow.ly/9QqI50DoKsF. #urology #raredisease #EuropeanReferenceNetwork #PenileCancer #uroonc @Uroweb @BAUSurology @OrchidCancer

ERN_eUROGEN's tweet image. Reconstructive Surgery Following Penile Cancer: the next @ERN_eUROGEN webinar by @VijaySangar1. Tuesday, 9 Feb, 1800-1900 CET. Register for free  ➡️ ow.ly/9QqI50DoKsF. #urology #raredisease #EuropeanReferenceNetwork #PenileCancer #uroonc @Uroweb @BAUSurology @OrchidCancer

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