#europeanreferencenetworks search results
#EPNS2023 : join us at the #EuropeanReferenceNetworks session this afternoon at 17h15, in the main congress hall! The ERN Coordinators will speak about rare neurological disorders in children and the role of the ERNs. @ERNIthaca @euro_nmd @Metab_ERN
@DianaMarinello is summarising the ERN Evaluation and Monitoring at the @ern_reconnet Plenary Meeting in Brussels. #EuropeanReferenceNetworks @EU_HaDEA
@sil_aps summarising the activities of the @ern_reconnet Working Group Young. #EuropeanReferenceNetworks
Prof Fonseca summarising the activities of the @ern_reconnet Registry and eHealth Working Group. @EU_HaDEA @EU_Commission #EuropeanReferenceNetworks #ShareCareCure
@Jeanette_Lupus chair of @LupusEurope summarising the activities of the @ern_reconnet Working Group on Patients’ Partnership. ePAG are really the driving force of our network. ⭐️💪🏻#ShareCareCure #EuropeanReferenceNetworks
We were very pleased to see you all! During this board meeting there were: - 8 Skin ePAGs - 46 HCPs represented by 64 participants After building the ERN-Skin for 5 years, we are now ready for the new phase! Stay tuned more is coming soon! #ernskin #europeanreferencenetworks
Welcome to Utrecht 🇳🇱🧠 Today the 2023 EpiCARE Annual meeting started, and for the next 2 days we will focus on determining the objectives of the network for the next 4 years, sharing and updating each other on good practices and networking. #EuropeanReferenceNetworks #ERNs
Outstanding talk of @Jeanette_Lupus Chair of @LupusEurope on “Living with a rare connective tissue disease” at the @ern_reconnet International Congress in Brussels. @EU_HaDEA #EuropeanReferenceNetworks
@HeleneLBorgne at the Plenary Meeting of @ern_reconnet talking about EU Research and Innovation for #RareDiseases #ShareCareCure #EuropeanReferenceNetworks
The @ern_reconnet Board of Network just ended! An amazing brainstorming with a fantastic group! @EU_HaDEA #RareDiseases #ern #europeanreferencenetworks
It is a big honour for all of us to have ⭐️Enrique Terol @terolen ⭐️ joining the Plenary Meeting of @ern_reconnet talking about the future of #healthcaresystems in Europe. #EuropeanReferenceNetworks #sharecarecure
The #leaningtowerofPisa on #RareDiseaseDay 2023 reminds us that we must and can shed light on the most challenging aspects of rare and complex diseases. Together we can. #EuropeanReferenceNetworks @EU_Commission @eurordis @EU_HaDEA @ern_reconnet
@CoBouillot and @romaovc summarising the work of the @ern_reconnet #Sjogren Disease Group. #ShareCareCure #EuropeanReferenceNetworks
Very interesting talk of @pedrommcmachado on #COVID19 syndrome as an exclusive comorbidity of the last 3 years at the @ern_reconnet International Congress. #europeanreferencenetworks #sharecarecure
ERN-Skin webinars will be back in September 2023! Stay tuned, our calendar is coming soon! #ernskin #europeanreferencenetworks #doctors #clinicians #rareskin #webinars
EpiCARE is at #EAN2023 in Budapest! Come say hi at booth N16, in the neurohood area 🧠👋🏻 @EANeurology @euro_nmd @ERN_RND #EuropeanReferenceNetworks #Epilepsy #Neurotwitter
#EPNS2023 🔴 NOW ON : « Rare neurological disorders in children and the role #EuropeanReferenceNetworks » Our coordinator Teresinha Evangelista is presenting our #ERN and focus on the #EURONMD Registry hub which is operational since May 2023!
The @ern_reconnet PtC highlight how booster and pre-exposure treatment can be considered complementary, as well as the need to early use antiviral agents and anti SARS-CoV-2 antibody products in most #fragilepatients . #EuropeanReferenceNetworks #ShareCareCure @clinexprheum
#RareDiseases #Europeanreferencenetworks #EU4Health #HealthUnion #DGSante #ERNTransplantChild #EuropeanComission
This morning we start the day meeting up with the public affairs committee of @ESPGHANSociety, to discuss the collaboration between ESPGHAN and P&Ps. Let's go! 💪🤝 #ESPGHAN25 #ERNTransplantChild #europeanreferencenetworks
#erntransplantchild #europeanreferencenetworks #dianacionaldetrasplante2025 #ont #europeancommission #dgsante #hadea
🔬 Rare patients. Rare experts. Real outcomes. 💙 24 #EuropeanReferenceNetworks cover a range of #rare #complex #lowprevalence diseases —ensuring patients get the expert care they deserve. 🔗 Learn more: bit.ly/4hMPOXk #EUfunded #HealthUnion #EU4Health #RareDiseaseDay
🏥 Rare patients! #EuropeanReferenceNetworks enable patients across the EU to access #raredisease experts—without needing to travel! 🚀 Ask your doctor about virtual consultations & learn more here: bit.ly/43uJ38v #EUfunded #HealthUnion #EU4Health #RareDiseaseDay
👨⚕️👩⚕️ Attention European doctors! You can access #raredisease expertise via #EuropeanReferenceNetworks. 🔗 Learn more: health.ec.europa.eu/rare-diseases-… #EUfunded #HealthUnion #EU4Health #RareDiseaseDay
👨⚕️👩⚕️ Attention EU/EEA doctors! You can access #raredisease expertise via #EuropeanReferenceNetworks. Specialists across the EU offer virtual consultations for complex cases. Connect with an expert today! 🔗 Learn more: bit.ly/4kgfhdy #EUfunded #EU4Health #RareDiseaseDay
💜🌍 Today is #RareDiseaseDay! 🌎💜 Join us to raise awareness and generate change for the 300 million people worldwide living with a #RareDisease, their families and carers! @rarediseaseday @eurordis #EuropeanReferenceNetworks #ERNeu eurobloodnet.eu/news/635/rare-…
📢 New booklet: European Reference Networks – A Success Story for Patients living with a Rare Disease 🔗Read it here: health.ec.europa.eu/publications/e… #RareDiseases #EuropeanReferenceNetworks #ERNs #PatientCare #rRareDiseaseDay
#ERNs - this is where RARE Patients and RARE Experts come together generating REAL outcomes! There are 24 #EuropeanReferenceNetworks specialized in different fields. Learn more here jardin-ern.eu and here t1p.de/mbg18 @EU_Commission @jardin_EU_JA @EU_HaDEA
Dr. Frank Rauch kicking off the Quality of Life 4 OI conference in #Amsterdam #EuropeanReferenceNetworks #OIFoundation #OIFE #Care4BrittleBones
Marta Mosca on #EuropeanReferenceNetworks at the II Level Master in #RareDiseases @UNI_FIRENZE #ERNs #ERNeu #patientsinvolvement
Our team today in Brussels to take part in the 4th #EuropeanReferenceNetworks #RareDiseases conference, as independent assessment body of #ERNeu @EU_Health
#EuropeanReferenceNetworks flyer for patients and health professionals are now available in all EU languages! #ERNeu ec.europa.eu/health/ern_en
#ECRD2020 from conclusions by @yann_eurordis (@eurordis CEO): "#Europeanreferencenetworks are the skeleton. But we need more than the bones: we need the flesh" #RareDiseases #patientsinvolvement #patientsvoice #awareness #empowerment #advocacy #ERNeu #ShareCareCure 🇪🇺
#ERNReCONNET Plenary Meeting: update on communication and dissemination by @ilticcio #ERNeu #EuropeanReferenceNetworks #ShareCareCure #RareDiseases
#RareDiseaseDay #RareDiseaseDay2021 Rare is Many. Rare is Strong. Rare is Proud. People living with rare disease must always be at the centre: they are the reason that the #EuropeanReferenceNetworks were developed! @EU_Health @SKyriakidesEU #LeaningTower #LoggedeiBanchi #Pisa
"#RareDiseases and #EuropeanReferenceNetworks" meeting at Pisa: a stimulating and effective discussion on #goodpractices in #rarediseases #RareDiseaseDay #ShareCareCure #RareDiseaseDay2020 #RDD2020
Divendres vam participar en una reunió del projecte europeu ERN Guidelines amb més de 100 participants entre representants de xarxes europees de malalties minoritàries i representants de la Comissió Europea. ec.europa.eu/health/ern/ #EuropeanReferenceNetworks @EU_Commission
Always great to join forces on @rarediseaseday with fellow #EuropeanReferenceNetworks @ERNEuroBloodNet and @ErnEyeEU! #ERNeu #raiseawarness #RareDisease #ShareCareCure @EU_Health @eurordis #RareDiseaseDay
EpiCARE is at #EAN2023 in Budapest! Come say hi at booth N16, in the neurohood area 🧠👋🏻 @EANeurology @euro_nmd @ERN_RND #EuropeanReferenceNetworks #Epilepsy #Neurotwitter
🇮🇹 Le ERN verso l'integrazione martedì 30 novembre dalle 16 alle 18 evento on line (su piattaforma Zoom) Per partecipare è necessario iscriversi al link bit.ly/ERNItalia #ERNeu #EuropeanReferenceNetworks #integration #ShareCareCure
The #leaningtowerofPisa on #RareDiseaseDay 2023 reminds us that we must and can shed light on the most challenging aspects of rare and complex diseases. Together we can. #EuropeanReferenceNetworks @EU_Commission @eurordis @EU_HaDEA @ern_reconnet
🆕 article published in @FrontiersIn Medicine "An overlook on the current #registries for rare and complex connective tissue diseases and the future scenario of #TogethERN ReCONNET" frontiersin.org/articles/10.33… #EuropeanReferenceNetworks ERN ReCONNET. More than a Network.
Full team of the #EuropeanReferenceNetworks coordinators & project managers at the Hotel Dieu, Lyon. 🇫🇷 A lot is accomplished just by being together #StrongerTogether #ERNs #ShareCareCure @EU_HaDEA @EU_Commission
It is a big honour for all of us to have ⭐️Enrique Terol @terolen ⭐️ joining the Plenary Meeting of @ern_reconnet talking about the future of #healthcaresystems in Europe. #EuropeanReferenceNetworks #sharecarecure
Promoting #patientempowerment and addressing #adherence in clinical practice are essential to improve treatment adherence in connective tissue diseases. These are some of the topics we discussed today during the @ern_reconnet webinar. #EuropeanReferenceNetworks #ShareCareCure
📢 Join us live for our conference on #RareDiseases and the #EuropeanReferenceNetworks: europa.eu/!FQtnVB 🕗 Today between 9.00 and 18.00. #ERN #HealthUnion @ERN_RND
Our common #EuropeanReferenceNetworks booth is bustling! We are at #EPNS2023 with our colleagues from @euro_nmd, @ERNIthaca and @Metab_ERN. Come say hi! 👋🏻 #neurotwitter @EPNSnews @EU_HaDEA @EU_Health #ERNs
Something went wrong.
Something went wrong.
United States Trends
- 1. Good Thursday 20.7K posts
- 2. #River 5,751 posts
- 3. Rejoice in the Lord 1,462 posts
- 4. Jokic 28.9K posts
- 5. Namjoon 80.7K posts
- 6. Lakers 52.1K posts
- 7. FELIX VOGUE COVER STAR 11.6K posts
- 8. #FELIXxVOGUEKOREA 12.2K posts
- 9. #FELIXxLouisVuitton 11.2K posts
- 10. New Zealand 14.6K posts
- 11. #WorldKindnessDay 6,755 posts
- 12. #ReasonableDoubtHulu N/A
- 13. Mikey 61.8K posts
- 14. Clippers 15.5K posts
- 15. Shai 16.4K posts
- 16. Nemec 3,670 posts
- 17. Rory 8,478 posts
- 18. Thunder 38.7K posts
- 19. Raising Arizona 1,037 posts
- 20. Ty Lue 1,359 posts