#europeanreferencenetworks search results

#EPNS2023 : join us at the #EuropeanReferenceNetworks session this afternoon at 17h15, in the main congress hall! The ERN Coordinators will speak about rare neurological disorders in children and the role of the ERNs. ⁦@ERNIthaca⁩ ⁦@euro_nmd⁩ ⁦@Metab_ERN


@DianaMarinello is summarising the ERN Evaluation and Monitoring at the @ern_reconnet Plenary Meeting in Brussels. #EuropeanReferenceNetworks @EU_HaDEA

SaraTalarico2's tweet image. @DianaMarinello is summarising the ERN Evaluation and Monitoring at the @ern_reconnet Plenary Meeting in Brussels. #EuropeanReferenceNetworks @EU_HaDEA

@sil_aps summarising the activities of the @ern_reconnet Working Group Young. #EuropeanReferenceNetworks

SaraTalarico2's tweet image. @sil_aps summarising the activities of the @ern_reconnet Working Group Young. #EuropeanReferenceNetworks

Prof Fonseca summarising the activities of the @ern_reconnet Registry and eHealth Working Group. @EU_HaDEA @EU_Commission #EuropeanReferenceNetworks #ShareCareCure

SaraTalarico2's tweet image. Prof Fonseca summarising the activities of the @ern_reconnet Registry and eHealth Working Group. @EU_HaDEA @EU_Commission #EuropeanReferenceNetworks #ShareCareCure

@Jeanette_Lupus chair of @LupusEurope summarising the activities of the @ern_reconnet Working Group on Patients’ Partnership. ePAG are really the driving force of our network. ⭐️💪🏻#ShareCareCure #EuropeanReferenceNetworks

SaraTalarico2's tweet image. @Jeanette_Lupus chair of @LupusEurope summarising the activities of the @ern_reconnet Working Group on Patients’ Partnership. ePAG are really the driving force of our network. ⭐️💪🏻#ShareCareCure #EuropeanReferenceNetworks

We were very pleased to see you all! During this board meeting there were: - 8 Skin ePAGs - 46 HCPs represented by 64 participants After building the ERN-Skin for 5 years, we are now ready for the new phase! Stay tuned more is coming soon! #ernskin #europeanreferencenetworks

ERN_Skin's tweet image. We were very pleased to see you all! 
During this board meeting there were:
- 8 Skin ePAGs 
- 46 HCPs represented by 64 participants

After building the ERN-Skin for 5 years, we are now ready for the new phase!

Stay tuned more is coming soon!
#ernskin #europeanreferencenetworks

Welcome to Utrecht 🇳🇱🧠 Today the 2023 EpiCARE Annual meeting started, and for the next 2 days we will focus on determining the objectives of the network for the next 4 years, sharing and updating each other on good practices and networking. #EuropeanReferenceNetworks #ERNs

EpiCARE_ERN's tweet image. Welcome to Utrecht 🇳🇱🧠

Today the 2023 EpiCARE Annual meeting started, and for the next 2 days we will focus on determining the objectives of the network for the next 4 years, sharing and updating each other on good practices and networking. 

#EuropeanReferenceNetworks #ERNs
EpiCARE_ERN's tweet image. Welcome to Utrecht 🇳🇱🧠

Today the 2023 EpiCARE Annual meeting started, and for the next 2 days we will focus on determining the objectives of the network for the next 4 years, sharing and updating each other on good practices and networking. 

#EuropeanReferenceNetworks #ERNs

Outstanding talk of @Jeanette_Lupus Chair of @LupusEurope on “Living with a rare connective tissue disease” at the @ern_reconnet International Congress in Brussels. @EU_HaDEA #EuropeanReferenceNetworks

SaraTalarico2's tweet image. Outstanding talk of @Jeanette_Lupus Chair of @LupusEurope on “Living with a rare connective tissue disease” at the @ern_reconnet International Congress in Brussels. @EU_HaDEA #EuropeanReferenceNetworks

The @ern_reconnet Board of Network just ended! An amazing brainstorming with a fantastic group! @EU_HaDEA #RareDiseases #ern #europeanreferencenetworks

MartaMartamosca's tweet image. The @ern_reconnet Board of Network just ended! An amazing brainstorming with a fantastic group! @EU_HaDEA #RareDiseases #ern #europeanreferencenetworks

It is a big honour for all of us to have ⭐️Enrique Terol @terolen ⭐️ joining the Plenary Meeting of @ern_reconnet talking about the future of #healthcaresystems in Europe. #EuropeanReferenceNetworks #sharecarecure

SaraTalarico2's tweet image. It is a big honour for all of us to have ⭐️Enrique Terol @terolen ⭐️ joining the Plenary Meeting of @ern_reconnet talking about the future of #healthcaresystems in Europe. #EuropeanReferenceNetworks #sharecarecure

The #leaningtowerofPisa on #RareDiseaseDay 2023 reminds us that we must and can shed light on the most challenging aspects of rare and complex diseases. Together we can. #EuropeanReferenceNetworks @EU_Commission @eurordis @EU_HaDEA @ern_reconnet

SaraTalarico2's tweet image. The #leaningtowerofPisa on #RareDiseaseDay 2023 reminds us that we must and can shed light on the most challenging aspects of rare and complex diseases. Together we can. #EuropeanReferenceNetworks @EU_Commission @eurordis @EU_HaDEA @ern_reconnet

Very interesting talk of @pedrommcmachado on #COVID19 syndrome as an exclusive comorbidity of the last 3 years at the @ern_reconnet International Congress. #europeanreferencenetworks #sharecarecure

SaraTalarico2's tweet image. Very interesting talk of @pedrommcmachado on #COVID19 syndrome as an exclusive comorbidity of the last 3 years at the @ern_reconnet International Congress. #europeanreferencenetworks #sharecarecure

ERN-Skin webinars will be back in September 2023! Stay tuned, our calendar is coming soon! #ernskin #europeanreferencenetworks #doctors #clinicians #rareskin #webinars

ERN_Skin's tweet image. ERN-Skin webinars will be back in September 2023!
Stay tuned, our calendar is coming soon!

#ernskin #europeanreferencenetworks #doctors #clinicians #rareskin #webinars

EpiCARE is at #EAN2023 in Budapest! Come say hi at booth N16, in the neurohood area 🧠👋🏻 @EANeurology @euro_nmd @ERN_RND #EuropeanReferenceNetworks #Epilepsy #Neurotwitter

EpiCARE_ERN's tweet image. EpiCARE is at #EAN2023 in Budapest!

Come say hi at booth N16, in the neurohood area 🧠👋🏻

@EANeurology @euro_nmd @ERN_RND #EuropeanReferenceNetworks #Epilepsy #Neurotwitter

#EPNS2023 🔴 NOW ON : « Rare neurological disorders in children and the role #EuropeanReferenceNetworks » Our coordinator Teresinha Evangelista is presenting our #ERN and focus on the #EURONMD Registry hub which is operational since May 2023!


The @ern_reconnet PtC highlight how booster and pre-exposure treatment can be considered complementary, as well as the need to early use antiviral agents and anti SARS-CoV-2 antibody products in most #fragilepatients . #EuropeanReferenceNetworks #ShareCareCure @clinexprheum

SaraTalarico2's tweet image. The @ern_reconnet PtC highlight how booster and pre-exposure treatment can be considered complementary, as well as the need to early use antiviral agents and anti SARS-CoV-2 antibody products in most #fragilepatients .
#EuropeanReferenceNetworks
#ShareCareCure @clinexprheum

This morning we start the day meeting up with the public affairs committee of @ESPGHANSociety, to discuss the collaboration between ESPGHAN and P&Ps. Let's go! 💪🤝 #ESPGHAN25 #ERNTransplantChild #europeanreferencenetworks


🔬 Rare patients. Rare experts. Real outcomes. 💙 24 #EuropeanReferenceNetworks cover a range of #rare #complex #lowprevalence diseases —ensuring patients get the expert care they deserve. 🔗 Learn more: bit.ly/4hMPOXk #EUfunded #HealthUnion #EU4Health #RareDiseaseDay

ERN_eUROGEN's tweet image. 🔬 Rare patients. Rare experts. Real outcomes.
💙 24 #EuropeanReferenceNetworks cover a range of #rare #complex #lowprevalence diseases —ensuring patients get the expert care they deserve.
🔗 Learn more: bit.ly/4hMPOXk
#EUfunded #HealthUnion #EU4Health #RareDiseaseDay

🏥 Rare patients! #EuropeanReferenceNetworks enable patients across the EU to access #raredisease experts—without needing to travel! 🚀 Ask your doctor about virtual consultations & learn more here: bit.ly/43uJ38v #EUfunded #HealthUnion #EU4Health #RareDiseaseDay

ERN_eUROGEN's tweet image. 🏥 Rare patients! #EuropeanReferenceNetworks enable patients across the EU to access #raredisease experts—without needing to travel! 🚀 Ask your doctor about virtual consultations & learn more here: bit.ly/43uJ38v #EUfunded #HealthUnion #EU4Health #RareDiseaseDay

👨‍⚕️👩‍⚕️ Attention European doctors! You can access #raredisease expertise via #EuropeanReferenceNetworks. 🔗 Learn more: health.ec.europa.eu/rare-diseases-… #EUfunded #HealthUnion #EU4Health #RareDiseaseDay

ERN_Skin's tweet image. 👨‍⚕️👩‍⚕️ Attention European doctors! You can access #raredisease expertise via #EuropeanReferenceNetworks.

🔗 Learn more: health.ec.europa.eu/rare-diseases-…

#EUfunded #HealthUnion #EU4Health #RareDiseaseDay

👨‍⚕️👩‍⚕️ Attention EU/EEA doctors! You can access #raredisease expertise via #EuropeanReferenceNetworks. Specialists across the EU offer virtual consultations for complex cases. Connect with an expert today! 🔗 Learn more: bit.ly/4kgfhdy #EUfunded #EU4Health #RareDiseaseDay

ERN_eUROGEN's tweet image. 👨‍⚕️👩‍⚕️ Attention EU/EEA doctors! You can access #raredisease expertise via #EuropeanReferenceNetworks. Specialists across the EU offer virtual consultations for complex cases. Connect with an expert today! 🔗 Learn more: bit.ly/4kgfhdy  #EUfunded #EU4Health #RareDiseaseDay

💜🌍 Today is #RareDiseaseDay! 🌎💜 Join us to raise awareness and generate change for the 300 million people worldwide living with a #RareDisease, their families and carers! @rarediseaseday @eurordis #EuropeanReferenceNetworks #ERNeu eurobloodnet.eu/news/635/rare-…


📢 New booklet: European Reference Networks – A Success Story for Patients living with a Rare Disease 🔗Read it here: health.ec.europa.eu/publications/e… #RareDiseases #EuropeanReferenceNetworks #ERNs #PatientCare #rRareDiseaseDay

ERN_Skin's tweet image. 📢 New booklet: European Reference Networks – A Success Story for Patients living with a Rare Disease
🔗Read it here: health.ec.europa.eu/publications/e…

#RareDiseases #EuropeanReferenceNetworks #ERNs #PatientCare #rRareDiseaseDay

#ERNs - this is where RARE Patients and RARE Experts come together generating REAL outcomes! There are 24 #EuropeanReferenceNetworks specialized in different fields. Learn more here jardin-ern.eu and here t1p.de/mbg18 @EU_Commission @jardin_EU_JA @EU_HaDEA

ERN_RND's tweet image. #ERNs - this is where RARE Patients and RARE Experts come together generating REAL outcomes! There are 24 #EuropeanReferenceNetworks specialized in different fields. Learn more here jardin-ern.eu and here  t1p.de/mbg18 @EU_Commission @jardin_EU_JA @EU_HaDEA

Our team today in Brussels to take part in the 4th #EuropeanReferenceNetworks #RareDiseases conference, as independent assessment body of #ERNeu @EU_Health

calidadACSA's tweet image. Our team today in Brussels to take part in the 4th #EuropeanReferenceNetworks  #RareDiseases conference, as independent assessment body of #ERNeu @EU_Health

#EuropeanReferenceNetworks flyer for patients and health professionals are now available in all EU languages! #ERNeu ec.europa.eu/health/ern_en

ERNEuroBloodNet's tweet image. #EuropeanReferenceNetworks flyer for patients and health professionals are now available in all EU languages! #ERNeu ec.europa.eu/health/ern_en

#RareDiseaseDay #RareDiseaseDay2021 Rare is Many. Rare is Strong. Rare is Proud. People living with rare disease must always be at the centre: they are the reason that the #EuropeanReferenceNetworks were developed! @EU_Health @SKyriakidesEU #LeaningTower #LoggedeiBanchi #Pisa

ern_reconnet's tweet image. #RareDiseaseDay #RareDiseaseDay2021
Rare is Many. Rare is Strong. Rare is Proud.

People living with rare disease must always be at the centre: they are the reason that the #EuropeanReferenceNetworks were developed!

@EU_Health @SKyriakidesEU 

#LeaningTower #LoggedeiBanchi #Pisa
ern_reconnet's tweet image. #RareDiseaseDay #RareDiseaseDay2021
Rare is Many. Rare is Strong. Rare is Proud.

People living with rare disease must always be at the centre: they are the reason that the #EuropeanReferenceNetworks were developed!

@EU_Health @SKyriakidesEU 

#LeaningTower #LoggedeiBanchi #Pisa
ern_reconnet's tweet image. #RareDiseaseDay #RareDiseaseDay2021
Rare is Many. Rare is Strong. Rare is Proud.

People living with rare disease must always be at the centre: they are the reason that the #EuropeanReferenceNetworks were developed!

@EU_Health @SKyriakidesEU 

#LeaningTower #LoggedeiBanchi #Pisa

Divendres vam participar en una reunió del projecte europeu ERN Guidelines amb més de 100 participants entre representants de xarxes europees de malalties minoritàries i representants de la Comissió Europea. ec.europa.eu/health/ern/ #EuropeanReferenceNetworks @EU_Commission

AQuAScat's tweet image. Divendres vam participar en una reunió del projecte europeu ERN Guidelines amb més de 100 participants entre representants de xarxes europees de malalties minoritàries i representants de la Comissió Europea.

ec.europa.eu/health/ern/ 

#EuropeanReferenceNetworks @EU_Commission

EpiCARE is at #EAN2023 in Budapest! Come say hi at booth N16, in the neurohood area 🧠👋🏻 @EANeurology @euro_nmd @ERN_RND #EuropeanReferenceNetworks #Epilepsy #Neurotwitter

EpiCARE_ERN's tweet image. EpiCARE is at #EAN2023 in Budapest!

Come say hi at booth N16, in the neurohood area 🧠👋🏻

@EANeurology @euro_nmd @ERN_RND #EuropeanReferenceNetworks #Epilepsy #Neurotwitter

🇮🇹 Le ERN verso l'integrazione martedì 30 novembre dalle 16 alle 18 evento on line (su piattaforma Zoom) Per partecipare è necessario iscriversi al link bit.ly/ERNItalia #ERNeu #EuropeanReferenceNetworks #integration #ShareCareCure

ern_reconnet's tweet image. 🇮🇹 Le ERN verso l'integrazione
martedì 30 novembre dalle 16 alle 18
evento on line (su piattaforma Zoom) 

Per partecipare è necessario iscriversi al link bit.ly/ERNItalia

#ERNeu #EuropeanReferenceNetworks #integration #ShareCareCure
ern_reconnet's tweet image. 🇮🇹 Le ERN verso l'integrazione
martedì 30 novembre dalle 16 alle 18
evento on line (su piattaforma Zoom) 

Per partecipare è necessario iscriversi al link bit.ly/ERNItalia

#ERNeu #EuropeanReferenceNetworks #integration #ShareCareCure

The #leaningtowerofPisa on #RareDiseaseDay 2023 reminds us that we must and can shed light on the most challenging aspects of rare and complex diseases. Together we can. #EuropeanReferenceNetworks @EU_Commission @eurordis @EU_HaDEA @ern_reconnet

SaraTalarico2's tweet image. The #leaningtowerofPisa on #RareDiseaseDay 2023 reminds us that we must and can shed light on the most challenging aspects of rare and complex diseases. Together we can. #EuropeanReferenceNetworks @EU_Commission @eurordis @EU_HaDEA @ern_reconnet

🆕 article published in @FrontiersIn Medicine "An overlook on the current #registries for rare and complex connective tissue diseases and the future scenario of #TogethERN ReCONNET" frontiersin.org/articles/10.33… #EuropeanReferenceNetworks ERN ReCONNET. More than a Network.

ern_reconnet's tweet image. 🆕 article published in @FrontiersIn Medicine

"An overlook on the current #registries for rare and complex connective tissue diseases and the future scenario of #TogethERN ReCONNET"

frontiersin.org/articles/10.33… 

#EuropeanReferenceNetworks

ERN ReCONNET. More than a Network.

Full team of the #EuropeanReferenceNetworks coordinators & project managers at the Hotel Dieu, Lyon. 🇫🇷 A lot is accomplished just by being together #StrongerTogether #ERNs #ShareCareCure @EU_HaDEA @EU_Commission

EpiCARE_ERN's tweet image. Full team of the #EuropeanReferenceNetworks coordinators & project managers at the Hotel Dieu, Lyon. 🇫🇷

A lot is accomplished just by being together #StrongerTogether 

#ERNs #ShareCareCure @EU_HaDEA @EU_Commission

It is a big honour for all of us to have ⭐️Enrique Terol @terolen ⭐️ joining the Plenary Meeting of @ern_reconnet talking about the future of #healthcaresystems in Europe. #EuropeanReferenceNetworks #sharecarecure

SaraTalarico2's tweet image. It is a big honour for all of us to have ⭐️Enrique Terol @terolen ⭐️ joining the Plenary Meeting of @ern_reconnet talking about the future of #healthcaresystems in Europe. #EuropeanReferenceNetworks #sharecarecure

Promoting #patientempowerment and addressing #adherence in clinical practice are essential to improve treatment adherence in connective tissue diseases. These are some of the topics we discussed today during the @ern_reconnet webinar. #EuropeanReferenceNetworks #ShareCareCure

SaraTalarico2's tweet image. Promoting #patientempowerment and addressing #adherence in clinical practice are essential to improve treatment adherence in connective tissue diseases. These are some of the topics we discussed today during the @ern_reconnet webinar.
#EuropeanReferenceNetworks #ShareCareCure

📢 Join us live for our conference on #RareDiseases and the #EuropeanReferenceNetworks: europa.eu/!FQtnVB 🕗 Today between 9.00 and 18.00. #ERN #HealthUnion @ERN_RND

EESC_TEN's tweet image. 📢 Join us live for our conference on #RareDiseases and the #EuropeanReferenceNetworks: europa.eu/!FQtnVB

🕗 Today between 9.00 and 18.00. 
 
 #ERN #HealthUnion @ERN_RND

Our common #EuropeanReferenceNetworks booth is bustling! We are at #EPNS2023 with our colleagues from @euro_nmd, @ERNIthaca and @Metab_ERN. Come say hi! 👋🏻 #neurotwitter @EPNSnews @EU_HaDEA @EU_Health #ERNs

EpiCARE_ERN's tweet image. Our common #EuropeanReferenceNetworks booth is bustling!

We are at #EPNS2023 with our colleagues from @euro_nmd, @ERNIthaca and @Metab_ERN. Come say hi! 👋🏻

#neurotwitter @EPNSnews @EU_HaDEA @EU_Health #ERNs
EpiCARE_ERN's tweet image. Our common #EuropeanReferenceNetworks booth is bustling!

We are at #EPNS2023 with our colleagues from @euro_nmd, @ERNIthaca and @Metab_ERN. Come say hi! 👋🏻

#neurotwitter @EPNSnews @EU_HaDEA @EU_Health #ERNs
EpiCARE_ERN's tweet image. Our common #EuropeanReferenceNetworks booth is bustling!

We are at #EPNS2023 with our colleagues from @euro_nmd, @ERNIthaca and @Metab_ERN. Come say hi! 👋🏻

#neurotwitter @EPNSnews @EU_HaDEA @EU_Health #ERNs
EpiCARE_ERN's tweet image. Our common #EuropeanReferenceNetworks booth is bustling!

We are at #EPNS2023 with our colleagues from @euro_nmd, @ERNIthaca and @Metab_ERN. Come say hi! 👋🏻

#neurotwitter @EPNSnews @EU_HaDEA @EU_Health #ERNs

Loading...

Something went wrong.


Something went wrong.


United States Trends