Thrilled to witness the updated NMOSD criteria unveiled today by Dean M. Wingerchook 🙌 A big step forward for the field — exciting times ahead in neuroimmunology! #NMOSD #ECTRIMS2025 @ECTRIMS

exmaissou's tweet image. Thrilled to witness the updated NMOSD criteria unveiled today by Dean M. Wingerchook 🙌 A big step forward for the field — exciting times ahead in neuroimmunology! #NMOSD #ECTRIMS2025 @ECTRIMS
exmaissou's tweet image. Thrilled to witness the updated NMOSD criteria unveiled today by Dean M. Wingerchook 🙌 A big step forward for the field — exciting times ahead in neuroimmunology! #NMOSD #ECTRIMS2025 @ECTRIMS
exmaissou's tweet image. Thrilled to witness the updated NMOSD criteria unveiled today by Dean M. Wingerchook 🙌 A big step forward for the field — exciting times ahead in neuroimmunology! #NMOSD #ECTRIMS2025 @ECTRIMS
exmaissou's tweet image. Thrilled to witness the updated NMOSD criteria unveiled today by Dean M. Wingerchook 🙌 A big step forward for the field — exciting times ahead in neuroimmunology! #NMOSD #ECTRIMS2025 @ECTRIMS

Dr. Michael Levy presented on clinical trial insights into the pathogenesis of #NMOSD at ISNI’s annual congress in Chiba 🇯🇵

TheSumairaFDN's tweet image. Dr. Michael Levy presented on clinical trial insights into the pathogenesis of #NMOSD at ISNI’s annual congress in Chiba 🇯🇵

🗣📹 This afternoon at #ECTRIMS2025, we spoke with neurologist @cobo_calvo, of @cemcat_em, who talked about his presentation on the 2025 diagnostic criteria for #NMOSD! Stay tuned for the conversation! 🧠🇪🇸 @ECTRIMS

neurology_live's tweet image. 🗣📹 This afternoon at #ECTRIMS2025, we spoke with neurologist @cobo_calvo, of @cemcat_em, who talked about his presentation on the 2025 diagnostic criteria for #NMOSD! Stay tuned for the conversation! 🧠🇪🇸 @ECTRIMS
neurology_live's tweet image. 🗣📹 This afternoon at #ECTRIMS2025, we spoke with neurologist @cobo_calvo, of @cemcat_em, who talked about his presentation on the 2025 diagnostic criteria for #NMOSD! Stay tuned for the conversation! 🧠🇪🇸 @ECTRIMS
neurology_live's tweet image. 🗣📹 This afternoon at #ECTRIMS2025, we spoke with neurologist @cobo_calvo, of @cemcat_em, who talked about his presentation on the 2025 diagnostic criteria for #NMOSD! Stay tuned for the conversation! 🧠🇪🇸 @ECTRIMS

Marion Jones, #NMOSD patient, marathoner and TSF Ambassador of Illinois, is one of the patient panelists at @ECTRIMS Patient Community Day, speaking about lived experiences, patient advocacy and the importance of patient participation in research for rare diseases 🩷🧡💛

TheSumairaFDN's tweet image. Marion Jones, #NMOSD patient, marathoner and TSF Ambassador of Illinois, is one of the patient panelists at @ECTRIMS Patient Community Day, speaking about lived experiences, patient advocacy and the importance of patient participation in research for rare diseases 🩷🧡💛
TheSumairaFDN's tweet image. Marion Jones, #NMOSD patient, marathoner and TSF Ambassador of Illinois, is one of the patient panelists at @ECTRIMS Patient Community Day, speaking about lived experiences, patient advocacy and the importance of patient participation in research for rare diseases 🩷🧡💛
TheSumairaFDN's tweet image. Marion Jones, #NMOSD patient, marathoner and TSF Ambassador of Illinois, is one of the patient panelists at @ECTRIMS Patient Community Day, speaking about lived experiences, patient advocacy and the importance of patient participation in research for rare diseases 🩷🧡💛

本日(8/24)の讀賣新聞朝刊だそうです 1ヶ月も前のチャリティコンサートにも関わらず この様な記事で取り上げていただける事に感謝 「視神経脊髄炎」という病名だけでも より多くの方々へ広まる様に そして 患者会活動も精一杯歩み続けます❣️ #NMO #NMOSD #視神経脊髄炎

nmosdjapan's tweet image. 本日(8/24)の讀賣新聞朝刊だそうです

1ヶ月も前のチャリティコンサートにも関わらず
この様な記事で取り上げていただける事に感謝

「視神経脊髄炎」という病名だけでも
より多くの方々へ広まる様に

そして
患者会活動も精一杯歩み続けます❣️

#NMO #NMOSD #視神経脊髄炎

Congratulations to the #NMOSD team at Mayo Clinic for Receiving The Team Science Award 🤩 From defining its clinical/pathological features to finding aquaporin-4 antibodies to leading trials of effective treatments - this team have greatly improved outcomes for #NMOSD patients

EoinFlanagan14's tweet image. Congratulations to the #NMOSD team at Mayo Clinic for Receiving The Team Science Award 🤩  From defining its clinical/pathological features to finding aquaporin-4 antibodies to leading trials of effective treatments - this team have greatly improved outcomes for #NMOSD patients

🇨🇴 La vida de Olga cambió el 13/04/23 al ser diagnosticada con neuromielitis óptica. Tras años de dolor, su cuerpo se debilitó, pero no su espíritu. Hoy vive con fe y esperanza. Su historia refleja resiliencia, amor y la fuerza de renacer tras la caída. #NMOSD

TheSumairaFDN's tweet image. 🇨🇴 La vida de Olga cambió el 13/04/23 al ser diagnosticada con neuromielitis óptica. Tras años de dolor, su cuerpo se debilitó, pero no su espíritu. Hoy vive con fe y esperanza. Su historia refleja resiliencia, amor y la fuerza de renacer tras la caída. #NMOSD

MENACTRIMS 9th Congress was a blast! Great to reconnect with colleagues and learn so much about MS treatment and NMOSD at the Hilton Hall. Thanks, Dr. Seraj Makkawi @Dr_Makkawi, for your participation & support! #MENACTRIMS #MS #NMOSD #neurology #NGHA

Fayyx_'s tweet image. MENACTRIMS 9th Congress was a blast! Great to reconnect with colleagues and learn so much about MS treatment and NMOSD at the Hilton Hall. Thanks, Dr. Seraj Makkawi @Dr_Makkawi, for your participation & support!

#MENACTRIMS #MS #NMOSD #neurology #NGHA
Fayyx_'s tweet image. MENACTRIMS 9th Congress was a blast! Great to reconnect with colleagues and learn so much about MS treatment and NMOSD at the Hilton Hall. Thanks, Dr. Seraj Makkawi @Dr_Makkawi, for your participation & support!

#MENACTRIMS #MS #NMOSD #neurology #NGHA
Fayyx_'s tweet image. MENACTRIMS 9th Congress was a blast! Great to reconnect with colleagues and learn so much about MS treatment and NMOSD at the Hilton Hall. Thanks, Dr. Seraj Makkawi @Dr_Makkawi, for your participation & support!

#MENACTRIMS #MS #NMOSD #neurology #NGHA

第2回国際NMOSDサミットのお申込みスタート❣️ テーマは 『NMOSDの未来を語ろう!』 お楽しみ頂ける様に、私達も一丸となって 準備を進めております🙇‍♀️ 公式サイトに詳細あり↓ nmosd-japan.com/summit2/ お申し込み↓ forms.gle/pkDRQ9fz4dk6Ww… #NMO #視神経脊髄炎 #NMOSD

nmosdjapan's tweet image. 第2回国際NMOSDサミットのお申込みスタート❣️

テーマは
『NMOSDの未来を語ろう!』

お楽しみ頂ける様に、私達も一丸となって
準備を進めております🙇‍♀️

公式サイトに詳細あり↓
nmosd-japan.com/summit2/

お申し込み↓
forms.gle/pkDRQ9fz4dk6Ww…

#NMO #視神経脊髄炎 #NMOSD

Review: immune tolerance in #NMOSD/#MOGAD as an alternative to long-term immunosuppression. Strategies include antigen-specific vaccines/nanoparticles, Treg/Breg cell therapy, and gene editing. Aim: durable remission with fewer systemic effects. journals.sagepub.com/doi/epdf/10.11…

TANeurolDisord's tweet image. Review: immune tolerance in #NMOSD/#MOGAD as an alternative to long-term immunosuppression. Strategies include antigen-specific vaccines/nanoparticles, Treg/Breg cell therapy, and gene editing. Aim: durable remission with fewer systemic effects.

journals.sagepub.com/doi/epdf/10.11…

🔊 Mañana tendrá lugar el II Encuentro Nacional entre pacientes con #NMOSD o #MOGAD, médicos y otros profesionales especializados en su atención. 👫👭👬 Un espacio para aprender, compartir y avanzar juntos.

neuroimmuclinic's tweet image. 🔊 Mañana tendrá lugar el II Encuentro Nacional entre pacientes con #NMOSD o #MOGAD, médicos y otros profesionales especializados en su atención. 

👫👭👬 Un espacio para aprender, compartir y avanzar juntos.

Misapplication of the 2015 criteria for neuromyelitis optica #NMOSD is common, and alternative explanations in seronegative #NMOSD should be considered, including multiple sclerosis and functional neurologic disorder. Study from @chenmayo @MayoClinic▶️ journals.sagepub.com/doi/abs/10.117…

MSJ_Research's tweet image. Misapplication of the 2015 criteria for neuromyelitis optica #NMOSD is common, and alternative explanations in seronegative #NMOSD should be considered, including multiple sclerosis and functional neurologic disorder.

Study from @chenmayo @MayoClinic▶️ journals.sagepub.com/doi/abs/10.117…

Among 897 participants with neuromyelitis optica spectrum disorder #NMOSD, employment dropped from 62.6% before diagnosis to 36.3% after. An international, multicentered, cross-sectional study from @FarrahMateen @MassGeneralNews ▶️ journals.sagepub.com/doi/full/10.11…

MSJ_Research's tweet image. Among 897 participants with neuromyelitis optica spectrum disorder #NMOSD, employment dropped from 62.6% before diagnosis to 36.3% after. 

An international, multicentered, cross-sectional study from @FarrahMateen @MassGeneralNews ▶️ journals.sagepub.com/doi/full/10.11…

Delighted to be in San Diego for #AANAM 🏝️ if you’re from the world of #NMOSD, #MOGAD or neuroimmunology, do say hello 🩷🧡💛

SumairaFlower's tweet image. Delighted to be in San Diego for #AANAM 🏝️ if you’re from the world of #NMOSD, #MOGAD or neuroimmunology, do say hello 🩷🧡💛

I am happy to share my first case report in Multiple Sclerosis and Related Disorders journal titled Uncommon Initial Presentation of Neuromyelitis Optica Spectrum Disorder: (SUNA)- A Case report msard-journal.com/article/S2211-… #MS #neurotwitter #NMOSD


Only 2 weeks to go! If you're an early-career clinician or investigator interested in a deep dive into #NMOSD and #MOGAD, apply now for the 2026 ECTRIMS Winter School. Submit your application here by 1 September 2025 ➡️ bit.ly/3SjqKwI #ECTRIMSNextGen

ECTRIMS's tweet image. Only 2 weeks to go! 

If you're an early-career clinician or investigator interested in a deep dive into #NMOSD and #MOGAD, apply now for the 2026 ECTRIMS Winter School.

Submit your application here by 1 September 2025 ➡️ bit.ly/3SjqKwI

#ECTRIMSNextGen

#中外製薬 のNMOSD Onlineにて 池口亮太郎先生、金子淳太郎先生との NMOSD未来会議の記事が公開されました ①専門医インタビュー ②座談会 気になるテーマごとに 大変見た目も読みやすい記事となってますー 是非!お時間ある時に nmosd-online.jp/support/mirai/ #NMO #NMOSD #視神経脊髄炎


Honoured to discuss updates on serodiagnosis at the 2024 ⁦@guthyjacksonfdn⁩ Pre-ECTRIMS #NMOSD Symposium.

FabienneBrilot's tweet image. Honoured to discuss updates on serodiagnosis at the 2024 ⁦@guthyjacksonfdn⁩ Pre-ECTRIMS #NMOSD Symposium.

Financial strain is highly prevalent in neuromyelitis optica spectrum disorder #NMOSD, and associated with key clinical (attacks and disability) and sociodemographic features (non-white). Study from @MGHNeurology ▶️ journals.sagepub.com/doi/full/10.11…

MSJ_Research's tweet image. Financial strain is highly prevalent in neuromyelitis optica spectrum disorder #NMOSD, and associated with key clinical (attacks and disability) and sociodemographic features (non-white).

Study from @MGHNeurology ▶️ journals.sagepub.com/doi/full/10.11…

Like #MultipleSclerosis, neuromyelitis optica spectrum disorder (#NMOSD) is a relapsing condition that affects the #CentralNervousSystem. Check out 7 common treatments for this rare condition that may be worth knowing about:mymsteam.com/resources/neur…


今夜も 無事じゃなく終わりました。 中田さん みなさま 良い週末を お過ごしください ませ。😀 #MS #NMOSD #MOGAD


#NMOSD#MOGAD#MS の鑑別を助ける #viral MRI 画像特徴   NMOSD、MS、MOGAD それぞれに特徴的な MRI 所見があり、これらを活用して鑑別精度を高めるという報告があります。たとえば延髄など部位、病変形態、長軸性所見などがヒントになると。 rarediseaseadvisor.com/news/mri-featu…


Have you heard of neuromyelitis optica spectrum disorder (#NMOSD), also called #DevicDisease? This rare #autoimmune disease can damage the #spinalcord and optic nerve, causing pain, vision loss, vertigo, or – for young patients – seizures. yalemedicine.org/conditions/neu…


#中外製薬 のNMOSD Onlineにて 池口亮太郎先生、金子淳太郎先生との NMOSD未来会議の記事が公開されました ①専門医インタビュー ②座談会 気になるテーマごとに 大変見た目も読みやすい記事となってますー 是非!お時間ある時に nmosd-online.jp/support/mirai/ #NMO #NMOSD #視神経脊髄炎


#NMOSD 10月26日 #甲府市

【イベントのご案内|#視神経脊髄炎】 10/7付 #山梨日日新聞 朝刊にて 当会主催「みんなに会いに行く in 甲府」が紹介 ◆10/26(日) 13:00〜15:25 会場:甲府・県立やまなし地域づくり交流センター ◆中外製薬共催セミナーとNMOJカフェを開催 ▼詳細・お申込(事前申込制) nmosd-japan.com/kofu/

nmosdjapan's tweet image. 【イベントのご案内|#視神経脊髄炎】
10/7付 #山梨日日新聞 朝刊にて
当会主催「みんなに会いに行く in 甲府」が紹介

◆10/26(日) 13:00〜15:25
会場:甲府・県立やまなし地域づくり交流センター
◆中外製薬共催セミナーとNMOJカフェを開催

▼詳細・お申込(事前申込制)
nmosd-japan.com/kofu/
nmosdjapan's tweet image. 【イベントのご案内|#視神経脊髄炎】
10/7付 #山梨日日新聞 朝刊にて
当会主催「みんなに会いに行く in 甲府」が紹介

◆10/26(日) 13:00〜15:25
会場:甲府・県立やまなし地域づくり交流センター
◆中外製薬共催セミナーとNMOJカフェを開催

▼詳細・お申込(事前申込制)
nmosd-japan.com/kofu/


🇨🇴 La vida de Olga cambió el 13/04/23 al ser diagnosticada con neuromielitis óptica. Tras años de dolor, su cuerpo se debilitó, pero no su espíritu. Hoy vive con fe y esperanza. Su historia refleja resiliencia, amor y la fuerza de renacer tras la caída. #NMOSD

TheSumairaFDN's tweet image. 🇨🇴 La vida de Olga cambió el 13/04/23 al ser diagnosticada con neuromielitis óptica. Tras años de dolor, su cuerpo se debilitó, pero no su espíritu. Hoy vive con fe y esperanza. Su historia refleja resiliencia, amor y la fuerza de renacer tras la caída. #NMOSD

Clinical efficacy of efgartigimod combined with intravenous methylprednisolone (IVMP) in the acute phase of NMOSD  この報告は、ステロイド静注と併用して #efgartigimod を使った #NMOSD #急性期 例において、IgG 降下、AQP4 抗体低下、視機能改善などを認めたとの記載があります。…


"This article reviews key insights gained into[#MOGAD & #NMOSD], tracing timelines that have shaped our knowledge. It outlines evolution of antibody assay techniques, examines their epidemiology & phenotypic presentations & describes predictive factors for clinical outcome."

Unraveling the spectrum of the antibody-mediated demyelinating diseases: Antibody assays, epidemiology, clinical presentations, treatments and outcomes. Review from @uOttawa @NDCNOxford @UniofOxford ▶️ journals.sagepub.com/doi/10.1177/13…

MSJ_Research's tweet image. Unraveling the spectrum of the antibody-mediated demyelinating diseases: Antibody assays, epidemiology, clinical presentations, treatments and outcomes.

Review from @uOttawa @NDCNOxford @UniofOxford ▶️ journals.sagepub.com/doi/10.1177/13…


🇦🇷 Bienvenida la Dra. Verónica Tkachuk, neuróloga, MSc en Neuroinmunología y docente en la UBA, como Embajadora Clínica de TSF en Argentina. Con foco en #NMOSD, #MOGAD y #EM, busca fortalecer la educación y conexión de pacientes en LATAM.

TheSumairaFDN's tweet image. 🇦🇷 Bienvenida la Dra. Verónica Tkachuk, neuróloga, MSc en Neuroinmunología y docente en la UBA, como Embajadora Clínica de TSF en Argentina. Con foco en #NMOSD, #MOGAD y #EM, busca fortalecer la educación y conexión de pacientes en LATAM.

#NMOSD #診断基準の改訂#2025ECTRIMS で、国際診断パネル (IPND) が新しい NMOSD の診断基準を提示。AQP4抗体陽性 NMOSD を明確に独立疾患とし、抗体陰性例や MOGAD と区別する枠組みを改訂。  これにより、診断名として選択できるのは「#NMOSD_AQP4IgG+)」「#MOGAD」「#抗体陰性型


A @PLOSONE study assessed the emotional and psychological impact of #NMOSD on patients and caregivers. Patients commonly reported anxiety, depression, trouble coping, etc., highlighting the need for mental health support. sumairafoundation.org/summaries/the-…

TheSumairaFDN's tweet image. A @PLOSONE study assessed the emotional and psychological impact of #NMOSD on patients and caregivers. Patients commonly reported anxiety, depression, trouble coping, etc., highlighting the need for mental health support.

sumairafoundation.org/summaries/the-…

In neuromyelitis optica spectrum disorders #NMOSD, cognitive impairment was associated with relapses, specifically those with lower education and longer disease duration. Study from @udg_oficial ▶️ journals.sagepub.com/doi/full/10.11…

MSJ_Research's tweet image. In neuromyelitis optica spectrum disorders #NMOSD, cognitive impairment was associated with relapses, specifically those with lower education and longer disease duration.

Study from @udg_oficial ▶️ journals.sagepub.com/doi/full/10.11…

#NMOSD(視神経脊髄炎スペクトラム障害) #診断基準の改訂#2025年ECTRIMS 新基準案発表 国際パネル(IPND)が #AQP4抗体陽性NMOSD を「独立した疾患(disease)」として再定義。MOGADや抗体陰性例とは区別。 バイオマーカー •#可溶性CD83(sCD83)低下…


こちらは緑内障チェック用の画像だそうです! 緑内障は、目と脳をつなぐ視神経が損傷を受ける病気。 メカニズムは違えど、視神経が損傷を受けるという意味では視神経脊髄炎と共通しているのかな。 悪化スピードは違うかもしれないけど、見え方の低下の仕方も似ている。 #視神経脊髄炎 #NMOSD

【緑内障簡易チェック】 片目でこの画像を見てください。 1.画像を30㎝離します 2.中心の赤い点を見つめます 3.見えない所がないかを探します これを両目に行います。メガネやコンタクトをしている場合は使って検査を行って下さい。

doctorK1991's tweet image. 【緑内障簡易チェック】
片目でこの画像を見てください。

1.画像を30㎝離します
2.中心の赤い点を見つめます
3.見えない所がないかを探します

これを両目に行います。メガネやコンタクトをしている場合は使って検査を行って下さい。


退院後も毎日、右目の見え方を確認していますが、一昨日からこちらの画像も利用させていただいています。 一昨日は「D」が見えなかったけど、昨日から薄っすら見える気がする! 皆様はどうですか? #視神経脊髄炎 #NMOSD

【簡単白内障チェック】 片目でこの画像を見てください。 1.画像を30㎝離します 2.左から文字を読む これを両目にやります。 「GOOD」でなければ、白内障など目の病気かもしれません。 読めたらリツイートで、あなたのフォロワーさんにも伝えてください。 気になることはコメントください。

doctorK1991's tweet image. 【簡単白内障チェック】
片目でこの画像を見てください。

1.画像を30㎝離します
2.左から文字を読む

これを両目にやります。

「GOOD」でなければ、白内障など目の病気かもしれません。

読めたらリツイートで、あなたのフォロワーさんにも伝えてください。

気になることはコメントください。


Dr. Michael Levy presented on clinical trial insights into the pathogenesis of #NMOSD at ISNI’s annual congress in Chiba 🇯🇵

TheSumairaFDN's tweet image. Dr. Michael Levy presented on clinical trial insights into the pathogenesis of #NMOSD at ISNI’s annual congress in Chiba 🇯🇵

Treatment with #Ultomiris (#ravulizumab) for those with #NMOSD was associated with long-term relapse prevention in data presented at #ECTRIMS2025. ow.ly/Z9BX50X6qsg @ECTRIMS @AlexionPharma @AstraZeneca @mssociety


Thrilled to witness the updated NMOSD criteria unveiled today by Dean M. Wingerchook 🙌 A big step forward for the field — exciting times ahead in neuroimmunology! #NMOSD #ECTRIMS2025 @ECTRIMS

exmaissou's tweet image. Thrilled to witness the updated NMOSD criteria unveiled today by Dean M. Wingerchook 🙌 A big step forward for the field — exciting times ahead in neuroimmunology! #NMOSD #ECTRIMS2025 @ECTRIMS
exmaissou's tweet image. Thrilled to witness the updated NMOSD criteria unveiled today by Dean M. Wingerchook 🙌 A big step forward for the field — exciting times ahead in neuroimmunology! #NMOSD #ECTRIMS2025 @ECTRIMS
exmaissou's tweet image. Thrilled to witness the updated NMOSD criteria unveiled today by Dean M. Wingerchook 🙌 A big step forward for the field — exciting times ahead in neuroimmunology! #NMOSD #ECTRIMS2025 @ECTRIMS
exmaissou's tweet image. Thrilled to witness the updated NMOSD criteria unveiled today by Dean M. Wingerchook 🙌 A big step forward for the field — exciting times ahead in neuroimmunology! #NMOSD #ECTRIMS2025 @ECTRIMS

MENACTRIMS 9th Congress was a blast! Great to reconnect with colleagues and learn so much about MS treatment and NMOSD at the Hilton Hall. Thanks, Dr. Seraj Makkawi @Dr_Makkawi, for your participation & support! #MENACTRIMS #MS #NMOSD #neurology #NGHA

Fayyx_'s tweet image. MENACTRIMS 9th Congress was a blast! Great to reconnect with colleagues and learn so much about MS treatment and NMOSD at the Hilton Hall. Thanks, Dr. Seraj Makkawi @Dr_Makkawi, for your participation & support!

#MENACTRIMS #MS #NMOSD #neurology #NGHA
Fayyx_'s tweet image. MENACTRIMS 9th Congress was a blast! Great to reconnect with colleagues and learn so much about MS treatment and NMOSD at the Hilton Hall. Thanks, Dr. Seraj Makkawi @Dr_Makkawi, for your participation & support!

#MENACTRIMS #MS #NMOSD #neurology #NGHA
Fayyx_'s tweet image. MENACTRIMS 9th Congress was a blast! Great to reconnect with colleagues and learn so much about MS treatment and NMOSD at the Hilton Hall. Thanks, Dr. Seraj Makkawi @Dr_Makkawi, for your participation & support!

#MENACTRIMS #MS #NMOSD #neurology #NGHA

第2回国際NMOSDサミットのお申込みスタート❣️ テーマは 『NMOSDの未来を語ろう!』 お楽しみ頂ける様に、私達も一丸となって 準備を進めております🙇‍♀️ 公式サイトに詳細あり↓ nmosd-japan.com/summit2/ お申し込み↓ forms.gle/pkDRQ9fz4dk6Ww… #NMO #視神経脊髄炎 #NMOSD

nmosdjapan's tweet image. 第2回国際NMOSDサミットのお申込みスタート❣️

テーマは
『NMOSDの未来を語ろう!』

お楽しみ頂ける様に、私達も一丸となって
準備を進めております🙇‍♀️

公式サイトに詳細あり↓
nmosd-japan.com/summit2/

お申し込み↓
forms.gle/pkDRQ9fz4dk6Ww…

#NMO #視神経脊髄炎 #NMOSD

本日(8/24)の讀賣新聞朝刊だそうです 1ヶ月も前のチャリティコンサートにも関わらず この様な記事で取り上げていただける事に感謝 「視神経脊髄炎」という病名だけでも より多くの方々へ広まる様に そして 患者会活動も精一杯歩み続けます❣️ #NMO #NMOSD #視神経脊髄炎

nmosdjapan's tweet image. 本日(8/24)の讀賣新聞朝刊だそうです

1ヶ月も前のチャリティコンサートにも関わらず
この様な記事で取り上げていただける事に感謝

「視神経脊髄炎」という病名だけでも
より多くの方々へ広まる様に

そして
患者会活動も精一杯歩み続けます❣️

#NMO #NMOSD #視神経脊髄炎

Congratulations to the #NMOSD team at Mayo Clinic for Receiving The Team Science Award 🤩 From defining its clinical/pathological features to finding aquaporin-4 antibodies to leading trials of effective treatments - this team have greatly improved outcomes for #NMOSD patients

EoinFlanagan14's tweet image. Congratulations to the #NMOSD team at Mayo Clinic for Receiving The Team Science Award 🤩  From defining its clinical/pathological features to finding aquaporin-4 antibodies to leading trials of effective treatments - this team have greatly improved outcomes for #NMOSD patients

先ほど7回目のエンスプリング自己注射完了いたしやした😤🤙 ちなみに一発153万円也…😅 #NMOSD #視神経脊髄炎

mtkmrkm's tweet image. 先ほど7回目のエンスプリング自己注射完了いたしやした😤🤙

ちなみに一発153万円也…😅

#NMOSD
#視神経脊髄炎

Marion Jones, #NMOSD patient, marathoner and TSF Ambassador of Illinois, is one of the patient panelists at @ECTRIMS Patient Community Day, speaking about lived experiences, patient advocacy and the importance of patient participation in research for rare diseases 🩷🧡💛

TheSumairaFDN's tweet image. Marion Jones, #NMOSD patient, marathoner and TSF Ambassador of Illinois, is one of the patient panelists at @ECTRIMS Patient Community Day, speaking about lived experiences, patient advocacy and the importance of patient participation in research for rare diseases 🩷🧡💛
TheSumairaFDN's tweet image. Marion Jones, #NMOSD patient, marathoner and TSF Ambassador of Illinois, is one of the patient panelists at @ECTRIMS Patient Community Day, speaking about lived experiences, patient advocacy and the importance of patient participation in research for rare diseases 🩷🧡💛
TheSumairaFDN's tweet image. Marion Jones, #NMOSD patient, marathoner and TSF Ambassador of Illinois, is one of the patient panelists at @ECTRIMS Patient Community Day, speaking about lived experiences, patient advocacy and the importance of patient participation in research for rare diseases 🩷🧡💛

Discussing current and emerging treatments in #NMOSD and #MOGAD. Great talk by @darshi_r at #ECTRIMS2025. @TheMOGProject @TheSumairaFDN

FabienneBrilot's tweet image. Discussing current and emerging treatments in #NMOSD and #MOGAD. Great talk by @darshi_r  at #ECTRIMS2025. @TheMOGProject @TheSumairaFDN

Delighted to be in San Diego for #AANAM 🏝️ if you’re from the world of #NMOSD, #MOGAD or neuroimmunology, do say hello 🩷🧡💛

SumairaFlower's tweet image. Delighted to be in San Diego for #AANAM 🏝️ if you’re from the world of #NMOSD, #MOGAD or neuroimmunology, do say hello 🩷🧡💛

10 years ago today, I was diagnosed with #NMOSD. I was so sick, blind, distraught and angry. A decade later, I’m happier & healthier than ever (in remission since 2018) Never stop believing, dreaming, wishing, manifesting, trying and hoping for better. Anything is possible ✨

SumairaFlower's tweet image. 10 years ago today, I was diagnosed with #NMOSD. I was so sick, blind, distraught and angry.

A decade later, I’m happier & healthier than ever (in remission since 2018)

Never stop believing, dreaming, wishing, manifesting, trying and hoping for better. Anything is possible ✨
SumairaFlower's tweet image. 10 years ago today, I was diagnosed with #NMOSD. I was so sick, blind, distraught and angry.

A decade later, I’m happier & healthier than ever (in remission since 2018)

Never stop believing, dreaming, wishing, manifesting, trying and hoping for better. Anything is possible ✨

Our own ⁦@cobanmd⁩ participating in the #NMOSD and #MOGAD patient day New England expert panel ⁦@uconnhealth⁩ MS giving back to the community meeting organized by ⁦@TheSumairaFDN@MassGenBrigham⁩ ⁦@AANmember

DrJim4MS's tweet image. Our own ⁦@cobanmd⁩ participating in the #NMOSD and #MOGAD patient day New England expert panel ⁦@uconnhealth⁩ MS giving back to the community meeting organized by ⁦@TheSumairaFDN⁩ @MassGenBrigham⁩ ⁦@AANmember⁩

🏡ホームページ更新しました 「視神経脊髄炎について知ってほしいこと」 mscabin.org/nmosdday2023/ #nmosd

mscabin's tweet image. 🏡ホームページ更新しました
「視神経脊髄炎について知ってほしいこと」
mscabin.org/nmosdday2023/

#nmosd

Among 897 participants with neuromyelitis optica spectrum disorder #NMOSD, employment dropped from 62.6% before diagnosis to 36.3% after. An international, multicentered, cross-sectional study from @FarrahMateen @MassGeneralNews ▶️ journals.sagepub.com/doi/full/10.11…

MSJ_Research's tweet image. Among 897 participants with neuromyelitis optica spectrum disorder #NMOSD, employment dropped from 62.6% before diagnosis to 36.3% after. 

An international, multicentered, cross-sectional study from @FarrahMateen @MassGeneralNews ▶️ journals.sagepub.com/doi/full/10.11…

10月24日は視神経脊髄炎の日。予定をお知らせします! ☘️10/21(土) この日のためにずっとあたためてきた特別ブログ公開 ☘️10/24(火) 間違いなく多くの方にお役立ていただける動画公開 この病気の理解が少しでも広まることを願って。 #NMOSD

mscabin's tweet image. 10月24日は視神経脊髄炎の日。予定をお知らせします!

☘️10/21(土)
この日のためにずっとあたためてきた特別ブログ公開
☘️10/24(火)
間違いなく多くの方にお役立ていただける動画公開

この病気の理解が少しでも広まることを願って。
#NMOSD

Honoured to discuss updates on serodiagnosis at the 2024 ⁦@guthyjacksonfdn⁩ Pre-ECTRIMS #NMOSD Symposium.

FabienneBrilot's tweet image. Honoured to discuss updates on serodiagnosis at the 2024 ⁦@guthyjacksonfdn⁩ Pre-ECTRIMS #NMOSD Symposium.

🔊 Mañana tendrá lugar el II Encuentro Nacional entre pacientes con #NMOSD o #MOGAD, médicos y otros profesionales especializados en su atención. 👫👭👬 Un espacio para aprender, compartir y avanzar juntos.

neuroimmuclinic's tweet image. 🔊 Mañana tendrá lugar el II Encuentro Nacional entre pacientes con #NMOSD o #MOGAD, médicos y otros profesionales especializados en su atención. 

👫👭👬 Un espacio para aprender, compartir y avanzar juntos.

Dr. Michael Levy presented on clinical trial insights into the pathogenesis of #NMOSD at ISNI’s annual congress in Chiba 🇯🇵

TheSumairaFDN's tweet image. Dr. Michael Levy presented on clinical trial insights into the pathogenesis of #NMOSD at ISNI’s annual congress in Chiba 🇯🇵

Delighted to share @dinoto_ale et al study on the rare cerebellar attacks in #NMOSD attacks: ➡️ Often coexist with brainstem attacks ➡️ MRIs with peduncle or dentate nucleus lesions ➡️ Should be incorporated in upcoming 2025 #NMOSD diagnostic criteria 👇 neurology.org/doi/10.1212/NX…

EoinFlanagan14's tweet image. Delighted to share @dinoto_ale et al study on the rare cerebellar attacks in #NMOSD attacks: ➡️ Often coexist with brainstem attacks ➡️ MRIs with peduncle or dentate nucleus lesions ➡️ Should be incorporated in upcoming 2025 #NMOSD diagnostic criteria 👇 neurology.org/doi/10.1212/NX…

第2回 国際NMOSDサミット 開催決定❣️ 中島先生❣️今年も宜しくお願い申し上げます🙇‍♀️🙇‍♀️🙇‍♀️ NMOSD患者参加コーナーも 予定していますーー 会場は中外製薬本社(東京・日本橋)となります🎶 #NMOSD #視神経脊髄炎 #NMO

nmosdjapan's tweet image. 第2回 国際NMOSDサミット
開催決定❣️

中島先生❣️今年も宜しくお願い申し上げます🙇‍♀️🙇‍♀️🙇‍♀️

NMOSD患者参加コーナーも
予定していますーー

会場は中外製薬本社(東京・日本橋)となります🎶

#NMOSD #視神経脊髄炎 #NMO

Misapplication of the 2015 criteria for neuromyelitis optica #NMOSD is common, and alternative explanations in seronegative #NMOSD should be considered, including multiple sclerosis and functional neurologic disorder. Study from @chenmayo @MayoClinic▶️ journals.sagepub.com/doi/abs/10.117…

MSJ_Research's tweet image. Misapplication of the 2015 criteria for neuromyelitis optica #NMOSD is common, and alternative explanations in seronegative #NMOSD should be considered, including multiple sclerosis and functional neurologic disorder.

Study from @chenmayo @MayoClinic▶️ journals.sagepub.com/doi/abs/10.117…

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