#pscsupport search results

GOOD LUCK to Becky at the #GreatBirminghamRun next month! 👟 Taking on a her 4th half marathon is no small feat, but she's doing it for a very special reason - supporting her partner, Kaine and raising much-needed funds for #PSCSupport. buff.ly/7I8mM7a #LetsBeatPSC

AMAZING NEWS! Following Dr Joshi's video last week, the Loizias Foundation has generously offered to MATCH every donation up to his £5,000 target! 🤩 That means £1 becomes £2! A huge thank you to the foundation. Donate here: buff.ly/s20zxMo #LetsBeatPSC #PSCSupport

She did it! After only managing limoted training due to injury,and living with a chronic illness (PSC), Amy completed the Brighton Marathon. Thank you to all who donated to her fundraising page, I know this helped her in moments of doubt! She has raised £3147.00! #PSCSupport

Good luck to our incredible #TeamPSCSupport taking on @ParisMarathon today! We're so proud to have you represent #PSCSupport in Paris. Join us in wishing them good luck! If you've ever considered running for us, check this out: 👉 buff.ly/tf4QSfS #LetsBeatPSC

PSC is no joke. It's hard to pronounce and even harder to explain. Share this graphic to help raise awareness and understanding of this rare, complex disease. ℹ️ buff.ly/aaQks0r #LetsBeatPSC #PSCSupport #RareDisease #LiverDisease #ChronicIllness #PSCcommunity

Living with PSC can feel like learning a second language. It’s okay to feel overwhelmed by what you’re told in the clinic room. Our specialist Helpline Nurse, Loren, is here for you.🔗 Book a slot: buff.ly/dc8o4zR #PSCSupport #RareDisease #LetsBeatPSC @HelplinesUK

Huge thank you to Jenny, Sophie and their entire community for raising awareness of PSC and vital funds for the PSC community. #PSCSupport #LetsBeatPSC #RareDiseaseAwareness #CommunityChampion #PrimarySclerosingCholangitis #RareDiseaseDayEveryDay

The big day is nearly here! Katie's taking part in the @great_run Scottish Half Marathon, raising funds for #PSCSupport. 'This rare autoimmune condition has no cure or treatment as very little is known about it. PSC has had a massive impact on Ella.' ➡️ buff.ly/4fMsH51

Just 1 week to go! Ever wondered about the different types of PSC? What is small-duct PSC and how is it different? There’s still time to register join us for our next live Ask the Expert session: buff.ly/svSzTnG #LetsBeatPSC #LiverHealth #PSCSupport #AskTheExpert

Summer is almost over and before we know it, the leaves will be crunching beneath our feet! Ready for chilly weather, cosy jumpers, and pumpkin spice everything?☕🍁Thinking about raising awareness and funds for #PSCSupport this autumn? Let's chat! [email protected]

Swing into action… in a kilt! 🕸️ Sign up for the Edinburgh @theKiltWalk and help us get closer to finding effective treatments, and a cure, for PSC by raising vital funds for #PSCSupport. ➡️ buff.ly/dJY3kNI #LetsBeatPSC #TeamPSCSupport #KiltUpForCharity #WalkLikeAHero

Did you know today is International #StrangeMusicDay? A celebration of discovering & sharing new sounds! Music lifts us, calms us, energises us - whether training, resting, or cooking dinner. Share your favourite tracks in comments & help build a #PSCSupport playlist #LetsBeatPSC

Registration is open! Join us on Sept 13 in Leeds for our next PSC Support Information Day with keynote Dr. Simon Rushbrook. Talks, interactive sessions & community connections. Save your spot today! buff.ly/2aZkPEc #LetsBeatPSC #PSCSupport #PSCInformationDay

Did you hear the NorUrso clinical trial news we announced recently? This is the furthest a drug has progressed in PSC medicine development with positive results. Find out more ➡️ buff.ly/saSIfdo #PSCSupport #LetsBeatPSC #ClinicalTrials #EASL2025 #NorUrso #PSC

Meet James, the newest moderator of the PSC Support private facebook group. This group provides a safe space for people with PSC and their families to ask questions and discuss life with PSC. ➡️ buff.ly/RhLPgff #LetsBeatPSC #PSCSupport

100K in a day! 👏 If you’re inspired by Gemma and Ellie, please get in touch. Message us here or email [email protected]. We’re here to help. #LetsBeatPSC #PSCSupport

Are you passionate about making a difference? You don’t need to be a research expert, just someone who can pitch in for 5 hours a week and help keep things running smoothly. ➡️ buff.ly/tLTSp88 📣 Please share #LetsBeatPSC #VolunteerRole #PSCSupport #CharityRole

Trick question, there’s no such thing as a “PSC diet”! ❌🥗 No proven diet slows PSC (yet), but many people with PSC say food changes help them feel better. What’s worked (or not worked) for you? More info 👉 buff.ly/1YDeTqw #PSCSupport #PSCdiet #RareDisease #LetsBeatPSC

EDIT: link to the full video in the first post was broken, the above link is correct and will take you directly to this update on YouTube #PSC #PSCSupport #bileductcancer #cancerresearch #pscresearch #cca

Thank you for helping us grow 🌱💙 Your support means the world. By leaving a gift in your will, you can help us keep growing—driving research, support & hope for future generations. Free will-writing info ⬇️ buff.ly/Ix4Bhwf #PSCSupport #LetsBeatPSC

GOOD LUCK to Becky at the #GreatBirminghamRun next month! 👟 Taking on a her 4th half marathon is no small feat, but she's doing it for a very special reason - supporting her partner, Kaine and raising much-needed funds for #PSCSupport. buff.ly/7I8mM7a #LetsBeatPSC

Navigating life with PSC can be challenging. That's why we believe in celebrating every victory, no matter how small.What's ONE small thing you achieved this week? (e.g., made the bed, sent an email, breathed deep). Share yours below. #PSCSupport #LetsBeatPSC

New treatment pathways are opening up for patients with PSC and CCA in the UK. Join @CharityAMMF for a specialist webinar on #LiverTransplantation and #ProtonBeamTherapy. 📆 11 Feb | 18:00 Register: buff.ly/B5BnJmF #PSCSupport #RareDisease #LetsBeatPSC

Today is #RareDiseaseDay! 🌍 From a "black box" to a global movement: we are accelerating PSC research and fighting for equity of care. Find out how we’re collaborating globally to find a cure and how you can help: buff.ly/FueATfN #RareDiseaseDay2026 #PSCSupport #PSC

This #ThankYouThursday, we’re honouring the memory of Gregor. 🧡 His cousin Alice raised an incredible £4,075 through a prize draw with her jewellery business. A massive thank you to Alice & her family for supporting our work in Gregor’s name. 💍✨ #LetsBeatPSC #PSCSupport

Last year, the Brown family raised £7k for #PSCSupport. This year? They’re doubling it! Joe (diagnosed at 15) is a "superhero" financial advisor training for the #LondonMarathon, while Pam & Nina lead the charge in the mortgage industry. ➡️ buff.ly/4rWH3WB #LetsBeatPSC

Huge thank you to Jenny, Sophie and their entire community for raising awareness of PSC and vital funds for the PSC community. #PSCSupport #LetsBeatPSC #RareDiseaseAwareness #CommunityChampion #PrimarySclerosingCholangitis #RareDiseaseDayEveryDay

New #PSCSupport research finds high ALP associated with decreased protective genes in the small intestine in #PSC. This suggests the small intestine could be a key target for future treatments, perhaps via the #gutmicrobiome. Full details: buff.ly/TVpOLd2 #Mission2030

Take on the world’s biggest half-marathon for #PSCSupport! 🏅We have 5 charity places for the 2026 #GreatNorthRun. Don’t miss your chance to join #TeamPSCSupport and help us fund life-changing research. Register your interest today: buff.ly/FF7Zxfv #LetsBeatPSC

Good luck to our incredible #TeamPSCSupport taking on @ParisMarathon today! We're so proud to have you represent #PSCSupport in Paris. Join us in wishing them good luck! If you've ever considered running for us, check this out: 👉 buff.ly/tf4QSfS #LetsBeatPSC

Living with PSC can feel like learning a second language. It’s okay to feel overwhelmed by what you’re told in the clinic room. Our specialist Helpline Nurse, Loren, is here for you.🔗 Book a slot: buff.ly/dc8o4zR #PSCSupport #RareDisease #LetsBeatPSC @HelplinesUK

Canals, Windmills, and a Cure! 🇳🇱 General sale for the Amsterdam Marathon is SOLD OUT, but we have places! Join #TeamPSCSupport on 18 Oct 2026 for a flat, fast, and scenic run through the heart of the city. 🏅 👉 buff.ly/dgjs6Oi #AmsterdamMarathon #PSCSupport #LetsBeatPSC

Got questions about PSC? Book a free, confidential call or Zoom with our specialist nurse, Loren. February slots are now open! 👉 buff.ly/dc8o4zR📞💻 #LetsBeatPSC #PSCSupport #RareDisease #ChronicIllness #HelplinesAwarenessDay #LiverDisease #NursingSupport @HelplinesUK

Help improve psychological support for liver transplant patients & families. @UKODTRN wants to hear from you. Your anonymous responses will directly shape future support services. Closes: 22 Feb. 👉 buff.ly/Fmw5xLB #LiverTransplant #PSCSupport #PatientVoice #UKODTRN

2025 was a year of progress towards treatments for the PSC community. Swipe to see the highlights from four major trials: NCA, Nebokitug, Elafibranor, and Volixibat and read the full Research Roundup ⬇️ buff.ly/TPvXM93 #LetsBeatPSC #PSCSupport #LiverResearch

Last week in Prague, Martine Walmsley and Dr. Nora Cazzagon presented the ERN RARE-LIVER PSC Working Group’s achievements and 2026 strategy. 🇨🇿 Read the full report: 🔗 buff.ly/1GBmuN0 #PSCSupport #ERNRareLiver #RareDisease #PatientAdvocacy #LetsBeatPSC

Our vision is a world without PSC. We will not stop until that vision becomes a reality. If you can, please consider becoming a monthly donor to help us plan our vital work. buff.ly/Zvc1iHc #LetsBeatPSC #PSCSupport

PSC is no joke. It's hard to pronounce and even harder to explain. Share this graphic to help raise awareness and understanding of this rare, complex disease. ℹ️ buff.ly/aaQks0r #LetsBeatPSC #PSCSupport #RareDisease #LiverDisease #ChronicIllness #PSCcommunity

📣 Martine Walmsley & Mark Chatterley are now leading #PSCSupport. Together, they're turning ambition into action, focusing on world-class research & providing fact-checked, quality-assured information our community relies on. Full update: buff.ly/WcaZ4R3 #LetsBeatPSC

At #PSCSupport, we leave the superstitions at the door, focusing on: 🟣 Fact-checked, evidence-based information 🟢 Quality-assured resources you can trust 🟠 The latest clinical research and medical guidance ℹ️ buff.ly/Yn1QQhE #FridayThe13th #LiverDisease #LetsBeatPSC