#chronicillness search results
𧾠"How medical training promotes medical gaslighting" by K. Johnstone mecfs.substack.com/p/how-medical-⌠This is not illness specific. #chronicillness 1/
âIt really doesnât make much sense to continue to push beyond our limits⌠We end up in a vicious cycle of more #pain, tiredness and other worsening #symptoms. All of which remove more and more control over our daily lives.â buff.ly/xZqlg2a @My_medmusings #chronicillness
"Freud's Hysteria: Part of the history of psychologizing physical illness" by K. Johnstone @SockFoam mecfs.substack.com/p/freuds-hyste⌠Relatively short blog post #chronicillness
My body doesnât do âwake up refreshed.â It does âwake up and negotiate.â #ChronicIllness
Your heart rate in #POTS isnât the root problemâitâs compensation. If your HR is normal lying down, your system can regulate. The issue is how your body processes signals when youâre upright. Stop chasing the symptom. Find the signal. #dysautonomia #chronicillness
From @onelife_livedwell on IG: Thereâs a grief that comes with Long COVID [Tom: other conditions too] no one really prepares you for: The grief of not recognizing your own body The grief of missing old routines The grief of friends who faded away [deleted to fit] #chronicillness
âChronic pain is not our choice! We would rather be healthy and doing all the activities that people without pain do. We never asked to live a life being limited⌠#ChronicPain steals the life we want and used to have.â buff.ly/3pMgyBJ #chronicillness #disability
This is the 1st I've been out of bed all day. My stomach hurts so much from all the heaving, it just keep going even when there was only bile left. Plus, I get SO hot when I'm sick and then I get cold, then I get hot.... #ODSP #ChronicIllness
I've basically been sleeping all day. I've been so nauseas I have to lay down. Nothing to eat, and I need to force myself to drink something. I hate feeling like this. I don't know what brings it on. Something else to ask the doc next month. #ODSP #ChronicIllness
Another lived experience, now shared đ Corynna R shares her story with spinal CSF leak from lumbar puncture. Stories like this help make spinal CSF leaks more visible. Read: spinalcsfleakstories.com/stories/corynn⌠#SpinalCSFLeak #ChronicIllness #EveryDropCounts
I kept down some fruit cocktail...damn that stuff is good. I would prefer a nice juicy apple, but I'll take what I got! LOL I'm still dizzy, very weak & a bit nauseas. But I'm able to walk to the living room from the bedroom, so that's progress. #ODSP #ChronicIllness
Looking to connect to like minded individuals check my profile #likeminded #women #chronicillness #life #lifeover40
"A lot of the #anxiety I experience is a result of not being able to trust my body. Every day it's hit or miss whether my body will hold out. I don't trust that my legs will allow me to walk.â #Anxiety; Through The Prism of #ChronicIllness buff.ly/3Q6eDiU @serenebutterfly
âItâs hard knowing that people donât get how you feel or understand the daily agony you face. It can make you feel different to those around you⌠âfeeling alone in a crowded roomâ that is what it feels like to be lonely with #chronicillness.â buff.ly/3phUEWp @me_illness
âWe never get to see people living with pain or #disability becauseâguess what? They canât leave their houses. #Painflare-ups can also be unpredictable. You might make plans and then have to say, âIâm sorry, but I canât manage this today.ââ buff.ly/2Efol1D #chronicillness
âIt usually means Iâm in so much pain that I canât accurately explain in a way someone would understand⌠saying âIâm tiredâ is easier.â 22 Things People With #Fibromyalgia Really Mean When They Say 'I'm Tired' buff.ly/3NjJD0K #chronicpain #chronicillness
Can I get a â¤ď¸ for being brave? #Chronicillness #Warrior
"Psychologizing kids with asthma, in the past and today: Attributing physical illness to a neurotic personality isn't new." by K. Johnstone @SockFoam (Apr 18, 2026) mecfs.substack.com/p/psychologizi⌠#chronicillness #invisibleillness
I've basically been sleeping all day. I've been so nauseas I have to lay down. Nothing to eat, and I need to force myself to drink something. I hate feeling like this. I don't know what brings it on. Something else to ask the doc next month. #ODSP #ChronicIllness
Your heart rate isnât the problemâitâs the rescue response. If brain blood flow drops when you stand, your body increases HR to compensate. Suppressing it without addressing why itâs happening? Thatâs missing the root. #POTS #Dysautonomia #ChronicIllness
âIt really doesnât make much sense to continue to push beyond our limits⌠We end up in a vicious cycle of more #pain, tiredness and other worsening #symptoms. All of which remove more and more control over our daily lives.â buff.ly/xZqlg2a @My_medmusings #chronicillness
#Hypocapnia isnât just a data point. It can drive cerebral blood flow changesâor reveal a deeper issue. The real question isnât âis it the problem?â Itâs: whatâs causing it? #dysautonomia #chronicillness
It's rather like a live show of daily struggle and continuous suffering that have no end yet and I think,won't come to an end in the foreseeable future #chronicillness
The story of living with chronic illness is not a joke or merely a superficial talk chronically ill people just say and go. #chronicillness
Motivation can fluctuateâwhat helps you keep going when times get hard? #ChronicIllness
Not donating to DJs who deal with #MentalHealth and #ChronicIllness is seen as disturbingly evil content.
Giveaways! Friday night party time with Aerogarfield29, StormEh15 and AddyVillimey! Come hangout with us! #chronicillness #twitchpartner #mmogirlie #palia #dragonsneststreamteam Twitch.tv/tatsuya_inc
Check out Chronic Illness Warrior Handmade Earrings With Affirmation Rainbow #chronicillness #handmade #handcrafted #invisibleillness #disability ebay.us/m/6TdMRL #eBay via @eBay_UK
Woah...I'm so dehydrated the skin on my arms is all loose & wrinkly. Super gross...no wonder I'm so itchy! LOL I'm going to take a LONG soak in the tub tomorrow...it's gonna be great. LOL #ODSP #ChronicIllness
Getting an AICD made heart failure feel real. In this episode, I share the fear, operating lights, strange sensations, and waking up with emergency hardware in my chest. The patient version, in plain language. #sarcoidosis #chronicillness bit.ly/4n2XwjD
buzzsprout.com
Getting an AICD: What the Surgery Felt Like From the Hospital Bed -...
Strength is not endless endurance. Strength is sustainability. #chronicillness #autoimmunedisease #chronicpain #mindbodyhealing #chronicillnesswarrior #wellnessjourney #supportegywellness #holistichealth #WorkingWithChronicIllness #InvisibleIllness #ThriveLoop
What is your biggest pain point in your health journey and what could be done to help it? #chronicillness #autoimmune #womenshealth #menshealth #longcovid #mecfs
Western medicine's acute care model isn't suited for chronic conditions. Treating ongoing issues with short-term solutions misses the mark. We need a different approach for long-term health. #HealthCare #ChronicIllness
The people who believe you without needing proof are worth more than everyone else combined. If you have even one person like that, you're lucky. Treasure them. #longcovid #chronicillness
Lower Stress With MG: bit.ly/4kMQvlD #MyastheniaGravis #StressManagement #ChronicIllness #MyastheniaGravisNews #Bionews
Looking to connect to like minded individuals check my profile #likeminded #women #chronicillness #life #lifeover40
Start the conversation đŹ bit.ly/4284yde Mental health looks different when youâre living with myasthenia gravis, and it can shift day to day in ways people donât always see. #MentalHealthAwarenessMonth #MyastheniaGravis #ChronicIllness #MyastheniaGravisNews #Bionews
â#BrainFog is another sign that my #spoons are pretty low⌠If I get carried away doing some mental taskâŚI suddenly find myself at a point where I just canât think any more⌠I know I have to rest, in fact I have no choice.â buff.ly/vk5xqtg #chronicillness #spoonie
Iâve been dealing with chronic health issues for a while now, and over time Iâve learned that what I eat has a huge impact on how I feel. Here are some simple habits that have helped me feel better, heal, and function day-to-day đ§ľ #ChronicIllness #GutHealth #Wellness
âIt isnât easy to love a body that holds you back. I had so many dreams and aspirationsâŚbeing unable toâŚleaves me feeling incredibly unproductive and worthless. I feel trapped in the prison of my body.â buff.ly/42LluoY @serenebutterfly #chronicillness #chronicpain
"A lot of the #anxiety I experience is a result of not being able to trust my body. Every day it's hit or miss whether my body will hold out. I don't trust that my legs will allow me to walk.â #Anxiety; Through The Prism of #ChronicIllness buff.ly/3Q6eDiU @serenebutterfly
âBut it's also an extremely misleading answer, if not an outright lie. Because I am never fine, I never feel fine; my chronicillness' #symptoms ensure that⌠I'm fine is a lie that #chronicillness makes me tell.â buff.ly/3Vksohr @serenebutterfly #chronicpain
âThere is often a huge sense of loss [with] #chronicillness⌠the loss of a career, loss of friends or social life. But the biggest loss is often who they once were. Many people no longer feel that theyâre the same person. They grieve for that person.â buff.ly/kUOZ9CG
âOverdoing it. Walking too much. Doing too much work around the house. I want to pace all the time, but sometimes my brain thinks âHey we can do thisâ and my body is like âWhat theâŚ!'â #PainFlare Triggers buff.ly/445byqk @AChVoice #ChronicPain #ChronicIllness
âI couldnât keep up with my blog or much of anything⌠new #symptoms on top of complex medical conditions. It just stacked up. I tried to rest. I tried to maintain⌠this just got worse and worse⌠Massive #burnout⌠You just hit a wall.â buff.ly/VnVUIdP #ChronicIllness
âIf opening your eyes, or getting out of bed, or holding a spoon, or combing your hair is the daunting Mount Everest you climb today, that is okay.â ~ Carmen Ambrosio #chronicpain #chronicillness #depression #mentalhealthmatters
âMy symptoms can flare daily and my pain can be off the charts. I can go from being able to walk with aids to being completely crippled. Itâs scary at how quickly my physical symptoms worsen.â My #ChronicIllness Rule Book buff.ly/aPB6hAS @My_MedMusings #spoonie
âAnother reason we can be isolated is as we have such limited time⌠#Chronicillness is a full-time job. Itâs not only the pain and symptoms but their management⌠Everyone has the #same24hours is simply not true for those with #chronicpain and illness.â buff.ly/3pxiQEe
âJust as others may be tired of hearing about my #ChronicIllness, I am sick of living it. I am bored of having to talk about it. In truth, I would much rather be talking about something, anything, else.â My #ChronicLife buff.ly/VHVI6Dj @serenebutterfly #ChronicPain
Your heart rate isnât the problemâitâs the rescue response. If brain blood flow drops when you stand, your body increases HR to compensate. Suppressing it without addressing why itâs happening? Thatâs missing the root. #POTS #Dysautonomia #ChronicIllness
"In truth, every day is a fight, a constant battle, trying to keep that smile painted on our face. But often, the demands of #chronicillness supersede everything else, and this performance becomes difficult to sustain.â buff.ly/2d9jlWA @serenebutterfly #FND #chronicpain
âWhen it comes to our #chronicillness we can feel like a failure⌠Either because a) our standards are the standards of a healthy person or b) we were exceeding our limits and we simply could not do it⌠I am working on this.â buff.ly/t85E4iN #ChronicPain #Disability
Medicine restock day from my fav Indigenous Reserve Dispensary tophatcannabis.ca The picture reflects what was in the advent Calendar. Worth every penny! #cannabisismedicine #ChronicPain #chronicillness
I literally showered & got dressed. I wanted to go on this walk to help my mental health but I feel like crawling back into bed with how burnt out I am đ #ukedtwt #chronicillness #fatigue
âWorking when I shouldnât or working way over my limits for too long. Then I burnout. And keep working. Then things get seriously bad health-wise⌠There is immense frustration from the unpredictability in #ChronicIllness.â buff.ly/yveJjRM #Disability #ChronicPain
They want proof, but never believe it want honesty, but only if itâs quiet. Thereâs no âright wayâ to be sick, just surviving in a body they keep questioning. đ #ChronicIllness #InvisibleIllness #ChronicPain #SpoonieLife #DisabilityAwareness
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