#chronicillness search results

🧵 "How medical training promotes medical gaslighting" by K. Johnstone mecfs.substack.com/p/how-medical-… This is not illness specific. #chronicillness 1/

TomKindlon's tweet image. 🧵
"How medical training promotes medical gaslighting" by K. Johnstone

mecfs.substack.com/p/how-medical-…

This is not illness specific.

#chronicillness

1/

“It really doesn’t make much sense to continue to push beyond our limits… We end up in a vicious cycle of more #pain, tiredness and other worsening #symptoms. All of which remove more and more control over our daily lives.” buff.ly/xZqlg2a @My_medmusings #chronicillness


"Freud's Hysteria: Part of the history of psychologizing physical illness" by K. Johnstone @SockFoam mecfs.substack.com/p/freuds-hyste… Relatively short blog post #chronicillness

TomKindlon's tweet image. "Freud's Hysteria: Part of the history of psychologizing physical illness" by K. Johnstone @SockFoam 

mecfs.substack.com/p/freuds-hyste…

Relatively short blog post

#chronicillness

My body doesn’t do “wake up refreshed.” It does “wake up and negotiate.” #ChronicIllness


Your heart rate in #POTS isn’t the root problem—it’s compensation. If your HR is normal lying down, your system can regulate. The issue is how your body processes signals when you’re upright. Stop chasing the symptom. Find the signal. #dysautonomia #chronicillness


From @onelife_livedwell on IG: There’s a grief that comes with Long COVID [Tom: other conditions too] no one really prepares you for: The grief of not recognizing your own body The grief of missing old routines The grief of friends who faded away [deleted to fit] #chronicillness


“Chronic pain is not our choice! We would rather be healthy and doing all the activities that people without pain do. We never asked to live a life being limited… #ChronicPain steals the life we want and used to have.” buff.ly/3pMgyBJ #chronicillness #disability


This is the 1st I've been out of bed all day. My stomach hurts so much from all the heaving, it just keep going even when there was only bile left. Plus, I get SO hot when I'm sick and then I get cold, then I get hot.... #ODSP #ChronicIllness

I've basically been sleeping all day. I've been so nauseas I have to lay down. Nothing to eat, and I need to force myself to drink something. I hate feeling like this. I don't know what brings it on. Something else to ask the doc next month. #ODSP #ChronicIllness



Another lived experience, now shared 💜 Corynna R shares her story with spinal CSF leak from lumbar puncture. Stories like this help make spinal CSF leaks more visible. Read: spinalcsfleakstories.com/stories/corynn… #SpinalCSFLeak #ChronicIllness #EveryDropCounts


I kept down some fruit cocktail...damn that stuff is good. I would prefer a nice juicy apple, but I'll take what I got! LOL I'm still dizzy, very weak & a bit nauseas. But I'm able to walk to the living room from the bedroom, so that's progress. #ODSP #ChronicIllness


Looking to connect to like minded individuals check my profile #likeminded #women #chronicillness #life #lifeover40


"A lot of the #anxiety I experience is a result of not being able to trust my body. Every day it's hit or miss whether my body will hold out. I don't trust that my legs will allow me to walk.” #Anxiety; Through The Prism of #ChronicIllness buff.ly/3Q6eDiU @serenebutterfly

APainPrincess's tweet image. "A lot of the #anxiety I experience is a result of not being able to trust my body. Every day it's hit or miss whether my body will hold out. I don't trust that my legs will allow me to walk.” #Anxiety; Through The Prism of #ChronicIllness buff.ly/3Q6eDiU @serenebutterfly

“It’s hard knowing that people don’t get how you feel or understand the daily agony you face. It can make you feel different to those around you… ‘feeling alone in a crowded room’ that is what it feels like to be lonely with #chronicillness.” buff.ly/3phUEWp @me_illness


“We never get to see people living with pain or #disability because—guess what? They can’t leave their houses. #Painflare-ups can also be unpredictable. You might make plans and then have to say, ‘I’m sorry, but I can’t manage this today.’” buff.ly/2Efol1D #chronicillness


”It usually means I’m in so much pain that I can’t accurately explain in a way someone would understand… saying ‘I’m tired’ is easier.” 22 Things People With #Fibromyalgia Really Mean When They Say 'I'm Tired' buff.ly/3NjJD0K #chronicpain #chronicillness


"Psychologizing kids with asthma, in the past and today: Attributing physical illness to a neurotic personality isn't new." by K. Johnstone @SockFoam (Apr 18, 2026) mecfs.substack.com/p/psychologizi… #chronicillness #invisibleillness

TomKindlon's tweet image. "Psychologizing kids with asthma, in the past and today: Attributing physical illness to a neurotic personality isn't new." by K. Johnstone @SockFoam  (Apr 18, 2026)

mecfs.substack.com/p/psychologizi…

#chronicillness #invisibleillness

I've basically been sleeping all day. I've been so nauseas I have to lay down. Nothing to eat, and I need to force myself to drink something. I hate feeling like this. I don't know what brings it on. Something else to ask the doc next month. #ODSP #ChronicIllness


Your heart rate isn’t the problem—it’s the rescue response. If brain blood flow drops when you stand, your body increases HR to compensate. Suppressing it without addressing why it’s happening? That’s missing the root. #POTS #Dysautonomia #ChronicIllness

DocKeiser's tweet image. Your heart rate isn’t the problem—it’s the rescue response.
If brain blood flow drops when you stand, your body increases HR to compensate.
Suppressing it without addressing why it’s happening? That’s missing the root.
#POTS #Dysautonomia #ChronicIllness

“It really doesn’t make much sense to continue to push beyond our limits… We end up in a vicious cycle of more #pain, tiredness and other worsening #symptoms. All of which remove more and more control over our daily lives.” buff.ly/xZqlg2a @My_medmusings #chronicillness


#Hypocapnia isn’t just a data point. It can drive cerebral blood flow changes—or reveal a deeper issue. The real question isn’t “is it the problem?” It’s: what’s causing it? #dysautonomia #chronicillness


It's rather like a live show of daily struggle and continuous suffering that have no end yet and I think,won't come to an end in the foreseeable future #chronicillness


The story of living with chronic illness is not a joke or merely a superficial talk chronically ill people just say and go. #chronicillness


Motivation can fluctuate—what helps you keep going when times get hard? #ChronicIllness


Not donating to DJs who deal with #MentalHealth and #ChronicIllness is seen as disturbingly evil content.

honor among dishonorable people is mistaken as weakness



Giveaways! Friday night party time with Aerogarfield29, StormEh15 and AddyVillimey! Come hangout with us! #chronicillness #twitchpartner #mmogirlie #palia #dragonsneststreamteam Twitch.tv/tatsuya_inc


Woah...I'm so dehydrated the skin on my arms is all loose & wrinkly. Super gross...no wonder I'm so itchy! LOL I'm going to take a LONG soak in the tub tomorrow...it's gonna be great. LOL #ODSP #ChronicIllness


Getting an AICD made heart failure feel real. In this episode, I share the fear, operating lights, strange sensations, and waking up with emergency hardware in my chest. The patient version, in plain language. #sarcoidosis #chronicillness bit.ly/4n2XwjD

TateBasildon26's tweet card. Getting an AICD: What the Surgery Felt Like From the Hospital Bed -...

buzzsprout.com

Getting an AICD: What the Surgery Felt Like From the Hospital Bed -...


What is your biggest pain point in your health journey and what could be done to help it? #chronicillness #autoimmune #womenshealth #menshealth #longcovid #mecfs


Western medicine's acute care model isn't suited for chronic conditions. Treating ongoing issues with short-term solutions misses the mark. We need a different approach for long-term health. #HealthCare #ChronicIllness


The people who believe you without needing proof are worth more than everyone else combined. If you have even one person like that, you're lucky. Treasure them. #longcovid #chronicillness


Looking to connect to like minded individuals check my profile #likeminded #women #chronicillness #life #lifeover40


Start the conversation 💬 bit.ly/4284yde Mental health looks different when you’re living with myasthenia gravis, and it can shift day to day in ways people don’t always see. #MentalHealthAwarenessMonth #MyastheniaGravis #ChronicIllness #MyastheniaGravisNews #Bionews


“#BrainFog is another sign that my #spoons are pretty low… If I get carried away doing some mental task…I suddenly find myself at a point where I just can’t think any more… I know I have to rest, in fact I have no choice.” buff.ly/vk5xqtg #chronicillness #spoonie

APainPrincess's tweet image. “#BrainFog is another sign that my #spoons are pretty low… If I get carried away doing some mental task…I suddenly find myself at a point where I just can’t think any more… I know I have to rest, in fact I have no choice.” buff.ly/vk5xqtg #chronicillness #spoonie

I’ve been dealing with chronic health issues for a while now, and over time I’ve learned that what I eat has a huge impact on how I feel. Here are some simple habits that have helped me feel better, heal, and function day-to-day 🧵 #ChronicIllness #GutHealth #Wellness

VAKanani's tweet image. I’ve been dealing with chronic health issues for a while now, and over time I’ve learned that what I eat has a huge impact on how I feel.

Here are some simple habits that have helped me feel better, heal, and function day-to-day 🧵

#ChronicIllness #GutHealth #Wellness

“It isn’t easy to love a body that holds you back. I had so many dreams and aspirations…being unable to…leaves me feeling incredibly unproductive and worthless. I feel trapped in the prison of my body.” buff.ly/42LluoY @serenebutterfly #chronicillness #chronicpain

APainPrincess's tweet image. “It isn’t easy to love a body that holds you back. I had so many dreams and aspirations…being unable to…leaves me feeling incredibly unproductive and worthless. I feel trapped in the prison of my body.” buff.ly/42LluoY @serenebutterfly #chronicillness #chronicpain

"A lot of the #anxiety I experience is a result of not being able to trust my body. Every day it's hit or miss whether my body will hold out. I don't trust that my legs will allow me to walk.” #Anxiety; Through The Prism of #ChronicIllness buff.ly/3Q6eDiU @serenebutterfly

APainPrincess's tweet image. "A lot of the #anxiety I experience is a result of not being able to trust my body. Every day it's hit or miss whether my body will hold out. I don't trust that my legs will allow me to walk.” #Anxiety; Through The Prism of #ChronicIllness buff.ly/3Q6eDiU @serenebutterfly

“But it's also an extremely misleading answer, if not an outright lie. Because I am never fine, I never feel fine; my chronicillness' #symptoms ensure that… I'm fine is a lie that #chronicillness makes me tell.” buff.ly/3Vksohr @serenebutterfly #chronicpain

APainPrincess's tweet image. “But it's also an extremely misleading answer, if not an outright lie. Because I am never fine, I never feel fine; my chronicillness' #symptoms ensure that… I'm fine is a lie that #chronicillness makes me tell.” buff.ly/3Vksohr @serenebutterfly #chronicpain

“There is often a huge sense of loss [with] #chronicillness… the loss of a career, loss of friends or social life. But the biggest loss is often who they once were. Many people no longer feel that they’re the same person. They grieve for that person.” buff.ly/kUOZ9CG

APainPrincess's tweet image. “There is often a huge sense of loss [with] #chronicillness… the loss of a career, loss of friends or social life. But the biggest loss is often who they once were. Many people no longer feel that they’re the same person. They grieve for that person.” buff.ly/kUOZ9CG

“Overdoing it. Walking too much. Doing too much work around the house. I want to pace all the time, but sometimes my brain thinks ‘Hey we can do this’ and my body is like ‘What the…!'” #PainFlare Triggers buff.ly/445byqk @AChVoice #ChronicPain #ChronicIllness

APainPrincess's tweet image. “Overdoing it. Walking too much. Doing too much work around the house. I want to pace all the time, but sometimes my brain thinks ‘Hey we can do this’ and my body is like ‘What the…!'” #PainFlare Triggers buff.ly/445byqk @AChVoice #ChronicPain #ChronicIllness

“I couldn’t keep up with my blog or much of anything… new #symptoms on top of complex medical conditions. It just stacked up. I tried to rest. I tried to maintain… this just got worse and worse… Massive #burnout… You just hit a wall.” buff.ly/VnVUIdP #ChronicIllness

APainPrincess's tweet image. “I couldn’t keep up with my blog or much of anything… new #symptoms on top of complex medical conditions. It just stacked up. I tried to rest. I tried to maintain… this just got worse and worse… Massive #burnout… You just hit a wall.” buff.ly/VnVUIdP #ChronicIllness

“If opening your eyes, or getting out of bed, or holding a spoon, or combing your hair is the daunting Mount Everest you climb today, that is okay.” ~ Carmen Ambrosio #chronicpain #chronicillness #depression #mentalhealthmatters

APainPrincess's tweet image. “If opening your eyes, or getting out of bed, or holding a spoon, or combing your hair is the daunting Mount Everest you climb today, that is okay.” ~ Carmen Ambrosio

#chronicpain #chronicillness #depression #mentalhealthmatters

“My symptoms can flare daily and my pain can be off the charts. I can go from being able to walk with aids to being completely crippled. It’s scary at how quickly my physical symptoms worsen.” My #ChronicIllness Rule Book buff.ly/aPB6hAS @My_MedMusings #spoonie

APainPrincess's tweet image. “My symptoms can flare daily and my pain can be off the charts. I can go from being able to walk with aids to being completely crippled. It’s scary at how quickly my physical symptoms worsen.” My #ChronicIllness Rule Book buff.ly/aPB6hAS @My_MedMusings #spoonie

“Another reason we can be isolated is as we have such limited time… #Chronicillness is a full-time job. It’s not only the pain and symptoms but their management… Everyone has the #same24hours is simply not true for those with #chronicpain and illness.” buff.ly/3pxiQEe

APainPrincess's tweet image. “Another reason we can be isolated is as we have such limited time… #Chronicillness is a full-time job. It’s not only the pain and symptoms but their management… Everyone has the #same24hours is simply not true for those with #chronicpain and illness.” buff.ly/3pxiQEe

“Just as others may be tired of hearing about my #ChronicIllness, I am sick of living it. I am bored of having to talk about it. In truth, I would much rather be talking about something, anything, else.” My #ChronicLife buff.ly/VHVI6Dj @serenebutterfly #ChronicPain

APainPrincess's tweet image. “Just as others may be tired of hearing about my #ChronicIllness, I am sick of living it. I am bored of having to talk about it. In truth, I would much rather be talking about something, anything, else.” My #ChronicLife buff.ly/VHVI6Dj @serenebutterfly #ChronicPain

Your heart rate isn’t the problem—it’s the rescue response. If brain blood flow drops when you stand, your body increases HR to compensate. Suppressing it without addressing why it’s happening? That’s missing the root. #POTS #Dysautonomia #ChronicIllness

DocKeiser's tweet image. Your heart rate isn’t the problem—it’s the rescue response.
If brain blood flow drops when you stand, your body increases HR to compensate.
Suppressing it without addressing why it’s happening? That’s missing the root.
#POTS #Dysautonomia #ChronicIllness

"In truth, every day is a fight, a constant battle, trying to keep that smile painted on our face. But often, the demands of #chronicillness supersede everything else, and this performance becomes difficult to sustain.” buff.ly/2d9jlWA @serenebutterfly #FND #chronicpain

APainPrincess's tweet image. "In truth, every day is a fight, a constant battle, trying to keep that smile painted on our face. But often, the demands of #chronicillness supersede everything else, and this performance becomes difficult to sustain.” buff.ly/2d9jlWA @serenebutterfly #FND #chronicpain

“When it comes to our #chronicillness we can feel like a failure… Either because a) our standards are the standards of a healthy person or b) we were exceeding our limits and we simply could not do it… I am working on this.” buff.ly/t85E4iN #ChronicPain #Disability

APainPrincess's tweet image. “When it comes to our #chronicillness we can feel like a failure… Either because a) our standards are the standards of a healthy person or b) we were exceeding our limits and we simply could not do it… I am working on this.” buff.ly/t85E4iN #ChronicPain #Disability

Medicine restock day from my fav Indigenous Reserve Dispensary tophatcannabis.ca The picture reflects what was in the advent Calendar. Worth every penny! #cannabisismedicine #ChronicPain #chronicillness

Stephjd420's tweet image. Medicine restock day from my fav Indigenous Reserve Dispensary tophatcannabis.ca

The picture reflects what was in the advent Calendar. Worth every penny! 

#cannabisismedicine #ChronicPain #chronicillness

I literally showered & got dressed. I wanted to go on this walk to help my mental health but I feel like crawling back into bed with how burnt out I am 💔 #ukedtwt #chronicillness #fatigue

pblossomss's tweet image. I literally showered & got dressed. I wanted to go on this walk to help my mental health but I feel like crawling back into bed with how burnt out I am 💔 #ukedtwt #chronicillness #fatigue

You can be alive and still be mourning yourself. #chronicillness

kyokoTHEpoet's tweet image. You can be alive
and still be mourning yourself.

#chronicillness

“Working when I shouldn’t or working way over my limits for too long. Then I burnout. And keep working. Then things get seriously bad health-wise… There is immense frustration from the unpredictability in #ChronicIllness.” buff.ly/yveJjRM #Disability #ChronicPain

APainPrincess's tweet image. “Working when I shouldn’t or working way over my limits for too long. Then I burnout. And keep working. Then things get seriously bad health-wise… There is immense frustration from the unpredictability in #ChronicIllness.” buff.ly/yveJjRM #Disability #ChronicPain

They want proof, but never believe it want honesty, but only if it’s quiet. There’s no “right way” to be sick, just surviving in a body they keep questioning. 💔 #ChronicIllness #InvisibleIllness #ChronicPain #SpoonieLife #DisabilityAwareness

kyokoTHEpoet's tweet image. They want proof, but never believe it
want honesty, but only if it’s quiet.

There’s no “right way” to be sick,
just surviving in a body they keep questioning. 💔

#ChronicIllness #InvisibleIllness #ChronicPain #SpoonieLife #DisabilityAwareness

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