#chronicillness search results

Had my Biomesight results back. Pathobionts was my worst one. Kinda expected it to be worse since my gut issues and MCAS are horrific. #longcovid #chronicillness #mcas

amiandlife's tweet image. Had my Biomesight results back. 
Pathobionts was my worst one.
Kinda expected it to be worse since my gut issues and MCAS are horrific.
#longcovid #chronicillness #mcas

I just wanna be a normal 20 year old. To be this unwell at the peak years of your life is hell. #Chronicillness #LongCovid #MCAS


JMIR Formative Res: Financial Burden in Adults With Chronic Illness in Switzerland: A Secondary Analysis of Qualitative Interviews Using Natural Language Processing and Topic Modeling dlvr.it/TRZ3Kj #ChronicIllness #FinancialBurden #HealthcareCosts #Switzerland #NLP

jmirpub's tweet image. JMIR Formative Res: Financial Burden in Adults With Chronic Illness in Switzerland: A Secondary Analysis of Qualitative Interviews Using Natural Language Processing and Topic Modeling dlvr.it/TRZ3Kj #ChronicIllness #FinancialBurden #HealthcareCosts #Switzerland #NLP

🧵 "How medical training promotes medical gaslighting" by K. Johnstone mecfs.substack.com/p/how-medical-… This is not illness specific. #chronicillness 1/

TomKindlon's tweet image. 🧵
"How medical training promotes medical gaslighting" by K. Johnstone

mecfs.substack.com/p/how-medical-…

This is not illness specific.

#chronicillness

1/

They want proof, but never believe it want honesty, but only if it’s quiet. There’s no “right way” to be sick, just surviving in a body they keep questioning. 💔 #ChronicIllness #InvisibleIllness #ChronicPain #SpoonieLife #DisabilityAwareness

kyokoTHEpoet's tweet image. They want proof, but never believe it
want honesty, but only if it’s quiet.

There’s no “right way” to be sick,
just surviving in a body they keep questioning. 💔

#ChronicIllness #InvisibleIllness #ChronicPain #SpoonieLife #DisabilityAwareness

From @onelife_livedwell on IG Patients named Long COVID before medicine did By August,the WHO made it official. The first condition brought into being through patients finding each other on Twitter. 💛 #longcovid #chronicillness


#FactCheck Friday: All US households have access to healthy food. FALSE. More than 1 in 10 US households don't. This study evaluated the effectiveness of a shipped medically tailored meal program for people living with #ChronicIllness: institutionalrepository.aah.org/jpcrr/vol13/is… #HealthyEating

JPCRR's tweet image. #FactCheck Friday: All US households have access to healthy food. FALSE. More than 1 in 10 US households don't. This study evaluated the effectiveness of a shipped medically tailored meal program for people living with #ChronicIllness:

institutionalrepository.aah.org/jpcrr/vol13/is…

#HealthyEating

"Freud's Hysteria: Part of the history of psychologizing physical illness" by K. Johnstone @SockFoam mecfs.substack.com/p/freuds-hyste… Relatively short blog post #chronicillness

TomKindlon's tweet image. "Freud's Hysteria: Part of the history of psychologizing physical illness" by K. Johnstone @SockFoam 

mecfs.substack.com/p/freuds-hyste…

Relatively short blog post

#chronicillness

I'm no grief expert but I think a lot about the few things I learned about grief when I worked at victim support. I'll try to apply it to #ChronicIllness Grief isn't linear. There are no phases that you have to go through one after the other. There's a more dualistic model: 1/


From @onelife_livedwell on IG: Let’s talk about the disease prestige hierarchy, or the way some diagnoses are consistently seen as more legitimate and easier to recognize than others. #chronicillness #invisibleillness 1/


You can be alive and still be mourning yourself. #chronicillness

kyokoTHEpoet's tweet image. You can be alive
and still be mourning yourself.

#chronicillness

#ChronicIllness has a nasty habit of making you feel useless. Often you can’t achieve even the simplest of things, such as showering, and you’re left…unable to get out of bed or do anything productive.” 5 Confessions of the #ChronicallyIll buff.ly/3Se4WAw #ChronicPain


🩺 My letter, "Living alongside your chronic illness: No two patients are alike," in response to an opinion published in @bmj_latest. I discuss the issues of resilience and ableism in #chronicillness. ⚕️ #MedEd #PatientCare #Ableism @Jacobs_Med_UB bmj.com/content/393/bm…

dysclinic's tweet image. 🩺 My letter, "Living alongside your chronic illness: No two patients are alike," in response to an opinion published in @bmj_latest. I discuss the issues of resilience and ableism in #chronicillness. ⚕️
#MedEd #PatientCare #Ableism @Jacobs_Med_UB 

bmj.com/content/393/bm…

"Reimagining You: Finding identity, meaning, and purpose when life doesn’t look the way it used to." onelifelivedwell.substack.com/p/reimagining-… Image is from the AMMES April 2026 newsletter #chronicillness #MEcfs

TomKindlon's tweet image. "Reimagining You: Finding identity, meaning, and purpose when life doesn’t look the way it used to."

onelifelivedwell.substack.com/p/reimagining-…

Image is from the AMMES April 2026 newsletter

#chronicillness #MEcfs

“Every #chronicillness fighter has experienced the piercing awkwardness of sharing too much with the wrong person or at the wrong time… We may forget that our “normal” can sound alarming to other people.” 'How Are You?' With Chronic Illness buff.ly/3nExpFm #ChronicPain


"Psychologizing kids with asthma, in the past and today: Attributing physical illness to a neurotic personality isn't new." by K. Johnstone @SockFoam (Apr 18, 2026) mecfs.substack.com/p/psychologizi… #chronicillness #invisibleillness

TomKindlon's tweet image. "Psychologizing kids with asthma, in the past and today: Attributing physical illness to a neurotic personality isn't new." by K. Johnstone @SockFoam  (Apr 18, 2026)

mecfs.substack.com/p/psychologizi…

#chronicillness #invisibleillness

You don’t have to figure out Addison’s on your own. Support makes things clearer—and easier. #AddisonsDisease #ChronicIllness #InvisibleIllness #HealthTracking

AddiPath's tweet image. You don’t have to figure out Addison’s on your own.

Support makes things clearer—and easier.

#AddisonsDisease #ChronicIllness #InvisibleIllness #HealthTracking
AddiPath's tweet image. You don’t have to figure out Addison’s on your own.

Support makes things clearer—and easier.

#AddisonsDisease #ChronicIllness #InvisibleIllness #HealthTracking
AddiPath's tweet image. You don’t have to figure out Addison’s on your own.

Support makes things clearer—and easier.

#AddisonsDisease #ChronicIllness #InvisibleIllness #HealthTracking
AddiPath's tweet image. You don’t have to figure out Addison’s on your own.

Support makes things clearer—and easier.

#AddisonsDisease #ChronicIllness #InvisibleIllness #HealthTracking

#FactCheck Friday: All US households have access to healthy food. FALSE. More than 1 in 10 US households don't. This study evaluated the effectiveness of a shipped medically tailored meal program for people living with #ChronicIllness: institutionalrepository.aah.org/jpcrr/vol13/is… #HealthyEating

JPCRR's tweet image. #FactCheck Friday: All US households have access to healthy food. FALSE. More than 1 in 10 US households don't. This study evaluated the effectiveness of a shipped medically tailored meal program for people living with #ChronicIllness:

institutionalrepository.aah.org/jpcrr/vol13/is…

#HealthyEating

The demanding life of late-night gigs, late-night pack-ups, and the physical toll of carrying a baby as a single mom led to a #POTSSyndrome #ChronicIllness #HealthJourney


Relapses aren’t just setbacks—they’re chapters of strength you didn’t know you had. Each one changes you, teaches you, and reminds you how resilient you truly are. 🧡 You’ve made it through before—and you will again. #MultipleSclerosis #ChronicIllness


Chronic doesn't mean every day is bad. It means there's no such thing as a day without it. #chronicillness #invisibleillness #BadDayToolkit

BadDayToolkit's tweet image. Chronic doesn't mean every day is bad.

It means there's no such thing as a day
without it.

#chronicillness #invisibleillness
#BadDayToolkit

From singing to millions to being bedridden: a years-long battle with a rare condition. It took a decade after diagnosis to become fully incapacitated. The struggle is real. #ChronicIllness #HealthJourney


Woke up in lots of pain today. Uncool. #ChronicIllness is a full-time job, fam. Only, you never get paid, and you also don't get vacations. It's 24/7/365 ...


“Every #chronicillness fighter has experienced the piercing awkwardness of sharing too much with the wrong person or at the wrong time… We may forget that our “normal” can sound alarming to other people.” 'How Are You?' With Chronic Illness buff.ly/3nExpFm #ChronicPain


“We never get to see people living with pain or #disability because—guess what? They can’t leave their houses. #Painflare-ups can also be unpredictable. You might make plans and then have to say, ‘I’m sorry, but I can’t manage this today.’” buff.ly/2Efol1D #chronicillness


Small changes = big difference 💛 Simple tips to make life with an ostomy more comfortable and manageable. Read: spooniethreads.com/blogs/thespoon… #OstomyLife #ChronicIllness #AdaptiveLiving

wearspoonie's tweet image. Small changes = big difference 💛

Simple tips to make life with an ostomy more comfortable and manageable.

Read: spooniethreads.com/blogs/thespoon…

#OstomyLife #ChronicIllness #AdaptiveLiving

Mind feels what body can't do; body mirrors mind's struggles. Physical illness tanks mental health—& vice versa—spiraling both down. Reroot breaks the cycle! #ChronicIllness #MentalPhysicalHealth #HealthSpiral #Reroot


Sometimes I have to lay down after a shower! #ChronicIllness


“Graceful Agony” reminds us that Fibro warriors are more than their diagnosis. The author shares her story, a message of hope, empowerment, & advocacy. #FibromyalgiaAwareness #ChronicIllness


"living with #ChronicIllness..[is] a rollercoaster built by some1 who was clearly drunk on Red Bull & bad intentions. U buckle in. U scream..Sometimes u even laugh because what else can u do?": buff.ly/ak8Wy9H #ChronicPain #spoonie #disabled #ChronicLife #EDS #diagnosis


“You are fighting a hard battle every single day… Life with #chronicillness is anything but easy. And truth be told… you probably don’t voice even a quarter of the pain you’re actually feeling… I see you… I also see your courage.” buff.ly/3qhAgoP#ChronicPain


🧵 "How medical training promotes medical gaslighting" by K. Johnstone mecfs.substack.com/p/how-medical-… This is not illness specific. #chronicillness 1/

TomKindlon's tweet image. 🧵
"How medical training promotes medical gaslighting" by K. Johnstone

mecfs.substack.com/p/how-medical-…

This is not illness specific.

#chronicillness

1/

JMIR Formative Res: Financial Burden in Adults With Chronic Illness in Switzerland: A Secondary Analysis of Qualitative Interviews Using Natural Language Processing and Topic Modeling dlvr.it/TRZ3Kj #ChronicIllness #FinancialBurden #HealthcareCosts #Switzerland #NLP

jmirpub's tweet image. JMIR Formative Res: Financial Burden in Adults With Chronic Illness in Switzerland: A Secondary Analysis of Qualitative Interviews Using Natural Language Processing and Topic Modeling dlvr.it/TRZ3Kj #ChronicIllness #FinancialBurden #HealthcareCosts #Switzerland #NLP

Medicine restock day from my fav Indigenous Reserve Dispensary tophatcannabis.ca The picture reflects what was in the advent Calendar. Worth every penny! #cannabisismedicine #ChronicPain #chronicillness

Stephjd420's tweet image. Medicine restock day from my fav Indigenous Reserve Dispensary tophatcannabis.ca

The picture reflects what was in the advent Calendar. Worth every penny! 

#cannabisismedicine #ChronicPain #chronicillness

They want proof, but never believe it want honesty, but only if it’s quiet. There’s no “right way” to be sick, just surviving in a body they keep questioning. 💔 #ChronicIllness #InvisibleIllness #ChronicPain #SpoonieLife #DisabilityAwareness

kyokoTHEpoet's tweet image. They want proof, but never believe it
want honesty, but only if it’s quiet.

There’s no “right way” to be sick,
just surviving in a body they keep questioning. 💔

#ChronicIllness #InvisibleIllness #ChronicPain #SpoonieLife #DisabilityAwareness

We want to hear from you. If you’ve experienced: • Frequent painful attacks • Tophi (lumps under the skin) • Joint damage Your story can help improve care for others. ⏱️ Takes 2 minutes: surveymonkey.com/r/goutjourney #Gout #ChronicIllness #PatientVoice #Healthcare

CreakyJoints's tweet image. We want to hear from you.
If you’ve experienced:
• Frequent painful attacks
• Tophi (lumps under the skin)
• Joint damage
Your story can help improve care for others.
⏱️ Takes 2 minutes:
surveymonkey.com/r/goutjourney
#Gout #ChronicIllness #PatientVoice #Healthcare

“It isn’t easy to love a body that holds you back. I had so many dreams and aspirations…being unable to…leaves me feeling incredibly unproductive and worthless. I feel trapped in the prison of my body.” buff.ly/42LluoY @serenebutterfly #chronicillness #chronicpain

APainPrincess's tweet image. “It isn’t easy to love a body that holds you back. I had so many dreams and aspirations…being unable to…leaves me feeling incredibly unproductive and worthless. I feel trapped in the prison of my body.” buff.ly/42LluoY @serenebutterfly #chronicillness #chronicpain

"Freud's Hysteria: Part of the history of psychologizing physical illness" by K. Johnstone @SockFoam mecfs.substack.com/p/freuds-hyste… Relatively short blog post #chronicillness

TomKindlon's tweet image. "Freud's Hysteria: Part of the history of psychologizing physical illness" by K. Johnstone @SockFoam 

mecfs.substack.com/p/freuds-hyste…

Relatively short blog post

#chronicillness

“Overdoing it. Walking too much. Doing too much work around the house. I want to pace all the time, but sometimes my brain thinks ‘Hey we can do this’ and my body is like ‘What the…!'” #PainFlare Triggers buff.ly/445byqk @AChVoice #ChronicPain #ChronicIllness

APainPrincess's tweet image. “Overdoing it. Walking too much. Doing too much work around the house. I want to pace all the time, but sometimes my brain thinks ‘Hey we can do this’ and my body is like ‘What the…!'” #PainFlare Triggers buff.ly/445byqk @AChVoice #ChronicPain #ChronicIllness

You can be alive and still be mourning yourself. #chronicillness

kyokoTHEpoet's tweet image. You can be alive
and still be mourning yourself.

#chronicillness

"Reimagining You: Finding identity, meaning, and purpose when life doesn’t look the way it used to." onelifelivedwell.substack.com/p/reimagining-… Image is from the AMMES April 2026 newsletter #chronicillness #MEcfs

TomKindlon's tweet image. "Reimagining You: Finding identity, meaning, and purpose when life doesn’t look the way it used to."

onelifelivedwell.substack.com/p/reimagining-…

Image is from the AMMES April 2026 newsletter

#chronicillness #MEcfs

March is Endometriosis Awareness Month,& I know too well what it’s like living with Endo.I have been through hell.Being mistreated & gaslit in the health care system. My heart goes out to EVERYONE in the same situation♥️🙏 #Endometriosis #chronicillness #pain #fatigue

CWengaard's tweet image. March is Endometriosis Awareness Month,& I know too well what it’s like living with Endo.I have been through hell.Being mistreated & gaslit in the health care system.

My heart goes out to EVERYONE in the same situation♥️🙏

#Endometriosis #chronicillness #pain #fatigue
CWengaard's tweet image. March is Endometriosis Awareness Month,& I know too well what it’s like living with Endo.I have been through hell.Being mistreated & gaslit in the health care system.

My heart goes out to EVERYONE in the same situation♥️🙏

#Endometriosis #chronicillness #pain #fatigue
CWengaard's tweet image. March is Endometriosis Awareness Month,& I know too well what it’s like living with Endo.I have been through hell.Being mistreated & gaslit in the health care system.

My heart goes out to EVERYONE in the same situation♥️🙏

#Endometriosis #chronicillness #pain #fatigue

"It was only the beginning of permanent mind fuck and continuous #health scares – a tragic play that has been critiqued as being ‛too long, could be much shorter’ & 'the same old rollercoaster ride of #emotions gets stale fast'.": buff.ly/x9JTknN #ChronicIllness #disabled

AChVoice's tweet image. "It was only the beginning of permanent mind fuck and continuous #health scares – a tragic play that has been critiqued as being ‛too long, could be much shorter’ & 'the same old rollercoaster ride of #emotions gets stale fast'.": buff.ly/x9JTknN #ChronicIllness #disabled

#ChronicIllness Realness vs Masking What's Really Happening. What I let others see about my illness compared to what is happening are two different things. Chronically ill people do a lot of #masking. We hide what we are going thru for many reasons: 🔗 myseveralworlds.com/2023/09/22/chr…

globetrotteri's tweet image. #ChronicIllness Realness vs Masking What's Really Happening. What I let others see about my illness compared to what is happening are two different things. Chronically ill people do a lot of #masking. We hide what we are going thru for many reasons:
🔗
myseveralworlds.com/2023/09/22/chr…

Some illnesses end in cure. Some end in death. But chronic illness lives in the quiet third space— where the fight never stops and the world stops noticing. #chronicillness #spoonie

kyokoTHEpoet's tweet image. Some illnesses end in cure.
Some end in death.

But chronic illness lives in the quiet third space—
where the fight never stops
and the world stops noticing.
#chronicillness #spoonie

🩺 My letter, "Living alongside your chronic illness: No two patients are alike," in response to an opinion published in @bmj_latest. I discuss the issues of resilience and ableism in #chronicillness. ⚕️ #MedEd #PatientCare #Ableism @Jacobs_Med_UB bmj.com/content/393/bm…

dysclinic's tweet image. 🩺 My letter, "Living alongside your chronic illness: No two patients are alike," in response to an opinion published in @bmj_latest. I discuss the issues of resilience and ableism in #chronicillness. ⚕️
#MedEd #PatientCare #Ableism @Jacobs_Med_UB 

bmj.com/content/393/bm…

Comparison and chronic illness - a thread 🧵 🖋️: Helen Jones #chronicillness

CreakyJoints's tweet image. Comparison and chronic illness - a thread 🧵
🖋️: Helen Jones 
#chronicillness

"Psychologizing kids with asthma, in the past and today: Attributing physical illness to a neurotic personality isn't new." by K. Johnstone @SockFoam (Apr 18, 2026) mecfs.substack.com/p/psychologizi… #chronicillness #invisibleillness

TomKindlon's tweet image. "Psychologizing kids with asthma, in the past and today: Attributing physical illness to a neurotic personality isn't new." by K. Johnstone @SockFoam  (Apr 18, 2026)

mecfs.substack.com/p/psychologizi…

#chronicillness #invisibleillness

Between Doubt and Diagnosis: Patient Experiences of Emotional Harm from Diagnostic Delays sciencedirect.com/science/articl… As someone who took 5.5 long, tough years to get diagnosed with ME/CFS, this topic interests me #chronicillness

TomKindlon's tweet image. Between Doubt and Diagnosis: Patient Experiences of Emotional Harm from Diagnostic Delays

sciencedirect.com/science/articl…

As someone who took 5.5 long, tough years to get diagnosed with ME/CFS, this topic interests me

#chronicillness

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