#chronicillness search results
Post-exertional malaise (PEM) isn't laziness. It's a delayed flare of symptoms after even minor activity. Pacing isn't optional it's essential. tinyurl.com/Fibro-Udemy #fibromyalgia #mecfs #chronicillness #spoonies #womenshealth
"It took me 10 years of trial & error to present u this list. Some of these lessons have left permanent scars, both literally & figuratively. It is my hope that u find something useful from this post & avoid the pain I had to go thru.": buff.ly/loaHq6k #ChronicIllness
Fighting Off More Than Just the Dark Side Lately? ⭐ For those managing chronic illness, the daily battles are real appointments, treatments and fatigue. May the Fourth be with you 💫 #MayTheFourth #ChronicIllness #IGLiving 📷
“You haven’t seen my worst days because I hide them from you… It’s easy to judge a person’s condition by what you see…but you can’t rely on that… You aren’t seeing all of me. What you see one day does not accurately depict every day.” buff.ly/3YmvVNM #chronicillness
"#ChronicIllness changes everything. At the beginning of many people’s chronic illness journey, they may feel as if #illness is an annoying detour that will be forgotten as soon as they can heal & get back to business as usual.": buff.ly/iXfSC7c via @PsychToday #disabled
Good evening my lovely brother. 🫂 I am always thinking of you. I have spotted se nice spring flowers and look, who else I have found?! 🐇🌷 The link to contribute a little help for our dear Hassan to survive in war-torned #Yemen ⬇️ #chronicillness gofundme.com/help4hassan ❤️
So living with chronic illness and/or disability needs limitless load of strength,energy and patience. Kindness from others,not as a pity but as an empathy is in the heart of need. #chronicillness
I thought I had loads of friends… turns out I had proximity. Chronic illness has a way of showing you who’s really there when life isn’t convenient anymore. It’s painful, but it’s also clarity. #ChronicIllness #MultipleSclerosis #MSAwareness #DisabledLife #MSReality
When your horizons shrink try to focus on small positives. Today for me that was designing and making a tiny worry plush, a wee monster to scoop up our worries and take them away. #wellness #chronicillness
after many years of gaslighting the hospital has been caught in its lies…always ask for a hospital discharge letter they contradicted themselves in it also #chronicillness #chronicpain #disabilitytwitter #spoonies
"I’m fine" is the heaviest lie we tell. Living with chronic illness is a mental marathon of grief and invisible battles. If you’re shattering under weight no one else sees: I see you. You don’t have to be "fine" today. ⛈️🔗 #ChronicIllness #MentalHealth
💛 Day 3 of 31 💛 A “normal” day with EDS… Even when I’m still recovering, life doesn’t wait. There’s a lot you don’t see behind the scenes. 🎬 Watch here: Day 3: A “Normal” Day with EDS | Even When My Body Isn’t Ready youtube.com/shorts/pnCKHS_… #EDSAwareness #ChronicIllness
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Dinkykts EDS Diaries
Still learning all the things but almost to lvl 90! #WOW #chronicillness #twitchpartner #newplayer #mmo Twitch.tv/tatsuya_inc
You are more than your illness: you are a warrior full of hope. 🛡 #ChronicIllness
"When u live with [ #ChronicIllness ], the cultural pic of “the good life” can feel like a club you don’t get invited to. My body has very strong opinions. And she will not yield..yet..Richness is not a circumstance. It’s a way of seeing": buff.ly/npa4zUZ by @sunbeamacres
Post-exertional malaise (PEM) isn't laziness. It's a delayed flare of symptoms after even minor activity. Pacing isn't optional it's essential. tinyurl.com/Fibro-Udemy #fibromyalgia #mecfs #chronicillness #spoonies #womenshealth
Fighting Off More Than Just the Dark Side Lately? ⭐ For those managing chronic illness, the daily battles are real appointments, treatments and fatigue. May the Fourth be with you 💫 #MayTheFourth #ChronicIllness #IGLiving 📷
Still learning all the things but almost to lvl 90! #WOW #chronicillness #twitchpartner #newplayer #mmo Twitch.tv/tatsuya_inc
"It’s not easy to navigate an unpredictable body and the challenges that dynamic disability brings." thehealthsessions.com/dynamic-disabi… via @Health_Sessions #ChronicIllness #ChronicallyIll #DynamicDisability
ME - Chronic Conditions - Presence over Advice .... #presence #chronicillness #me #MyalgicEncephalomyelitis #fibromyalgia #budget #management #chronicfatiguesyndrome #epilepsy #hearthealth #MS #advice #grief #Loss
“You haven’t seen my worst days because I hide them from you… It’s easy to judge a person’s condition by what you see…but you can’t rely on that… You aren’t seeing all of me. What you see one day does not accurately depict every day.” buff.ly/3YmvVNM #chronicillness
"But here is the thing I have learned. #Travel is still possible. It just looks very different now." crackednailsandsplitends.co.uk/blog/travellin… via @tanyahindes #ChronicIllness #ChronicPain #ChronicallyIll #InvisibleIllness
#Sjogrens #NeuroSjogrens #ChronicIllness #DysAutonomia #BrainTumorWarrior #IntracranialPressures #NeuroX #RheumX #worshipper
"Finding a gentle routine for flare days can be so good for our mental and physical health and helps us to reframe those bad days when they happen." bloomingmindfulness.co.uk/a-gentle-routi… via @bloomingmindxx #ChronicIllness #ChronicPain #ChronicFatigue #ChronicallyIll #ChronicLife
If you have been diagnosed with a long-term form of aspergillosis (e.g. CPA or ABPA), then you can join one of NAC’s online support groups: - Facebook - Telegram - Teams (Tues & Thurs) 🫂aspergillosis.org/support-meetin… #chronicillness #COPD #lunghealth #asthma
"#ChronicIllness changes everything. At the beginning of many people’s chronic illness journey, they may feel as if #illness is an annoying detour that will be forgotten as soon as they can heal & get back to business as usual.": buff.ly/iXfSC7c via @PsychToday #disabled
I thought I had loads of friends… turns out I had proximity. Chronic illness has a way of showing you who’s really there when life isn’t convenient anymore. It’s painful, but it’s also clarity. #ChronicIllness #MultipleSclerosis #MSAwareness #DisabledLife #MSReality
YES! This is how my mother explained her pain scale to me before she died, 19 years ago. #chronicillness #painscale
This is one of the most accurate things I’ve seen in a long time. Chronic illness doesn’t just change your pain level, it rewires your entire scale.
You explain again: what #sicklecell means, why absences happen, accommodations needed. Last term’s teacher understood. They had #systems in place. New term. New teacher. All that understanding? Gone. Consistency matters for #chronicillness. Schools aren’t built for it. 2/4
“If you are someone with #chronicillness or a #raredisease, you know how difficult the hospital can be… So many #spoonies fear the emergency room because they’re afraid of how they will be treated, so they choose to stay at home…in agonizing pain.” buff.ly/48eC7fo #cpp
"You’ve probably internalized more of that #blame than u realize..It’s hard not to when the message, delivered in a hundred different formats, is essentially: this works for everyone else, so if it’s not working for u, look inward.": buff.ly/ofLgRqn #ChronicIllness
You are more than your illness: you are a warrior full of hope. 🛡 #ChronicIllness
If you have been diagnosed with a long-term form of aspergillosis (e.g. CPA or ABPA), then you can join one of NAC’s online support groups: - Facebook - Telegram - Teams (Tues & Thurs) 🫂aspergillosis.org/support-meetin… #chronicillness #COPD #lunghealth #asthma
“Trying to remember the feeling of not being in pain or besieged by other debilitating symptoms is like trying to recall the feel of the warm sun on your skin during the cold, dark months of winter.” buff.ly/4hWrt1H @serenebutterfly #FND #ChronicIllness #ChronicPain
“When it comes to our #chronicillness we can feel like a failure… Either because a) our standards are the standards of a healthy person or b) we were exceeding our limits and we simply could not do it… I am working on this.” buff.ly/t85E4iN #ChronicPain #Disability
“#BrainFog is another sign that my #spoons are pretty low… If I get carried away doing some mental task…I suddenly find myself at a point where I just can’t think any more… I know I have to rest, in fact I have no choice.” buff.ly/vk5xqtg #chronicillness #spoonie
“It isn’t easy to love a body that holds you back. I had so many dreams and aspirations…being unable to…leaves me feeling incredibly unproductive and worthless. I feel trapped in the prison of my body.” buff.ly/42LluoY @serenebutterfly #chronicillness #chronicpain
“There is often a huge sense of loss [with] #chronicillness… the loss of a career, loss of friends or social life. But the biggest loss is often who they once were. Many people no longer feel that they’re the same person. They grieve for that person.” buff.ly/kUOZ9CG
![APainPrincess's tweet image. “There is often a huge sense of loss [with] #chronicillness… the loss of a career, loss of friends or social life. But the biggest loss is often who they once were. Many people no longer feel that they’re the same person. They grieve for that person.” buff.ly/kUOZ9CG](https://pbs.twimg.com/media/HGKRuPUWsAAUnFW.jpg)
“Working when I shouldn’t or working way over my limits for too long. Then I burnout. And keep working. Then things get seriously bad health-wise… There is immense frustration from the unpredictability in #ChronicIllness.” buff.ly/yveJjRM #Disability #ChronicPain
“You may not control all the events that happen to you, but you can decide not to be reduced by them.” ~ Maya Angelou #chronicillness #chronicpain #mentalhealthmatters
“If opening your eyes, or getting out of bed, or holding a spoon, or combing your hair is the daunting Mount Everest you climb today, that is okay.” ~ Carmen Ambrosio #chronicpain #chronicillness #depression #mentalhealthmatters
"Freud's Hysteria: Part of the history of psychologizing physical illness" by K. Johnstone @SockFoam mecfs.substack.com/p/freuds-hyste… Relatively short blog post #chronicillness
“A shower rarely costs one spoon for people with a #chronicillness or #chronicpain. It might be the most exhausting thing they do all day. It might use up two of the daily allowance of #spoons, maybe even three or more.” buff.ly/rLsQipU @DespitePainBlog #spoonie
RT @ONThealth: #ChronicIllness can bring pain, fatigue and anxiety – but you’re not alone. ConnexOntario provides support 24/7: 📞 1-866-531-2600 💬 connexontario.ca 📱 CONNEX to 247247 #MentalHealth
"Reimagining You: Finding identity, meaning, and purpose when life doesn’t look the way it used to." onelifelivedwell.substack.com/p/reimagining-… Image is from the AMMES April 2026 newsletter #chronicillness #MEcfs
“It helps to educate others on what it takes to survive with [#chronicillness, #pain & #disability]. Many aspects may be invisible because often we only meet people on our best days—not our worst—nor even an average day.” A Day in the Life Linkup buff.ly/3LlCXfB @AChVoice
![APainPrincess's tweet image. “It helps to educate others on what it takes to survive with [#chronicillness, #pain & #disability]. Many aspects may be invisible because often we only meet people on our best days—not our worst—nor even an average day.” A Day in the Life Linkup buff.ly/3LlCXfB @AChVoice](https://pbs.twimg.com/media/HGFIInIXgAA6sNF.jpg)
"A lot of the #anxiety I experience is a result of not being able to trust my body. Every day it's hit or miss whether my body will hold out. I don't trust that my legs will allow me to walk.” #Anxiety; Through The Prism of #ChronicIllness buff.ly/3Q6eDiU @serenebutterfly
“Don’t touch a person living with #chronicpain or #chronicillness—ask first. Many patients like myself…suffer from #allodynia—a painful response to something that shouldn’t cause pain. A light brush on the sleeve can feel like a blowtorch.” buff.ly/3ve3m8D @globetrotteri
When your horizons shrink try to focus on small positives. Today for me that was designing and making a tiny worry plush, a wee monster to scoop up our worries and take them away. #wellness #chronicillness
“Treat yourself with love and #compassion when you accidentally go beyond your limits. We all do it… You shouldn’t blame yourself… Cast off the ignorant remarks of ignorant people. Life’s too short. Seek support in those who understand.” buff.ly/xa658GJ #chronicillness
“I couldn’t keep up with my blog or much of anything… new #symptoms on top of complex medical conditions. It just stacked up. I tried to rest. I tried to maintain… this just got worse and worse… Massive #burnout… You just hit a wall.” buff.ly/VnVUIdP #ChronicIllness
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