#primarybiliarycholangitis نتائج البحث
Our Board President, @LmarieAsad, attended the @RareDiseases Breakthrough Summit in Washington D.C. this week. It was an action-packed few days hearing from the @US_FDA, pharma and biotech Industry, patients, advocates and other wasleaders. #NORDSummit #PrimaryBiliaryCholangitis
Alone we are rare. Together we are strong 💪🏾 @FriendsofPBC at the @RareDiseases #NORDSummit. With more than 10,000 known rare diseases, it's important to share personal stories with elected officials. #PrimaryBiliaryCholangitis #PBCAwareness #LiverHealth rarediseases.org/?s=Primary+bil…
The 75th Annual AASLD #TLM24 was amazing. It was encouraging to see hundreds of clinicians lined up in San Diego to learn more about #PrimaryBiliaryCholangitis. It was also a great opportunity to reconnect with other liver patient advocates #AASLD2024 #livertwitter #PBCawareness
We're in Amsterdam bringing PBC Into Focus Through Art of Patient Stories via @GileadSciences @PBCFoundation @FriendsofPBC @EASLnews #EASLCongress #PrimaryBiliaryCholangitis #LiverHealth #EASL2025 gilead.com/stories/bringi… via @Gilead
We are currently updating our information booklet on #PrimaryBiliaryCholangitis (PBC). If you or one of your loved ones is affected by #PBC, we would like to hear your thoughts. Join our online focus group, 2pm-3pm on 1/2/24 Email [email protected] to attend.
“The grim reaper was at my shoulder, but I believe I'm still standing because of how I looked after myself and how positive I remained." When Clare was told she needed a #livertransplant she was determined to keep smiling #primarybiliarycholangitis More: conta.cc/3YnC2Si
Really proud of this disease education video I helped create! #cholestaticpruritus #itching #primarybiliarycholangitis #bigscreen
To learn more about the recent data, read the press release: bit.ly/4cqhi26 For more information about the Canadian PBC Society, visit pbc-society.ca #PBC #primarybiliarycholangitis
Patients, explore our new, free course on #PrimaryBiliaryCholangitis! You'll learn about #PBC diagnosis, treatment options, and new resources designed to help you manage this disease. Access it here: bit.ly/3DYzcNe Brought to you by the National Organization for Rare…
We are thrilled to welcome Rebecca West to the PBC Foundation as our new Head of Research and Education. We encourage you to meet Rebecca at EASL next week or visit our booth. #PBCFoundation #PBC #PrimaryBiliaryCholangitis @electricdreamz
📢Tonight 18:00 CET #EASLStudio on #primarybiliarycholangitis: The itch we need to scratch ➡️easl.eu/easl-studio-ep… @EASLnews #livertwitter
Lynda panicked when she was diagnosed with #PrimaryBiliaryCholangitis and #cirrhosis. She had no idea where it had come from and thought she was going to die until her consultant reassured her that, with medication, she would continue to live well with it conta.cc/3SQqzID
At the #pbcSummit we joined advocates from around the world working to improve the lives of people with #PrimaryBiliaryCholangitis. Their passion and ideas inspired us and we left with lots to consider for our work ahead. Thank you @PBCFoundation for leading this impactful event!
On #RareDiseaseDay Rebecca is sharing her story. She was diagnosed with #PrimaryBiliaryCholangitis & #AutoimmuneHepatitis in her early 30s. She says: “I don’t let my liver conditions rule me. I rule them”. Living with a liver condition info: britishlivertrust.org.uk/information-an… #PBC #AIH
We are excited to share that our team members will be presenting at the @PBCers 2024 Patient Education Conference. The session & subsequent workshop will empower individuals with #PrimaryBiliaryCholangitis to share their stories. Learn more and register: pbcers.org/events/
✨ @AASLDtweets Virtual Community Conversation✨ Join us for a patient-led discussion on the U.S. PBC Patient unmet needs. When: Saturday, Nov 8, 4 PM ET Hosted by Friends of the PBC Foundation, NFP Register: lnkd.in/g8iFyXhg #PrimaryBiliaryCholangitis #PBCAwareness
Data-Driven Decision-Making in Primary Biliary Cholangitis: Evaluating the Expanding Evidence Base for PPAR Agonists. Get expert insights in seven new streaming presentations. #PeerVoice #PrimaryBiliaryCholangitis #PBC #hepatology #gastroenterology peervoice.com/AEX?PromoCode=…
Today, we're releasing our first newsletter issue, and you don't want to miss out! Click on the link to subscribe! docs.google.com/forms/d/e/1FAI… #PBCawareness #PBChealth #primarybiliarycholangitis
Our Board President, @LmarieAsad, attended the @RareDiseases Breakthrough Summit in Washington D.C. this week. It was an action-packed few days hearing from the @US_FDA, pharma and biotech Industry, patients, advocates and other wasleaders. #NORDSummit #PrimaryBiliaryCholangitis
Alone we are rare. Together we are strong 💪🏾 @FriendsofPBC at the @RareDiseases #NORDSummit. With more than 10,000 known rare diseases, it's important to share personal stories with elected officials. #PrimaryBiliaryCholangitis #PBCAwareness #LiverHealth rarediseases.org/?s=Primary+bil…
Alone we are rare. Together we are strong 💪🏾 @FriendsofPBC at the @RareDiseases #NORDSummit. With more than 10,000 known rare diseases, it's important to share personal stories with elected officials. #PrimaryBiliaryCholangitis #PBCAwareness #LiverHealth rarediseases.org/?s=Primary+bil…
Thank you to all who attended & made our educational webinar last Wednesday a successful event! We had attendees from Dubai to Taiwan and back to the US hear our expert panel share their valuable insights & practical advice to #patients! #PBC #primarybiliarycholangitis #ocaliva
Clinicians #LiverMedicine #LiverTwitter Register for Empire Liver Foundation's "Updates in #PrimaryBiliaryCholangitis" LIVE webinar. TODAY #PBC webinar October 16, 2025 at 7 PM EST Speaker: Jonathan Schwartz, MD. lnkd.in/eg6cVFrc Sponsored by @GileadSciences.
Clinicians #LiverTwitter Empire Liver Foundation's "Updates in #PrimaryBiliaryCholangitis" LIVE webinars start today 7 PM EST with Dr. Jonathan Schwartz, MD lnkd.in/eg6cVFrc For more #PBC webinars check out lnkd.in/ehh2HhcA Sponsored by @GileadSciences.
I’m going to #TLM25 in Washington, D.C.! Who’s joining me (and 9000+ hepatology professionals around the world 🌏) in moving the field of forward? #PrimaryBiliaryCholangitis #LiverX #LiverTwitter @PBCFoundation @PBCers @FriendsofPBC @AASLDtweets @AASLDPresident @AASLDFoundation
Don't miss @LmarieAsad, Founding Board Member and President of the Friends of the PBC Foundation, NFP at #TLM25 hosted by @AASLDtweets w/ @BonderAlan moderated by @PBCRobert, CEO of the @PBCFoundation aasld.org/the-liver-meet… @AASLDtweets #Liverhealth #PrimaryBiliaryCholangitis
Don't miss @LmarieAsad, Founding Board Member and President of the Friends of the PBC Foundation, NFP at #TLM25 hosted by @AASLDtweets w/ @BonderAlan moderated by @PBCRobert, CEO of the @PBCFoundation aasld.org/the-liver-meet… @AASLDtweets #Liverhealth #PrimaryBiliaryCholangitis
The 75th Annual AASLD #TLM24 was amazing. It was encouraging to see hundreds of clinicians lined up in San Diego to learn more about #PrimaryBiliaryCholangitis. It was also a great opportunity to reconnect with other liver patient advocates #AASLD2024 #livertwitter #PBCawareness
It's a pleasure to welcome Dr. Gautham Reddy, MD, from the University of Chicago Medical, to our 2025 PBC Patient Conference! He will be delivering an Overview of Current Treatments for Primary Biliary Cholangitis (PBC). #LiverHealthIsPublicHealth #PrimaryBiliaryCholangitis
Our Board President, @LmarieAsad, attended the @RareDiseases Breakthrough Summit in Washington D.C. this week. It was an action-packed few days hearing from the @US_FDA, pharma and biotech Industry, patients, advocates and other wasleaders. #NORDSummit #PrimaryBiliaryCholangitis
Alone we are rare. Together we are strong 💪🏾 @FriendsofPBC at the @RareDiseases #NORDSummit. With more than 10,000 known rare diseases, it's important to share personal stories with elected officials. #PrimaryBiliaryCholangitis #PBCAwareness #LiverHealth rarediseases.org/?s=Primary+bil…
This is PBC Awareness Month! Achieving optimum #Urso dosage greatly improves outcomes in #PrimaryBiliaryCholangitis Our #PBC URSO App supports #PBCpatients to maintain the correct dosage according to their weight. Available via AppStore or GooglePlay drfalk.co.uk/patient-apps/
Thank you to all who attended & made our educational webinar last Wednesday a successful event! We had attendees from Dubai to Taiwan and back to the US hear our expert panel share their valuable insights & practical advice to #patients! #PBC #primarybiliarycholangitis #ocaliva
We are currently updating our information booklet on #PrimaryBiliaryCholangitis (PBC). If you or one of your loved ones is affected by #PBC, we would like to hear your thoughts. Join our online focus group, 2pm-3pm on 1/2/24 Email [email protected] to attend.
Data-Driven Decision-Making in Primary Biliary Cholangitis: Evaluating the Expanding Evidence Base for PPAR Agonists. Get expert insights in seven new streaming presentations. #PeerVoice #PrimaryBiliaryCholangitis #PBC #hepatology #gastroenterology peervoice.com/AEX?PromoCode=…
Today is International #PBCDay2025! I'm thankful for @AnitaBlantonTV @fox32news for having me on to share my personal #PrimaryBiliaryCholangitis journey and the @FriendsofPBC patient conference. Please register and/or donate to support U.S. patients here: eventbrite.com/e/2025-us-pbc-…
“The grim reaper was at my shoulder, but I believe I'm still standing because of how I looked after myself and how positive I remained." When Clare was told she needed a #livertransplant she was determined to keep smiling #primarybiliarycholangitis More: conta.cc/3YnC2Si
The authors in today's #readoftheweek📚 discuss a home-based exercise programme that attenuates fatigue in #primarybiliarycholangitis. Read here this @JHEP_Reports article: jhep-reports.eu/article/S2589-… 🙏@alicefreer18 @liverphysio @Drfattyliver @CholestasisDoc et al. #LiverTwitter
Still time to reg for our live streamed event #Livernurses & clinicians discussing working with care bundles in #LiverDisease #primarybiliarycholangitis #cirrhosis & #MAFLD add #NAFLD @livernursing Reg FalkPlus App drfalk.co.uk/hcp/events/fal…
To learn more about the recent data, read the press release: bit.ly/4cqhi26 For more information about the Canadian PBC Society, visit pbc-society.ca #PBC #primarybiliarycholangitis
September is #PBC Awareness Month & today is #InternationalPBCDay. #Primarybiliarycholangitis is an autoimmune #liverdisease that is more common in women than men. Learn about ALF resources and support services for those w/ PBC in our press release here: alf.social/PBC
Finding out that you have a chronic condition, such as #primarybiliarycholangitis (#PBC), can be stressful. Learning about the disease and possible treatments can make it easier to cope with your diagnosis. #livertransplant @kymwatt @mctransplntsurg mcpress.mayoclinic.org/living-well/pr…
In our latest Letter to the Editor, Robert Mitchell-Thain, CEO of the @PBCFoundation writes about the troubling development in access to a treatment for people living with #PrimaryBiliaryCholangitis (#PBC). Read the full letter at bit.ly/4c64ehv
Patients, explore our new, free course on #PrimaryBiliaryCholangitis! You'll learn about #PBC diagnosis, treatment options, and new resources designed to help you manage this disease. Access it here: bit.ly/3DYzcNe Brought to you by the National Organization for Rare…
🟪NEW Article in press❕ Incidence and prevalence of primary biliary cholangitis in the Netherlands – a nationwide cohort study 🔓#OpenAccess at👉jhep-reports.eu/article/S2589-… #LiverTwitter #PrimaryBiliaryCholangitis
Lynda panicked when she was diagnosed with #PrimaryBiliaryCholangitis and #cirrhosis. She had no idea where it had come from and thought she was going to die until her consultant reassured her that, with medication, she would continue to live well with it conta.cc/3SQqzID
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