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#primarybiliarycholangitis search results

FriendsofPBC's profile picture. Our mission is to improve the lives of the 130,000+ 🇺🇸 living with Primary Biliary Cholangitis (#PBC) through comprehensive support, education & advocacy
Friends of the PBC Foundation, NFP
 @FriendsofPBC
Oct 23

Our Board President, @LmarieAsad, attended the @RareDiseases Breakthrough Summit in Washington D.C. this week. It was an action-packed few days hearing from the @US_FDA, pharma and biotech Industry, patients, advocates and other wasleaders. #NORDSummit #PrimaryBiliaryCholangitis

FriendsofPBC's tweet image. Our Board President, @LmarieAsad, attended the @RareDiseases Breakthrough Summit in Washington D.C. this week. It was an action-packed few days hearing from the @US_FDA, pharma and biotech Industry, patients, advocates and other wasleaders. #NORDSummit #PrimaryBiliaryCholangitis
FriendsofPBC's tweet image. Our Board President, @LmarieAsad, attended the @RareDiseases Breakthrough Summit in Washington D.C. this week. It was an action-packed few days hearing from the @US_FDA, pharma and biotech Industry, patients, advocates and other wasleaders. #NORDSummit #PrimaryBiliaryCholangitis
FriendsofPBC's tweet image. Our Board President, @LmarieAsad, attended the @RareDiseases Breakthrough Summit in Washington D.C. this week. It was an action-packed few days hearing from the @US_FDA, pharma and biotech Industry, patients, advocates and other wasleaders. #NORDSummit #PrimaryBiliaryCholangitis
LmarieAsad's profile picture. Community Engagement Professional, Non-Profit Board Leader. Rare Disease Patient Advocate. M.A. Gerontology. 1913🔺️
L. Marie Asad
 @LmarieAsad
Oct 23

Alone we are rare. Together we are strong 💪🏾 @FriendsofPBC at the @RareDiseases #NORDSummit. With more than 10,000 known rare diseases, it's important to share personal stories with elected officials. #PrimaryBiliaryCholangitis #PBCAwareness #LiverHealth rarediseases.org/?s=Primary+bil…

LmarieAsad's tweet image. Alone we are rare. Together we are strong 💪🏾 @FriendsofPBC at the @RareDiseases #NORDSummit. With more than 10,000 known rare diseases, it's important to share personal stories with elected officials. #PrimaryBiliaryCholangitis #PBCAwareness #LiverHealth rarediseases.org/?s=Primary+bil…
LmarieAsad's tweet image. Alone we are rare. Together we are strong 💪🏾 @FriendsofPBC at the @RareDiseases #NORDSummit. With more than 10,000 known rare diseases, it's important to share personal stories with elected officials. #PrimaryBiliaryCholangitis #PBCAwareness #LiverHealth rarediseases.org/?s=Primary+bil…
LmarieAsad's tweet image. Alone we are rare. Together we are strong 💪🏾 @FriendsofPBC at the @RareDiseases #NORDSummit. With more than 10,000 known rare diseases, it's important to share personal stories with elected officials. #PrimaryBiliaryCholangitis #PBCAwareness #LiverHealth rarediseases.org/?s=Primary+bil…
LmarieAsad's tweet image. Alone we are rare. Together we are strong 💪🏾 @FriendsofPBC at the @RareDiseases #NORDSummit. With more than 10,000 known rare diseases, it's important to share personal stories with elected officials. #PrimaryBiliaryCholangitis #PBCAwareness #LiverHealth rarediseases.org/?s=Primary+bil…
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LmarieAsad's profile picture. Community Engagement Professional, Non-Profit Board Leader. Rare Disease Patient Advocate. M.A. Gerontology. 1913🔺️
L. Marie Asad
 @LmarieAsad
Nov 20

The 75th Annual AASLD #TLM24 was amazing. It was encouraging to see hundreds of clinicians lined up in San Diego to learn more about #PrimaryBiliaryCholangitis. It was also a great opportunity to reconnect with other liver patient advocates #AASLD2024 #livertwitter #PBCawareness

LmarieAsad's tweet image. The 75th Annual AASLD #TLM24 was amazing. It was encouraging to see hundreds of clinicians lined up in San Diego to learn more about #PrimaryBiliaryCholangitis. It was also a great opportunity to reconnect with other liver patient advocates #AASLD2024 #livertwitter #PBCawareness
LmarieAsad's tweet image. The 75th Annual AASLD #TLM24 was amazing. It was encouraging to see hundreds of clinicians lined up in San Diego to learn more about #PrimaryBiliaryCholangitis. It was also a great opportunity to reconnect with other liver patient advocates #AASLD2024 #livertwitter #PBCawareness
LmarieAsad's tweet image. The 75th Annual AASLD #TLM24 was amazing. It was encouraging to see hundreds of clinicians lined up in San Diego to learn more about #PrimaryBiliaryCholangitis. It was also a great opportunity to reconnect with other liver patient advocates #AASLD2024 #livertwitter #PBCawareness
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LiverTrust's profile picture. Working to improve liver health and reduce the impact of liver disease through patient and family support, campaigning and research.
British Liver Trust
@LiverTrust
Jan 26, 2024

We are currently updating our information booklet on #PrimaryBiliaryCholangitis (PBC). If you or one of your loved ones is affected by #PBC, we would like to hear your thoughts. Join our online focus group, 2pm-3pm on 1/2/24 Email [email protected] to attend.

LiverTrust's tweet image. We are currently updating our information booklet on #PrimaryBiliaryCholangitis (PBC). If you or one of your loved ones is affected by #PBC, we would like to hear your thoughts. Join our online focus group, 2pm-3pm on 1/2/24 Email amy.cordwell@britishlivertrust.org.uk to attend.
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mirumpharma's profile picture. Creating transformative medicine for people with rare disease.
Mirum Pharmaceuticals
@mirumpharma
Jun 17, 2024

Learn more about these results in the news release: bit.ly/4cqhi26 #PBC #primarybiliarycholangitis

mirumpharma's tweet image. Learn more about these results in the news release: bit.ly/4cqhi26 #PBC #primarybiliarycholangitis
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MayoTransplant's profile picture. An integrated clinical practice, education and research center specializing in solid organ, bone marrow and vascular composite transplants.
Mayo Clinic Transplant
 @MayoTransplant
Aug 21

Finding out that you have a chronic condition, such as #primarybiliarycholangitis (#PBC), can be stressful. Learning about the disease and possible treatments can make it easier to cope with your diagnosis. #livertransplant @kymwatt @mctransplntsurg mcpress.mayoclinic.org/living-well/pr…

MayoTransplant's tweet image. Finding out that you have a chronic condition, such as #primarybiliarycholangitis (#PBC), can be stressful. Learning about the disease and possible treatments can make it easier to cope with your diagnosis. #livertransplant @kymwatt @mctransplntsurg mcpress.mayoclinic.org/living-well/pr…
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HealioGastro's profile picture. The content you need, when you need it.
Healio Gastroenterology
 @HealioGastro
Sep 12

💥 @InterceptPharma has pulled #Ocaliva for #PrimaryBiliaryCholangitis from the U.S. market and halted clinical trials. 🙅‍♀️ Dr. Gideon Hirschfield @UofTGastroHep shares why this is a “disappointment” for #hepatologists and patients alike. #livertwitter bit.ly/4mkboUB

HealioGastro's tweet card. Intercept Pharmaceuticals has voluntarily removed Ocaliva from the United States market for the treatment of primary biliary cholangitis, following a series of costly FDA rulings that have whittled...
Intercept pulls Ocaliva from US market; all clinical trials for PBC now on hold
Source: healio.com
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LiverTrust's profile picture. Working to improve liver health and reduce the impact of liver disease through patient and family support, campaigning and research.
British Liver Trust
@LiverTrust
Aug 3, 2023

“The grim reaper was at my shoulder, but I believe I'm still standing because of how I looked after myself and how positive I remained." When Clare was told she needed a #livertransplant she was determined to keep smiling #primarybiliarycholangitis More: conta.cc/3YnC2Si

LiverTrust's tweet image. “The grim reaper was at my shoulder, but I believe I'm still standing because of how I looked after myself and how positive I remained." When Clare was told she needed a #livertransplant she was determined to keep smiling #primarybiliarycholangitis More: conta.cc/3YnC2Si
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mirumpharma's profile picture. Creating transformative medicine for people with rare disease.
Mirum Pharmaceuticals
@mirumpharma
Jun 28, 2024

To learn more about the recent data, read the press release: bit.ly/4cqhi26 For more information about the Canadian PBC Society, visit pbc-society.ca #PBC #primarybiliarycholangitis

mirumpharma's tweet image. To learn more about the recent data, read the press release: bit.ly/4cqhi26 For more information about the Canadian PBC Society, visit pbc-society.ca #PBC #primarybiliarycholangitis
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MedicalLetter's profile picture. A nonprofit organization that has been providing independent reviews of drugs and therapeutics since 1959. Funded solely by subscriptions and donations.
The Medical Letter
 @MedicalLetter
Sep 12, 2024

Elafibranor (Iqirvo) for Primary Biliary Cholangitis bit.ly/3Xqlqcx #PBC #PrimaryBiliaryCholangitis

MedicalLetter's tweet image. Elafibranor (Iqirvo) for Primary Biliary Cholangitis bit.ly/3Xqlqcx #PBC #PrimaryBiliaryCholangitis
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PeerView's profile picture. Improving the knowledge, skills, and strategies that support clinical performance and patient outcomes through the provision of live and on-demand CE
PeerView
@PeerView
Sep 3

Take a look at the latest treatment strategies and personalized care for patients with #PrimaryBiliaryCholangitis, with Drs. David Bernstein and Steven Flamm. bit.ly/3XJmOrC #MedEd

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RareDiseases's profile picture. #NORD has been the voice of the U.S. #RareDisease community for 40+ years strong. Official U.S. sponsor of #RareDiseaseDay. On Bluesky at @ https://t.co/D7PIT4k0Py
National Organization for Rare Disorders (NORD)
@RareDiseases
Jan 23

Patients, explore our new, free course on #PrimaryBiliaryCholangitis! You'll learn about #PBC diagnosis, treatment options, and new resources designed to help you manage this disease. Access it here: bit.ly/3DYzcNe Brought to you by the National Organization for Rare…

RareDiseases's tweet image. Patients, explore our new, free course on #PrimaryBiliaryCholangitis! You'll learn about #PBC diagnosis, treatment options, and new resources designed to help you manage this disease. Access it here: bit.ly/3DYzcNe Brought to you by the National Organization for Rare…
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RareDiseases's profile picture. #NORD has been the voice of the U.S. #RareDisease community for 40+ years strong. Official U.S. sponsor of #RareDiseaseDay. On Bluesky at @ https://t.co/D7PIT4k0Py
National Organization for Rare Disorders (NORD)
@RareDiseases
Mar 7

Join NORD and @medliveofficial for this free #CME session on #PrimaryBiliaryCholangitis! Tune in as two #gastroenterology experts discuss the pathophysiology of #PBC, recognize the link between #pruritus and quality of life, and explore new and emerging therapies. ▶️…

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CheckOrphan's profile picture. CheckOrphan is the leading #news and information platform dedicated to #rarediseases and #orphandrugs
Rare Diseases
 @CheckOrphan
Jun 5, 2024

Gilead’s Seladelpar Demonstrated a Sustained and Consistent Long-Term Efficacy and Safety Profile in Primary Biliary Cholangitis - please check the link for more rb.gy/xfpwxb @GileadSciences #PBC #PrimaryBiliaryCholangitis #RareDiseases #OrphanDrugs #MedicalResearch

CheckOrphan's tweet image. Gilead’s Seladelpar Demonstrated a Sustained and Consistent Long-Term Efficacy and Safety Profile in Primary Biliary Cholangitis - please check the link for more rb.gy/xfpwxb @GileadSciences #PBC #PrimaryBiliaryCholangitis #RareDiseases #OrphanDrugs #MedicalResearch
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FriendsofPBC's profile picture. Our mission is to improve the lives of the 130,000+ 🇺🇸 living with Primary Biliary Cholangitis (#PBC) through comprehensive support, education & advocacy
Friends of the PBC Foundation, NFP
 @FriendsofPBC
Oct 23

Our Board President, @LmarieAsad, attended the @RareDiseases Breakthrough Summit in Washington D.C. this week. It was an action-packed few days hearing from the @US_FDA, pharma and biotech Industry, patients, advocates and other wasleaders. #NORDSummit #PrimaryBiliaryCholangitis

FriendsofPBC's tweet image. Our Board President, @LmarieAsad, attended the @RareDiseases Breakthrough Summit in Washington D.C. this week. It was an action-packed few days hearing from the @US_FDA, pharma and biotech Industry, patients, advocates and other wasleaders. #NORDSummit #PrimaryBiliaryCholangitis
FriendsofPBC's tweet image. Our Board President, @LmarieAsad, attended the @RareDiseases Breakthrough Summit in Washington D.C. this week. It was an action-packed few days hearing from the @US_FDA, pharma and biotech Industry, patients, advocates and other wasleaders. #NORDSummit #PrimaryBiliaryCholangitis
FriendsofPBC's tweet image. Our Board President, @LmarieAsad, attended the @RareDiseases Breakthrough Summit in Washington D.C. this week. It was an action-packed few days hearing from the @US_FDA, pharma and biotech Industry, patients, advocates and other wasleaders. #NORDSummit #PrimaryBiliaryCholangitis
LmarieAsad's profile picture. Community Engagement Professional, Non-Profit Board Leader. Rare Disease Patient Advocate. M.A. Gerontology. 1913🔺️
L. Marie Asad
 @LmarieAsad
Oct 23

Alone we are rare. Together we are strong 💪🏾 @FriendsofPBC at the @RareDiseases #NORDSummit. With more than 10,000 known rare diseases, it's important to share personal stories with elected officials. #PrimaryBiliaryCholangitis #PBCAwareness #LiverHealth rarediseases.org/?s=Primary+bil…

LmarieAsad's tweet image. Alone we are rare. Together we are strong 💪🏾 @FriendsofPBC at the @RareDiseases #NORDSummit. With more than 10,000 known rare diseases, it's important to share personal stories with elected officials. #PrimaryBiliaryCholangitis #PBCAwareness #LiverHealth rarediseases.org/?s=Primary+bil…
LmarieAsad's tweet image. Alone we are rare. Together we are strong 💪🏾 @FriendsofPBC at the @RareDiseases #NORDSummit. With more than 10,000 known rare diseases, it's important to share personal stories with elected officials. #PrimaryBiliaryCholangitis #PBCAwareness #LiverHealth rarediseases.org/?s=Primary+bil…
LmarieAsad's tweet image. Alone we are rare. Together we are strong 💪🏾 @FriendsofPBC at the @RareDiseases #NORDSummit. With more than 10,000 known rare diseases, it's important to share personal stories with elected officials. #PrimaryBiliaryCholangitis #PBCAwareness #LiverHealth rarediseases.org/?s=Primary+bil…
LmarieAsad's tweet image. Alone we are rare. Together we are strong 💪🏾 @FriendsofPBC at the @RareDiseases #NORDSummit. With more than 10,000 known rare diseases, it's important to share personal stories with elected officials. #PrimaryBiliaryCholangitis #PBCAwareness #LiverHealth rarediseases.org/?s=Primary+bil…
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LmarieAsad's profile picture. Community Engagement Professional, Non-Profit Board Leader. Rare Disease Patient Advocate. M.A. Gerontology. 1913🔺️
L. Marie Asad
 @LmarieAsad
Oct 23

Alone we are rare. Together we are strong 💪🏾 @FriendsofPBC at the @RareDiseases #NORDSummit. With more than 10,000 known rare diseases, it's important to share personal stories with elected officials. #PrimaryBiliaryCholangitis #PBCAwareness #LiverHealth rarediseases.org/?s=Primary+bil…

LmarieAsad's tweet image. Alone we are rare. Together we are strong 💪🏾 @FriendsofPBC at the @RareDiseases #NORDSummit. With more than 10,000 known rare diseases, it's important to share personal stories with elected officials. #PrimaryBiliaryCholangitis #PBCAwareness #LiverHealth rarediseases.org/?s=Primary+bil…
LmarieAsad's tweet image. Alone we are rare. Together we are strong 💪🏾 @FriendsofPBC at the @RareDiseases #NORDSummit. With more than 10,000 known rare diseases, it's important to share personal stories with elected officials. #PrimaryBiliaryCholangitis #PBCAwareness #LiverHealth rarediseases.org/?s=Primary+bil…
LmarieAsad's tweet image. Alone we are rare. Together we are strong 💪🏾 @FriendsofPBC at the @RareDiseases #NORDSummit. With more than 10,000 known rare diseases, it's important to share personal stories with elected officials. #PrimaryBiliaryCholangitis #PBCAwareness #LiverHealth rarediseases.org/?s=Primary+bil…
LmarieAsad's tweet image. Alone we are rare. Together we are strong 💪🏾 @FriendsofPBC at the @RareDiseases #NORDSummit. With more than 10,000 known rare diseases, it's important to share personal stories with elected officials. #PrimaryBiliaryCholangitis #PBCAwareness #LiverHealth rarediseases.org/?s=Primary+bil…
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OHIOLIVER's profile picture. Our mission is to promote liver health through education, advocacy and research.
Northeast Ohio Liver Alliance
 @OHIOLIVER
Oct 21

Thank you to all who attended & made our educational webinar last Wednesday a successful event! We had attendees from Dubai to Taiwan and back to the US hear our expert panel share their valuable insights & practical advice to #patients! #PBC #primarybiliarycholangitis #ocaliva

OHIOLIVER's tweet image. Thank you to all who attended & made our educational webinar last Wednesday a successful event! We had attendees from Dubai to Taiwan and back to the US hear our expert panel share their valuable insights & practical advice to #patients! #PBC #primarybiliarycholangitis #ocaliva
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No results for "#primarybiliarycholangitis"
OHIOLIVER's profile picture. Our mission is to promote liver health through education, advocacy and research.
Northeast Ohio Liver Alliance
 @OHIOLIVER
Oct 21

Thank you to all who attended & made our educational webinar last Wednesday a successful event! We had attendees from Dubai to Taiwan and back to the US hear our expert panel share their valuable insights & practical advice to #patients! #PBC #primarybiliarycholangitis #ocaliva

OHIOLIVER's tweet image. Thank you to all who attended & made our educational webinar last Wednesday a successful event! We had attendees from Dubai to Taiwan and back to the US hear our expert panel share their valuable insights & practical advice to #patients! #PBC #primarybiliarycholangitis #ocaliva
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FriendsofPBC's profile picture. Our mission is to improve the lives of the 130,000+ 🇺🇸 living with Primary Biliary Cholangitis (#PBC) through comprehensive support, education & advocacy
Friends of the PBC Foundation, NFP
 @FriendsofPBC
Sep 18

It's a pleasure to welcome Dr. Gautham Reddy, MD, from the University of Chicago Medical, to our 2025 PBC Patient Conference! He will be delivering an Overview of Current Treatments for Primary Biliary Cholangitis (PBC). #LiverHealthIsPublicHealth #PrimaryBiliaryCholangitis

FriendsofPBC's tweet image. It's a pleasure to welcome Dr. Gautham Reddy, MD, from the University of Chicago Medical, to our 2025 PBC Patient Conference! He will be delivering an Overview of Current Treatments for Primary Biliary Cholangitis (PBC). #LiverHealthIsPublicHealth #PrimaryBiliaryCholangitis
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MayoTransplant's profile picture. An integrated clinical practice, education and research center specializing in solid organ, bone marrow and vascular composite transplants.
Mayo Clinic Transplant
 @MayoTransplant
Aug 21

Finding out that you have a chronic condition, such as #primarybiliarycholangitis (#PBC), can be stressful. Learning about the disease and possible treatments can make it easier to cope with your diagnosis. #livertransplant @kymwatt @mctransplntsurg mcpress.mayoclinic.org/living-well/pr…

MayoTransplant's tweet image. Finding out that you have a chronic condition, such as #primarybiliarycholangitis (#PBC), can be stressful. Learning about the disease and possible treatments can make it easier to cope with your diagnosis. #livertransplant @kymwatt @mctransplntsurg mcpress.mayoclinic.org/living-well/pr…
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DrFalkUK's profile picture. Passionate about supporting education & awareness for patients & health care professionals in the areas of IBD & liver disease
DR FALK
 @DrFalkUK
Sep 28

This is PBC Awareness Month! Achieving optimum #Urso dosage greatly improves outcomes in #PrimaryBiliaryCholangitis Our #PBC URSO App supports #PBCpatients to maintain the correct dosage according to their weight. Available via AppStore or GooglePlay drfalk.co.uk/patient-apps/

DrFalkUK's tweet image. This is PBC Awareness Month! Achieving optimum #Urso dosage greatly improves outcomes in #PrimaryBiliaryCholangitis Our #PBC URSO App supports #PBCpatients to maintain the correct dosage according to their weight. Available via AppStore or GooglePlay drfalk.co.uk/patient-apps/
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LiverTrust's profile picture. Working to improve liver health and reduce the impact of liver disease through patient and family support, campaigning and research.
British Liver Trust
@LiverTrust
Jan 26, 2024

We are currently updating our information booklet on #PrimaryBiliaryCholangitis (PBC). If you or one of your loved ones is affected by #PBC, we would like to hear your thoughts. Join our online focus group, 2pm-3pm on 1/2/24 Email [email protected] to attend.

LiverTrust's tweet image. We are currently updating our information booklet on #PrimaryBiliaryCholangitis (PBC). If you or one of your loved ones is affected by #PBC, we would like to hear your thoughts. Join our online focus group, 2pm-3pm on 1/2/24 Email amy.cordwell@britishlivertrust.org.uk to attend.
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mirumpharma's profile picture. Creating transformative medicine for people with rare disease.
Mirum Pharmaceuticals
@mirumpharma
Jun 17, 2024

Learn more about these results in the news release: bit.ly/4cqhi26 #PBC #primarybiliarycholangitis

mirumpharma's tweet image. Learn more about these results in the news release: bit.ly/4cqhi26 #PBC #primarybiliarycholangitis
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LmarieAsad's profile picture. Community Engagement Professional, Non-Profit Board Leader. Rare Disease Patient Advocate. M.A. Gerontology. 1913🔺️
L. Marie Asad
 @LmarieAsad
Nov 20

The 75th Annual AASLD #TLM24 was amazing. It was encouraging to see hundreds of clinicians lined up in San Diego to learn more about #PrimaryBiliaryCholangitis. It was also a great opportunity to reconnect with other liver patient advocates #AASLD2024 #livertwitter #PBCawareness

LmarieAsad's tweet image. The 75th Annual AASLD #TLM24 was amazing. It was encouraging to see hundreds of clinicians lined up in San Diego to learn more about #PrimaryBiliaryCholangitis. It was also a great opportunity to reconnect with other liver patient advocates #AASLD2024 #livertwitter #PBCawareness
LmarieAsad's tweet image. The 75th Annual AASLD #TLM24 was amazing. It was encouraging to see hundreds of clinicians lined up in San Diego to learn more about #PrimaryBiliaryCholangitis. It was also a great opportunity to reconnect with other liver patient advocates #AASLD2024 #livertwitter #PBCawareness
LmarieAsad's tweet image. The 75th Annual AASLD #TLM24 was amazing. It was encouraging to see hundreds of clinicians lined up in San Diego to learn more about #PrimaryBiliaryCholangitis. It was also a great opportunity to reconnect with other liver patient advocates #AASLD2024 #livertwitter #PBCawareness
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LmarieAsad's profile picture. Community Engagement Professional, Non-Profit Board Leader. Rare Disease Patient Advocate. M.A. Gerontology. 1913🔺️
L. Marie Asad
 @LmarieAsad
Sep 14

Today is International #PBCDay2025! I'm thankful for @AnitaBlantonTV @fox32news for having me on to share my personal #PrimaryBiliaryCholangitis journey and the @FriendsofPBC patient conference. Please register and/or donate to support U.S. patients here: eventbrite.com/e/2025-us-pbc-…

LmarieAsad's tweet image. Today is International #PBCDay2025! I'm thankful for @AnitaBlantonTV @fox32news for having me on to share my personal #PrimaryBiliaryCholangitis journey and the @FriendsofPBC patient conference. Please register and/or donate to support U.S. patients here: eventbrite.com/e/2025-us-pbc-…
LmarieAsad's tweet image. Today is International #PBCDay2025! I'm thankful for @AnitaBlantonTV @fox32news for having me on to share my personal #PrimaryBiliaryCholangitis journey and the @FriendsofPBC patient conference. Please register and/or donate to support U.S. patients here: eventbrite.com/e/2025-us-pbc-…
LmarieAsad's tweet image. Today is International #PBCDay2025! I'm thankful for @AnitaBlantonTV @fox32news for having me on to share my personal #PrimaryBiliaryCholangitis journey and the @FriendsofPBC patient conference. Please register and/or donate to support U.S. patients here: eventbrite.com/e/2025-us-pbc-…
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FriendsofPBC's profile picture. Our mission is to improve the lives of the 130,000+ 🇺🇸 living with Primary Biliary Cholangitis (#PBC) through comprehensive support, education & advocacy
Friends of the PBC Foundation, NFP
 @FriendsofPBC
Oct 23

Our Board President, @LmarieAsad, attended the @RareDiseases Breakthrough Summit in Washington D.C. this week. It was an action-packed few days hearing from the @US_FDA, pharma and biotech Industry, patients, advocates and other wasleaders. #NORDSummit #PrimaryBiliaryCholangitis

FriendsofPBC's tweet image. Our Board President, @LmarieAsad, attended the @RareDiseases Breakthrough Summit in Washington D.C. this week. It was an action-packed few days hearing from the @US_FDA, pharma and biotech Industry, patients, advocates and other wasleaders. #NORDSummit #PrimaryBiliaryCholangitis
FriendsofPBC's tweet image. Our Board President, @LmarieAsad, attended the @RareDiseases Breakthrough Summit in Washington D.C. this week. It was an action-packed few days hearing from the @US_FDA, pharma and biotech Industry, patients, advocates and other wasleaders. #NORDSummit #PrimaryBiliaryCholangitis
FriendsofPBC's tweet image. Our Board President, @LmarieAsad, attended the @RareDiseases Breakthrough Summit in Washington D.C. this week. It was an action-packed few days hearing from the @US_FDA, pharma and biotech Industry, patients, advocates and other wasleaders. #NORDSummit #PrimaryBiliaryCholangitis
LmarieAsad's profile picture. Community Engagement Professional, Non-Profit Board Leader. Rare Disease Patient Advocate. M.A. Gerontology. 1913🔺️
L. Marie Asad
 @LmarieAsad
Oct 23

Alone we are rare. Together we are strong 💪🏾 @FriendsofPBC at the @RareDiseases #NORDSummit. With more than 10,000 known rare diseases, it's important to share personal stories with elected officials. #PrimaryBiliaryCholangitis #PBCAwareness #LiverHealth rarediseases.org/?s=Primary+bil…

LmarieAsad's tweet image. Alone we are rare. Together we are strong 💪🏾 @FriendsofPBC at the @RareDiseases #NORDSummit. With more than 10,000 known rare diseases, it's important to share personal stories with elected officials. #PrimaryBiliaryCholangitis #PBCAwareness #LiverHealth rarediseases.org/?s=Primary+bil…
LmarieAsad's tweet image. Alone we are rare. Together we are strong 💪🏾 @FriendsofPBC at the @RareDiseases #NORDSummit. With more than 10,000 known rare diseases, it's important to share personal stories with elected officials. #PrimaryBiliaryCholangitis #PBCAwareness #LiverHealth rarediseases.org/?s=Primary+bil…
LmarieAsad's tweet image. Alone we are rare. Together we are strong 💪🏾 @FriendsofPBC at the @RareDiseases #NORDSummit. With more than 10,000 known rare diseases, it's important to share personal stories with elected officials. #PrimaryBiliaryCholangitis #PBCAwareness #LiverHealth rarediseases.org/?s=Primary+bil…
LmarieAsad's tweet image. Alone we are rare. Together we are strong 💪🏾 @FriendsofPBC at the @RareDiseases #NORDSummit. With more than 10,000 known rare diseases, it's important to share personal stories with elected officials. #PrimaryBiliaryCholangitis #PBCAwareness #LiverHealth rarediseases.org/?s=Primary+bil…
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LiverTrust's profile picture. Working to improve liver health and reduce the impact of liver disease through patient and family support, campaigning and research.
British Liver Trust
@LiverTrust
Aug 3, 2023

“The grim reaper was at my shoulder, but I believe I'm still standing because of how I looked after myself and how positive I remained." When Clare was told she needed a #livertransplant she was determined to keep smiling #primarybiliarycholangitis More: conta.cc/3YnC2Si

LiverTrust's tweet image. “The grim reaper was at my shoulder, but I believe I'm still standing because of how I looked after myself and how positive I remained." When Clare was told she needed a #livertransplant she was determined to keep smiling #primarybiliarycholangitis More: conta.cc/3YnC2Si
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EASLnews's profile picture. Let's unite Hepatology! Become a member today and discover your membership benefits. ____________ RT ≠ endorsement. We express no political views.
EASLnews
@EASLnews
Dec 11

The authors in today's #readoftheweek📚 discuss a home-based exercise programme that attenuates fatigue in #primarybiliarycholangitis. Read here this @JHEP_Reports article: jhep-reports.eu/article/S2589-… 🙏@alicefreer18 @liverphysio @Drfattyliver @CholestasisDoc et al. #LiverTwitter

EASLnews's tweet image. The authors in today's #readoftheweek📚 discuss a home-based exercise programme that attenuates fatigue in #primarybiliarycholangitis. Read here this @JHEP_Reports article: jhep-reports.eu/article/S2589-… 🙏@alicefreer18 @liverphysio @Drfattyliver @CholestasisDoc et al. #LiverTwitter
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liverUSA's profile picture. Our mission is to facilitate, advocate & promote education, support & research for the prevention, treatment & cure of liver disease. RTs do not = endorsements.
American Liver Foundation National
@liverUSA
Sep 10, 2023

September is #PBC Awareness Month & today is #InternationalPBCDay. #Primarybiliarycholangitis is an autoimmune #liverdisease that is more common in women than men. Learn about ALF resources and support services for those w/ PBC in our press release here: alf.social/PBC

liverUSA's tweet image. September is #PBC Awareness Month & today is #InternationalPBCDay. #Primarybiliarycholangitis is an autoimmune #liverdisease that is more common in women than men. Learn about ALF resources and support services for those w/ PBC in our press release here: alf.social/PBC
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CheckOrphan's profile picture. CheckOrphan is the leading #news and information platform dedicated to #rarediseases and #orphandrugs
Rare Diseases
 @CheckOrphan
Jun 5, 2024

Gilead’s Seladelpar Demonstrated a Sustained and Consistent Long-Term Efficacy and Safety Profile in Primary Biliary Cholangitis - please check the link for more rb.gy/xfpwxb @GileadSciences #PBC #PrimaryBiliaryCholangitis #RareDiseases #OrphanDrugs #MedicalResearch

CheckOrphan's tweet image. Gilead’s Seladelpar Demonstrated a Sustained and Consistent Long-Term Efficacy and Safety Profile in Primary Biliary Cholangitis - please check the link for more rb.gy/xfpwxb @GileadSciences #PBC #PrimaryBiliaryCholangitis #RareDiseases #OrphanDrugs #MedicalResearch
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DrFalkUK's profile picture. Passionate about supporting education & awareness for patients & health care professionals in the areas of IBD & liver disease
DR FALK
 @DrFalkUK
Jun 4, 2024

Still time to reg for our live streamed event #Livernurses & clinicians discussing working with care bundles in #LiverDisease #primarybiliarycholangitis #cirrhosis & #MAFLD add #NAFLD @livernursing Reg FalkPlus App drfalk.co.uk/hcp/events/fal…

DrFalkUK's tweet image. Still time to reg for our live streamed event #Livernurses & clinicians discussing working with care bundles in #LiverDisease #primarybiliarycholangitis #cirrhosis & #MAFLD add #NAFLD @livernursing Reg FalkPlus App drfalk.co.uk/hcp/events/fal…
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mirumpharma's profile picture. Creating transformative medicine for people with rare disease.
Mirum Pharmaceuticals
@mirumpharma
Jun 28, 2024

To learn more about the recent data, read the press release: bit.ly/4cqhi26 For more information about the Canadian PBC Society, visit pbc-society.ca #PBC #primarybiliarycholangitis

mirumpharma's tweet image. To learn more about the recent data, read the press release: bit.ly/4cqhi26 For more information about the Canadian PBC Society, visit pbc-society.ca #PBC #primarybiliarycholangitis
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MedicalLetter's profile picture. A nonprofit organization that has been providing independent reviews of drugs and therapeutics since 1959. Funded solely by subscriptions and donations.
The Medical Letter
 @MedicalLetter
Sep 12, 2024

Elafibranor (Iqirvo) for Primary Biliary Cholangitis bit.ly/3Xqlqcx #PBC #PrimaryBiliaryCholangitis

MedicalLetter's tweet image. Elafibranor (Iqirvo) for Primary Biliary Cholangitis bit.ly/3Xqlqcx #PBC #PrimaryBiliaryCholangitis
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RareDiseases's profile picture. #NORD has been the voice of the U.S. #RareDisease community for 40+ years strong. Official U.S. sponsor of #RareDiseaseDay. On Bluesky at @ https://t.co/D7PIT4k0Py
National Organization for Rare Disorders (NORD)
@RareDiseases
Jan 23

Patients, explore our new, free course on #PrimaryBiliaryCholangitis! You'll learn about #PBC diagnosis, treatment options, and new resources designed to help you manage this disease. Access it here: bit.ly/3DYzcNe Brought to you by the National Organization for Rare…

RareDiseases's tweet image. Patients, explore our new, free course on #PrimaryBiliaryCholangitis! You'll learn about #PBC diagnosis, treatment options, and new resources designed to help you manage this disease. Access it here: bit.ly/3DYzcNe Brought to you by the National Organization for Rare…
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RareRevolutionM's profile picture. Digital magazine giving a voice to those affected by rare conditions and the charities that support them. Contact us: hello@rarerevolutionmagazine.com
RARE Revolution Magazine®
@RareRevolutionM
Aug 7, 2024

In our latest Letter to the Editor, Robert Mitchell-Thain, CEO of the @PBCFoundation writes about the troubling development in access to a treatment for people living with #PrimaryBiliaryCholangitis (#PBC). Read the full letter at bit.ly/4c64ehv

RareRevolutionM's tweet image. In our latest Letter to the Editor, Robert Mitchell-Thain, CEO of the @PBCFoundation writes about the troubling development in access to a treatment for people living with #PrimaryBiliaryCholangitis (#PBC). Read the full letter at bit.ly/4c64ehv
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LiverTrust's profile picture. Working to improve liver health and reduce the impact of liver disease through patient and family support, campaigning and research.
British Liver Trust
@LiverTrust
Feb 7, 2024

Lynda panicked when she was diagnosed with #PrimaryBiliaryCholangitis and #cirrhosis. She had no idea where it had come from and thought she was going to die until her consultant reassured her that, with medication, she would continue to live well with it conta.cc/3SQqzID

LiverTrust's tweet image. Lynda panicked when she was diagnosed with #PrimaryBiliaryCholangitis and #cirrhosis. She had no idea where it had come from and thought she was going to die until her consultant reassured her that, with medication, she would continue to live well with it conta.cc/3SQqzID
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JHEP_Reports's profile picture. JHEP Reports publishes manuscripts concerned with basic, translational and clinical research in the field of hepatology - IF: 7.5
JHEP Reports
 @JHEP_Reports
Jun 26, 2024

🟪NEW Article in press❕ Incidence and prevalence of primary biliary cholangitis in the Netherlands – a nationwide cohort study 🔓#OpenAccess at👉jhep-reports.eu/article/S2589-… #LiverTwitter #PrimaryBiliaryCholangitis

JHEP_Reports's tweet image. 🟪NEW Article in press❕ Incidence and prevalence of primary biliary cholangitis in the Netherlands – a nationwide cohort study 🔓#OpenAccess at👉jhep-reports.eu/article/S2589-… #LiverTwitter #PrimaryBiliaryCholangitis
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