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#primarybiliarycholangitis 検索結果

FriendsofPBC's profile picture. Our mission is to improve the lives of the 130,000+ 🇺🇸 living with Primary Biliary Cholangitis (#PBC) through comprehensive support, education & advocacy
Friends of the PBC Foundation, NFP
 @FriendsofPBC
/10/23

Our Board President, @LmarieAsad, attended the @RareDiseases Breakthrough Summit in Washington D.C. this week. It was an action-packed few days hearing from the @US_FDA, pharma and biotech Industry, patients, advocates and other wasleaders. #NORDSummit #PrimaryBiliaryCholangitis

FriendsofPBC's tweet image. Our Board President, @LmarieAsad, attended the @RareDiseases Breakthrough Summit in Washington D.C. this week. It was an action-packed few days hearing from the @US_FDA, pharma and biotech Industry, patients, advocates and other wasleaders. #NORDSummit #PrimaryBiliaryCholangitis
FriendsofPBC's tweet image. Our Board President, @LmarieAsad, attended the @RareDiseases Breakthrough Summit in Washington D.C. this week. It was an action-packed few days hearing from the @US_FDA, pharma and biotech Industry, patients, advocates and other wasleaders. #NORDSummit #PrimaryBiliaryCholangitis
FriendsofPBC's tweet image. Our Board President, @LmarieAsad, attended the @RareDiseases Breakthrough Summit in Washington D.C. this week. It was an action-packed few days hearing from the @US_FDA, pharma and biotech Industry, patients, advocates and other wasleaders. #NORDSummit #PrimaryBiliaryCholangitis
LmarieAsad's profile picture. Community Engagement Professional, Non-Profit Board Leader. Rare Disease Patient Advocate. M.A. Gerontology. 1913🔺️
L. Marie Asad
 @LmarieAsad
/10/23

Alone we are rare. Together we are strong 💪🏾 @FriendsofPBC at the @RareDiseases #NORDSummit. With more than 10,000 known rare diseases, it's important to share personal stories with elected officials. #PrimaryBiliaryCholangitis #PBCAwareness #LiverHealth rarediseases.org/?s=Primary+bil…

LmarieAsad's tweet image. Alone we are rare. Together we are strong 💪🏾 @FriendsofPBC at the @RareDiseases #NORDSummit. With more than 10,000 known rare diseases, it's important to share personal stories with elected officials. #PrimaryBiliaryCholangitis #PBCAwareness #LiverHealth rarediseases.org/?s=Primary+bil…
LmarieAsad's tweet image. Alone we are rare. Together we are strong 💪🏾 @FriendsofPBC at the @RareDiseases #NORDSummit. With more than 10,000 known rare diseases, it's important to share personal stories with elected officials. #PrimaryBiliaryCholangitis #PBCAwareness #LiverHealth rarediseases.org/?s=Primary+bil…
LmarieAsad's tweet image. Alone we are rare. Together we are strong 💪🏾 @FriendsofPBC at the @RareDiseases #NORDSummit. With more than 10,000 known rare diseases, it's important to share personal stories with elected officials. #PrimaryBiliaryCholangitis #PBCAwareness #LiverHealth rarediseases.org/?s=Primary+bil…
LmarieAsad's tweet image. Alone we are rare. Together we are strong 💪🏾 @FriendsofPBC at the @RareDiseases #NORDSummit. With more than 10,000 known rare diseases, it's important to share personal stories with elected officials. #PrimaryBiliaryCholangitis #PBCAwareness #LiverHealth rarediseases.org/?s=Primary+bil…
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LmarieAsad's profile picture. Community Engagement Professional, Non-Profit Board Leader. Rare Disease Patient Advocate. M.A. Gerontology. 1913🔺️
L. Marie Asad
 @LmarieAsad
/11/20

The 75th Annual AASLD #TLM24 was amazing. It was encouraging to see hundreds of clinicians lined up in San Diego to learn more about #PrimaryBiliaryCholangitis. It was also a great opportunity to reconnect with other liver patient advocates #AASLD2024 #livertwitter #PBCawareness

LmarieAsad's tweet image. The 75th Annual AASLD #TLM24 was amazing. It was encouraging to see hundreds of clinicians lined up in San Diego to learn more about #PrimaryBiliaryCholangitis. It was also a great opportunity to reconnect with other liver patient advocates #AASLD2024 #livertwitter #PBCawareness
LmarieAsad's tweet image. The 75th Annual AASLD #TLM24 was amazing. It was encouraging to see hundreds of clinicians lined up in San Diego to learn more about #PrimaryBiliaryCholangitis. It was also a great opportunity to reconnect with other liver patient advocates #AASLD2024 #livertwitter #PBCawareness
LmarieAsad's tweet image. The 75th Annual AASLD #TLM24 was amazing. It was encouraging to see hundreds of clinicians lined up in San Diego to learn more about #PrimaryBiliaryCholangitis. It was also a great opportunity to reconnect with other liver patient advocates #AASLD2024 #livertwitter #PBCawareness
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LiverTrust's profile picture. Working to improve liver health and reduce the impact of liver disease through patient and family support, campaigning and research.
British Liver Trust
@LiverTrust
2024/01/26

We are currently updating our information booklet on #PrimaryBiliaryCholangitis (PBC). If you or one of your loved ones is affected by #PBC, we would like to hear your thoughts. Join our online focus group, 2pm-3pm on 1/2/24 Email [email protected] to attend.

LiverTrust's tweet image. We are currently updating our information booklet on #PrimaryBiliaryCholangitis (PBC). If you or one of your loved ones is affected by #PBC, we would like to hear your thoughts. Join our online focus group, 2pm-3pm on 1/2/24 Email amy.cordwell@britishlivertrust.org.uk to attend.
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MayoTransplant's profile picture. An integrated clinical practice, education and research center specializing in solid organ, bone marrow and vascular composite transplants.
Mayo Clinic Transplant
 @MayoTransplant
/08/21

Finding out that you have a chronic condition, such as #primarybiliarycholangitis (#PBC), can be stressful. Learning about the disease and possible treatments can make it easier to cope with your diagnosis. #livertransplant @kymwatt @mctransplntsurg mcpress.mayoclinic.org/living-well/pr…

MayoTransplant's tweet image. Finding out that you have a chronic condition, such as #primarybiliarycholangitis (#PBC), can be stressful. Learning about the disease and possible treatments can make it easier to cope with your diagnosis. #livertransplant @kymwatt @mctransplntsurg mcpress.mayoclinic.org/living-well/pr…
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mirumpharma's profile picture. Creating transformative medicine for people with rare disease.
Mirum Pharmaceuticals
@mirumpharma
2024/06/17

Learn more about these results in the news release: bit.ly/4cqhi26 #PBC #primarybiliarycholangitis

mirumpharma's tweet image. Learn more about these results in the news release: bit.ly/4cqhi26 #PBC #primarybiliarycholangitis
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LiverTrust's profile picture. Working to improve liver health and reduce the impact of liver disease through patient and family support, campaigning and research.
British Liver Trust
@LiverTrust
2023/08/03

“The grim reaper was at my shoulder, but I believe I'm still standing because of how I looked after myself and how positive I remained." When Clare was told she needed a #livertransplant she was determined to keep smiling #primarybiliarycholangitis More: conta.cc/3YnC2Si

LiverTrust's tweet image. “The grim reaper was at my shoulder, but I believe I'm still standing because of how I looked after myself and how positive I remained." When Clare was told she needed a #livertransplant she was determined to keep smiling #primarybiliarycholangitis More: conta.cc/3YnC2Si
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mirumpharma's profile picture. Creating transformative medicine for people with rare disease.
Mirum Pharmaceuticals
@mirumpharma
2024/06/28

To learn more about the recent data, read the press release: bit.ly/4cqhi26 For more information about the Canadian PBC Society, visit pbc-society.ca #PBC #primarybiliarycholangitis

mirumpharma's tweet image. To learn more about the recent data, read the press release: bit.ly/4cqhi26 For more information about the Canadian PBC Society, visit pbc-society.ca #PBC #primarybiliarycholangitis
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MedicalLetter's profile picture. A nonprofit organization that has been providing independent reviews of drugs and therapeutics since 1959. Funded solely by subscriptions and donations.
The Medical Letter
 @MedicalLetter
2024/09/12

Elafibranor (Iqirvo) for Primary Biliary Cholangitis bit.ly/3Xqlqcx #PBC #PrimaryBiliaryCholangitis

MedicalLetter's tweet image. Elafibranor (Iqirvo) for Primary Biliary Cholangitis bit.ly/3Xqlqcx #PBC #PrimaryBiliaryCholangitis
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RareDiseases's profile picture. #NORD has been the voice of the U.S. #RareDisease community for 40+ years strong. Official U.S. sponsor of #RareDiseaseDay. On Bluesky at @ https://t.co/D7PIT4k0Py
National Organization for Rare Disorders (NORD)
@RareDiseases
/01/23

Patients, explore our new, free course on #PrimaryBiliaryCholangitis! You'll learn about #PBC diagnosis, treatment options, and new resources designed to help you manage this disease. Access it here: bit.ly/3DYzcNe Brought to you by the National Organization for Rare…

RareDiseases's tweet image. Patients, explore our new, free course on #PrimaryBiliaryCholangitis! You'll learn about #PBC diagnosis, treatment options, and new resources designed to help you manage this disease. Access it here: bit.ly/3DYzcNe Brought to you by the National Organization for Rare…
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PeerView's profile picture. Improving the knowledge, skills, and strategies that support clinical performance and patient outcomes through the provision of live and on-demand CE
PeerView
@PeerView
/09/03

Take a look at the latest treatment strategies and personalized care for patients with #PrimaryBiliaryCholangitis, with Drs. David Bernstein and Steven Flamm. bit.ly/3XJmOrC #MedEd

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CymaBay's profile picture. We are a global clinical-stage biopharma company developing solutions for patients with liver diseases.
CymaBay Therapeutics
 @CymaBay
2024/04/12

At the #pbcSummit we joined advocates from around the world working to improve the lives of people with #PrimaryBiliaryCholangitis. Their passion and ideas inspired us and we left with lots to consider for our work ahead. Thank you @PBCFoundation for leading this impactful event!

CymaBay's tweet image. At the #pbcSummit we joined advocates from around the world working to improve the lives of people with #PrimaryBiliaryCholangitis. Their passion and ideas inspired us and we left with lots to consider for our work ahead. Thank you @PBCFoundation for leading this impactful event!
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RareDiseases's profile picture. #NORD has been the voice of the U.S. #RareDisease community for 40+ years strong. Official U.S. sponsor of #RareDiseaseDay. On Bluesky at @ https://t.co/D7PIT4k0Py
National Organization for Rare Disorders (NORD)
@RareDiseases
/03/07

Join NORD and @medliveofficial for this free #CME session on #PrimaryBiliaryCholangitis! Tune in as two #gastroenterology experts discuss the pathophysiology of #PBC, recognize the link between #pruritus and quality of life, and explore new and emerging therapies. ▶️…

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PBCFoundation's profile picture.
PBC Foundation
 @PBCFoundation
/05/01

We are thrilled to welcome Rebecca West to the PBC Foundation as our new Head of Research and Education. We encourage you to meet Rebecca at EASL next week or visit our booth. #PBCFoundation #PBC #PrimaryBiliaryCholangitis @electricdreamz

PBCFoundation's tweet image. We are thrilled to welcome Rebecca West to the PBC Foundation as our new Head of Research and Education. We encourage you to meet Rebecca at EASL next week or visit our booth. #PBCFoundation #PBC #PrimaryBiliaryCholangitis @electricdreamz
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LiverTrust's profile picture. Working to improve liver health and reduce the impact of liver disease through patient and family support, campaigning and research.
British Liver Trust
@LiverTrust
2024/02/29

On #RareDiseaseDay Rebecca is sharing her story. She was diagnosed with #PrimaryBiliaryCholangitis & #AutoimmuneHepatitis in her early 30s. She says: “I don’t let my liver conditions rule me. I rule them”. Living with a liver condition info: britishlivertrust.org.uk/information-an… #PBC #AIH

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liverUSA's profile picture. Our mission is to facilitate, advocate & promote education, support & research for the prevention, treatment & cure of liver disease. RTs do not = endorsements.
American Liver Foundation National
@liverUSA
2023/09/10

September is #PBC Awareness Month & today is #InternationalPBCDay. #Primarybiliarycholangitis is an autoimmune #liverdisease that is more common in women than men. Learn about ALF resources and support services for those w/ PBC in our press release here: alf.social/PBC

liverUSA's tweet image. September is #PBC Awareness Month & today is #InternationalPBCDay. #Primarybiliarycholangitis is an autoimmune #liverdisease that is more common in women than men. Learn about ALF resources and support services for those w/ PBC in our press release here: alf.social/PBC
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FriendsofPBC's profile picture. Our mission is to improve the lives of the 130,000+ 🇺🇸 living with Primary Biliary Cholangitis (#PBC) through comprehensive support, education & advocacy
Friends of the PBC Foundation, NFP
 @FriendsofPBC
/10/23

Our Board President, @LmarieAsad, attended the @RareDiseases Breakthrough Summit in Washington D.C. this week. It was an action-packed few days hearing from the @US_FDA, pharma and biotech Industry, patients, advocates and other wasleaders. #NORDSummit #PrimaryBiliaryCholangitis

FriendsofPBC's tweet image. Our Board President, @LmarieAsad, attended the @RareDiseases Breakthrough Summit in Washington D.C. this week. It was an action-packed few days hearing from the @US_FDA, pharma and biotech Industry, patients, advocates and other wasleaders. #NORDSummit #PrimaryBiliaryCholangitis
FriendsofPBC's tweet image. Our Board President, @LmarieAsad, attended the @RareDiseases Breakthrough Summit in Washington D.C. this week. It was an action-packed few days hearing from the @US_FDA, pharma and biotech Industry, patients, advocates and other wasleaders. #NORDSummit #PrimaryBiliaryCholangitis
FriendsofPBC's tweet image. Our Board President, @LmarieAsad, attended the @RareDiseases Breakthrough Summit in Washington D.C. this week. It was an action-packed few days hearing from the @US_FDA, pharma and biotech Industry, patients, advocates and other wasleaders. #NORDSummit #PrimaryBiliaryCholangitis
LmarieAsad's profile picture. Community Engagement Professional, Non-Profit Board Leader. Rare Disease Patient Advocate. M.A. Gerontology. 1913🔺️
L. Marie Asad
 @LmarieAsad
/10/23

Alone we are rare. Together we are strong 💪🏾 @FriendsofPBC at the @RareDiseases #NORDSummit. With more than 10,000 known rare diseases, it's important to share personal stories with elected officials. #PrimaryBiliaryCholangitis #PBCAwareness #LiverHealth rarediseases.org/?s=Primary+bil…

LmarieAsad's tweet image. Alone we are rare. Together we are strong 💪🏾 @FriendsofPBC at the @RareDiseases #NORDSummit. With more than 10,000 known rare diseases, it's important to share personal stories with elected officials. #PrimaryBiliaryCholangitis #PBCAwareness #LiverHealth rarediseases.org/?s=Primary+bil…
LmarieAsad's tweet image. Alone we are rare. Together we are strong 💪🏾 @FriendsofPBC at the @RareDiseases #NORDSummit. With more than 10,000 known rare diseases, it's important to share personal stories with elected officials. #PrimaryBiliaryCholangitis #PBCAwareness #LiverHealth rarediseases.org/?s=Primary+bil…
LmarieAsad's tweet image. Alone we are rare. Together we are strong 💪🏾 @FriendsofPBC at the @RareDiseases #NORDSummit. With more than 10,000 known rare diseases, it's important to share personal stories with elected officials. #PrimaryBiliaryCholangitis #PBCAwareness #LiverHealth rarediseases.org/?s=Primary+bil…
LmarieAsad's tweet image. Alone we are rare. Together we are strong 💪🏾 @FriendsofPBC at the @RareDiseases #NORDSummit. With more than 10,000 known rare diseases, it's important to share personal stories with elected officials. #PrimaryBiliaryCholangitis #PBCAwareness #LiverHealth rarediseases.org/?s=Primary+bil…
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LmarieAsad's profile picture. Community Engagement Professional, Non-Profit Board Leader. Rare Disease Patient Advocate. M.A. Gerontology. 1913🔺️
L. Marie Asad
 @LmarieAsad
/10/23

Alone we are rare. Together we are strong 💪🏾 @FriendsofPBC at the @RareDiseases #NORDSummit. With more than 10,000 known rare diseases, it's important to share personal stories with elected officials. #PrimaryBiliaryCholangitis #PBCAwareness #LiverHealth rarediseases.org/?s=Primary+bil…

LmarieAsad's tweet image. Alone we are rare. Together we are strong 💪🏾 @FriendsofPBC at the @RareDiseases #NORDSummit. With more than 10,000 known rare diseases, it's important to share personal stories with elected officials. #PrimaryBiliaryCholangitis #PBCAwareness #LiverHealth rarediseases.org/?s=Primary+bil…
LmarieAsad's tweet image. Alone we are rare. Together we are strong 💪🏾 @FriendsofPBC at the @RareDiseases #NORDSummit. With more than 10,000 known rare diseases, it's important to share personal stories with elected officials. #PrimaryBiliaryCholangitis #PBCAwareness #LiverHealth rarediseases.org/?s=Primary+bil…
LmarieAsad's tweet image. Alone we are rare. Together we are strong 💪🏾 @FriendsofPBC at the @RareDiseases #NORDSummit. With more than 10,000 known rare diseases, it's important to share personal stories with elected officials. #PrimaryBiliaryCholangitis #PBCAwareness #LiverHealth rarediseases.org/?s=Primary+bil…
LmarieAsad's tweet image. Alone we are rare. Together we are strong 💪🏾 @FriendsofPBC at the @RareDiseases #NORDSummit. With more than 10,000 known rare diseases, it's important to share personal stories with elected officials. #PrimaryBiliaryCholangitis #PBCAwareness #LiverHealth rarediseases.org/?s=Primary+bil…
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OHIOLIVER's profile picture. Our mission is to promote liver health through education, advocacy and research.
Northeast Ohio Liver Alliance
 @OHIOLIVER
/10/21

Thank you to all who attended & made our educational webinar last Wednesday a successful event! We had attendees from Dubai to Taiwan and back to the US hear our expert panel share their valuable insights & practical advice to #patients! #PBC #primarybiliarycholangitis #ocaliva

OHIOLIVER's tweet image. Thank you to all who attended & made our educational webinar last Wednesday a successful event! We had attendees from Dubai to Taiwan and back to the US hear our expert panel share their valuable insights & practical advice to #patients! #PBC #primarybiliarycholangitis #ocaliva
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LiverEmpire's profile picture. Dedicated to increase awareness and provide education to health care providers and patients with liver disease. Retweets ≠ endorsements
Empire Liver Foundation
 @LiverEmpire
/10/16

Clinicians #LiverMedicine #LiverTwitter Register for Empire Liver Foundation's "Updates in #PrimaryBiliaryCholangitis" LIVE webinar. TODAY #PBC webinar October 16, 2025 at 7 PM EST Speaker: Jonathan Schwartz, MD. lnkd.in/eg6cVFrc Sponsored by @GileadSciences.

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LiverEmpire's profile picture. Dedicated to increase awareness and provide education to health care providers and patients with liver disease. Retweets ≠ endorsements
Empire Liver Foundation
 @LiverEmpire
/10/16

Clinicians #LiverTwitter Empire Liver Foundation's "Updates in #PrimaryBiliaryCholangitis" LIVE webinars start today 7 PM EST with Dr. Jonathan Schwartz, MD lnkd.in/eg6cVFrc For more #PBC webinars check out lnkd.in/ehh2HhcA Sponsored by @GileadSciences.

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LmarieAsad's profile picture. Community Engagement Professional, Non-Profit Board Leader. Rare Disease Patient Advocate. M.A. Gerontology. 1913🔺️
L. Marie Asad
 @LmarieAsad
/10/15

I’m going to #TLM25 in Washington, D.C.! Who’s joining me (and 9000+ hepatology professionals around the world 🌏) in moving the field of forward? #PrimaryBiliaryCholangitis #LiverX #LiverTwitter @PBCFoundation @PBCers @FriendsofPBC @AASLDtweets @AASLDPresident @AASLDFoundation

FriendsofPBC's profile picture. Our mission is to improve the lives of the 130,000+ 🇺🇸 living with Primary Biliary Cholangitis (#PBC) through comprehensive support, education & advocacy
Friends of the PBC Foundation, NFP
 @FriendsofPBC
/10/15

Don't miss @LmarieAsad, Founding Board Member and President of the Friends of the PBC Foundation, NFP at #TLM25 hosted by @AASLDtweets w/ @BonderAlan moderated by @PBCRobert, CEO of the @PBCFoundation aasld.org/the-liver-meet… @AASLDtweets #Liverhealth #PrimaryBiliaryCholangitis

FriendsofPBC's tweet image. Don't miss @LmarieAsad, Founding Board Member and President of the Friends of the PBC Foundation, NFP at #TLM25 hosted by @AASLDtweets w/ @BonderAlan moderated by @PBCRobert, CEO of the @PBCFoundation aasld.org/the-liver-meet… @AASLDtweets #Liverhealth #PrimaryBiliaryCholangitis
FriendsofPBC's tweet image. Don't miss @LmarieAsad, Founding Board Member and President of the Friends of the PBC Foundation, NFP at #TLM25 hosted by @AASLDtweets w/ @BonderAlan moderated by @PBCRobert, CEO of the @PBCFoundation aasld.org/the-liver-meet… @AASLDtweets #Liverhealth #PrimaryBiliaryCholangitis
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FriendsofPBC's profile picture. Our mission is to improve the lives of the 130,000+ 🇺🇸 living with Primary Biliary Cholangitis (#PBC) through comprehensive support, education & advocacy
Friends of the PBC Foundation, NFP
 @FriendsofPBC
/10/15

Don't miss @LmarieAsad, Founding Board Member and President of the Friends of the PBC Foundation, NFP at #TLM25 hosted by @AASLDtweets w/ @BonderAlan moderated by @PBCRobert, CEO of the @PBCFoundation aasld.org/the-liver-meet… @AASLDtweets #Liverhealth #PrimaryBiliaryCholangitis

FriendsofPBC's tweet image. Don't miss @LmarieAsad, Founding Board Member and President of the Friends of the PBC Foundation, NFP at #TLM25 hosted by @AASLDtweets w/ @BonderAlan moderated by @PBCRobert, CEO of the @PBCFoundation aasld.org/the-liver-meet… @AASLDtweets #Liverhealth #PrimaryBiliaryCholangitis
FriendsofPBC's tweet image. Don't miss @LmarieAsad, Founding Board Member and President of the Friends of the PBC Foundation, NFP at #TLM25 hosted by @AASLDtweets w/ @BonderAlan moderated by @PBCRobert, CEO of the @PBCFoundation aasld.org/the-liver-meet… @AASLDtweets #Liverhealth #PrimaryBiliaryCholangitis
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LiverEmpire's profile picture. Dedicated to increase awareness and provide education to health care providers and patients with liver disease. Retweets ≠ endorsements
Empire Liver Foundation
 @LiverEmpire
/10/07

Clinicians #LiverMedicine #LiverHealth Register for Empire Liver Foundation's "Updates in #PrimaryBiliaryCholangitis" LIVE webinars. Upcoming #PBC webinar on October 16, 2025 at 7 PM EST Speaker: Jonathan Schwartz, MD. us02web.zoom.us/meeting/regist… Sponsored by @GileadSciences.

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"#primarybiliarycholangitis" に一致する結果はありません
FriendsofPBC's profile picture. Our mission is to improve the lives of the 130,000+ 🇺🇸 living with Primary Biliary Cholangitis (#PBC) through comprehensive support, education & advocacy
Friends of the PBC Foundation, NFP
 @FriendsofPBC
/09/18

It's a pleasure to welcome Dr. Gautham Reddy, MD, from the University of Chicago Medical, to our 2025 PBC Patient Conference! He will be delivering an Overview of Current Treatments for Primary Biliary Cholangitis (PBC). #LiverHealthIsPublicHealth #PrimaryBiliaryCholangitis

FriendsofPBC's tweet image. It's a pleasure to welcome Dr. Gautham Reddy, MD, from the University of Chicago Medical, to our 2025 PBC Patient Conference! He will be delivering an Overview of Current Treatments for Primary Biliary Cholangitis (PBC). #LiverHealthIsPublicHealth #PrimaryBiliaryCholangitis
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MayoTransplant's profile picture. An integrated clinical practice, education and research center specializing in solid organ, bone marrow and vascular composite transplants.
Mayo Clinic Transplant
 @MayoTransplant
/08/21

Finding out that you have a chronic condition, such as #primarybiliarycholangitis (#PBC), can be stressful. Learning about the disease and possible treatments can make it easier to cope with your diagnosis. #livertransplant @kymwatt @mctransplntsurg mcpress.mayoclinic.org/living-well/pr…

MayoTransplant's tweet image. Finding out that you have a chronic condition, such as #primarybiliarycholangitis (#PBC), can be stressful. Learning about the disease and possible treatments can make it easier to cope with your diagnosis. #livertransplant @kymwatt @mctransplntsurg mcpress.mayoclinic.org/living-well/pr…
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OHIOLIVER's profile picture. Our mission is to promote liver health through education, advocacy and research.
Northeast Ohio Liver Alliance
 @OHIOLIVER
/10/21

Thank you to all who attended & made our educational webinar last Wednesday a successful event! We had attendees from Dubai to Taiwan and back to the US hear our expert panel share their valuable insights & practical advice to #patients! #PBC #primarybiliarycholangitis #ocaliva

OHIOLIVER's tweet image. Thank you to all who attended & made our educational webinar last Wednesday a successful event! We had attendees from Dubai to Taiwan and back to the US hear our expert panel share their valuable insights & practical advice to #patients! #PBC #primarybiliarycholangitis #ocaliva
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LmarieAsad's profile picture. Community Engagement Professional, Non-Profit Board Leader. Rare Disease Patient Advocate. M.A. Gerontology. 1913🔺️
L. Marie Asad
 @LmarieAsad
/11/20

The 75th Annual AASLD #TLM24 was amazing. It was encouraging to see hundreds of clinicians lined up in San Diego to learn more about #PrimaryBiliaryCholangitis. It was also a great opportunity to reconnect with other liver patient advocates #AASLD2024 #livertwitter #PBCawareness

LmarieAsad's tweet image. The 75th Annual AASLD #TLM24 was amazing. It was encouraging to see hundreds of clinicians lined up in San Diego to learn more about #PrimaryBiliaryCholangitis. It was also a great opportunity to reconnect with other liver patient advocates #AASLD2024 #livertwitter #PBCawareness
LmarieAsad's tweet image. The 75th Annual AASLD #TLM24 was amazing. It was encouraging to see hundreds of clinicians lined up in San Diego to learn more about #PrimaryBiliaryCholangitis. It was also a great opportunity to reconnect with other liver patient advocates #AASLD2024 #livertwitter #PBCawareness
LmarieAsad's tweet image. The 75th Annual AASLD #TLM24 was amazing. It was encouraging to see hundreds of clinicians lined up in San Diego to learn more about #PrimaryBiliaryCholangitis. It was also a great opportunity to reconnect with other liver patient advocates #AASLD2024 #livertwitter #PBCawareness
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FriendsofPBC's profile picture. Our mission is to improve the lives of the 130,000+ 🇺🇸 living with Primary Biliary Cholangitis (#PBC) through comprehensive support, education & advocacy
Friends of the PBC Foundation, NFP
 @FriendsofPBC
/09/27

The 2025 PBC Patient Conference took place in Chicago with close to 100 Patients, family/friends, healthcare professionals and supporters. #PBCSwarenessMonth #Pbcday2025 💚 #PrimaryBiliaryCholangitis #LiverHealth share.google/tMHzRjOuy0gkN8…

FriendsofPBC's tweet image. The 2025 PBC Patient Conference took place in Chicago with close to 100 Patients, family/friends, healthcare professionals and supporters. #PBCSwarenessMonth #Pbcday2025 💚 #PrimaryBiliaryCholangitis #LiverHealth share.google/tMHzRjOuy0gkN8…
FriendsofPBC's tweet image. The 2025 PBC Patient Conference took place in Chicago with close to 100 Patients, family/friends, healthcare professionals and supporters. #PBCSwarenessMonth #Pbcday2025 💚 #PrimaryBiliaryCholangitis #LiverHealth share.google/tMHzRjOuy0gkN8…
FriendsofPBC's tweet image. The 2025 PBC Patient Conference took place in Chicago with close to 100 Patients, family/friends, healthcare professionals and supporters. #PBCSwarenessMonth #Pbcday2025 💚 #PrimaryBiliaryCholangitis #LiverHealth share.google/tMHzRjOuy0gkN8…
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LiverTrust's profile picture. Working to improve liver health and reduce the impact of liver disease through patient and family support, campaigning and research.
British Liver Trust
@LiverTrust
2024/01/26

We are currently updating our information booklet on #PrimaryBiliaryCholangitis (PBC). If you or one of your loved ones is affected by #PBC, we would like to hear your thoughts. Join our online focus group, 2pm-3pm on 1/2/24 Email [email protected] to attend.

LiverTrust's tweet image. We are currently updating our information booklet on #PrimaryBiliaryCholangitis (PBC). If you or one of your loved ones is affected by #PBC, we would like to hear your thoughts. Join our online focus group, 2pm-3pm on 1/2/24 Email amy.cordwell@britishlivertrust.org.uk to attend.
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DrFalkUK's profile picture. Passionate about supporting education & awareness for patients & health care professionals in the areas of IBD & liver disease
DR FALK
 @DrFalkUK
/09/28

This is PBC Awareness Month! Achieving optimum #Urso dosage greatly improves outcomes in #PrimaryBiliaryCholangitis Our #PBC URSO App supports #PBCpatients to maintain the correct dosage according to their weight. Available via AppStore or GooglePlay drfalk.co.uk/patient-apps/

DrFalkUK's tweet image. This is PBC Awareness Month! Achieving optimum #Urso dosage greatly improves outcomes in #PrimaryBiliaryCholangitis Our #PBC URSO App supports #PBCpatients to maintain the correct dosage according to their weight. Available via AppStore or GooglePlay drfalk.co.uk/patient-apps/
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mirumpharma's profile picture. Creating transformative medicine for people with rare disease.
Mirum Pharmaceuticals
@mirumpharma
2024/06/17

Learn more about these results in the news release: bit.ly/4cqhi26 #PBC #primarybiliarycholangitis

mirumpharma's tweet image. Learn more about these results in the news release: bit.ly/4cqhi26 #PBC #primarybiliarycholangitis
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EASLnews's profile picture. Let's unite Hepatology! Become a member today and discover your membership benefits. ____________ RT ≠ endorsement. We express no political views.
EASLnews
@EASLnews
/12/11

The authors in today's #readoftheweek📚 discuss a home-based exercise programme that attenuates fatigue in #primarybiliarycholangitis. Read here this @JHEP_Reports article: jhep-reports.eu/article/S2589-… 🙏@alicefreer18 @liverphysio @Drfattyliver @CholestasisDoc et al. #LiverTwitter

EASLnews's tweet image. The authors in today's #readoftheweek📚 discuss a home-based exercise programme that attenuates fatigue in #primarybiliarycholangitis. Read here this @JHEP_Reports article: jhep-reports.eu/article/S2589-… 🙏@alicefreer18 @liverphysio @Drfattyliver @CholestasisDoc et al. #LiverTwitter
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LiverTrust's profile picture. Working to improve liver health and reduce the impact of liver disease through patient and family support, campaigning and research.
British Liver Trust
@LiverTrust
2023/08/03

“The grim reaper was at my shoulder, but I believe I'm still standing because of how I looked after myself and how positive I remained." When Clare was told she needed a #livertransplant she was determined to keep smiling #primarybiliarycholangitis More: conta.cc/3YnC2Si

LiverTrust's tweet image. “The grim reaper was at my shoulder, but I believe I'm still standing because of how I looked after myself and how positive I remained." When Clare was told she needed a #livertransplant she was determined to keep smiling #primarybiliarycholangitis More: conta.cc/3YnC2Si
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FriendsofPBC's profile picture. Our mission is to improve the lives of the 130,000+ 🇺🇸 living with Primary Biliary Cholangitis (#PBC) through comprehensive support, education & advocacy
Friends of the PBC Foundation, NFP
 @FriendsofPBC
/10/23

Our Board President, @LmarieAsad, attended the @RareDiseases Breakthrough Summit in Washington D.C. this week. It was an action-packed few days hearing from the @US_FDA, pharma and biotech Industry, patients, advocates and other wasleaders. #NORDSummit #PrimaryBiliaryCholangitis

FriendsofPBC's tweet image. Our Board President, @LmarieAsad, attended the @RareDiseases Breakthrough Summit in Washington D.C. this week. It was an action-packed few days hearing from the @US_FDA, pharma and biotech Industry, patients, advocates and other wasleaders. #NORDSummit #PrimaryBiliaryCholangitis
FriendsofPBC's tweet image. Our Board President, @LmarieAsad, attended the @RareDiseases Breakthrough Summit in Washington D.C. this week. It was an action-packed few days hearing from the @US_FDA, pharma and biotech Industry, patients, advocates and other wasleaders. #NORDSummit #PrimaryBiliaryCholangitis
FriendsofPBC's tweet image. Our Board President, @LmarieAsad, attended the @RareDiseases Breakthrough Summit in Washington D.C. this week. It was an action-packed few days hearing from the @US_FDA, pharma and biotech Industry, patients, advocates and other wasleaders. #NORDSummit #PrimaryBiliaryCholangitis
LmarieAsad's profile picture. Community Engagement Professional, Non-Profit Board Leader. Rare Disease Patient Advocate. M.A. Gerontology. 1913🔺️
L. Marie Asad
 @LmarieAsad
/10/23

Alone we are rare. Together we are strong 💪🏾 @FriendsofPBC at the @RareDiseases #NORDSummit. With more than 10,000 known rare diseases, it's important to share personal stories with elected officials. #PrimaryBiliaryCholangitis #PBCAwareness #LiverHealth rarediseases.org/?s=Primary+bil…

LmarieAsad's tweet image. Alone we are rare. Together we are strong 💪🏾 @FriendsofPBC at the @RareDiseases #NORDSummit. With more than 10,000 known rare diseases, it's important to share personal stories with elected officials. #PrimaryBiliaryCholangitis #PBCAwareness #LiverHealth rarediseases.org/?s=Primary+bil…
LmarieAsad's tweet image. Alone we are rare. Together we are strong 💪🏾 @FriendsofPBC at the @RareDiseases #NORDSummit. With more than 10,000 known rare diseases, it's important to share personal stories with elected officials. #PrimaryBiliaryCholangitis #PBCAwareness #LiverHealth rarediseases.org/?s=Primary+bil…
LmarieAsad's tweet image. Alone we are rare. Together we are strong 💪🏾 @FriendsofPBC at the @RareDiseases #NORDSummit. With more than 10,000 known rare diseases, it's important to share personal stories with elected officials. #PrimaryBiliaryCholangitis #PBCAwareness #LiverHealth rarediseases.org/?s=Primary+bil…
LmarieAsad's tweet image. Alone we are rare. Together we are strong 💪🏾 @FriendsofPBC at the @RareDiseases #NORDSummit. With more than 10,000 known rare diseases, it's important to share personal stories with elected officials. #PrimaryBiliaryCholangitis #PBCAwareness #LiverHealth rarediseases.org/?s=Primary+bil…
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liverUSA's profile picture. Our mission is to facilitate, advocate & promote education, support & research for the prevention, treatment & cure of liver disease. RTs do not = endorsements.
American Liver Foundation National
@liverUSA
2023/09/10

September is #PBC Awareness Month & today is #InternationalPBCDay. #Primarybiliarycholangitis is an autoimmune #liverdisease that is more common in women than men. Learn about ALF resources and support services for those w/ PBC in our press release here: alf.social/PBC

liverUSA's tweet image. September is #PBC Awareness Month & today is #InternationalPBCDay. #Primarybiliarycholangitis is an autoimmune #liverdisease that is more common in women than men. Learn about ALF resources and support services for those w/ PBC in our press release here: alf.social/PBC
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RareDiseases's profile picture. #NORD has been the voice of the U.S. #RareDisease community for 40+ years strong. Official U.S. sponsor of #RareDiseaseDay. On Bluesky at @ https://t.co/D7PIT4k0Py
National Organization for Rare Disorders (NORD)
@RareDiseases
/01/23

Patients, explore our new, free course on #PrimaryBiliaryCholangitis! You'll learn about #PBC diagnosis, treatment options, and new resources designed to help you manage this disease. Access it here: bit.ly/3DYzcNe Brought to you by the National Organization for Rare…

RareDiseases's tweet image. Patients, explore our new, free course on #PrimaryBiliaryCholangitis! You'll learn about #PBC diagnosis, treatment options, and new resources designed to help you manage this disease. Access it here: bit.ly/3DYzcNe Brought to you by the National Organization for Rare…
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MedicalLetter's profile picture. A nonprofit organization that has been providing independent reviews of drugs and therapeutics since 1959. Funded solely by subscriptions and donations.
The Medical Letter
 @MedicalLetter
2024/09/12

Elafibranor (Iqirvo) for Primary Biliary Cholangitis bit.ly/3Xqlqcx #PBC #PrimaryBiliaryCholangitis

MedicalLetter's tweet image. Elafibranor (Iqirvo) for Primary Biliary Cholangitis bit.ly/3Xqlqcx #PBC #PrimaryBiliaryCholangitis
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DrFalkUK's profile picture. Passionate about supporting education & awareness for patients & health care professionals in the areas of IBD & liver disease
DR FALK
 @DrFalkUK
2024/06/04

Still time to reg for our live streamed event #Livernurses & clinicians discussing working with care bundles in #LiverDisease #primarybiliarycholangitis #cirrhosis & #MAFLD add #NAFLD @livernursing Reg FalkPlus App drfalk.co.uk/hcp/events/fal…

DrFalkUK's tweet image. Still time to reg for our live streamed event #Livernurses & clinicians discussing working with care bundles in #LiverDisease #primarybiliarycholangitis #cirrhosis & #MAFLD add #NAFLD @livernursing Reg FalkPlus App drfalk.co.uk/hcp/events/fal…
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RareRevolutionM's profile picture. Digital magazine giving a voice to those affected by rare conditions and the charities that support them. Contact us: hello@rarerevolutionmagazine.com
RARE Revolution Magazine®
@RareRevolutionM
2024/08/07

In our latest Letter to the Editor, Robert Mitchell-Thain, CEO of the @PBCFoundation writes about the troubling development in access to a treatment for people living with #PrimaryBiliaryCholangitis (#PBC). Read the full letter at bit.ly/4c64ehv

RareRevolutionM's tweet image. In our latest Letter to the Editor, Robert Mitchell-Thain, CEO of the @PBCFoundation writes about the troubling development in access to a treatment for people living with #PrimaryBiliaryCholangitis (#PBC). Read the full letter at bit.ly/4c64ehv
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mirumpharma's profile picture. Creating transformative medicine for people with rare disease.
Mirum Pharmaceuticals
@mirumpharma
2024/06/28

To learn more about the recent data, read the press release: bit.ly/4cqhi26 For more information about the Canadian PBC Society, visit pbc-society.ca #PBC #primarybiliarycholangitis

mirumpharma's tweet image. To learn more about the recent data, read the press release: bit.ly/4cqhi26 For more information about the Canadian PBC Society, visit pbc-society.ca #PBC #primarybiliarycholangitis
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FriendsofPBC's profile picture. Our mission is to improve the lives of the 130,000+ 🇺🇸 living with Primary Biliary Cholangitis (#PBC) through comprehensive support, education & advocacy
Friends of the PBC Foundation, NFP
 @FriendsofPBC
/04/11

We're in Edinburgh, Scotland 🏴󠁧󠁢󠁳󠁣󠁴󠁿 for the International #PBCSummit with stakeholders across #PBC, including patient advocacy groups, health care professionals and Pharmaceutical partners all with a goal of improving patient health outcomes. @PBCFoundation #PrimaryBiliaryCholangitis

FriendsofPBC's tweet image. We're in Edinburgh, Scotland 🏴󠁧󠁢󠁳󠁣󠁴󠁿 for the International #PBCSummit with stakeholders across #PBC, including patient advocacy groups, health care professionals and Pharmaceutical partners all with a goal of improving patient health outcomes. @PBCFoundation #PrimaryBiliaryCholangitis
FriendsofPBC's tweet image. We're in Edinburgh, Scotland 🏴󠁧󠁢󠁳󠁣󠁴󠁿 for the International #PBCSummit with stakeholders across #PBC, including patient advocacy groups, health care professionals and Pharmaceutical partners all with a goal of improving patient health outcomes. @PBCFoundation #PrimaryBiliaryCholangitis
FriendsofPBC's tweet image. We're in Edinburgh, Scotland 🏴󠁧󠁢󠁳󠁣󠁴󠁿 for the International #PBCSummit with stakeholders across #PBC, including patient advocacy groups, health care professionals and Pharmaceutical partners all with a goal of improving patient health outcomes. @PBCFoundation #PrimaryBiliaryCholangitis
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LiverTrust's profile picture. Working to improve liver health and reduce the impact of liver disease through patient and family support, campaigning and research.
British Liver Trust
@LiverTrust
2024/02/07

Lynda panicked when she was diagnosed with #PrimaryBiliaryCholangitis and #cirrhosis. She had no idea where it had come from and thought she was going to die until her consultant reassured her that, with medication, she would continue to live well with it conta.cc/3SQqzID

LiverTrust's tweet image. Lynda panicked when she was diagnosed with #PrimaryBiliaryCholangitis and #cirrhosis. She had no idea where it had come from and thought she was going to die until her consultant reassured her that, with medication, she would continue to live well with it conta.cc/3SQqzID
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RareRevolutionM's profile picture. Digital magazine giving a voice to those affected by rare conditions and the charities that support them. Contact us: hello@rarerevolutionmagazine.com
RARE Revolution Magazine®
@RareRevolutionM
/02/25

Colleen Colburn discusses how she has learnt to accept and live with #PBC and how having a supportive network of medical professionals, family and friends has been crucial in helping her navigate this RARE journey rarerevolutionmagazine.com/the-invisible-… #PrimaryBiliaryCholangitis #RareLiver

RareRevolutionM's tweet image. Colleen Colburn discusses how she has learnt to accept and live with #PBC and how having a supportive network of medical professionals, family and friends has been crucial in helping her navigate this RARE journey rarerevolutionmagazine.com/the-invisible-… #PrimaryBiliaryCholangitis #RareLiver
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