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#repsforrarechallenge search results

EI_cure_project's profile picture. A non-profit global organisation including patient advocates and world-class gene-editing researchers collaborating to cure Epidermolytic Ichthyosis (EI).
EI Cure Project
 @EI_cure_project
Mar 6, 2024

Another day, another… #RepsForRareChallenge for the #eicureproject 💖💛💙❤️💚 Today’s challenge with our son’s 3rd grade PE class contributed 9,000 reps towards our 300,000 target! Can you help us? It’s SO MUCH FUN! Join us TODAY! #RepsForRareChallenge 🙌❤️🙌❤️🙌❤️🙌❤️🙌❤️🙌

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EI_cure_project's profile picture. A non-profit global organisation including patient advocates and world-class gene-editing researchers collaborating to cure Epidermolytic Ichthyosis (EI).
EI Cure Project
 @EI_cure_project
Mar 3, 2024

Showing STRENGTH in support of #RareDiseaseDay 💖💛💙💚❤️ On February 29th, we kicked off the #RepsForRareChallenge for the #eicureproject to raise awareness of 1 in 300,000 rare blistering skin disease Epidermolytic Ichthyosis. ‼️JOIN US today to help make 300,000 reps!‼️

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EI_cure_project's profile picture. A non-profit global organisation including patient advocates and world-class gene-editing researchers collaborating to cure Epidermolytic Ichthyosis (EI).
EI Cure Project
 @EI_cure_project
Apr 9, 2024

Another #repsforrarechallenge during PE class! 🏃‍♂️🏃‍♂️🏃‍♂️ We had a special visit from @firstLadyD4 🤩 THANK YOU for your support and for making Capri’s day! 🌺 Please DONATE to fund research for Epidermolytic Ichthyosis (EI) ❤️‍🩹 eicureproject.com/donate Thank you 🥰 #eicureproject

EI_cure_project's tweet image. Another #repsforrarechallenge during PE class! 🏃‍♂️🏃‍♂️🏃‍♂️ We had a special visit from @firstLadyD4 🤩 THANK YOU for your support and for making Capri’s day! 🌺 Please DONATE to fund research for Epidermolytic Ichthyosis (EI) ❤️‍🩹 eicureproject.com/donate Thank you 🥰 #eicureproject
EI_cure_project's tweet image. Another #repsforrarechallenge during PE class! 🏃‍♂️🏃‍♂️🏃‍♂️ We had a special visit from @firstLadyD4 🤩 THANK YOU for your support and for making Capri’s day! 🌺 Please DONATE to fund research for Epidermolytic Ichthyosis (EI) ❤️‍🩹 eicureproject.com/donate Thank you 🥰 #eicureproject
EI_cure_project's tweet image. Another #repsforrarechallenge during PE class! 🏃‍♂️🏃‍♂️🏃‍♂️ We had a special visit from @firstLadyD4 🤩 THANK YOU for your support and for making Capri’s day! 🌺 Please DONATE to fund research for Epidermolytic Ichthyosis (EI) ❤️‍🩹 eicureproject.com/donate Thank you 🥰 #eicureproject
EI_cure_project's tweet image. Another #repsforrarechallenge during PE class! 🏃‍♂️🏃‍♂️🏃‍♂️ We had a special visit from @firstLadyD4 🤩 THANK YOU for your support and for making Capri’s day! 🌺 Please DONATE to fund research for Epidermolytic Ichthyosis (EI) ❤️‍🩹 eicureproject.com/donate Thank you 🥰 #eicureproject
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EI_cure_project's profile picture. A non-profit global organisation including patient advocates and world-class gene-editing researchers collaborating to cure Epidermolytic Ichthyosis (EI).
EI Cure Project
 @EI_cure_project
Feb 29, 2024

‼️Let the #RepsForRareChallenge BEGIN‼️ Please remember: 1) TELL US so your Reps will be COUNTED! - fill out this short form forms.gle/BxeTzVJUP1MfbS… 2) SHARE IT on social media - Use #eicureproject and #repsforrarechallenge add our POSTER, PHOTO, or VIDEO clip! Thank you 🥰

EI_cure_project's tweet image. ‼️Let the #RepsForRareChallenge BEGIN‼️ Please remember: 1) TELL US so your Reps will be COUNTED! - fill out this short form forms.gle/BxeTzVJUP1MfbS… 2) SHARE IT on social media - Use #eicureproject and #repsforrarechallenge add our POSTER, PHOTO, or VIDEO clip! Thank you 🥰
EI_cure_project's tweet image. ‼️Let the #RepsForRareChallenge BEGIN‼️ Please remember: 1) TELL US so your Reps will be COUNTED! - fill out this short form forms.gle/BxeTzVJUP1MfbS… 2) SHARE IT on social media - Use #eicureproject and #repsforrarechallenge add our POSTER, PHOTO, or VIDEO clip! Thank you 🥰
EI_cure_project's tweet image. ‼️Let the #RepsForRareChallenge BEGIN‼️ Please remember: 1) TELL US so your Reps will be COUNTED! - fill out this short form forms.gle/BxeTzVJUP1MfbS… 2) SHARE IT on social media - Use #eicureproject and #repsforrarechallenge add our POSTER, PHOTO, or VIDEO clip! Thank you 🥰
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EI_cure_project's profile picture. A non-profit global organisation including patient advocates and world-class gene-editing researchers collaborating to cure Epidermolytic Ichthyosis (EI).
EI Cure Project
 @EI_cure_project
Mar 20, 2024

Another super group take on the #repsforrarechallenge and counted 9,000 reps towards our target of 300,000! We are raising awareness of rare blistering skin disease Epidermolytic Ichthyosis which affects 1 in 300,000. Can you help us? eicureproject.com/donate #eicureproject

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EI_cure_project's profile picture. A non-profit global organisation including patient advocates and world-class gene-editing researchers collaborating to cure Epidermolytic Ichthyosis (EI).
EI Cure Project
 @EI_cure_project
Feb 22, 2024

📣We are #repsforrarechallenge READY!!!📣 Just 6️⃣ days to go until Rare Disease Day Are you ready for the #repsforrarechallenge? eicureproject.com/updates/repsfo… Tell us about YOUR PLANS in the comments below, you never know who you might INSPIRE!🔥 We can’t wait to hear from you! 😍

EI_cure_project's tweet image. 📣We are #repsforrarechallenge READY!!!📣 Just 6️⃣ days to go until Rare Disease Day Are you ready for the #repsforrarechallenge? eicureproject.com/updates/repsfo… Tell us about YOUR PLANS in the comments below, you never know who you might INSPIRE!🔥 We can’t wait to hear from you! 😍
EI_cure_project's tweet image. 📣We are #repsforrarechallenge READY!!!📣 Just 6️⃣ days to go until Rare Disease Day Are you ready for the #repsforrarechallenge? eicureproject.com/updates/repsfo… Tell us about YOUR PLANS in the comments below, you never know who you might INSPIRE!🔥 We can’t wait to hear from you! 😍
EI_cure_project's tweet image. 📣We are #repsforrarechallenge READY!!!📣 Just 6️⃣ days to go until Rare Disease Day Are you ready for the #repsforrarechallenge? eicureproject.com/updates/repsfo… Tell us about YOUR PLANS in the comments below, you never know who you might INSPIRE!🔥 We can’t wait to hear from you! 😍
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EI_cure_project's profile picture. A non-profit global organisation including patient advocates and world-class gene-editing researchers collaborating to cure Epidermolytic Ichthyosis (EI).
EI Cure Project
 @EI_cure_project
Mar 26, 2024

Two founding families of the #eicureproject from CH and the UK!😍 We are taking on the #repsforrarechallenge🏃‍♂️ to raise awareness of rare blistering skin disease, Epidermolytic Ichthyosis (EI)❤️‍🩹 To help us find a cure, please donate to: eicureproject.com/donate. Thank you 🥰

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EI_cure_project's profile picture. A non-profit global organisation including patient advocates and world-class gene-editing researchers collaborating to cure Epidermolytic Ichthyosis (EI).
EI Cure Project
 @EI_cure_project
Jun 3, 2024

Our latest Video, a compilation of the #RepsForRareChallenge showing all the wonderful people that supported our cause.. To raise awareness of Epidermolytic Ichthyosis! Read the FULL STORY and see more pictures here: eicureproject.com/updates/reps-f… #hopeforei #findacure #geneediting

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EI_cure_project's profile picture. A non-profit global organisation including patient advocates and world-class gene-editing researchers collaborating to cure Epidermolytic Ichthyosis (EI).
EI Cure Project
 @EI_cure_project
Feb 5, 2024

This video is guaranteed to make you smile! We’re looking for 2000 people to take on the #RepsForRareChallenge! Click here to find out more ⬇️⬇️⬇️ eicureproject.com/updates/repsfo… Thank you ☺️ #eicureproject youtu.be/1_DfxVa0JUI?fe…

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EI_cure_project's profile picture. A non-profit global organisation including patient advocates and world-class gene-editing researchers collaborating to cure Epidermolytic Ichthyosis (EI).
EI Cure Project
 @EI_cure_project
Jun 3, 2024

Our latest Video, a compilation of the #RepsForRareChallenge showing all the wonderful people that supported our cause.. To raise awareness of Epidermolytic Ichthyosis! Read the FULL STORY and see more pictures here: eicureproject.com/updates/reps-f… #hopeforei #findacure #geneediting

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EI_cure_project's profile picture. A non-profit global organisation including patient advocates and world-class gene-editing researchers collaborating to cure Epidermolytic Ichthyosis (EI).
EI Cure Project
 @EI_cure_project
Apr 9, 2024

Another #repsforrarechallenge during PE class! 🏃‍♂️🏃‍♂️🏃‍♂️ We had a special visit from @firstLadyD4 🤩 THANK YOU for your support and for making Capri’s day! 🌺 Please DONATE to fund research for Epidermolytic Ichthyosis (EI) ❤️‍🩹 eicureproject.com/donate Thank you 🥰 #eicureproject

EI_cure_project's tweet image. Another #repsforrarechallenge during PE class! 🏃‍♂️🏃‍♂️🏃‍♂️ We had a special visit from @firstLadyD4 🤩 THANK YOU for your support and for making Capri’s day! 🌺 Please DONATE to fund research for Epidermolytic Ichthyosis (EI) ❤️‍🩹 eicureproject.com/donate Thank you 🥰 #eicureproject
EI_cure_project's tweet image. Another #repsforrarechallenge during PE class! 🏃‍♂️🏃‍♂️🏃‍♂️ We had a special visit from @firstLadyD4 🤩 THANK YOU for your support and for making Capri’s day! 🌺 Please DONATE to fund research for Epidermolytic Ichthyosis (EI) ❤️‍🩹 eicureproject.com/donate Thank you 🥰 #eicureproject
EI_cure_project's tweet image. Another #repsforrarechallenge during PE class! 🏃‍♂️🏃‍♂️🏃‍♂️ We had a special visit from @firstLadyD4 🤩 THANK YOU for your support and for making Capri’s day! 🌺 Please DONATE to fund research for Epidermolytic Ichthyosis (EI) ❤️‍🩹 eicureproject.com/donate Thank you 🥰 #eicureproject
EI_cure_project's tweet image. Another #repsforrarechallenge during PE class! 🏃‍♂️🏃‍♂️🏃‍♂️ We had a special visit from @firstLadyD4 🤩 THANK YOU for your support and for making Capri’s day! 🌺 Please DONATE to fund research for Epidermolytic Ichthyosis (EI) ❤️‍🩹 eicureproject.com/donate Thank you 🥰 #eicureproject
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EI_cure_project's profile picture. A non-profit global organisation including patient advocates and world-class gene-editing researchers collaborating to cure Epidermolytic Ichthyosis (EI).
EI Cure Project
 @EI_cure_project
Mar 26, 2024

Two founding families of the #eicureproject from CH and the UK!😍 We are taking on the #repsforrarechallenge🏃‍♂️ to raise awareness of rare blistering skin disease, Epidermolytic Ichthyosis (EI)❤️‍🩹 To help us find a cure, please donate to: eicureproject.com/donate. Thank you 🥰

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EI_cure_project's profile picture. A non-profit global organisation including patient advocates and world-class gene-editing researchers collaborating to cure Epidermolytic Ichthyosis (EI).
EI Cure Project
 @EI_cure_project
Mar 20, 2024

Another super group take on the #repsforrarechallenge and counted 9,000 reps towards our target of 300,000! We are raising awareness of rare blistering skin disease Epidermolytic Ichthyosis which affects 1 in 300,000. Can you help us? eicureproject.com/donate #eicureproject

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EI_cure_project's profile picture. A non-profit global organisation including patient advocates and world-class gene-editing researchers collaborating to cure Epidermolytic Ichthyosis (EI).
EI Cure Project
 @EI_cure_project
Mar 6, 2024

Another day, another… #RepsForRareChallenge for the #eicureproject 💖💛💙❤️💚 Today’s challenge with our son’s 3rd grade PE class contributed 9,000 reps towards our 300,000 target! Can you help us? It’s SO MUCH FUN! Join us TODAY! #RepsForRareChallenge 🙌❤️🙌❤️🙌❤️🙌❤️🙌❤️🙌

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EI_cure_project's profile picture. A non-profit global organisation including patient advocates and world-class gene-editing researchers collaborating to cure Epidermolytic Ichthyosis (EI).
EI Cure Project
 @EI_cure_project
Mar 3, 2024

Showing STRENGTH in support of #RareDiseaseDay 💖💛💙💚❤️ On February 29th, we kicked off the #RepsForRareChallenge for the #eicureproject to raise awareness of 1 in 300,000 rare blistering skin disease Epidermolytic Ichthyosis. ‼️JOIN US today to help make 300,000 reps!‼️

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EI_cure_project's profile picture. A non-profit global organisation including patient advocates and world-class gene-editing researchers collaborating to cure Epidermolytic Ichthyosis (EI).
EI Cure Project
 @EI_cure_project
Feb 29, 2024

‼️Let the #RepsForRareChallenge BEGIN‼️ Please remember: 1) TELL US so your Reps will be COUNTED! - fill out this short form forms.gle/BxeTzVJUP1MfbS… 2) SHARE IT on social media - Use #eicureproject and #repsforrarechallenge add our POSTER, PHOTO, or VIDEO clip! Thank you 🥰

EI_cure_project's tweet image. ‼️Let the #RepsForRareChallenge BEGIN‼️ Please remember: 1) TELL US so your Reps will be COUNTED! - fill out this short form forms.gle/BxeTzVJUP1MfbS… 2) SHARE IT on social media - Use #eicureproject and #repsforrarechallenge add our POSTER, PHOTO, or VIDEO clip! Thank you 🥰
EI_cure_project's tweet image. ‼️Let the #RepsForRareChallenge BEGIN‼️ Please remember: 1) TELL US so your Reps will be COUNTED! - fill out this short form forms.gle/BxeTzVJUP1MfbS… 2) SHARE IT on social media - Use #eicureproject and #repsforrarechallenge add our POSTER, PHOTO, or VIDEO clip! Thank you 🥰
EI_cure_project's tweet image. ‼️Let the #RepsForRareChallenge BEGIN‼️ Please remember: 1) TELL US so your Reps will be COUNTED! - fill out this short form forms.gle/BxeTzVJUP1MfbS… 2) SHARE IT on social media - Use #eicureproject and #repsforrarechallenge add our POSTER, PHOTO, or VIDEO clip! Thank you 🥰
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EI_cure_project's profile picture. A non-profit global organisation including patient advocates and world-class gene-editing researchers collaborating to cure Epidermolytic Ichthyosis (EI).
EI Cure Project
 @EI_cure_project
Feb 22, 2024

📣We are #repsforrarechallenge READY!!!📣 Just 6️⃣ days to go until Rare Disease Day Are you ready for the #repsforrarechallenge? eicureproject.com/updates/repsfo… Tell us about YOUR PLANS in the comments below, you never know who you might INSPIRE!🔥 We can’t wait to hear from you! 😍

EI_cure_project's tweet image. 📣We are #repsforrarechallenge READY!!!📣 Just 6️⃣ days to go until Rare Disease Day Are you ready for the #repsforrarechallenge? eicureproject.com/updates/repsfo… Tell us about YOUR PLANS in the comments below, you never know who you might INSPIRE!🔥 We can’t wait to hear from you! 😍
EI_cure_project's tweet image. 📣We are #repsforrarechallenge READY!!!📣 Just 6️⃣ days to go until Rare Disease Day Are you ready for the #repsforrarechallenge? eicureproject.com/updates/repsfo… Tell us about YOUR PLANS in the comments below, you never know who you might INSPIRE!🔥 We can’t wait to hear from you! 😍
EI_cure_project's tweet image. 📣We are #repsforrarechallenge READY!!!📣 Just 6️⃣ days to go until Rare Disease Day Are you ready for the #repsforrarechallenge? eicureproject.com/updates/repsfo… Tell us about YOUR PLANS in the comments below, you never know who you might INSPIRE!🔥 We can’t wait to hear from you! 😍
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EI_cure_project's profile picture. A non-profit global organisation including patient advocates and world-class gene-editing researchers collaborating to cure Epidermolytic Ichthyosis (EI).
EI Cure Project
 @EI_cure_project
Feb 5, 2024

This video is guaranteed to make you smile! We’re looking for 2000 people to take on the #RepsForRareChallenge! Click here to find out more ⬇️⬇️⬇️ eicureproject.com/updates/repsfo… Thank you ☺️ #eicureproject youtu.be/1_DfxVa0JUI?fe…

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No results for "#repsforrarechallenge"
EI_cure_project's profile picture. A non-profit global organisation including patient advocates and world-class gene-editing researchers collaborating to cure Epidermolytic Ichthyosis (EI).
EI Cure Project
 @EI_cure_project
Apr 9, 2024

Another #repsforrarechallenge during PE class! 🏃‍♂️🏃‍♂️🏃‍♂️ We had a special visit from @firstLadyD4 🤩 THANK YOU for your support and for making Capri’s day! 🌺 Please DONATE to fund research for Epidermolytic Ichthyosis (EI) ❤️‍🩹 eicureproject.com/donate Thank you 🥰 #eicureproject

EI_cure_project's tweet image. Another #repsforrarechallenge during PE class! 🏃‍♂️🏃‍♂️🏃‍♂️ We had a special visit from @firstLadyD4 🤩 THANK YOU for your support and for making Capri’s day! 🌺 Please DONATE to fund research for Epidermolytic Ichthyosis (EI) ❤️‍🩹 eicureproject.com/donate Thank you 🥰 #eicureproject
EI_cure_project's tweet image. Another #repsforrarechallenge during PE class! 🏃‍♂️🏃‍♂️🏃‍♂️ We had a special visit from @firstLadyD4 🤩 THANK YOU for your support and for making Capri’s day! 🌺 Please DONATE to fund research for Epidermolytic Ichthyosis (EI) ❤️‍🩹 eicureproject.com/donate Thank you 🥰 #eicureproject
EI_cure_project's tweet image. Another #repsforrarechallenge during PE class! 🏃‍♂️🏃‍♂️🏃‍♂️ We had a special visit from @firstLadyD4 🤩 THANK YOU for your support and for making Capri’s day! 🌺 Please DONATE to fund research for Epidermolytic Ichthyosis (EI) ❤️‍🩹 eicureproject.com/donate Thank you 🥰 #eicureproject
EI_cure_project's tweet image. Another #repsforrarechallenge during PE class! 🏃‍♂️🏃‍♂️🏃‍♂️ We had a special visit from @firstLadyD4 🤩 THANK YOU for your support and for making Capri’s day! 🌺 Please DONATE to fund research for Epidermolytic Ichthyosis (EI) ❤️‍🩹 eicureproject.com/donate Thank you 🥰 #eicureproject
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EI_cure_project's profile picture. A non-profit global organisation including patient advocates and world-class gene-editing researchers collaborating to cure Epidermolytic Ichthyosis (EI).
EI Cure Project
 @EI_cure_project
Feb 29, 2024

‼️Let the #RepsForRareChallenge BEGIN‼️ Please remember: 1) TELL US so your Reps will be COUNTED! - fill out this short form forms.gle/BxeTzVJUP1MfbS… 2) SHARE IT on social media - Use #eicureproject and #repsforrarechallenge add our POSTER, PHOTO, or VIDEO clip! Thank you 🥰

EI_cure_project's tweet image. ‼️Let the #RepsForRareChallenge BEGIN‼️ Please remember: 1) TELL US so your Reps will be COUNTED! - fill out this short form forms.gle/BxeTzVJUP1MfbS… 2) SHARE IT on social media - Use #eicureproject and #repsforrarechallenge add our POSTER, PHOTO, or VIDEO clip! Thank you 🥰
EI_cure_project's tweet image. ‼️Let the #RepsForRareChallenge BEGIN‼️ Please remember: 1) TELL US so your Reps will be COUNTED! - fill out this short form forms.gle/BxeTzVJUP1MfbS… 2) SHARE IT on social media - Use #eicureproject and #repsforrarechallenge add our POSTER, PHOTO, or VIDEO clip! Thank you 🥰
EI_cure_project's tweet image. ‼️Let the #RepsForRareChallenge BEGIN‼️ Please remember: 1) TELL US so your Reps will be COUNTED! - fill out this short form forms.gle/BxeTzVJUP1MfbS… 2) SHARE IT on social media - Use #eicureproject and #repsforrarechallenge add our POSTER, PHOTO, or VIDEO clip! Thank you 🥰
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EI_cure_project's profile picture. A non-profit global organisation including patient advocates and world-class gene-editing researchers collaborating to cure Epidermolytic Ichthyosis (EI).
EI Cure Project
 @EI_cure_project
Feb 22, 2024

📣We are #repsforrarechallenge READY!!!📣 Just 6️⃣ days to go until Rare Disease Day Are you ready for the #repsforrarechallenge? eicureproject.com/updates/repsfo… Tell us about YOUR PLANS in the comments below, you never know who you might INSPIRE!🔥 We can’t wait to hear from you! 😍

EI_cure_project's tweet image. 📣We are #repsforrarechallenge READY!!!📣 Just 6️⃣ days to go until Rare Disease Day Are you ready for the #repsforrarechallenge? eicureproject.com/updates/repsfo… Tell us about YOUR PLANS in the comments below, you never know who you might INSPIRE!🔥 We can’t wait to hear from you! 😍
EI_cure_project's tweet image. 📣We are #repsforrarechallenge READY!!!📣 Just 6️⃣ days to go until Rare Disease Day Are you ready for the #repsforrarechallenge? eicureproject.com/updates/repsfo… Tell us about YOUR PLANS in the comments below, you never know who you might INSPIRE!🔥 We can’t wait to hear from you! 😍
EI_cure_project's tweet image. 📣We are #repsforrarechallenge READY!!!📣 Just 6️⃣ days to go until Rare Disease Day Are you ready for the #repsforrarechallenge? eicureproject.com/updates/repsfo… Tell us about YOUR PLANS in the comments below, you never know who you might INSPIRE!🔥 We can’t wait to hear from you! 😍
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