#eicureproject search results
Check out our #eicureproject kids team @scenictrail in Tesserete, CH on June 8th 🏃♂️ They did such a great job, and are very proud of their medals!🏅 Please visit the EI Cure Project Updates page to read the full story👀 Thank you Scenic Trail team, we’ll see you next year🥰
“What’s your EI Cure Project Dream?” Meet UK Trustee Hannah Lark and her baby, Harlow. Hannah has KRT10 EI, and she has to spend 2-4 hours every day managing her EI skin. Her dream is to spend less time on her skin, and more time cuddling with her sweet baby. #eicureproject
🇨🇭HAPPY SWISS DAY EVERYONE!🇨🇭 The Swiss are very proud of their country, and we are so proud to have founded the #EICureProject here! We will forever be grateful for the kindness and generosity that our community has shown us! ENJOY the celebrations 🥰 #swissnationalday
The #EICureProject started as a Swiss Association🇨🇭in April 2023 and has continued to grow… - US 501c3, June 2023 🇺🇸 - UK Charity, October 2023 🇬🇧 - Canadian Charity, December 2023 🇨🇦 Funding research for an orphan disease requires a GLOBAL team💪 Please support us TODAY! 🥰
I want to highlight the brilliant fundraising that has taken place for the #eicureproject for our 1 YEAR CELEBRATION 🥳 You have all helped us raise £100,000 through personal donations or events in your communities 👏 Here are a few special highlights… THANK YOU EVERYONE ❤️
At #EICureProject, we have already achieved so much, but there is so much more to be done! Please continue to support us, and help us to realise our dream of giving better treatments to people with EI! Thank you and we wish you all a happy and healthy New Year in 2025! ❤️
Another #repsforrarechallenge during PE class! 🏃♂️🏃♂️🏃♂️ We had a special visit from @firstLadyD4 🤩 THANK YOU for your support and for making Capri’s day! 🌺 Please DONATE to fund research for Epidermolytic Ichthyosis (EI) ❤️🩹 eicureproject.com/donate Thank you 🥰 #eicureproject
It brings me great joy to announce that NEW RESEARCH for EI has STARTED!!! Read our latest update: eicureproject.com/updates/resear… We have 3 amazing research projects waiting to start. We just need more donations please: eicureproject.com/donate Thank you 🥰 #eicureproject #IAM2024
EI is an “Orphan Disease”. It’s so rare that there is no industry profit to be made from funding research. If we want a better future for EI, we need to fund research OURSELVES! Learn more about the project here: eicureproject.com/about Thank you 🥰 #IAM2024 #eicureproject
‼️EI Cure Project Competition WINNERS‼️ There are 3 winners for each of the 5 age categories, and our entries came from all over the WORLD! 🇮🇹🇨🇭🇬🇧🇺🇦🇷🇺🇺🇸🇨🇦🇦🇺🇩🇰🇳🇴🏴🏴 Read the full story here: eicureproject.com/updates/iam202… Please wear your new #EICureProject T-shirt with PRIDE 🥰
I’d like to shine a light on the super work of Stratford On Avon Golf Club and their club captain and ladies captain, Simon Meade and Hilda Craig! 👏👏👏 Please visit their JustGiving page and boost their efforts! ❤️ justgiving.com Thank you so much 🥰 #eicureproject
‼️New article on EI Published TODAY‼️ onlinelibrary.wiley.com/doi/full/10.11… Congratulations to Dr Leonie Frommherz and Professor Cristina Has, and everyone else involved🥳 Thank you for documenting what it means to have EI from a clinical, economic, and patient perspective👏 #eicureproject
The final week of #IAM2024 has arrived. One of my biggest dreams for the EI Cure Project is to give HOPE to new parents, and give them back the joy of a cuddle without the fear of causing wounds. Please consider our cause: eicureproject.com/donate Thank you 🥰 #eicureproject
In the coming days I would like to share all that we have achieved in our first year!🏆 I’d like to share how much our capacity for RESEARCH has grown… Please donate to fund research: eicureproject.com/donate Thank you🥰 #eicureproject #findacure #geneediting #WCRSD #RareDERM
Yesterday’s #IAM2024 post was about the FACTS on #EpidermolyticIchthyosis. Today, we explain what that means for EVERYDAY LIFE?🤔🤔🤔 For more resources on EI, please visit our website: lnkd.in/e-C2xnyj Thank you 🥰 #eicureproject #ichthyosisawareness #findacure
#EpidermolyticIchthyosis (EI) is referred to as a “Congenital Ichthyosis” because it is a genetic disorder which can be inherited. Learn more here, and donate to help us fund research: eicureproject.com/donate Thank you🥰 #IAM2024 #eicureproject #ichthyosisawareness #findacure
UK Trustee Rhiannon Morgan recently took a vacation to Croatia. As a person affected with rare skin disease Epidermolytic Ichthyosis, she decided to write about her experiences. Read the full story here: changingfaces.org.uk/story/rhiannon… #eicureproject #dermatology #ichthyosisawareness
I’m delighted to share that we have a NEW MATCH 5000 DONOR!!! 🎉❤️🎉 From November 1st to December 15th 2024, donations up to a total of £5000 will be doubled by our donor! 🙌 eicureproject.com/donate Thank you & Happy giving everyone! 🥰 #eicureproject #hope4ei #findacure
“What’s your #EICureProject Dream?” Here’s my sweet daughter Arienne telling you what she would like to do if we DIDN’T have to do 2-3 hours of care everyday! Please donate to fund research to find a cure! eicureproject.com/donate Thank you 🥰 #IAM2024 #whatsyourdream
At #EICureProject, we have already achieved so much, but there is so much more to be done! Please continue to support us, and help us to realise our dream of giving better treatments to people with EI! Thank you and we wish you all a happy and healthy New Year in 2025! ❤️
I’m delighted to share that we have a NEW MATCH 5000 DONOR!!! 🎉❤️🎉 From November 1st to December 15th 2024, donations up to a total of £5000 will be doubled by our donor! 🙌 eicureproject.com/donate Thank you & Happy giving everyone! 🥰 #eicureproject #hope4ei #findacure
🇨🇭HAPPY SWISS DAY EVERYONE!🇨🇭 The Swiss are very proud of their country, and we are so proud to have founded the #EICureProject here! We will forever be grateful for the kindness and generosity that our community has shown us! ENJOY the celebrations 🥰 #swissnationalday
I’d like to shine a light on the super work of Stratford On Avon Golf Club and their club captain and ladies captain, Simon Meade and Hilda Craig! 👏👏👏 Please visit their JustGiving page and boost their efforts! ❤️ justgiving.com Thank you so much 🥰 #eicureproject
UK Trustee Rhiannon Morgan recently took a vacation to Croatia. As a person affected with rare skin disease Epidermolytic Ichthyosis, she decided to write about her experiences. Read the full story here: changingfaces.org.uk/story/rhiannon… #eicureproject #dermatology #ichthyosisawareness
I want to highlight the brilliant fundraising that has taken place for the #eicureproject for our 1 YEAR CELEBRATION 🥳 You have all helped us raise £100,000 through personal donations or events in your communities 👏 Here are a few special highlights… THANK YOU EVERYONE ❤️
The #EICureProject started as a Swiss Association🇨🇭in April 2023 and has continued to grow… - US 501c3, June 2023 🇺🇸 - UK Charity, October 2023 🇬🇧 - Canadian Charity, December 2023 🇨🇦 Funding research for an orphan disease requires a GLOBAL team💪 Please support us TODAY! 🥰
In the coming days I would like to share all that we have achieved in our first year!🏆 I’d like to share how much our capacity for RESEARCH has grown… Please donate to fund research: eicureproject.com/donate Thank you🥰 #eicureproject #findacure #geneediting #WCRSD #RareDERM
Check out our #eicureproject kids team @scenictrail in Tesserete, CH on June 8th 🏃♂️ They did such a great job, and are very proud of their medals!🏅 Please visit the EI Cure Project Updates page to read the full story👀 Thank you Scenic Trail team, we’ll see you next year🥰
‼️EI Cure Project Competition WINNERS‼️ There are 3 winners for each of the 5 age categories, and our entries came from all over the WORLD! 🇮🇹🇨🇭🇬🇧🇺🇦🇷🇺🇺🇸🇨🇦🇦🇺🇩🇰🇳🇴🏴🏴 Read the full story here: eicureproject.com/updates/iam202… Please wear your new #EICureProject T-shirt with PRIDE 🥰
The final week of #IAM2024 has arrived. One of my biggest dreams for the EI Cure Project is to give HOPE to new parents, and give them back the joy of a cuddle without the fear of causing wounds. Please consider our cause: eicureproject.com/donate Thank you 🥰 #eicureproject
“What’s your EI Cure Project Dream?” Meet UK Trustee Hannah Lark and her baby, Harlow. Hannah has KRT10 EI, and she has to spend 2-4 hours every day managing her EI skin. Her dream is to spend less time on her skin, and more time cuddling with her sweet baby. #eicureproject
‼️New article on EI Published TODAY‼️ onlinelibrary.wiley.com/doi/full/10.11… Congratulations to Dr Leonie Frommherz and Professor Cristina Has, and everyone else involved🥳 Thank you for documenting what it means to have EI from a clinical, economic, and patient perspective👏 #eicureproject
It brings me great joy to announce that NEW RESEARCH for EI has STARTED!!! Read our latest update: eicureproject.com/updates/resear… We have 3 amazing research projects waiting to start. We just need more donations please: eicureproject.com/donate Thank you 🥰 #eicureproject #IAM2024
EI is an “Orphan Disease”. It’s so rare that there is no industry profit to be made from funding research. If we want a better future for EI, we need to fund research OURSELVES! Learn more about the project here: eicureproject.com/about Thank you 🥰 #IAM2024 #eicureproject
Yesterday’s #IAM2024 post was about the FACTS on #EpidermolyticIchthyosis. Today, we explain what that means for EVERYDAY LIFE?🤔🤔🤔 For more resources on EI, please visit our website: lnkd.in/e-C2xnyj Thank you 🥰 #eicureproject #ichthyosisawareness #findacure
#EpidermolyticIchthyosis (EI) is referred to as a “Congenital Ichthyosis” because it is a genetic disorder which can be inherited. Learn more here, and donate to help us fund research: eicureproject.com/donate Thank you🥰 #IAM2024 #eicureproject #ichthyosisawareness #findacure
“What’s your #EICureProject Dream?” Here’s my sweet daughter Arienne telling you what she would like to do if we DIDN’T have to do 2-3 hours of care everyday! Please donate to fund research to find a cure! eicureproject.com/donate Thank you 🥰 #IAM2024 #whatsyourdream
Another #repsforrarechallenge during PE class! 🏃♂️🏃♂️🏃♂️ We had a special visit from @firstLadyD4 🤩 THANK YOU for your support and for making Capri’s day! 🌺 Please DONATE to fund research for Epidermolytic Ichthyosis (EI) ❤️🩹 eicureproject.com/donate Thank you 🥰 #eicureproject
Two founding families of the #eicureproject from CH and the UK!😍 We are taking on the #repsforrarechallenge🏃♂️ to raise awareness of rare blistering skin disease, Epidermolytic Ichthyosis (EI)❤️🩹 To help us find a cure, please donate to: eicureproject.com/donate. Thank you 🥰
Check out our #eicureproject kids team @scenictrail in Tesserete, CH on June 8th 🏃♂️ They did such a great job, and are very proud of their medals!🏅 Please visit the EI Cure Project Updates page to read the full story👀 Thank you Scenic Trail team, we’ll see you next year🥰
🇨🇭HAPPY SWISS DAY EVERYONE!🇨🇭 The Swiss are very proud of their country, and we are so proud to have founded the #EICureProject here! We will forever be grateful for the kindness and generosity that our community has shown us! ENJOY the celebrations 🥰 #swissnationalday
The #EICureProject started as a Swiss Association🇨🇭in April 2023 and has continued to grow… - US 501c3, June 2023 🇺🇸 - UK Charity, October 2023 🇬🇧 - Canadian Charity, December 2023 🇨🇦 Funding research for an orphan disease requires a GLOBAL team💪 Please support us TODAY! 🥰
I want to highlight the brilliant fundraising that has taken place for the #eicureproject for our 1 YEAR CELEBRATION 🥳 You have all helped us raise £100,000 through personal donations or events in your communities 👏 Here are a few special highlights… THANK YOU EVERYONE ❤️
Do you wanna have some FUN whilst raising awareness at the same time? 🎉 For #RareDiseaseDay2024, help us make 300,000 reps for #EIcureproject 😍😍😍 If you’re part of any kind of community, and want to create a fun event, look no further! JOIN US for #RepsForRare 🙌
‼️Let the #RepsForRareChallenge BEGIN‼️ Please remember: 1) TELL US so your Reps will be COUNTED! - fill out this short form forms.gle/BxeTzVJUP1MfbS… 2) SHARE IT on social media - Use #eicureproject and #repsforrarechallenge add our POSTER, PHOTO, or VIDEO clip! Thank you 🥰
In the coming days I would like to share all that we have achieved in our first year!🏆 I’d like to share how much our capacity for RESEARCH has grown… Please donate to fund research: eicureproject.com/donate Thank you🥰 #eicureproject #findacure #geneediting #WCRSD #RareDERM
It brings me great joy to announce that NEW RESEARCH for EI has STARTED!!! Read our latest update: eicureproject.com/updates/resear… We have 3 amazing research projects waiting to start. We just need more donations please: eicureproject.com/donate Thank you 🥰 #eicureproject #IAM2024
EI is an “Orphan Disease”. It’s so rare that there is no industry profit to be made from funding research. If we want a better future for EI, we need to fund research OURSELVES! Learn more about the project here: eicureproject.com/about Thank you 🥰 #IAM2024 #eicureproject
Another #repsforrarechallenge during PE class! 🏃♂️🏃♂️🏃♂️ We had a special visit from @firstLadyD4 🤩 THANK YOU for your support and for making Capri’s day! 🌺 Please DONATE to fund research for Epidermolytic Ichthyosis (EI) ❤️🩹 eicureproject.com/donate Thank you 🥰 #eicureproject
I’d like to shine a light on the super work of Stratford On Avon Golf Club and their club captain and ladies captain, Simon Meade and Hilda Craig! 👏👏👏 Please visit their JustGiving page and boost their efforts! ❤️ justgiving.com Thank you so much 🥰 #eicureproject
‼️New article on EI Published TODAY‼️ onlinelibrary.wiley.com/doi/full/10.11… Congratulations to Dr Leonie Frommherz and Professor Cristina Has, and everyone else involved🥳 Thank you for documenting what it means to have EI from a clinical, economic, and patient perspective👏 #eicureproject
‼️EI Cure Project Competition WINNERS‼️ There are 3 winners for each of the 5 age categories, and our entries came from all over the WORLD! 🇮🇹🇨🇭🇬🇧🇺🇦🇷🇺🇺🇸🇨🇦🇦🇺🇩🇰🇳🇴🏴🏴 Read the full story here: eicureproject.com/updates/iam202… Please wear your new #EICureProject T-shirt with PRIDE 🥰
Our American Organisation officially received its 📣501c3 📣 status today! apps.irs.gov/pub/epostcard/… If you are looking for an American organisation to support, please consider eicureproject.com/donate Thank you ☺️ #eicureproject #RareDERM #BaseEditing #501c3organization
Yesterday’s #IAM2024 post was about the FACTS on #EpidermolyticIchthyosis. Today, we explain what that means for EVERYDAY LIFE?🤔🤔🤔 For more resources on EI, please visit our website: lnkd.in/e-C2xnyj Thank you 🥰 #eicureproject #ichthyosisawareness #findacure
#EpidermolyticIchthyosis (EI) is referred to as a “Congenital Ichthyosis” because it is a genetic disorder which can be inherited. Learn more here, and donate to help us fund research: eicureproject.com/donate Thank you🥰 #IAM2024 #eicureproject #ichthyosisawareness #findacure
UK Trustee Rhiannon Morgan recently took a vacation to Croatia. As a person affected with rare skin disease Epidermolytic Ichthyosis, she decided to write about her experiences. Read the full story here: changingfaces.org.uk/story/rhiannon… #eicureproject #dermatology #ichthyosisawareness
I’m delighted to share that we have a NEW MATCH 5000 DONOR!!! 🎉❤️🎉 From November 1st to December 15th 2024, donations up to a total of £5000 will be doubled by our donor! 🙌 eicureproject.com/donate Thank you & Happy giving everyone! 🥰 #eicureproject #hope4ei #findacure
Something went wrong.
Something went wrong.
United States Trends
- 1. Good Monday 31.5K posts
- 2. #MondayMotivation 8,405 posts
- 3. TOP CALL 3,894 posts
- 4. AI Alert 1,594 posts
- 5. Market Focus 2,680 posts
- 6. Check Analyze N/A
- 7. Token Signal 2,065 posts
- 8. #centralwOrldXmasXFreenBecky 617K posts
- 9. SAROCHA REBECCA DISNEY AT CTW 636K posts
- 10. #LingOrmDiorAmbassador 319K posts
- 11. Victory Monday 1,524 posts
- 12. NAMJOON 62.2K posts
- 13. #BaddiesUSA 67.4K posts
- 14. DOGE 188K posts
- 15. Chip Kelly 9,619 posts
- 16. Monad 121K posts
- 17. Happy Thanksgiving 10.1K posts
- 18. Stacey 23.4K posts
- 19. Scotty 10.6K posts
- 20. Gilligan 4,169 posts