Darren Rose
@AAADRose
Time to kick some #ALS!! #FUALS #ALSFindACureNow #EndALS
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Tell BrainStorm: The ALS Community Deserves Transparency iamals.org/action/tell-br…
The #Swing4ALS Challenge is here. It doesn’t matter what your swing is, all that matters is that you Keep Swinging. Nominate 3 friends and tag @bogegolf and @iamalsorg for a chance to be reposted! Good Luck!
We are glad to see that the FDA has scheduled a Type A meeting on January 11th to discuss the path forward for NurOwn. We hope that during this meeting they agree to hold an Advisory Committee Meeting so there is a transparent, public forum about NurOwn. bit.ly/3GANLW3
D-day for #NurOwn, and therefore the fate of so many current (and all future) #ALS patients is set: January 11th, 2023. No single decision has ever been as directly impactful or more important to #ALS patients than this. Why? Because #NUROWNWORKS #endals prnewswire.com/il/news-releas…
ALS 👊🏼
In the last five years, ALS has changed everything for me except for one thing: I am still alive. If you see this tweet, please retweet it with your version of the following: "In the last five years, ____ has changed everything for me except for one thing: I am still alive."
I AM ALS friend Dan handed off the NurOwn petition -- and all 802 pages of signatures -- to Dr. Peter Marks at the FDA today. To everyone who signed and shared: THANK YOU. #NoAdCommNoVoice
For those who posted or signed the petition below, we hit our goal of 30K signatures today. Thank you for being the light. iamals.org/action/sign-th…
These pALS and cALS will NOT quit. NME is so proud of every single pALS who contributed to another #drugsinbodies benchmark. Another 30k sign, with help from these groups + some amazing individual efforts. Awesome. @brainmatters10 #NUROWNWORKS @statnews @biospace @WSJopinion
30,000 Done !! Never underestimate the power of a small group of people. We did this without the help of the Biggest in ALS. @PatriciaManhar1 @4Nurown @ApproveNurown @4Nurown @imonfiya7 @sherryquis @Elex_Michaelson @klink52 @zacbrownband @emilyakopp
3/3 Intentionally omitting large, significant (p-.05) subgroups, and ignoring the same "flexibility" arguments made for "other" drugs in the past only hurts #ALS' future credibility. If not obvious yet, it sure appears pALS refuse to quit fighting. 30k more sigs, a MILLION total.
Takes less than 60 seconds please sign and share. @SlaterMoJoe 👊🏼💪🏼
Every signature counts. Please sign and share this petition asking the FDA to hold an Advisory Committee meeting for NurOwn. #NoAdCommNoVoice iamals.org/action/sign-th…
Less than a minute to save thousands of lives.
29 yo Eric worked w #LAFD when dx'd w fatal #ALS ❤️Rcvd a #stemcell therapy #NurOwn ❤️Slowed his paralysis & improved his breathing 💔Can't get more w/o #FDA approval ⬇️Sign Petition to help Eric bit.ly/3gQZaHp #AxeALS @stevens_nation #firefighter #firefighters #EMT
Before & After #NurOwn, @ThurmanTough 🚫Walk 1 mile →hiked 9 miles in WV hills 🚫 Lift gallon of paint →built block wall 🚫Open water bottle →baits hook & fletches arrows ⬇️SIGN PETITION to ask FDA for hearing bit.ly/3gQZaHp #NurOwnWorks wowktv.com/news/local/wes…
wowktv.com
West Virginia man battling ALS hoping FDA reverses decision on drug treatment
CHARLESTON, WV (WOWK) — After the FDA did not approve a new drug for ALS called NurOwn, a man who is fighting a battle with ALS in our region is hoping the FDA will reverse its decision on th…
Thank you to the 3,000 people who signed yesterday. I am grateful to and for you. Right now, we're about 5,000 signatures away from our goal. If you have not signed, can you help all ALS patients send a clear message to FDA that we need an Advisory Committee for NurOwn.
As of this morning, we are less than 8,000 signatures from our goal for the petition. If you have not signed it yet, please please please take 20 seconds today to do so. I appreciate you so much. iamals.org/action/sign-th…
Nothin' special about a #Dad & #daughter walking? Matt's had #ALS for 4 yrs He wants to live long enough that she remembers him Matt got #NurOwn in EAP His life depends on a public hearing where he & his #MAYO neurologists can share this evidence w FDA @CBER #GirlDad #EndALS
Two things this morning. First, meet Josh. He is in the NurOwn expanded access program and has received 7 injections. His breathing score has gone up and, as you can see here, he is still walking on his own. Second, Josh is but one of many reasons why we are asking the FDA...
Josh was dx'd w #ALS at 29 yo When Josh gets #NurOwn: ▪️Paralysis slows ▪️Twitching stops ▪️Breathing improves ALS kills in avg 3-5 yrs But Josh is 4 yrs in & still walking Sign petition so Josh can keep beating the odds! bit.ly/3gQZaHp #LivingProof #NoAdComNoVoice
Two things this morning. First, meet Josh. He is in the NurOwn expanded access program and has received 7 injections. His breathing score has gone up and, as you can see here, he is still walking on his own. Second, Josh is but one of many reasons why we are asking the FDA...
Oh I wish @JamieRoseBerry were here I can just imagine her dancing up the stairs in 5 " heels, singing, rapping & making everyone smile. That's what she's doin' in heaven now! I miss the hell out of our Baddass warrior Hugs @ImLolly713 & @als_mama As Jam would say F*ckALS
Share this QR code to add your name to a letter (for free!) that asks @US_FDA to initiate approval of a potentially game changing new therapy to #ALS patients, as soon as possible in 2023. And it costs you nothing! @SlangsOnSports @cnn @ESPNStatsInfo @Buster_ESPN @ChicagoMaroon
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