Stefania iovane
@Steiov
wife and carer of my husband with ALS, mum to two beautiful children, cUTI sufferer.
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Boris Johnson: Accelerated Assessment/Access Review for Motor Neurone Disease (MND / ALS) treatments in the United Kingdom. - #NurOwn #StemCells - Sign the Petition! chng.it/hnvd6fdF via @UKChange
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Accelerated Access for Motor Neurone Disease (MND / ALS) treatment in the UK - NurOwn
#zonabianca Speriamo che riescano a mettersi d’accordo e non facciano saltare il governo Draghi perché la conseguenza verrà pagata solo e sempre dal popolo italiano 🤦🏻♀️grazie @luigidimaio che come sempre parli al popolo in maniera chiara e diretta senza troppi giri di parole 😉
#controcorrente il salario minimo di 9 euro l’ora dovrebbe mettere tutti d’accordo, ai cari politici che non lo sono li farei vivere con 3 euro l’ora 😤tanto niente fanno 😒
I tried to avoid covid as much as I could but me and my little one are both positive 😢 I’m exhausted from covid and scared my husband with ALS will get it too 🤦🏻♀️
This should be what goes viral. Not the celebrities. This.
In Nov 2017 I was told I had ALS and should prepare to die. By 2018 I had decided to fight with every single breath. This is the trailer for what happened next. I hope you like it, will share it with everyone and get ready to change the world. Good night moon.
Provo un dispiacere enorme per quello che è successo alla piccola Vittoria a #TorreAnnunziata perdere la vita in un modo così tragico è un evento che segnerà per sempre la vita dei genitori, non c’è alcun bisogno di inveire contro la madre accusandola di negligenza. Vergognatevi
ALS drug breakthrough shows promise in animal studies thedenverchannel.com/news/national/…
. Holy frickin' wow. !!! Kyle and others,... this is one of many examples of why people with ALS want to access NurOwn immediately. Only a very small number of people are allowed, yet likely thousands want to try it. / josh @sandymorris333 @Kyle_Kazan
Spoke to #NurOwn EAP participant last night - 4 days after 1st dose & 4+ yrs after dx. His voice now strong & cadence in speech returned to normal, he said: "My body FEELS whole! I feel like my body is working again" Everyone w #ALS deserves this Hope! @DrCaliff_FDA @FDACBER
@alsassociation It’s a slap in the face to ignore this man’s reasonable request. @andersoncooper @60Minutes Are you aware of the injustices being suffered by those battling #ALS ?@alsassociation practices are being questioned by the people they’re entrusted to serve. Investigate
Spoke to #NurOwn EAP participant last night - 4 days after 1st dose & 4+ yrs after dx. His voice now strong & cadence in speech returned to normal, he said: "My body FEELS whole! I feel like my body is working again" Everyone w #ALS deserves this Hope! @DrCaliff_FDA @FDACBER
ALS-THE FORGOTTEN DISEASE @zacbrownband @DrCaliff_FDA @BrainstormCell @brainmatters10 @EBraeden @MauriceBenard ALSA has DENIED Victims the ability to LIVE LONGER BETTER LIVES They want MONEY NurOwn WORKS Never be backed by ALSA BLOOD OF VICTIMS ON ALSA HANDS WHY! #NUROWN4LIFENOW
.#ALSAwarenessMonth Steven Martin bravely, with love & humor, shared his ALS story. Sadly, 2 yrs later Steven is gone & his prayers for #NurOwn remain unanswered. ALS is agonizing enough without knowing that effective treatments exist & you’ll die waiting. #WeMustDoBetter
Another therapy appears to halt #ALS. "ILB" appears to have done so for EVERY patient in a Phase 2 trial. IF this remarkable claim is true (*if), it means FOUR therapies that have now done so. The number patients have access to: ZERO. #DYINGWAITING2022 biospace.com/article/releas…
#ALS patients just want the principals this #country was founded on: #Life, #Liberty & #ThePursuitOfHappiness. A chance to #Live, a chance to be #free of the #prison our body becomes and a chance to be #happy in a #world without #ALS #EndALS #ALSawarenessMonth #NurOwnNow
What if? What IF this really happened to you. Imagine for just 30 seconds it's real. Imagine there is no way out. Now, imagine a new drug could help you, but you can't have it because it "only" gave you 1 in 3 odds. It's real. ALL of it. @FDACBER @US_FDA #NurOwnworks #endals
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