You might like
To @sainsburys - "I want my supermarket to take the future of our planet seriously - please take more urgent action on plastic." Chris #couldntcareless
When the prevailing narrative is that #MEcfs is a due to “false illness beliefs” it’s almost impossible to self advocate. So grateful to MPs such as @CMonaghanSNP & @NickyMorgan01 who have led the way in championing #PwME & securing today’s #MEdebate #MillionsMissing
Amazing News! Carol Monaghan MP has been successful with her application for a House of Commons Main Chamber debate on ME as she announced during a Forward ME Group meeting yesterday 👏 It is unclear when the debate will take place, but we will keep you updated! #Medebate #pwME
PLEASE retweet so we can all email them with our valid concerns ASAP. Thank you! @keithgeraghty @MEActNetUK @meactionscot @MEActNetAu @MEActNet @EmergeAus @MEAdvocatesIre @davidtuller1 @JoanMcParland @Wee_Bawbee @carolbinks @TomKindlon @CoyneoftheRealm @OpenMedF @velogubbed
Hi Lee - thanks for contacting us. To make a formal complaint you can e-mail us at [email protected] setting out your concerns as clearly as you can. Providing any relevant supporting information at this stage can help us make as quick a response as possible.
Such a key, focused article, beautifully written and saying everything that I'd like to - I don't have the skill, and definitely not the brain power, mine is broken. @SamFleurPearce @mecfs
OMG, what a generous, honest, and powerful piece of retrospective writing on #MECFS at society and personal levels. Much gratitude to @SamFleurPearce for writing and sharing this. So much of it resonates strongly for me. africaclockwise.wordpress.com/2018/08/07/m-e…
africaclockwise.wordpress.com
M.E. Too or Why I am No Longer NOT Speaking to Doctors about Chronic Illness
Three weeks ago, I met the first doctor in 25 years to believe me. She is a gynaecologist and I went to consult her about my intense peri-menopause rather than my autoimmune condition. As symptoms …
Interview on BBC Radio 5 Live this afternoon. #SevereME #pwME #Disability
Severe M.E. is the feature on BBC Radio 5 live this afternoon from 2.45pm. Dr Charles Shepherd will be interviewed along with a young person suffering from severe M.E. There will also be a phone-in opportunity. bbc.co.uk/programmes/b0b… @MEAssociation @bbc5live #MECFS #SevereMEDay
bbc.co.uk
BBC Radio 5 Live - Afternoon Edition, 08/08/2018
Nihal Arthanayake meets musician Miles Kane. Tolani Shoneye picks her Unmissables.
I've just signed an open letter to @richardbranson, telling him to stop dragging our NHS through the courts - will you? speakout.38degrees.org.uk/campaigns/bran…
Deeply impressing letter from M. Hooper, PhD, Emeritus Prof. of Med. Chemistry to MP B. Phillipson, House of Commons, in response of a letter of Lord O'Shaughnessy, Parliamentary Under Secretary of State for Health (Lords) #PACE is nothing but fraud #MECFS margaretwilliams.me/2018/hooper-to…
Cognitive-behavioural therapy for #CFS (#MECFS): neither efficacious nor safe. Br J Psychiatry. 2018 Aug;213(2):500-501. doi: 10.1192/bjp.2018.136. Authors: @FrankTwisk, @LouCorsius. @PACEgate: doi.org/10.1192/bjp.20… Please retweet to increase the impact of the article.
If you think that the @BBCNews should have a rule that Think Tanks can only appear on the BBC after disclosure of their main funders, then please retweet. (If there is enough interest I will set up a petition to the BBC)
Simon Wessely has signed a letter which states “Ensuring that the views and experiences of those who use the services are properly taken account of, should be the sine qua non of a publicly funded body tasked with devising clinical guidelines.” Unless they are ME/CFS patients?
'The draft guideline fails to meet the NHS agenda of 'partiy of esteem' - read concerns from @MindCharity, @UKCP_Updates, @TaviRelations, the @BACP and lots more below.
@guardian There is an #MEdebate at Westminster Hall today Thursday 21st June, 1:30-4:30p.m arranged by @CMonaghanSNP please can you report it? 250k people in the UK have this debilitating disorder costing £3billion+ & devastating lives #pwme #MECFS #MillionsMissing
Let’s make some noise! Talk about Thursday’s #MEdebate on Twitter and Facebook. Tag your MP. Use our ‘contact your MP’ tool to find to find their social media handle. #MillionsMissing meaction.net/2018/06/19/two…
Unrest is in the running for this year's Independent Lens Audience Award which honors fans’ favorite film of the season. This film has become a major tool in advocating for #mecfs visibility & health equality. Cast your vote to promote visibility for ME!: to.pbs.org/2sVS8Vy
pbs.org
Make Your Voice Heard: Pick Your Favorite 2017-18 Independent Lens Film
You decide who will win this year's Independent Lens Audience Award.
. @CMonaghanSNP has secured a general debate on myalgic encephalomyelitis treatment and research in Westminster Hall on 21 June. Shame it’s not in the main chamber but I gather that could still happen at a later date. Thanks to Carol @NickyMorgan01 and all who helped.
The Committee has announced the latest backbench business debates to be allocated.
"I got a virus when I was 3. I know I am going to die of this disease and I won't even count as a statistic...right now, I'm just fighting just for my death to be blamed on the right thing"#MyalgicEncephalomyelitis" #millionsmissing
#MEawarenessday - @FoodSteamAhead speaks out about the importance of ME being recognised and supported at #MillionsMissing London
This is my arrangement of Blowin' in the Wind with alternative lyrics about the struggles faced by people with ME, performed by patients and carers from around the world. More info in description under song on YouTube. Please share: youtube.com/watch?v=BncUDX… #MillionsMissing
youtube.com
YouTube
A song for ME: Blowin' in the Wind
Pls RT if you shed a tear during #hospital. Shameful that #NHS staff forced to work under such stress when patients lives are at stake.
On review of science and data of the #MEcfs #PACEtrial Reanalysis of data the researchers tried to block. If you have concern for evidence based science, this is a story to cover. If advisers suggest otherwise, investigate conflict of interest @janegarvey1 @BBCWomansHour
“These findings raise serious concerns about the robustness of the claims made about the efficacy of CBT and GET. The modest treatment effects obtained on self-report measures in the PACE trial do not exceed what could be reasonably accounted for by participant reporting biases”
*Please share this far and wide* Hugely significant analysis of the much-discredited PACE trial for #MEcfs is published today. 1. Short summary from BBC News: bbc.co.uk/news/health-43… 2. The full fresh research paper: bmcpsychology.biomedcentral.com/articles/10.11…
United States Trends
- 1. #IDontWantToOverreactBUT 1,129 posts
- 2. Thanksgiving 145K posts
- 3. #GEAT_NEWS 1,363 posts
- 4. Jimmy Cliff 22.5K posts
- 5. #WooSoxWishList 1,391 posts
- 6. #MondayMotivation 13K posts
- 7. $ENLV 17.1K posts
- 8. #NutramentHolidayPromotion N/A
- 9. Victory Monday 3,960 posts
- 10. Good Monday 51.1K posts
- 11. DOGE 231K posts
- 12. Monad 172K posts
- 13. The Harder They Come 3,292 posts
- 14. Feast Week 1,863 posts
- 15. Justin Tucker N/A
- 16. $GEAT 1,299 posts
- 17. $MON 32.7K posts
- 18. TOP CALL 4,828 posts
- 19. Many Rivers to Cross 2,977 posts
- 20. Vini 35.8K posts
Something went wrong.
Something went wrong.