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#pwme Suchergebnisse

DafoeWhitney's profile picture. Severe ME/CFS patient and advocate. Sick since 2004, bedridden since 2013. Never. Giving. Up. ✊ Useful info for ME/CFS and Long Covid patients in bio link.
Whitney Dafoe
@DafoeWhitney
10.11.

Time keeps passing by without a clue, That I’m lying here alone inside this room, I can’t live my life like others do, So please stop passing by and get a clue. ======= #mecfs #chronicillness #pwME #LongCovid

DafoeWhitney's tweet image. Time keeps passing by without a clue, That I’m lying here alone inside this room, I can’t live my life like others do, So please stop passing by and get a clue. ======= #mecfs #chronicillness #pwME #LongCovid
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katiamek's profile picture. 27. greek former Architecture student, athlete and 3D artist dealing with severe #LongCovid and #SevereME since 2021. . inst: k_aotic
Katiana.
 @katiamek
25.11.

I literally don’t feel my leg from the severe deep bone pain and everything. And this is only one symptoms. This is a nightmare. #pwme #mecfs #longcovid

katiamek's tweet image. I literally don’t feel my leg from the severe deep bone pain and everything. And this is only one symptoms. This is a nightmare. #pwme #mecfs #longcovid
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IrishMECFSAssoc's profile picture. Irish Myalgic Encephalomyelitis/Chronic Fatigue Syndrome Assoc. NB: Posts should not be considered advice. RCN 20100254 CHY 22039. Some #LongCovid items also.
Irish ME/CFS Association
 @IrishMECFSAssoc
27.11.

Irish Examiner letter from one of our members She highlights -difficulty she had in obtaining a payment -she gets less money because she is means tested both her and her husband's income/assets (sadly this issue is not specific to Ireland) irishexaminer.com/opinion/yourvi… #MEcfs #PwME

IrishMECFSAssoc's tweet image. Irish Examiner letter from one of our members She highlights -difficulty she had in obtaining a payment -she gets less money because she is means tested both her and her husband's income/assets (sadly this issue is not specific to Ireland) irishexaminer.com/opinion/yourvi… #MEcfs #PwME
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PhoebsBo's profile picture. Life is being autistic and chronically ill with ME and writing about it. Doodle artist. Smorky's human. She/her.
Phoebe Boag
 @PhoebsBo
03.10.

I had to check that it wasn’t April 1st. Jeremy Hunt has joined Action for ME’s Parliamentary Champions network. The man who wanted to privatise the NHS and force chronically ill and disabled people into work with threats of benefit sanctions. #PwME #ActionForME

PhoebsBo's tweet image. I had to check that it wasn’t April 1st. Jeremy Hunt has joined Action for ME’s Parliamentary Champions network. The man who wanted to privatise the NHS and force chronically ill and disabled people into work with threats of benefit sanctions. #PwME #ActionForME
PhoebsBo's tweet image. I had to check that it wasn’t April 1st. Jeremy Hunt has joined Action for ME’s Parliamentary Champions network. The man who wanted to privatise the NHS and force chronically ill and disabled people into work with threats of benefit sanctions. #PwME #ActionForME
PhoebsBo's tweet image. I had to check that it wasn’t April 1st. Jeremy Hunt has joined Action for ME’s Parliamentary Champions network. The man who wanted to privatise the NHS and force chronically ill and disabled people into work with threats of benefit sanctions. #PwME #ActionForME
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katiamek's profile picture. 27. greek former Architecture student, athlete and 3D artist dealing with severe #LongCovid and #SevereME since 2021. . inst: k_aotic
Katiana.
 @katiamek
31.10.

This is the food I get as a patient with severe ME (It’s all fried). When you lose the capability to nurture yourself unfortunately you can’t control anything. I’ve begged and explained what my GI can tolerate and need. Nothing changes. Ever. They just don’t care. #pwme #mecfs

katiamek's tweet image. This is the food I get as a patient with severe ME (It’s all fried). When you lose the capability to nurture yourself unfortunately you can’t control anything. I’ve begged and explained what my GI can tolerate and need. Nothing changes. Ever. They just don’t care. #pwme #mecfs
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katiamek's profile picture. 27. greek former Architecture student, athlete and 3D artist dealing with severe #LongCovid and #SevereME since 2021. . inst: k_aotic
Katiana.
 @katiamek
16 Std.

I don’t even remember how the absence of pain feels like. #severeme #pwme

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Parunzel_'s profile picture. ecologist, #MECFS, #CovidIsNotOver she/her, #AdoptDontShop
Parunzel
 @Parunzel_
15.11.

Die ständige Aufklärungsarbeit von #pwME lohnt sich! #MECFS wird immer sichtbarer. Hier als direktes Beispiel für eine Auswahlmöglichkeit einer Umfrage zu Diskriminierung.

Parunzel_'s tweet image. Die ständige Aufklärungsarbeit von #pwME lohnt sich! #MECFS wird immer sichtbarer. Hier als direktes Beispiel für eine Auswahlmöglichkeit einer Umfrage zu Diskriminierung.
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SteveFifield3's profile picture. Informed decisions from verifiable truth & facts please. Avoid unsubstantiated opinions / beliefs. #Equality #justbe #inclusion #LGBT+ ally. ME/CFS 😢 #pwme
Steve Fifield @stevefifield.🦋.social
 @SteveFifield3
26.11.

Hi all. Is anyone still in contact with @saltfishnackee please? Have been able to contact since early January and no posts since then either 😥. Hope they are OK. #pwME

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MEAssociation's profile picture. We raise funds for medical research into ME/CFS and provide support, information & campaign for people in the UK. RPs do not necessarily mean endorsement.
ME Association
@MEAssociation
25.11.

Looking for a meaningful Christmas gift? Our Four Seasons Cookbook is available for £15 — and every purchase helps raise funds for the ME Association. meassociation.org.uk/product/four-s… #MECFS #pwME #MyalgicE #Christmas #Fundraising #Cookbook

MEAssociation's tweet image. Looking for a meaningful Christmas gift? Our Four Seasons Cookbook is available for £15 — and every purchase helps raise funds for the ME Association. meassociation.org.uk/product/four-s… #MECFS #pwME #MyalgicE #Christmas #Fundraising #Cookbook
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AnilvanderZee's profile picture. Former professional ballet dancer | Bed-bound M.E. patient | Using ✖️ to raise awareness for #MyalgicE | #IACI #art2cureME #pwme #millionsmissing
Anil van der Zee ©
 @AnilvanderZee
02.11.

PEM sucks ass techno. PEM is a DJ. #PEM #pwme #myalgicE #millionsmissing

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katiamek's profile picture. 27. greek former Architecture student, athlete and 3D artist dealing with severe #LongCovid and #SevereME since 2021. . inst: k_aotic
Katiana.
 @katiamek
26.11.

I don’t want blue hearts and candles when I die. Or people feeling sorry. I want to live. I need help now. Proper medical care, access to professionals and proper care. #mecfs #pwme #severeme

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CaroleBruce17's profile picture. 💙Art, Nature, Books, Some Music. Severe ME 32 years. Daughter severe 38 years. Furious about treatment of ME. https://t.co/gEIrl86Wim
Carole Bruce
 @CaroleBruce17
20.11.

It’s time for this government to look at these figures urgently. If they don’t care about the enormous level of suffering of #pwME they might take notice of the economic toll this ignored and virtually unfunded illness is taking. Time to get serious about #ME right now. 🔥🔥🔥

CaroleBruce17's tweet image. It’s time for this government to look at these figures urgently. If they don’t care about the enormous level of suffering of #pwME they might take notice of the economic toll this ignored and virtually unfunded illness is taking. Time to get serious about #ME right now. 🔥🔥🔥
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MEAssociation's profile picture. We raise funds for medical research into ME/CFS and provide support, information & campaign for people in the UK. RPs do not necessarily mean endorsement.
ME Association
@MEAssociation
27.11.

Parliamentary Question about preventing malnutrition in people with severe ME Read the full question from Baroness Scott of Needham Market and the response on the blog: meassociation.org.uk/7icb #SevereME #pwME #MECFS

MEAssociation's tweet card. Photo of Baroness Scott of Needham Market and Baroness Merron […]
Parliamentary Question about preventing malnutrition in people with severe ME - The ME Association
Quelle: meassociation.org.uk
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magnetoJJ's profile picture. Director at Magneto FIlms, making films for not for profits. Currently shooting photos of #PwME. Living with #ME since 1987
Jeremy Jeffs
 @magnetoJJ
26.09.

We’ve been asking people how the exhibition makes them feel …. #mecfs #pwme

magnetoJJ's tweet image. We’ve been asking people how the exhibition makes them feel …. #mecfs #pwme
magnetoJJ's tweet image. We’ve been asking people how the exhibition makes them feel …. #mecfs #pwme
magnetoJJ's tweet image. We’ve been asking people how the exhibition makes them feel …. #mecfs #pwme
magnetoJJ's tweet image. We’ve been asking people how the exhibition makes them feel …. #mecfs #pwme
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TomKindlon's profile picture. With ME 36 years (31 yrs severe). 95% of posts on #MEcfs/#LongCovid/#chronicillness. 26 publications in peer-reviewed journals. @IrishMECFSAssoc trustee 28 yrs
Tom Kindlon
 @TomKindlon
01.11.

I was just clearing out some files & came across this letter in a 2009 Action for ME magazine. Poignant to read Emily Collinridge’s letter given she herself tragically passed away herself a few years later. 😢 #SevereME #PwME

TomKindlon's tweet image. I was just clearing out some files & came across this letter in a 2009 Action for ME magazine. Poignant to read Emily Collinridge’s letter given she herself tragically passed away herself a few years later. 😢 #SevereME #PwME
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VladVexler's profile picture. Philosopher - ethics, politics, music | Slowly writing a book on Isaiah Berlin | Grew up in USSR, Isr, UK. Home is London | Living with ME since 2003. | 🔗 🎥
Vlad Vexler
@VladVexler
09.10.

"Unsafety" in chronic illness - #pwME #LongCovid

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AutonomicBrad's profile picture. Bachelor of Biological Science Degree. #LongCovid #TeamAutoantibodies #Bc007. Any tweet is my opinion and not medical advice. Check out my podcast on Spotify
Brad
 @AutonomicBrad
26.11.

The Tale of the Crooked Spines: And their offspring shall struggle with viruses and collect co-morbid disabilities until their lives are destroyed. They shall lose everything including careers, friends, health and money. They shall fall apart. #EhlersDanlos #LongCovid #pwME

AutonomicBrad's tweet image. The Tale of the Crooked Spines: And their offspring shall struggle with viruses and collect co-morbid disabilities until their lives are destroyed. They shall lose everything including careers, friends, health and money. They shall fall apart. #EhlersDanlos #LongCovid #pwME
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katiamek's profile picture. 27. greek former Architecture student, athlete and 3D artist dealing with severe #LongCovid and #SevereME since 2021. . inst: k_aotic
Katiana.
 @katiamek
21.11.

Is anyone else having TMJ pain / facial pain along with swelling? This is my right side of face. And no that wasn’t my normal before getting sick. It’s really puffy and feels swelled up. It’s the side I have my most pain, migraines. #mecfs #tmj #pwme #longcovid

katiamek's tweet image. Is anyone else having TMJ pain / facial pain along with swelling? This is my right side of face. And no that wasn’t my normal before getting sick. It’s really puffy and feels swelled up. It’s the side I have my most pain, migraines. #mecfs #tmj #pwme #longcovid
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TomKindlon's profile picture. With ME 36 years (31 yrs severe). 95% of posts on #MEcfs/#LongCovid/#chronicillness. 26 publications in peer-reviewed journals. @IrishMECFSAssoc trustee 28 yrs
Tom Kindlon
 @TomKindlon
19.11.

M.E. = Myalgic Encephalomyelitis ME Essential is the magazine for members of the (UK) ME Association #MyalgicEncephalomyelitis #PwME

TomKindlon's tweet image. M.E. = Myalgic Encephalomyelitis ME Essential is the magazine for members of the (UK) ME Association #MyalgicEncephalomyelitis #PwME
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Carrie_McGinn's profile picture. Infection-associated chronic illness advocate | MSc | #PatientPartner | She/Her | #MECFS #MyalgicEncephalomyelitis #POTS #LongCovid #CovidLongue #CovidLong
Carrie Anna McGinn
 @Carrie_McGinn
4 Std.

I'm grateful for so many wonderful #pwME. 💙 Read @Sabrina_Poirier's post below to discover people with #MECFS to follow.

Sabrina_Poirier's profile picture. Community Builder / Passionate Collaborator / Chair - #MedicalEducation Group / #ResearchPartner / #MECFS #LongCovid Advocate / #PwME / #MCAS / #POTS / #Fibro
Sabrina Poirier (On Hiatus) 🇨🇦
 @Sabrina_Poirier
26.11.

Hey there #MyalgicEncephalomyelitis community. 💙 We have some really amazing advocates and educators in our community. Some are attached to orgs and some are independents (like me). Some work on projects and some use socials to boost key messages. It’s all important. 1/

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MECFSNanoneedle's profile picture. Severe #MECFS Patient Bedridden. No energy to speak. #MECFSBiomarkers #WomensImmunoBiologicalHealth The battle I choose is for ME/CFS Diagnostic Biomarkers
Andrea Fighting for #MECFS Diagnostic Biomarkers
 @MECFSNanoneedle
4 Std.

You know what two words cannot be co-opted to disguise graded exercise therapy? "Complete Rest." #MECFS #pwME

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IrishMECFSAssoc's profile picture. Irish Myalgic Encephalomyelitis/Chronic Fatigue Syndrome Assoc. NB: Posts should not be considered advice. RCN 20100254 CHY 22039. Some #LongCovid items also.
Irish ME/CFS Association
 @IrishMECFSAssoc
5 Std.

4/ Down to 13 different sets now (having started at 18). We only have low quantities of some of those 13. #MyalgicEncephalomyelitis #PwME

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MEFoggyDog's profile picture. Working to improve the quality of life of M.E. patients using every available means and opportunity #SocialEnterprise #pwME Linktree - https://t.co/TNEwofcNnm
ME Foggy Dog
 @MEFoggyDog
9 Std.

This is why I am now resting. 👇 #pwME

StripyLightCIC's profile picture. Evidence-based #CPD #mecfs #etraining for #employers, #healthcare and #education professionals and orgs. M.E.-Friendly Hospital Charter - https://t.co/Dr0aLqZSse
Stripy Lightbulb CIC
 @StripyLightCIC
9 Std.

It was a pleasure to talk to @AlexonTV earlier. We covered topics such as the term 'economically inactive', @GOVUK vilification of disabled/chronically sick people, and the need for DWP reform, amongst others. Watch on DM News (Sky 522 and Freeview 50 & Youtube next wk) #MEcfs

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MEFoggyDog's profile picture. Working to improve the quality of life of M.E. patients using every available means and opportunity #SocialEnterprise #pwME Linktree - https://t.co/TNEwofcNnm
ME Foggy Dog
 @MEFoggyDog
10 Std.

Now doing the post-interview 'why didn't I say that?' Fandango. Went ok, I think. #pwME

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KatyBruce108's profile picture. Myalgic Encephalomyelitis ME + POTS 39 yrs Donor to @mecfsbiobank for 10 years & @DecodeMEstudy Please watch https://t.co/pUUJO34e5k #pwME
Katy B
 @KatyBruce108
10 Std.

@MEAssociation for countless reasons the AGM should be open to everyone, without exception. #ME #pwME #MEAwareness #NothingAboutUsWithoutUs

PaulRKeeble's profile picture. ME since 2016 (Mild), 2019 Moderate , 2020 Severe Long Covid since March 2020 (V Severe) Funcap55 = 1.9 - 2.1 (Severe) Discourteous behaviour = block.
Paul Keeble ME/LC
 @PaulRKeeble
27.11.

MEAssociation is having an annual general meeting in January. This one has a remote option. Only available to those that give them money on a regular basis. meassociation.org.uk/2025/11/member…

PaulRKeeble's tweet card. To be held on 12 January 2026 starting at 2:00 […]
MEMBERS ONLY - Notice of Annual General Meeting of The ME Association - The ME Association
Quelle: meassociation.org.uk
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KatyBruce108's profile picture. Myalgic Encephalomyelitis ME + POTS 39 yrs Donor to @mecfsbiobank for 10 years & @DecodeMEstudy Please watch https://t.co/pUUJO34e5k #pwME
Katy B
 @KatyBruce108
10 Std.

It's hard to convey quite how much this level of commitment to #ME research can mean to #pwME So grateful to @DanMissailidis & all the #ME researchers out there who see us & are doing everything that they possibly can to help us all 💙 #MEAwareness #MEScience

DanMissailidis's profile picture. Researching the cell biology of PD, ME/CFS & Long COVID at La Trobe Uni in Melbourne, Aus. Papers: https://t.co/JMi5U6cBLI
Daniel Missailidis, PhD
 @DanMissailidis
15 Std.

A big day of talking through project ideas with new friends, and potentially one big one around clarifying B cell activation and population dynamics in people with ME/CFS using new technologies. Going to put a lot into this - aligns with a lot of what the Decode team has done too

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MEFoggyDog's profile picture. Working to improve the quality of life of M.E. patients using every available means and opportunity #SocialEnterprise #pwME Linktree - https://t.co/TNEwofcNnm
ME Foggy Dog
 @MEFoggyDog
11 Std.

I'll be referring to @wecrunchme data during my interview in a bit. Brain needed an up-to-date data refresh 😊 #pwME

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MEFoggyDog's profile picture. Working to improve the quality of life of M.E. patients using every available means and opportunity #SocialEnterprise #pwME Linktree - https://t.co/TNEwofcNnm
ME Foggy Dog
 @MEFoggyDog
15 Std.

M.E-world problem. Got an online interview this morning, organised last night. Too 'tired' to wash my hair last night. Not enough energy to do the interview & hair wash. Dry shampoo 🙌 #pwME #MEcfs

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katiamek's profile picture. 27. greek former Architecture student, athlete and 3D artist dealing with severe #LongCovid and #SevereME since 2021. . inst: k_aotic
Katiana.
 @katiamek
16 Std.

I don’t even remember how the absence of pain feels like. #severeme #pwme

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techno_peasant's profile picture. Be like water my friend. Watching the end of the world from my bed. MECFS is a bitch. NB, ND, Bi, but labels don't matter. Take each minute as it comes.
Entropic Peasant 〓〓 🏳️‍⚧️🏳️‍🌈
 @techno_peasant
27.11.

My big toes and thumbs have been giving me gyp this week. 🫩 #pwME

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kicca222's profile picture. “意に反して” 猫の額ほどの範囲で日常を送っています | ✱2002年 マイコプラズマ感染後〜 #慢性疲労症候群 #MECFS #pwME | 6→7（2017年）→8（2025年）| ✱ #低周波音症候群 | ✱#乳がんサバイバー | ✱昔のバリバリ不安神経症寛解| ★死ぬまでに健康になりたい| 🌸🐠
kicca
 @kicca222
27.11.

それにしても、これだけ筋肉やられる人いる？ 聞かないけどな…頭の締めつけはたまーにいるけど #MECFS #pwME

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MEAssociation's profile picture. We raise funds for medical research into ME/CFS and provide support, information & campaign for people in the UK. RPs do not necessarily mean endorsement.
ME Association
@MEAssociation
27.11.

Out Now! ME Essential - members' magazine: Winter Edition including the festive supplement which contains a mixture of stories, festive crafts and emotive topics. Become a member: meassociation.org.uk/nmrs #pwME #MECFS #MyalgicEncephalomyelitis #LongCovid #MEEssential…

MEAssociation's tweet image. Out Now! ME Essential - members' magazine: Winter Edition including the festive supplement which contains a mixture of stories, festive crafts and emotive topics. Become a member: meassociation.org.uk/nmrs #pwME #MECFS #MyalgicEncephalomyelitis #LongCovid #MEEssential…
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IrishMECFSAssoc's profile picture. Irish Myalgic Encephalomyelitis/Chronic Fatigue Syndrome Assoc. NB: Posts should not be considered advice. RCN 20100254 CHY 22039. Some #LongCovid items also.
Irish ME/CFS Association
 @IrishMECFSAssoc
27.11.

Irish Examiner letter from one of our members She highlights -difficulty she had in obtaining a payment -she gets less money because she is means tested both her and her husband's income/assets (sadly this issue is not specific to Ireland) irishexaminer.com/opinion/yourvi… #MEcfs #PwME

IrishMECFSAssoc's tweet image. Irish Examiner letter from one of our members She highlights -difficulty she had in obtaining a payment -she gets less money because she is means tested both her and her husband's income/assets (sadly this issue is not specific to Ireland) irishexaminer.com/opinion/yourvi… #MEcfs #PwME
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hopefoundinme's profile picture. 💒 Faith, Hope & Wheels 🧑‍🦼💨 Christian, Blogger #pwME c2004 #MEcfs 🌦 Nazareth Companion • Published @thisisliveart • Bluesky ~ hopefoundinme

Hope found in M.E.🌤Penny

@hopefoundinme
YZMAJ5PWME20jDv's profile picture.

รับงาน ไซด์ไลน์ น้องน้ำหวาน

@YZMAJ5PWME20jDv
k2kristy's profile picture. #RSL STM -RSLTID- Fmr collegiate athlete & musician - #pwME & FM - Lucky single mom to my sweet boy! #adoption

Kristy Sauter

@k2kristy
Clarejames131's profile picture. ✍Writing first novel. Enjoy 📚 Photography Piano/Sax Art Gardening QiGong Laughter + Tea 🍵 #amwriting #pwME

Clare James

@Clarejames131
spikedcandy's profile picture. Music blogger sharing vintage, unusual, rare pop/psych/etc, specialising in 60s French pop | pwME hoping for a cure | leftist hoping for a better world

Christine ☠🍭

@spikedcandy
PNGAttitude's profile picture. Media career in Australia, Asia & PNG. Ex GM Corporate Relations ABC. Publisher PNG Attitude blog. Progressive views. Proud of my fine family. #pwME

Keith Jackson AM

@PNGAttitude
Matt_1269501's profile picture. Member of #AdvanceUK, #FreeSpeechUnion, fox friend and #pwME.

Matt Jenkins 🏴󠁧󠁢󠁥󠁮󠁧󠁿 🇬🇧

@Matt_1269501
318Fadra's profile picture. Long time PwME, and parent of PwME fighting for better access to care and treatments. Hope begins in the heart.

fadra tedesco

@318Fadra
FALCON678's profile picture. FREE PALESTINE 🇵🇸 Socialist 💚 No DMs

FIONA SHAW Ⓥ🌱 🇵🇸 🇮🇷💙#BDS #pwME #Pigoneer

@FALCON678
pwme's profile picture.

Jeff Winuk

@pwme
karen_renton's profile picture. pwme

Karen M Renton

@karen_renton
_memyselfandwhy's profile picture. 26, world champion gymnast turned sick person w/ #MyalgicEncephalomyelitis. The account where I accept it + vent, thank you for listening 😇 #mecfs #pwme

Georgia Elle

@_memyselfandwhy
pwme0524's profile picture. 関西 20⤴︎︎︎ヒロの限界ヲタクです〜‼️💜色々呟く！日常垢！📸とたまに絵を載せる！🙋‍♀️✨️

もえ

@pwme0524
CovidVictimas's profile picture. Pacientes + familias #EncefalomielitisMiálgica + #CovidPersistente unidos y movilizados para denunciar el abandono

Movilización Persistente #pwLC + pwME

@CovidVictimas
obsse76bhTsPWME's profile picture. 趣味はサバゲー、サイクリング、映画鑑賞 多分ほとんどのツイートがサバゲーになると思いますがよろしくお願いします あとサバゲー歴は約4年くらいになります

イーサン「二等兵」

@obsse76bhTsPWME
AnilvanderZee's profile picture. Former professional ballet dancer | Bed-bound M.E. patient | Using ✖️ to raise awareness for #MyalgicE | #IACI #art2cureME #pwme #millionsmissing

Anil van der Zee ©

@AnilvanderZee
DecodeMEstudy's profile picture. The world's largest study ever into #MEcfs. #pwME #DecodeMEStudy #pwME #MillionsMissing

DecodeME the ME/CFS Study

@DecodeMEstudy
9LD87S91jtiPWMe's profile picture.

คนตัวดำ

@9LD87S91jtiPWMe
claudiamcarrera's profile picture. #pwME on med leave from PhD in music/sound, media, & performance studies and American studies. #MEcfs & grad worker union activist. Writer, director, curator.

Claudia Carrera

@claudiamcarrera
ReiAlexandraYYC's profile picture. Unapologetically Disabled. Film Lover. Creative Dabbler. They/Them. NO unsolicited advice. 13 yrs Severe #MECFS #PWME Same username on 💙☁️

Rei

@ReiAlexandraYYC
93punkt3's profile picture. ME/CFS || ICD-10 G93.3 || Tweets for Awareness || often more questions than answers

One of those #pwME

@93punkt3
VGjSw6M7Pwme1EA's profile picture.

فجر💚💚الجنوب

@VGjSw6M7Pwme1EA
Hayleywest8's profile picture. Mum of 2 kids, 2 dogs & 1 husband. Supports Dalai Lama, Tibet & Jeremy Corbyn. Has M.E. #pwME #FreeTibet

Hayley West #FreeTibet #pwME

@Hayleywest8
Dis_DeeHazel's profile picture. 💜 Disney 💜 Theatre 💜 Family 💜 #pwME Lib Dems 🔶️ She/Her 🏳️‍🌈🇪🇺🇬🇧

Dee Hazel

@Dis_DeeHazel
HannahPearl_1's profile picture. Bookworm, wife and mum. Always exhausted, never bored. #pwME Books with Choc Lit/ Ruby and Heatseeker winning short story available now.

Hannah Pearl

@HannahPearl_1
Kirst_Johnson's profile picture. ♿️👩🏻‍🦼‍➡️ #pwME/ Former Teacher/ Portfolio Management/ Chartered Teacher & Fellow @CharteredColl/ @RCStweets Grad/ NPQSL/ Music & Drama/ Crochet Queen 🧶

Kirsten Johnson

@Kirst_Johnson
CraftyMissB's profile picture. I'm Beth, embroidery, craft & art are my buzz. Politically adrift #pwme #disabled

Crafty Miss

@CraftyMissB
xNFukMgvhPhPWme's profile picture.

วิ สมมุติ

@xNFukMgvhPhPWme
postgresperf's profile picture. #PostgreSQL engineer for @Snowflake @crunchydata, database and audio author. Family advocate for #MyalgicEncephalomyelitis #POTS #PwME #MEcfs patients.

Gregory Smith

@postgresperf
Pam's profile picture. Fighting for women's health equity, #MEAction board, #MillionsMissing, #pwme

Pam Laird

@Pam
mecfsbiobank's profile picture. Driving clinical and biomedical research for recognition, diagnosis and treatment of ME/CFS at @LSHTM. Home of the UK ME/CFS Biobank. Advocating for #pwME.

CureME - UK ME/CFS Biobank

@mecfsbiobank
mcmotos7's profile picture. CIE-10 G93.32 / CIE-11 8E49 ⬇️ #EncefalomielitisMiálgica #pwME #PacienteExperto

Mari Carmen Motos

@mcmotos7
FunWithCFS's profile picture. #pwME (and on-hold Phd student) fighting for #MECFS awareness. Creates funny videos for #spoonies on her good days 😊 https://t.co/6oiUClnHna

🇺🇦Yules with ME/CFS🇺🇦

@FunWithCFS
elljuna's profile picture. Tree-hugging socialist and devoted cat mom living the chronic life. #pwME ♿ #AuDHD #Neurodivergent She/Her (Taking a break for mental health's sake 😊 ❤️2All)

Juna

@elljuna
Talmandaniel's profile picture. Founder of Northern Life Stories, co-host of @pempodcast23, photographer and blogger. PwME, sidelined social worker, grief dealer, joy peddler, SAFC fan, He/Him

Daniel Moore

@Talmandaniel
jmatwood's profile picture. Immature/informative/TMI tweets abt: 🦜, 🌱, 🐝, ♿, chronic illness, civil rights, silliness #pwME NO TERFS, NO UNSOLICITED ADVICE! Userpic/header: @effinbirds

Julie is A REAL BIRD

@jmatwood
cath_nz's profile picture. Quiet life in coastal Aotearoa New Zealand. Equity, empathy and compassion. Pro-cat. #pwME

Cath Jackson

@cath_nz
mostly_sleepy's profile picture. 👩‍🦼☀️🌱🪴🍕💚📺🍿 #pwME #exJW

Kat

@mostly_sleepy
lugaresxcomunes's profile picture. we need funding for research and treatments for Myalgic Encephalomyelitis and Long Covid NOW | #pwME #adhd

Flor 🥀

@lugaresxcomunes
AsociacionPEM's profile picture. Asociación de Personas con Encefalomielitis Miálgica (PEM) Spain #EncefalomielitisMiálgica #MyalgicEncephalomyelitis #TestimoniosPEM #pwME info.ongpem@gmail.com

ONG PEM

@AsociacionPEM
4Yyp1Fu0PwmeY7B's profile picture.

コト

@4Yyp1Fu0PwmeY7B
qpiPWMeAfx73040's profile picture.

足立亘

@qpiPWMeAfx73040
chronic_hopeful's profile picture. M.E. Advocate, Blogger, Artist & Gamer Housebound with #MyalgicE since 2015 #MillionsMissing #pwME #MEcfs #MEawareness Also at @MEawarePics

Char | ChronicallyHopeful.com

@chronic_hopeful
CBMEgroup's profile picture. CBME is a support group based in #Cambridge UK for people with #MECFS, #MyalgicE , #CFS, #PostViralFatigue, #Fibromyalgia, including #pwME caused by #LongCovid

Cambridge ME group

@CBMEgroup
visionsbypsyche's profile picture. psy/forest. MDNI pls. 20s. yt genderfluid tboy. #pwME, bedbound/homebound. art, astrology, mutual aid. decolonize, land back. priv: @psystemfailure

*sigh* 🌬️ pinned?

@visionsbypsyche
impossumble_'s profile picture. Disabled and loud about it. RT and venting heavy. Far too many interests to list. #pwME #millionsmissing #mecfs

🌈🌱Poss 🖖🏻♿

@impossumble_
exposing_pwme's profile picture.

ExposingME.com

@exposing_pwme
Squashedhedgi's profile picture. Tube-fed, bedbound, a very severe M.E veteran, injured in this battle. Unlikely to come through intact or alive. UK harmed pwME & then neglected us. LW-green

Kerry Newnham

@Squashedhedgi
swampflora's profile picture. alex. they/them. biracial. #pwME c. 2002. mostly horizontal since 2019. header art by titsay.

🦇 cdc hater 🦇

@swampflora
MEFoggyDog's profile picture. Working to improve the quality of life of M.E. patients using every available means and opportunity #SocialEnterprise #pwME Linktree - https://t.co/TNEwofcNnm

ME Foggy Dog

@MEFoggyDog
DafoeWhitney's profile picture. Severe ME/CFS patient and advocate. Sick since 2004, bedridden since 2013. Never. Giving. Up. ✊ Useful info for ME/CFS and Long Covid patients in bio link.
Whitney Dafoe
@DafoeWhitney
10.11.

Time keeps passing by without a clue, That I’m lying here alone inside this room, I can’t live my life like others do, So please stop passing by and get a clue. ======= #mecfs #chronicillness #pwME #LongCovid

DafoeWhitney's tweet image. Time keeps passing by without a clue, That I’m lying here alone inside this room, I can’t live my life like others do, So please stop passing by and get a clue. ======= #mecfs #chronicillness #pwME #LongCovid
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katiamek's profile picture. 27. greek former Architecture student, athlete and 3D artist dealing with severe #LongCovid and #SevereME since 2021. . inst: k_aotic
Katiana.
 @katiamek
31.10.

This is the food I get as a patient with severe ME (It’s all fried). When you lose the capability to nurture yourself unfortunately you can’t control anything. I’ve begged and explained what my GI can tolerate and need. Nothing changes. Ever. They just don’t care. #pwme #mecfs

katiamek's tweet image. This is the food I get as a patient with severe ME (It’s all fried). When you lose the capability to nurture yourself unfortunately you can’t control anything. I’ve begged and explained what my GI can tolerate and need. Nothing changes. Ever. They just don’t care. #pwme #mecfs
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DafoeWhitney's profile picture. Severe ME/CFS patient and advocate. Sick since 2004, bedridden since 2013. Never. Giving. Up. ✊ Useful info for ME/CFS and Long Covid patients in bio link.
Whitney Dafoe
@DafoeWhitney
14.10.

TODAY:  Everything is too much.  Everything is too much to bear.  Everything that is good is gone.  All that is left is keeping on. (which I will) #mecfs #chronicillness #pwME #LongCovid

DafoeWhitney's tweet image. TODAY:  Everything is too much.  Everything is too much to bear.  Everything that is good is gone.  All that is left is keeping on. (which I will) #mecfs #chronicillness #pwME #LongCovid
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katiamek's profile picture. 27. greek former Architecture student, athlete and 3D artist dealing with severe #LongCovid and #SevereME since 2021. . inst: k_aotic
Katiana.
 @katiamek
25.11.

I literally don’t feel my leg from the severe deep bone pain and everything. And this is only one symptoms. This is a nightmare. #pwme #mecfs #longcovid

katiamek's tweet image. I literally don’t feel my leg from the severe deep bone pain and everything. And this is only one symptoms. This is a nightmare. #pwme #mecfs #longcovid
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katiamek's profile picture. 27. greek former Architecture student, athlete and 3D artist dealing with severe #LongCovid and #SevereME since 2021. . inst: k_aotic
Katiana.
 @katiamek
05.10.

It’s the second time I’m trying a libre sensor to see what happens with my glucose and again it shows hypoglycaemia. Last time it wasn’t accurate when I checked with a blood glucose meter. Has anyone tried this? #pwme #glucose #mecfs #longcovid

katiamek's tweet image. It’s the second time I’m trying a libre sensor to see what happens with my glucose and again it shows hypoglycaemia. Last time it wasn’t accurate when I checked with a blood glucose meter. Has anyone tried this? #pwme #glucose #mecfs #longcovid
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katiamek's profile picture. 27. greek former Architecture student, athlete and 3D artist dealing with severe #LongCovid and #SevereME since 2021. . inst: k_aotic
Katiana.
 @katiamek
21.09.

I got this commode toilet chair gifted. My parents have been denying one to me for years. But it’s too late now. I can barely stand up for it and I have severe PEM after it. I barely exist.I know I need diapers but they won’t agree or help me with that. Fucked up. #severeme #pwme

katiamek's tweet image. I got this commode toilet chair gifted. My parents have been denying one to me for years. But it’s too late now. I can barely stand up for it and I have severe PEM after it. I barely exist.I know I need diapers but they won’t agree or help me with that. Fucked up. #severeme #pwme
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WildlifeLucy's profile picture. Nature lover🐦, peace seeker, gentle soul. From engineer to psychology graduate. Now more husk than human🐌: Housebound Pw #MECFS #PoTS #CPTSD #Menieres
Lucy 🐾
 @WildlifeLucy
28.08.

Hello friends #pwME #pwLC, I'm trying to find a sustainable way to have my hair washed. Does anyone have a nifty hack to lie back & have their hair washed over the bath? I'm thinking a cushioned bench with some sort of back support 👇. I need to be able to just lie there 😅#MECFS

WildlifeLucy's tweet image. Hello friends #pwME #pwLC, I'm trying to find a sustainable way to have my hair washed. Does anyone have a nifty hack to lie back & have their hair washed over the bath? I'm thinking a cushioned bench with some sort of back support 👇. I need to be able to just lie there 😅#MECFS
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magnetoJJ's profile picture. Director at Magneto FIlms, making films for not for profits. Currently shooting photos of #PwME. Living with #ME since 1987
Jeremy Jeffs
 @magnetoJJ
23.08.

From Lives We Cannot Live: 24–28 Sept, Oxo Tower Gallery. #pwme #documentaryphotography It takes nearly 6 months to arrange a shoot with Shreya. She was ill, I was ill and then I was ill again...

magnetoJJ's tweet image. From Lives We Cannot Live: 24–28 Sept, Oxo Tower Gallery. #pwme #documentaryphotography It takes nearly 6 months to arrange a shoot with Shreya. She was ill, I was ill and then I was ill again...
magnetoJJ's tweet image. From Lives We Cannot Live: 24–28 Sept, Oxo Tower Gallery. #pwme #documentaryphotography It takes nearly 6 months to arrange a shoot with Shreya. She was ill, I was ill and then I was ill again...
magnetoJJ's tweet image. From Lives We Cannot Live: 24–28 Sept, Oxo Tower Gallery. #pwme #documentaryphotography It takes nearly 6 months to arrange a shoot with Shreya. She was ill, I was ill and then I was ill again...
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magnetoJJ's profile picture. Director at Magneto FIlms, making films for not for profits. Currently shooting photos of #PwME. Living with #ME since 1987
Jeremy Jeffs
 @magnetoJJ
26.09.

We’ve been asking people how the exhibition makes them feel …. #mecfs #pwme

magnetoJJ's tweet image. We’ve been asking people how the exhibition makes them feel …. #mecfs #pwme
magnetoJJ's tweet image. We’ve been asking people how the exhibition makes them feel …. #mecfs #pwme
magnetoJJ's tweet image. We’ve been asking people how the exhibition makes them feel …. #mecfs #pwme
magnetoJJ's tweet image. We’ve been asking people how the exhibition makes them feel …. #mecfs #pwme
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SteveFifield3's profile picture. Informed decisions from verifiable truth & facts please. Avoid unsubstantiated opinions / beliefs. #Equality #justbe #inclusion #LGBT+ ally. ME/CFS 😢 #pwme
Steve Fifield @stevefifield.🦋.social
 @SteveFifield3
14.12.

Post Exertional Malaise NOT just exaggeration of "Boom and Bust", energy averaged out over time out. My PEM in blue below shows I am wrecked for a MUCH LONGER period than the exertion over my baseline. Why do even the most recent official documents get this wrong? #pwME #pwLC

SteveFifield3's tweet image. Post Exertional Malaise NOT just exaggeration of "Boom and Bust", energy averaged out over time out. My PEM in blue below shows I am wrecked for a MUCH LONGER period than the exertion over my baseline. Why do even the most recent official documents get this wrong? #pwME #pwLC
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katiamek's profile picture. 27. greek former Architecture student, athlete and 3D artist dealing with severe #LongCovid and #SevereME since 2021. . inst: k_aotic
Katiana.
 @katiamek
23.08.

I think I’ll never be able to accept this. #severeme #mecfs #pwme #longcovid

katiamek's tweet image. I think I’ll never be able to accept this. #severeme #mecfs #pwme #longcovid
katiamek's tweet image. I think I’ll never be able to accept this. #severeme #mecfs #pwme #longcovid
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katiamek's profile picture. 27. greek former Architecture student, athlete and 3D artist dealing with severe #LongCovid and #SevereME since 2021. . inst: k_aotic
Katiana.
 @katiamek
11.09.

(1) I have an inside stye and my eye is swollen for 4 days now. I told the nurse to send my images of to an opthalmologist. The prescribed antibiotic drops and cream and hot compresses. The nurse messaged me “this happens because of the constant darkness”. SERIOUSLY? #mecfs #pwme

katiamek's tweet image. (1) I have an inside stye and my eye is swollen for 4 days now. I told the nurse to send my images of to an opthalmologist. The prescribed antibiotic drops and cream and hot compresses. The nurse messaged me “this happens because of the constant darkness”. SERIOUSLY? #mecfs #pwme
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DecodeMEstudy's profile picture. The world's largest study ever into #MEcfs. #pwME #DecodeMEStudy #pwME #MillionsMissing
DecodeME the ME/CFS Study
 @DecodeMEstudy
12.05.

This #WorldMEday we want to take a pause & recognise the challenges, stigma & neglect that many #pwME face. We hope that #DecodeME can pave the way forward in accelerating research into M.E./CFS & will help to set a standard in research to include voices of pw lived experiences.

DecodeMEstudy's tweet image. This #WorldMEday we want to take a pause & recognise the challenges, stigma & neglect that many #pwME face. We hope that #DecodeME can pave the way forward in accelerating research into M.E./CFS & will help to set a standard in research to include voices of pw lived experiences.
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mrsb27's profile picture. Just a normal mum & wife living with ME/CFS and fibromyalgia, but looking on the bright side 😊 #ME #CFS #fibromyalgia #pwME #chronicillness
Joanne Bailey
 @mrsb27
23.02.

I have been surviving #MECFS for 16 years now.There is no treatment and no known cure. There IS a plan for reasearch to help #pwme but the government have refused to fund it #pwme are not living, we are just surviving and have been forgotten @wesstreeting please find the plan

mrsb27's tweet image. I have been surviving #MECFS for 16 years now.There is no treatment and no known cure. There IS a plan for reasearch to help #pwme but the government have refused to fund it #pwme are not living, we are just surviving and have been forgotten @wesstreeting please find the plan
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lifeinacrash's profile picture. Danced around the ME/CFS spectrum for 7 years. Here's me making sense of it - https://t.co/yrWFMjHDOF #MECFS
KJ Cassells
 @lifeinacrash
27.12.

A day sat on the couch after a busy Christmas day. The same amount of stress on my body if I was actually boxing all day. #MECFS #pwme

lifeinacrash's tweet image. A day sat on the couch after a busy Christmas day. The same amount of stress on my body if I was actually boxing all day. #MECFS #pwme
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katiamek's profile picture. 27. greek former Architecture student, athlete and 3D artist dealing with severe #LongCovid and #SevereME since 2021. . inst: k_aotic
Katiana.
 @katiamek
21.11.

Is anyone else having TMJ pain / facial pain along with swelling? This is my right side of face. And no that wasn’t my normal before getting sick. It’s really puffy and feels swelled up. It’s the side I have my most pain, migraines. #mecfs #tmj #pwme #longcovid

katiamek's tweet image. Is anyone else having TMJ pain / facial pain along with swelling? This is my right side of face. And no that wasn’t my normal before getting sick. It’s really puffy and feels swelled up. It’s the side I have my most pain, migraines. #mecfs #tmj #pwme #longcovid
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katiamek's profile picture. 27. greek former Architecture student, athlete and 3D artist dealing with severe #LongCovid and #SevereME since 2021. . inst: k_aotic
Katiana.
 @katiamek
16.09.

That’s certainly not what I expected my room to look like at 27 yrs old. (Mind you the commode is being refused to me for YEARS and was gifted by a friend). #pwme #severeme #mecfs #longcovid

katiamek's tweet image. That’s certainly not what I expected my room to look like at 27 yrs old. (Mind you the commode is being refused to me for YEARS and was gifted by a friend). #pwme #severeme #mecfs #longcovid
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