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New paper showing the Time to Pre-randomization Seizure Count (T-PSC) design shortened placebo exposure and was sufficient to observe tolerability and safety for focal-onset seizure trials. onlinelibrary.wiley.com/doi/10.1111/ep… @EpilepsiaJourn @AmEpilepsySoc
The future of epilepsy care starts with you. Stay ahead with AES Learn. buff.ly/3WNhaEu #EpilepsyEducation #AESLearn
No matter where you are on your epilepsy journey, we're here for you. Connect with your local Epilepsy Foundation for support, guidance, and a sense of community. Visit epilepsy.com/local?utm_camp… or call 1-800-332-1000 (1-866-748-8008 en español).
We posted this on IG a few hours ago, and it already has 4300+ views and almost 100 saves. Parents of children with refractory epilepsy want information. We're here for it! #PurpleDay2025
In case you missed it, @AANpublic, @EpilepsyFdn and the American #Epilepsy Society, have released an important position statement on driving with epilepsy. Read the full statement here: buff.ly/k1DKsfW #SeizureSafety #EpilepsySafety #Epilepsy
AES is advocating for the National Plan for Epilepsy! 🧠💜 Last week, AES took to Capitol Hill to push for critical epilepsy research, access to care, and improved patient outcomes. Together, we can drive change! Read More: buff.ly/41ylZnD #epilepsy #neurotwitter
Rare Disease Day is coming up on Friday! The Rare Epilepsy Network is so proud to have so many advocates out there celebrating this week in their countries, cities, states, and capitals! Please celebrate with us by spreading the word!
Cali shares her son's epilepsy journey, emphasizing the importance of trusting your instincts, seeking second opinions, and their decision to pursue brain surgery. She hopes to inspire other parents and caregivers to never give up. Read more and share: epilepsy.com/stories/inspir…
👇🏼👇🏼👇🏼 This!
Check out the latest from the @PERCepilepsy LGS special interest group! ⬇️ Dr Samanta details recently published papers on neuromodulation in this condition @LGS_Foundation @TracyDixonSalaz
There are so many great charities out there. This one is my favorite. If you would like to help us end suffering cause by LGS, please consider donating today. We can’t do it without you. Let’s change the world!
We are dedicated to providing personalized, one-on-one support to families navigating the complexities of LGS. Each year, over 800 families receive tailored assistance, ensuring they feel supported and empowered. 💜 Give today at ow.ly/G0gV50UpxyP
Something to do after AES 2024. m.facebook.com/reel/168515364… #AES2024
While at #AES2024, our team is performing communication assessments, clinical grade neurological exams - all combined video, audio & wearables to objectively define genetic epilepsies. Todays focus, #SCN8A related neurodevelopment disorders and #epilepsies at their conference.
At #AES2024
Harmful and Disruptive Behavior in Epilepsy childneurologyfoundation.org/providers-or-r…. Important issue that requires an “ecosystem” as described by one of speakers. This covers the entire age range.
Harmful and Disruptive Behavior in Epilepsy childneurologyfoundation.org/providers-or-r…. Important issue that requires an “ecosystem” as described by one of speakers. This covers the entire age range.
Congratulations to the 2024 Rebecca Kaufman AES Clinical Award Winner, Sucheta M. Joshi, MD, MS, FAES! #AES2024
Will you be joining us in LA for #AES2024? Share the appropriate graphic on your socials using the #AES2024 hashtag to connect with other attendees!
Enroute to AES2024. SEA - LAX. Cannot wait to participate in Fellows program and introduce and meet new people to this fantastic meeting.#AES2024
Polishing up a talk on imaging in #zebrafish models for genetic epilepsy | come join us for what promises to be an exciting, thought-provoking & educational symposium #AES2024 @AmEpilepsySoc @curedravet @CureEpilepsy
So thankful to @PraxisMedicines for becoming an Ally in Research with @PERCepilepsy!
Our Board of Directors is delighted to announce that Praxis Precision Medicines has joined our Allies in Research Program, directly supporting our mission. Thank you for your investment in PERC!
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