Project CADASIL
@ProjectCADASIL
Working to increase awareness of #CADASIL, share resources and news, and secure funding for the advancement of therapies, treatments, and ultimately a cure.
Thank you @cziscience for bringing patients and researchers together to make discoveries that will help rare disease and beyond. Together we’ll end CADASIL 🙏 @SinaiBrain @ProjectCADASIL @cureCADASIL
Patients 🤝 Partners CADASIL patient + advocate Ki Coale & clinician scientist Fanny Elahi spoke about their work decoding the rare vascular neurodegenerative condition. Learn more about their partnership + others czi.co/4bCG5ij
If you have or are at risk for #CADASIL, please consider signing up to be a part of @FannyElahi's study, which is supported by the @ChanZuckerberg Initiative. If you would like to learn more or are interested in participating, email [email protected] or visit…
Our Patient-Investigator Meeting is on June 29! Join us for updates on #CADASIL research from experts from around the world 🌎 Register for in-person or virtual here: curecadasil.org/2024-curecadas…
This Scientific Statement from the American Heart Association | Stroke was published in August of 2023 and may be helpful to print and bring to doctor's appointments. #CADASIL ahajournals.org/doi/full/10.11…
📣 Save the date 🗓️ This year’s Patient-Investigator Meeting is 6/29! Join us in-person at the Eaglewood Resort in Itasca, IL, or tune in to our live stream 🖥️, for talks by leading #CADASIL researchers & conversations with community members. Register: conta.cc/3wvnB51
The #CADASIL Connection webinar recording for April is now available. #cureCADASIL Follow the link: conta.cc/3Qh23jk
Exciting breakthrough in vascular dementia research! 🧠 Our latest pre-print identifies unique blood proteomic signatures in CADASIL, the most prevalent monogenic form of vascular cognitive impairment and dementia (VCID). biorxiv.org/content/10.110…
"Although #CADASIL is incurable, awareness of it among the public and healthcare professionals is critical." Learn more about the rare vascular disease, one man's story, and his wife's determination to spread awareness. @northshoremag nshoremag.com/faces-places/f…
![ProjectCADASIL's tweet card. Tom Connor loved Disney World. “We spent our vacations at Disney,” remembers his wife, Sheila. “Sometimes we went more than once a year. Tom’s idea of a vacation was getting […]](https://pbs.twimg.com/card_img/1988416361882697728/vS5mu4fx?format=jpg&name=orig)
New paper from the Elahi Lab! Our latest work in @BrainComms provides new clues into the connection between enlarged perivascular spaces (ePVS), inflammation & cognition in #CADASIL. 🔗➡️academic.oup.com/braincomms/art…
Team CADASIL has been invited back to The Million Dollar Bike Ride for Orphan Disease Research @MDBRide4Rare for 2024 and registration is now open! In the past five years, Team CADASIL has raised over half a million dollars through MDBR which has supported CADASIL researchers in…
Michael was diagnosed with #CADASIL after a stroke in 2015. Since then, he and his family have focused on raising money to combat CADASIL. Michael and his family’s work raising funds and increasing awareness includes proceeds from four children’s books he’s written, bike rides,…
Do you know the symptoms of #CADASIL?@teamconnor4cada @RareDiseases @FannyElahi @ProjectCADASIL @CADASILAware #stroke #migraine White matter disease #cognitiveimpairment #KnowledgeIsPower Learn more here. youtu.be/Hy8zi-oYT3I?si…
It’s an honor to be a part of the CADASIL community and to care for those affected. Grateful to the patients & families who participate in research and to the scientists and research coordinators in my lab who have joined our shared mission to develop treatments for CADASIL.
To celebrate the new year, today Humans of #CADASIL features @FannyElahi, a physician and behavioral neurologist-neuroscientist at @IcahnMountSinai. Dr. Fanny Elahi is a CADASIL expert and is leading the charge to develop treatments and eventually a cure for CADASIL. In addition…
To celebrate the new year, today Humans of #CADASIL features @FannyElahi, a physician and behavioral neurologist-neuroscientist at @IcahnMountSinai. Dr. Fanny Elahi is a CADASIL expert and is leading the charge to develop treatments and eventually a cure for CADASIL. In addition…
What is #CADASIL & why should you know more about this disease? 👇 Share w/ family & friends @teamconnor4cada @RareDiseases @FannyElahi @ProjectCADASIL @CADASILAware #stroke #migraine #cognitiveimpairment #KnowledgeIsPower youtu.be/Hy8zi-oYT3I?si…
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CADASIL Awareness
I’m honored to have been selected as a Top 10 Conversation of 2023 at Aspen Ideas. Such a wonderful meeting of creative minds across societal sectors.
As #AspenIdeasHealth wraps its 10th anniversary year, we're excited to share the 10 most-watched sessions of 2023, which sparked our community's curiosity on topics ranging from women's health to biomedical breakthroughs. Explore ⬇️ aspenideas.org/collections/he…
I’m so grateful to research participants who join our study. Their contributions drive the science that gives me hope! Please consider joining a study and helping us find a cure for #CADASIL — email our research coordinator [email protected] for info. elahilab.com/studies
Today our Humans of #CADASIL series is featuring Barney. This is Barney and his sister, Marilyn. Barney was diagnosed with CADASIL in 2010. His doctor says he’s a bit of an outlier; as he is doing pretty well at age 72. Barney is participating in both the CADASIL Consortium and…
Today our Humans of #CADASIL series is featuring Barney. This is Barney and his sister, Marilyn. Barney was diagnosed with CADASIL in 2010. His doctor says he’s a bit of an outlier; as he is doing pretty well at age 72. Barney is participating in both the CADASIL Consortium and…
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