CRID - Unique Patient ID/clinical research
@_TheCRID
More data sharing, less data silos. I prefer BlueSky . Find me at: https://bsky.app/profile/thecrid.bsky.social
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🍀 PBC Awareness Day -- Sept 14th, 2025 -- Lá Feasachta PBC 🍀 PBC Ireland is here to support, connect, and advocate for everyone living with Primary Biliary Cholangitis in Ireland. pbcireland.org
September is PBC Awareness Month...my voice, your voice, our voice...one community: PBC Ireland.
The PBC Ireland Patient Registry is now live!
PBC Ireland has received full ethics approval from the IRB for our new patient registry. This marks a major milestone in our efforts to gather real-world data, support research and improve the lives of people living with PBC in Ireland. More to come! #PBC #PatientRegistry #Rare
CRID is the most patient-centric UPI system in research today. It bypasses regulatory complexity by staying out of clinical care and staying inside research domains. It enables ethical reuse of existing patient data and biospecimens and works in all rare disease networks.
We’ve released the Automatic CRID Creation API, making it easier for 3rd party applications to generate Clinical Research IDs (CRIDs) directly from within their systems. This is a big step toward improving data linkage across research studies #CRID #NoMoreDataSilos #RareDiseases
If you're a rare disease org or academic researcher using the CRID and your IRB needs support in determining if CRID is PHI or not, please contact us to get our statement, “Why the CRID Is Not PHI and Should Be Allowed in De-identified Research Datasets,” to assist in your IRB
After 12 years focusing on the US rare disease market, CLIRINX is expanding in Ireland & the EU. We've deployed AWS infrastructure in Dublin to support local patient registries, natural history studies & clinical trial readiness. #RareDiseases #Ireland #GDPR
300+ genes, 6500+ rare disease patients — CRID is growing! The CRID Clinical Research ID database is helping to unlock data silos like never before. #Genomics #Genes #ClinicalResearchID #CRID #UniquePatientID #RareDiseases Also on BlueSky thecrid.bsky.social
No longer active on X. Find me at: bsky.app/profile/thecri…
Exciting update: The CRID server infrastructure has been fully upgraded to use the latest Amazon AWS components! This enhancement brings a big boost to performance, bolsters security, and ensures even greater reliability for our users. #AWS #RareDisease #EndDataSilos #CRID
Unleash the power of research data with unique patient IDs. Explore the possibilities at TheCRID.org #crid #uniquepatientid #raredisease #epilepsy #clirinx #informatics #innovation
🔗 CRID (Clinical Research ID): Connect patient data across research studies. theCRID.org 🔐 RDDR (Rare Disease Data Repository): Share research data securely. theRDDR.org #RareDiseases #Epilepsy #InformaticsInnovation
Are you a rare disease organization or researcher with valuable datasets or protocols to share? Let us help you to store, organize, and share your rare disease data, unlocking a world of possibilities for research and collaboration! theRDDR.org #raredisease
CRID seamlessly integrates with the CLIRINX Rare Disease IT system. Automatically generate unique CRID patient identifiers directly from the CLIRINX patient portal, streamlining your patient enrollment and data management. #fancyITStuff #rareDisease #EDC clirinx.com
We are pleased to announce the renewal of our IRB Approval for the CRID Unique Patient ID service. If you are interested in including CRID in your research study, please contact us at [email protected].
🌐 Exciting News! Visit our new website: clirinx.com 🌟 We provide innovative IT solutions for the rare disease research community, including: Electronic Data Collection Patient Portal Medical Imaging Adjudication CRID Unique Patient ID Data Visualization & Sharing
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