jaci Mac
@jacislk
#ME sufferer for 28 years. #Fibromyalgia. Mother. Global Citizen. Retired to spain. Hablo español.
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Something in the Blood in ME/CFS, Fibromyalgia and Long COVID III: Evidence Builds that Something in the Blood is Causing These Diseases #MECFS #longCOVID #FM healthrising.org/blog/2024/10/1…
healthrising.org
Something in the Blood in ME/CFS, Fibromyalgia and Long COVID III: Evidence Builds that Something...
Studies suggest that something in the blood is causing or contributing to chronic fatigue syndrome (ME/CFS), fibromyalgia, and long COVID.
#ME is like trying to recover from multiple marathons and knowing you have another one to run today. There comes a time when the body cannot do anymore 😩
This isn’t a bad piece, and I salute the courage of those who allowed their stories to be told. But headlines matter, given that many people never read beyond them. #ME has nothing whatsoever to do with tiredness. It’s pain and suffering on a scale that most cannot comprehend.
RECLAMAMOS QUE SE INCREMENTE EL PIB QUE ESPAÑA DEDICA A CUIDADOS HASTA EL 1,5% chng.it/WRnFpjKC via @change_es
To share my credentials: -8 years of ME/CFS experience -8 years of professional research experience -3 years of research in ME/CFS experience -Approx. 10,000 publications read -Top of my graduate class; ran a genetics department -Thousands of patients personally talked to through…
Yes, I have three wheelchairs two of them electric. The only one I can use is a manual wheelchair which my husband has to push. Outings for me are a rarity and usually to the doctor or the hospital. 22/24 in bed despite an active questing mind. 33 years of M.E. Now severe.
This isn’t a bad piece, and I salute the courage of those who allowed their stories to be told. But headlines matter, given that many people never read beyond them. #ME has nothing whatsoever to do with tiredness. It’s pain and suffering on a scale that most cannot comprehend.
The amazing people at @GreatOrmondSt are building a new Children’s Cancer Centre to transform the care of children with cancer. If you can please donate to @GOSHCharity & help more children like Ralphie have a happy healthy life after cancer gosh.org/donate/the-chi… #BuildItBeatIt
We are looking at funding for a new study on PEM. Pilot study. Clinical study with Cardiovascular Medicine, Oxford Brookes and Poland will link with other molecular projects studying blood. Fingers crossed. jla.nihr.ac.uk/priority-setti…
Salvemos la sanidad pública chng.it/sgJyJqFy via @change_es
Increase Tax Threshold and State Pension for Pensioners to Living Wage Amount - Sign the Petition! chng.it/WT7F2RSZdy via @UKChange
Extend Awaab's Law to private tenants to stop more children from dying from damp and mould - Sign the Petition! chng.it/kvwBjyFg5w via @UKChange
Wonderful to see photos of you in your dancing years @AnilvanderZee
Today is international day of dance. Because of ME I can't physically really dance anymore but I'm still moving freely in my head. This is me as a ballet teacher in Cinderella by Stijn Celis. I'm not too sure about the hairdo. My assistant is mighty attractive though!!! 😉
Mandate All Statutory Pay to Meet the Living Wage Standard - Sign the Petition! change.org/p/mandate-all-… via @UKChange
Increase State Pension to Match the Living Wage - Sign the Petition! chng.it/6Qq5hRGd via @UKChange
MPs must vote on WASPI compensation NOW - Sign the Petition! chng.it/xHTmKTxw via @UKChange
The picture is from an article by Amanda Francey about the situation for #MECFS patients in Australia. amandafrancey.medium.com/australians-ab…
Apologetics for a psychogenic view on #MECFS often dismiss critical voices from patients as a nuisance, as people who should have no say about their own health and accept what “authorities” say—even if the evidence is flawed. They forget the terrible price some voices must pay.
bbc.co.uk/news/business-…. We need to take this seriously, increasing research investment. It is not going to go away or get better. We need to find out why! Chronic conditions like #pwme #covidlong #fibromialgia #MultipleSclerosis #lyme will all play a role.
Australia 🇦🇺 #ME
"Chronic fatigue support needs 'urgent' funds: advocates" canberratimes.com.au/story/8566573/… Emerge Australia CEO said the group would travel to Canberra on Wednesday to push for funding to be made available for the thousands living with #MyalgicEncephalomyelitis/ #ChronicFatigueSyndrome 1/
Ty @sarahftyson ! “most important…change for physiotherapists is rejection of the notion that ME/CFS is caused by deconditioning, ‘dysfunctional illness beliefs’ or ‘exercise avoidance’” + #PwME “should not be offered exercise-based treatments” sciencedirect.com/science/articl… #MEcfs
Have you asked if you can donate blood with #LongCovid ? #PWME cannot. They say there is not much wrong with us, but they won’t accept our blood. Why? #ME
LOL if #LongCOVID isn’t real or serious, why can’t we get life insurance?! 🙄 #hypocrites
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