Sharon
@sharonAPevsner
Mom of a son w/ IBD & epilepsy. Ped. IBD advocate. Former pharma, Interest include: VNS/bioelectric med., NeuroGI, genetic testing, microbiome. Trail runner
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Time to play Russian roulette with remission! @aetna will stop paying for stelara come July and my son will be required to start a biosimilar. When will insurance companies put patients before profits?
We need better treatments better yet, how about a cure! medpagetoday.com/gastroenterolo…
medpagetoday.com
Loss of Anti-TNF Treatment Response Common in Crohn's Disease
Study identified factors and strategies for maintaining response
Thrilled to see results of the first US CurQD study led by @malloc_doc (bit.ly/curqdus) presented at Crohn's & Colitis Congress '24 and was such a pleasure to see the teams from @adacyte and @UCIMedSchool! Thank you @CrohnsColitisFn #CCCongress24 #ibd #gastroenterology
My heart hurts for Israel. @Evinature_ curQd has put my son into remission. 10 months on it and his bowel US looks better than ever. So grateful to these pioneers. @NirSalomon3 @ShomronH @malloc_doc
New study out in Clinical Gastroenterology and Hepatology showing a paradoxical effect of anti-TNF treatment in patients with IBD. cghjournal.org/article/S1542-… @drdanielward @DrTineJess @KristineAllin @GrundforskFond @aausund @AalborgUH @aalborg_uni
#ChantryFire Updated location - Santa Anita Cyn, N/O the dam, 2 acres Slow to moderate ROS in medium brush on east side of the canyon @LACoFDPIO
This
Where is the sense of urgency with #crohns & other #IBDs? The pandemic demonstrated that decisive action against a disease in record time IS possible. With Crohn's, decades have gone by & the needle has barely shifted in terms of treatments and cures. The time to act is now.
Jake's latest cal pro came back at 6! He hasn't seen a cal pro that low in years! @Evinature_ Here's the newly minted high schooler.
It's been a busy graduating season! My daughter is off to college and my son is off to high school! Whew!
Lucky enough to have run the Boston marathon twice, sending positive vibes for a great race day for all!
Bowel ultrasound Dec 2022 vs April 3, 2023. Started CurQD Jan 31, 23. Amazing results for my son's UC! @Evinature_ @NirSalomon3 @ShomronH @CrohnsColitisFn @ChildrensLA
Excited to share that my son's labs have all come back normal. He started #curQD in January! 🎉🎉
We are seeing great results with #CurQD!
Great presentation from Dr Nir Salomon from @sheba_medical @SHEBA_ on the benefits of #curcumin 🟡 and #QingDai 🔵 in active ulcerative colitis #IBD #GItwitter #CurQD induces rapid remission of active UC even in biologic ex patients! #GITelAviv2023
A Sheba Medical Center discovery in the Gastroenterology field: Prof. @ShomronH & Mr Nir Salomon have evaluated the efficacy of herbal combination of curcumin-QingDai (CurQD) in active ulcerative colitis (UC), & saw effective results for inducing remission in active UC patients.
This is a staggering number and it just keeps increasing. We are very concerned. Are you? Existing treatments will continue to be a band-aid until we know why. Together, we need to get to the bottom of the cause(s) so we can reverse this statistic. #crohns #crohnsdisease #ibd
Happy New Year! So pleased to share our latest @propelacure video with the absolutely fantastic and brilliant @KateJeffrey1 from Moderna on two promising and fascinating topics in #Crohn’s Disease: epigenetics and the virome. #IBD #GITwitter #Crohn youtu.be/NuUjShGvRTg
🧵Another day, another thread with reasons to pass #TheBodyElectricAct. Today, we aren't going to focus on how much everything sucks and the whole world is burning, but on the incredible research happening that can change a whole lot of it.
![ImproveCareNow's profile picture. A Learning Health Network focused on improving health, care & cost for + with kids w/ #IBD 💚💙 #improvecarenow #myICN [RT/❤ ≠ endorsement]](https://pbs.twimg.com/profile_images/1039516495452106758/joT-BAzR.jpg)
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