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#bloomwithscleroderma search results

NCAresearchNHS's profile picture. Research & Innovation at Northern Care Alliance NHS Foundation Trust-Salford, Oldham, Fairfield, Rochdale. Also at https://t.co/alxEttueS8.
NCA Research NHS
 @NCAresearchNHS
Jun 29, 2023

Lovely to see the next generation of doctors helping out at #WorldSclerodermaDay - many thanks to Monisha and Lily for joining our patients ⁦@SalfordCO_NHS⁩ #BloomWithScleroderma ⁦@SclerodermaM⁩

NCAresearchNHS's tweet image. Lovely to see the next generation of doctors helping out at #WorldSclerodermaDay - many thanks to Monisha and Lily for joining our patients ⁦@SalfordCO_NHS⁩ #BloomWithScleroderma ⁦@SclerodermaM⁩
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NCAresearchNHS's profile picture. Research & Innovation at Northern Care Alliance NHS Foundation Trust-Salford, Oldham, Fairfield, Rochdale. Also at https://t.co/alxEttueS8.
NCA Research NHS
 @NCAresearchNHS
Jun 29, 2023

Great to hear about patient involvement (using their lived expertise and experience) shaping #scleroderma research, including in putting systems in place for earlier diagnosis through nailfold capillaroscopy ⁦@SalfordCO_NHS⁩ #BloomWithScleroderma

NCAresearchNHS's tweet image. Great to hear about patient involvement (using their lived expertise and experience) shaping #scleroderma research, including in putting systems in place for earlier diagnosis through nailfold capillaroscopy ⁦@SalfordCO_NHS⁩ #BloomWithScleroderma
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NCAresearchNHS's profile picture. Research & Innovation at Northern Care Alliance NHS Foundation Trust-Salford, Oldham, Fairfield, Rochdale. Also at https://t.co/alxEttueS8.
NCA Research NHS
 @NCAresearchNHS
Jun 29, 2023

Top tips on managing Raynaud’s - Dr Mariam Al-Attar warmly recommends stoping smoking ( with NHS help if needed) and layering up, as well as only using online advice from trusted organisations: esp ⁦@WeAreSRUK⁩ #BloomWithScleroderma

NCAresearchNHS's tweet image. Top tips on managing Raynaud’s - Dr Mariam Al-Attar warmly recommends stoping smoking ( with NHS help if needed) and layering up, as well as only using online advice from trusted organisations: esp ⁦@WeAreSRUK⁩ #BloomWithScleroderma
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NCAresearchNHS's profile picture. Research & Innovation at Northern Care Alliance NHS Foundation Trust-Salford, Oldham, Fairfield, Rochdale. Also at https://t.co/alxEttueS8.
NCA Research NHS
 @NCAresearchNHS
Jun 29, 2023

Barry’s top tip for living well with scleroderma - keep active. He swims and walks as well as keeping busy with his GB Taekwondo work and leading walks around the statues of Manchester! #BloomWithScleroderma ⁦@SclerodermaM⁩ ⁦@WeAreSRUK⁩ ⁦@VersusArthritis⁩

NCAresearchNHS's tweet image. Barry’s top tip for living well with scleroderma - keep active. He swims and walks as well as keeping busy with his GB Taekwondo work and leading walks around the statues of Manchester! #BloomWithScleroderma ⁦@SclerodermaM⁩ ⁦@WeAreSRUK⁩ ⁦@VersusArthritis⁩
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NCAresearchNHS's profile picture. Research & Innovation at Northern Care Alliance NHS Foundation Trust-Salford, Oldham, Fairfield, Rochdale. Also at https://t.co/alxEttueS8.
NCA Research NHS
 @NCAresearchNHS
Jun 29, 2023

We’re marking #WorldSclerodermaDay2023 ⁦@SalfordCO_NHS⁩ with an open day supporting patients to keep healthy & active. Here’s Sister Hayley Fox, ready to give advice on all things pulmonary #BloomWithScleroderma ⁦@SclerodermaM⁩ ⁦@WeAreSRUK⁩ ⁦

NCAresearchNHS's tweet image. We’re marking #WorldSclerodermaDay2023 ⁦@SalfordCO_NHS⁩ with an open day supporting patients to keep healthy & active. Here’s Sister Hayley Fox, ready to give advice on all things pulmonary #BloomWithScleroderma ⁦@SclerodermaM⁩ ⁦@WeAreSRUK⁩ ⁦
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NCAresearchNHS's profile picture. Research & Innovation at Northern Care Alliance NHS Foundation Trust-Salford, Oldham, Fairfield, Rochdale. Also at https://t.co/alxEttueS8.
NCA Research NHS
 @NCAresearchNHS
Jun 29, 2023

Psychologists from ⁦@NCAlliance_NHS⁩ now advising on managing negative thoughts - we can’t control these thoughts popping up but we do have a choice about how we react #BloomWithScleroderma

NCAresearchNHS's tweet image. Psychologists from ⁦@NCAlliance_NHS⁩ now advising on managing negative thoughts - we can’t control these thoughts popping up but we do have a choice about how we react #BloomWithScleroderma
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NCAresearchNHS's profile picture. Research & Innovation at Northern Care Alliance NHS Foundation Trust-Salford, Oldham, Fairfield, Rochdale. Also at https://t.co/alxEttueS8.
NCA Research NHS
 @NCAresearchNHS
Jun 29, 2023

Mouthcare is important but can be tricky with scleroderma - there were lots of samples and expert advice on hand here ⁦@SalfordCO_NHS⁩ today. The stall looks a lot emptier now! #BloomWithScleroderma ⁦@SclerodermaM⁩

NCAresearchNHS's tweet image. Mouthcare is important but can be tricky with scleroderma - there were lots of samples and expert advice on hand here ⁦@SalfordCO_NHS⁩ today. The stall looks a lot emptier now! #BloomWithScleroderma ⁦@SclerodermaM⁩
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NCAresearchNHS's profile picture. Research & Innovation at Northern Care Alliance NHS Foundation Trust-Salford, Oldham, Fairfield, Rochdale. Also at https://t.co/alxEttueS8.
NCA Research NHS
 @NCAresearchNHS
Jun 29, 2023

A big thank you to all the team who made today’s patient information day a success. We’re hearing great feedback that it was useful & inspiring, with lots of positive stories, top tips & some fantastic research in place for the future #BloomWithScleroderma ⁦@SclerodermaM⁩

NCAresearchNHS's tweet image. A big thank you to all the team who made today’s patient information day a success. We’re hearing great feedback that it was useful & inspiring, with lots of positive stories, top tips & some fantastic research in place for the future #BloomWithScleroderma ⁦@SclerodermaM⁩
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Fscleroderma's profile picture. Federation of European Scleroderma Associations aisbl is working to make scleroderma a well-known disease.
Fesca
 @Fscleroderma
Sep 27, 2022

@frk_bibo shares her inspiring story, giving us the strength to continue in our fight to help raise awareness for Systemic Sclerosis. #BloomWithScleroderma

Fscleroderma's tweet image. @frk_bibo shares her inspiring story, giving us the strength to continue in our fight to help raise awareness for Systemic Sclerosis. #BloomWithScleroderma
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NCAresearchNHS's profile picture. Research & Innovation at Northern Care Alliance NHS Foundation Trust-Salford, Oldham, Fairfield, Rochdale. Also at https://t.co/alxEttueS8.
NCA Research NHS
 @NCAresearchNHS
Jun 29, 2023

Think we’re all going to be doing the towel walk later! Lots of interest from our scleroderma patients ⁦@SalfordCO_NHS⁩ in these simple exercises to keep feet strong and supple. Thank you podiatrist David Warne #BloomWithScleroderma ⁦@SclerodermaM⁩

NCAresearchNHS's tweet image. Think we’re all going to be doing the towel walk later! Lots of interest from our scleroderma patients ⁦@SalfordCO_NHS⁩ in these simple exercises to keep feet strong and supple. Thank you podiatrist David Warne #BloomWithScleroderma ⁦@SclerodermaM⁩
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NCAresearchNHS's profile picture. Research & Innovation at Northern Care Alliance NHS Foundation Trust-Salford, Oldham, Fairfield, Rochdale. Also at https://t.co/alxEttueS8.
NCA Research NHS
 @NCAresearchNHS
Jun 29, 2023

Lots of practical tips today at ⁦@SalfordCO_NHS⁩ scleroderma patient day. Many thanks to Sue and Lisa from Me Time Salon iwho are offering advice on looking after your hair and skin if your movement is limited by scleroderma #BloomWithScleroderma ⁦@SclerodermaM⁩

NCAresearchNHS's tweet image. Lots of practical tips today at ⁦@SalfordCO_NHS⁩ scleroderma patient day. Many thanks to Sue and Lisa from Me Time Salon iwho are offering advice on looking after your hair and skin if your movement is limited by scleroderma #BloomWithScleroderma ⁦@SclerodermaM⁩
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Fscleroderma's profile picture. Federation of European Scleroderma Associations aisbl is working to make scleroderma a well-known disease.
Fesca
 @Fscleroderma
Jun 1, 2023

Celebrating #Scleroderma Month! 🌼 Join us in raising awareness, fostering unity, and advocating for a brighter future for those affected by this rare disease. Together, we can make a difference! #BloomWithScleroderma

Fscleroderma's tweet image. Celebrating #Scleroderma Month! 🌼 Join us in raising awareness, fostering unity, and advocating for a brighter future for those affected by this rare disease. Together, we can make a difference! #BloomWithScleroderma
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Fscleroderma's profile picture. Federation of European Scleroderma Associations aisbl is working to make scleroderma a well-known disease.
Fesca
 @Fscleroderma
Sep 27, 2022

The realities of #SystemicSclerosis…what are your thoughts? #BloomWithScleroderma

Fscleroderma's tweet image. The realities of #SystemicSclerosis…what are your thoughts? #BloomWithScleroderma
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NCAresearchNHS's profile picture. Research & Innovation at Northern Care Alliance NHS Foundation Trust-Salford, Oldham, Fairfield, Rochdale. Also at https://t.co/alxEttueS8.
NCA Research NHS
 @NCAresearchNHS
Jun 29, 2023

We’re loving the foot exercises from ⁦@NCAlliance_NHS⁩ podiatrist David Warne - foot problems are common with scleroderma, with a risk of pain and falls. David says there are some great videos to help on ⁦@VersusArthritis⁩ website #BloomWithScleroderma ⁦

NCAresearchNHS's tweet image. We’re loving the foot exercises from ⁦@NCAlliance_NHS⁩ podiatrist David Warne - foot problems are common with scleroderma, with a risk of pain and falls. David says there are some great videos to help on ⁦@VersusArthritis⁩ website #BloomWithScleroderma ⁦
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NCAresearchNHS's profile picture. Research & Innovation at Northern Care Alliance NHS Foundation Trust-Salford, Oldham, Fairfield, Rochdale. Also at https://t.co/alxEttueS8.
NCA Research NHS
 @NCAresearchNHS
Jun 29, 2023

Daily stretching exercises help to maintain hand mobility, says ⁦@PhysioWillGreg⁩ - watch some helpful videos on @wearesruk website #BloomWithScleroderma ⁦@SclerodermaM⁩

NCAresearchNHS's tweet image. Daily stretching exercises help to maintain hand mobility, says ⁦@PhysioWillGreg⁩ - watch some helpful videos on @wearesruk website #BloomWithScleroderma ⁦@SclerodermaM⁩
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aytoviedo's profile picture. Cuenta oficial Ayuntamiento de Oviedo / Official account of Oviedo City Council | Alcalde / Mayor: @canteli_alfredo | Web-Site: https://t.co/B6CSDMH9jr
@aytoviedo
 @aytoviedo
Jun 29, 2023

Oviedo se suma hoy a la celebración del #DíaMundialdelaEsclerodermia con el objetivo de dar visibilidad a esta enfermedad rara que afecta a 14.000 personas en España #DMEsclero2023 #BloomWithScleroderma

aytoviedo's tweet image. Oviedo se suma hoy a la celebración del #DíaMundialdelaEsclerodermia con el objetivo de dar visibilidad a esta enfermedad rara que afecta a 14.000 personas en España #DMEsclero2023 #BloomWithScleroderma
aytoviedo's tweet image. Oviedo se suma hoy a la celebración del #DíaMundialdelaEsclerodermia con el objetivo de dar visibilidad a esta enfermedad rara que afecta a 14.000 personas en España #DMEsclero2023 #BloomWithScleroderma
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NCAresearchNHS's profile picture. Research & Innovation at Northern Care Alliance NHS Foundation Trust-Salford, Oldham, Fairfield, Rochdale. Also at https://t.co/alxEttueS8.
NCA Research NHS
 @NCAresearchNHS
Jun 29, 2023

A scleroderma diagnosis hasn’t held patient Barry Wright back - he’s retrained as a teacher, worked at the Commonwealth Games and is now part of the back room team for GB Taekwondo. He also does charity work and supports research here ⁦@SalfordCO_NHS⁩ #BloomWithScleroderma

NCAresearchNHS's tweet image. A scleroderma diagnosis hasn’t held patient Barry Wright back - he’s retrained as a teacher, worked at the Commonwealth Games and is now part of the back room team for GB Taekwondo. He also does charity work and supports research here ⁦@SalfordCO_NHS⁩ #BloomWithScleroderma
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Fscleroderma's profile picture. Federation of European Scleroderma Associations aisbl is working to make scleroderma a well-known disease.
Fesca
 @Fscleroderma
Sep 27, 2022

Huge thank you to @toiapatrizia for these insightful opening remarks. #BloomWithScleroderma

Fscleroderma's tweet image. Huge thank you to @toiapatrizia for these insightful opening remarks. #BloomWithScleroderma
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Neil_Betteridge's profile picture. Patient advocate; Senior Director for Europe, Global Alliance for Patient Access (GAfPA); Executive / WHO Liaison, Global Alliance for Musculoskeletal Health.
Neil Betteridge
 @Neil_Betteridge
Sep 27, 2022

Thank you Annelies & Linda for having the courage & generosity to share your experience of living with #scleroderma in the European Parliament. Strong patient advocacy is needed to help everyone affected to #BloomWithScleroderma

Neil_Betteridge's tweet image. Thank you Annelies & Linda for having the courage & generosity to share your experience of living with #scleroderma in the European Parliament. Strong patient advocacy is needed to help everyone affected to #BloomWithScleroderma
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Fscleroderma's profile picture. Federation of European Scleroderma Associations aisbl is working to make scleroderma a well-known disease.
Fesca
 @Fscleroderma
Jun 29, 2023

🌻 This #WorldSclerodermaDay join us on a journey of resilience and self-discovery. The journey of those who face the challenges of this disease day by day. But today, we're blooming together. We #BloomWithScleroderma! 👉 Watch the full video: bit.ly/WorldScleroder…

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DraAndreaEndara's profile picture. Dra. Andrea Endara Dermatóloga - Dermatopatóloga Universidad Central del Ecuador Universidad Nacional Autónoma de México Contacto para consulta 0999011620
Dra. Andrea Endara
 @DraAndreaEndara
Jun 29

🌻Cada 29 de junio se conmemora el #DiaMundialdelaEsclerodermia con el fin de reflexionar acerca de esta enfermedad poco común de la piel y que causan el endurecimiento. 📍Edif. CITIMED #Quito 📱096 304 9058 #BloomWithScleroderma #WorldSclerodermaDay #scleroderma #Domingo

DraAndreaEndara's tweet image. 🌻Cada 29 de junio se conmemora el #DiaMundialdelaEsclerodermia con el fin de reflexionar acerca de esta enfermedad poco común de la piel y que causan el endurecimiento. 📍Edif. CITIMED #Quito 📱096 304 9058 #BloomWithScleroderma #WorldSclerodermaDay #scleroderma #Domingo
DraAndreaEndara's tweet image. 🌻Cada 29 de junio se conmemora el #DiaMundialdelaEsclerodermia con el fin de reflexionar acerca de esta enfermedad poco común de la piel y que causan el endurecimiento. 📍Edif. CITIMED #Quito 📱096 304 9058 #BloomWithScleroderma #WorldSclerodermaDay #scleroderma #Domingo
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DraAndreaEndara's profile picture. Dra. Andrea Endara Dermatóloga - Dermatopatóloga Universidad Central del Ecuador Universidad Nacional Autónoma de México Contacto para consulta 0999011620
Dra. Andrea Endara
 @DraAndreaEndara
Jul 5, 2024

La esclerodermia no tiene cura. Sin embargo, existen una variedad de tratamientos que ayudan a controlar los síntomas y a evitar complicaciones.🌻 📍Edificio CITIMED. Avenida Mariana de Jesús. #Quito 📱099 901 1620 #BloomWithScleroderma #dme2024 #viernes

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AEEsclerodermia's profile picture. ASOCIACIÓN ESPAÑOLA DE ESCLERODERMIA A.E.E., asociación sin ánimo de lucro constituida el 3 de febrero de 1995, en las Rozas (Madrid), de ámbito nacional.
A. E. Esclerodermia
 @AEEsclerodermia
Jul 28, 2023

¿Te perdiste las videoconferencias de la III Jornada Internacional de #Esclerodermia con motivo del #DME2023? En el siguiente enlace encontrarás la segunda: Esclerodermia Localizada a cargo del Dr. Enrique Loayza, Dermatólogo. 📷 youtu.be/E1VbFSn-snY #BloomWithScleroderma

AEEsclerodermia's tweet image. ¿Te perdiste las videoconferencias de la III Jornada Internacional de #Esclerodermia con motivo del #DME2023? En el siguiente enlace encontrarás la segunda: Esclerodermia Localizada a cargo del Dr. Enrique Loayza, Dermatólogo. 📷 youtu.be/E1VbFSn-snY #BloomWithScleroderma
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AEEsclerodermia's profile picture. ASOCIACIÓN ESPAÑOLA DE ESCLERODERMIA A.E.E., asociación sin ánimo de lucro constituida el 3 de febrero de 1995, en las Rozas (Madrid), de ámbito nacional.
A. E. Esclerodermia
 @AEEsclerodermia
Jul 28, 2023

El pasado 29 de Junio celebramos la III Jornada Internacional de Esclerodermia. Compartimos la primera videoconferencia: Guía para Paciente Recién Diagnosticado, a cargo del Dr. Andrés Zúñiga, Reumatólogo. youtu.be/JowBR2Drabo #Esclerodermia #DME2023 #BloomWithScleroderma

AEEsclerodermia's tweet image. El pasado 29 de Junio celebramos la III Jornada Internacional de Esclerodermia. Compartimos la primera videoconferencia: Guía para Paciente Recién Diagnosticado, a cargo del Dr. Andrés Zúñiga, Reumatólogo. youtu.be/JowBR2Drabo #Esclerodermia #DME2023 #BloomWithScleroderma
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Fscleroderma's profile picture. Federation of European Scleroderma Associations aisbl is working to make scleroderma a well-known disease.
Fesca
 @Fscleroderma
Jul 20, 2023

🌸✨Experience the captivating story of #scleroderma patients through dance. Emotions unfold, challenges are overcome, and strength shines through in every movement. Immerse yourself in their journey. Join us as we #BloomWithScleroderma:

Fscleroderma's tweet image. 🌸✨Experience the captivating story of #scleroderma patients through dance. Emotions unfold, challenges are overcome, and strength shines through in every movement. Immerse yourself in their journey. Join us as we #BloomWithScleroderma:
Fscleroderma's tweet image. 🌸✨Experience the captivating story of #scleroderma patients through dance. Emotions unfold, challenges are overcome, and strength shines through in every movement. Immerse yourself in their journey. Join us as we #BloomWithScleroderma:
Fscleroderma's tweet image. 🌸✨Experience the captivating story of #scleroderma patients through dance. Emotions unfold, challenges are overcome, and strength shines through in every movement. Immerse yourself in their journey. Join us as we #BloomWithScleroderma:
Fscleroderma's tweet image. 🌸✨Experience the captivating story of #scleroderma patients through dance. Emotions unfold, challenges are overcome, and strength shines through in every movement. Immerse yourself in their journey. Join us as we #BloomWithScleroderma:
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Fscleroderma's profile picture. Federation of European Scleroderma Associations aisbl is working to make scleroderma a well-known disease.
Fesca
 @Fscleroderma
Jul 14, 2023

It's a moment of clarity when we see the beauty in our struggles and realize that our experiences have made us stronger. So let's keep fighting, let's keep thriving to help those living with scleroderma. On this #WorldSclerodermaDay let's bloom together, #BloomWithScleroderma 🌻

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Fscleroderma's profile picture. Federation of European Scleroderma Associations aisbl is working to make scleroderma a well-known disease.
Fesca
 @Fscleroderma
Jul 13, 2023

🙏 A big thank you to @DeirdreCluneMEP (@EPPGroup, IE) for advocating for scleroderma patients and supporting our campaign! Read her thoughts on how we can improve the quality of life for people with scleroderma: #BloomWithScleroderma

Fscleroderma's tweet image. 🙏 A big thank you to @DeirdreCluneMEP (@EPPGroup, IE) for advocating for scleroderma patients and supporting our campaign! Read her thoughts on how we can improve the quality of life for people with scleroderma: #BloomWithScleroderma
Fscleroderma's tweet image. 🙏 A big thank you to @DeirdreCluneMEP (@EPPGroup, IE) for advocating for scleroderma patients and supporting our campaign! Read her thoughts on how we can improve the quality of life for people with scleroderma: #BloomWithScleroderma
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Fscleroderma's profile picture. Federation of European Scleroderma Associations aisbl is working to make scleroderma a well-known disease.
Fesca
 @Fscleroderma
Jul 13, 2023

🙌 A big shoutout to @brandobenifei (@TheProgressives, IT) who also joined us this #WorldSclerodermaDay to raise awareness for people living with scleroderma! We cannot thank you enough for your support. Together we bloom! We #BloomWithScleroderma

Fscleroderma's tweet image. 🙌 A big shoutout to @brandobenifei (@TheProgressives, IT) who also joined us this #WorldSclerodermaDay to raise awareness for people living with scleroderma! We cannot thank you enough for your support. Together we bloom! We #BloomWithScleroderma
Fscleroderma's tweet image. 🙌 A big shoutout to @brandobenifei (@TheProgressives, IT) who also joined us this #WorldSclerodermaDay to raise awareness for people living with scleroderma! We cannot thank you enough for your support. Together we bloom! We #BloomWithScleroderma
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Fscleroderma's profile picture. Federation of European Scleroderma Associations aisbl is working to make scleroderma a well-known disease.
Fesca
 @Fscleroderma
Jul 13, 2023

🌻 A heartfelt shoutout to @alexagiussaliba (@TheProgressives, MT) for championing the cause of scleroderma patients! We're very grateful for your commitment to improving the quality of life for people affected by this challenging disease. Together we #BloomWithScleroderma!

Fscleroderma's tweet image. 🌻 A heartfelt shoutout to @alexagiussaliba (@TheProgressives, MT) for championing the cause of scleroderma patients! We're very grateful for your commitment to improving the quality of life for people affected by this challenging disease. Together we #BloomWithScleroderma!
Fscleroderma's tweet image. 🌻 A heartfelt shoutout to @alexagiussaliba (@TheProgressives, MT) for championing the cause of scleroderma patients! We're very grateful for your commitment to improving the quality of life for people affected by this challenging disease. Together we #BloomWithScleroderma!
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Fscleroderma's profile picture. Federation of European Scleroderma Associations aisbl is working to make scleroderma a well-known disease.
Fesca
 @Fscleroderma
Jul 6, 2023

Life may throw unexpected challenges your way, but together we face each new wave. With the right support, we'll find a way to thrive and #BloomWithScleroderma, day by day.

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Fscleroderma's profile picture. Federation of European Scleroderma Associations aisbl is working to make scleroderma a well-known disease.
Fesca
 @Fscleroderma
Jul 3, 2023

The road may seem lonely at times, but this #WorldSclerodermaDay we stand together to create a brighter future for those living with the disabling disease. Today, we #BloomWithScleroderma - join us on this journey 👇

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Fscleroderma's profile picture. Federation of European Scleroderma Associations aisbl is working to make scleroderma a well-known disease.
Fesca
 @Fscleroderma
Jun 30, 2023

This performance is a testament to the strength and resilience of people living with scleroderma, and a celebration of the power of the human spirit. 🌻 This #WorldSclerodermaDay join us in making a difference. Today we bloom, we #BloomWithScleroderma.

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CentroCREER's profile picture. Centro de Referencia Estatal de Atención a Personas con Enfermedades Raras y sus Familias (CREER) del Imserso
Creer Imserso
 @CentroCREER
Jun 29, 2023

Hoy 29 de junio es el Día Mundial de la #Esclerodermia #díamundialdelaesclerodermia Juntos sumamos 🌻 @AEEsclerodermia #BloomWithScleroderma #encuentralaluzparabrillar #juntossumamos #enfermedadesraras

AEEsclerodermia's profile picture. ASOCIACIÓN ESPAÑOLA DE ESCLERODERMIA A.E.E., asociación sin ánimo de lucro constituida el 3 de febrero de 1995, en las Rozas (Madrid), de ámbito nacional.
A. E. Esclerodermia
 @AEEsclerodermia
Jun 29, 2023

Este #DíaMundialDeLaEsclerodermia acompáñanos en un viaje de autodescubrimiento y superación emocional. El viaje de quienes enfrentan los desafíos de esta enfermedad día a día. Pero hoy, estamos floreciendo juntos. Nosotros #BloomWithScleroderma 🌻 youtu.be/jXJcPaW5oc4

AEEsclerodermia's tweet image. Este #DíaMundialDeLaEsclerodermia acompáñanos en un viaje de autodescubrimiento y superación emocional. El viaje de quienes enfrentan los desafíos de esta enfermedad día a día. Pero hoy, estamos floreciendo juntos. Nosotros #BloomWithScleroderma 🌻 youtu.be/jXJcPaW5oc4
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aytoviedo's profile picture. Cuenta oficial Ayuntamiento de Oviedo / Official account of Oviedo City Council | Alcalde / Mayor: @canteli_alfredo | Web-Site: https://t.co/B6CSDMH9jr
@aytoviedo
 @aytoviedo
Jun 29, 2023

Oviedo se suma hoy a la celebración del #DíaMundialdelaEsclerodermia con el objetivo de dar visibilidad a esta enfermedad rara que afecta a 14.000 personas en España #DMEsclero2023 #BloomWithScleroderma

aytoviedo's tweet image. Oviedo se suma hoy a la celebración del #DíaMundialdelaEsclerodermia con el objetivo de dar visibilidad a esta enfermedad rara que afecta a 14.000 personas en España #DMEsclero2023 #BloomWithScleroderma
aytoviedo's tweet image. Oviedo se suma hoy a la celebración del #DíaMundialdelaEsclerodermia con el objetivo de dar visibilidad a esta enfermedad rara que afecta a 14.000 personas en España #DMEsclero2023 #BloomWithScleroderma
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MAS_Clinic's profile picture. Department of Autoimmune Diseases, Hospital Clínic, Barcelona @hospitalclinic
Autoinmunes-Clínic
 @MAS_Clinic
Jun 29, 2023

Y por fin llegó el 29 de junio #DME2023 Queremos dar visibilidad a las personas con #esclerodermia y les mandamos muchos ánimos #BloomwithScleroderma @Fscleroderma @AEEsclerodermia

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NCAresearchNHS's profile picture. Research & Innovation at Northern Care Alliance NHS Foundation Trust-Salford, Oldham, Fairfield, Rochdale. Also at https://t.co/alxEttueS8.
NCA Research NHS
 @NCAresearchNHS
Jun 29, 2023

A big thank you to all the team who made today’s patient information day a success. We’re hearing great feedback that it was useful & inspiring, with lots of positive stories, top tips & some fantastic research in place for the future #BloomWithScleroderma ⁦@SclerodermaM⁩

NCAresearchNHS's tweet image. A big thank you to all the team who made today’s patient information day a success. We’re hearing great feedback that it was useful & inspiring, with lots of positive stories, top tips & some fantastic research in place for the future #BloomWithScleroderma ⁦@SclerodermaM⁩
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NCAresearchNHS's profile picture. Research & Innovation at Northern Care Alliance NHS Foundation Trust-Salford, Oldham, Fairfield, Rochdale. Also at https://t.co/alxEttueS8.
NCA Research NHS
 @NCAresearchNHS
Jun 29, 2023

Mouthcare is important but can be tricky with scleroderma - there were lots of samples and expert advice on hand here ⁦@SalfordCO_NHS⁩ today. The stall looks a lot emptier now! #BloomWithScleroderma ⁦@SclerodermaM⁩

NCAresearchNHS's tweet image. Mouthcare is important but can be tricky with scleroderma - there were lots of samples and expert advice on hand here ⁦@SalfordCO_NHS⁩ today. The stall looks a lot emptier now! #BloomWithScleroderma ⁦@SclerodermaM⁩
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NCAresearchNHS's profile picture. Research & Innovation at Northern Care Alliance NHS Foundation Trust-Salford, Oldham, Fairfield, Rochdale. Also at https://t.co/alxEttueS8.
NCA Research NHS
 @NCAresearchNHS
Jun 29, 2023

Great to hear about patient involvement (using their lived expertise and experience) shaping #scleroderma research, including in putting systems in place for earlier diagnosis through nailfold capillaroscopy ⁦@SalfordCO_NHS⁩ #BloomWithScleroderma

NCAresearchNHS's tweet image. Great to hear about patient involvement (using their lived expertise and experience) shaping #scleroderma research, including in putting systems in place for earlier diagnosis through nailfold capillaroscopy ⁦@SalfordCO_NHS⁩ #BloomWithScleroderma
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NCAresearchNHS's profile picture. Research & Innovation at Northern Care Alliance NHS Foundation Trust-Salford, Oldham, Fairfield, Rochdale. Also at https://t.co/alxEttueS8.
NCA Research NHS
 @NCAresearchNHS
Jun 29, 2023

Psychologists from ⁦@NCAlliance_NHS⁩ now advising on managing negative thoughts - we can’t control these thoughts popping up but we do have a choice about how we react #BloomWithScleroderma

NCAresearchNHS's tweet image. Psychologists from ⁦@NCAlliance_NHS⁩ now advising on managing negative thoughts - we can’t control these thoughts popping up but we do have a choice about how we react #BloomWithScleroderma
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NCAresearchNHS's profile picture. Research & Innovation at Northern Care Alliance NHS Foundation Trust-Salford, Oldham, Fairfield, Rochdale. Also at https://t.co/alxEttueS8.
NCA Research NHS
 @NCAresearchNHS
Jun 29, 2023

Lovely to see the next generation of doctors helping out at #WorldSclerodermaDay - many thanks to Monisha and Lily for joining our patients ⁦@SalfordCO_NHS⁩ #BloomWithScleroderma ⁦@SclerodermaM⁩

NCAresearchNHS's tweet image. Lovely to see the next generation of doctors helping out at #WorldSclerodermaDay - many thanks to Monisha and Lily for joining our patients ⁦@SalfordCO_NHS⁩ #BloomWithScleroderma ⁦@SclerodermaM⁩
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aytoviedo's profile picture. Cuenta oficial Ayuntamiento de Oviedo / Official account of Oviedo City Council | Alcalde / Mayor: @canteli_alfredo | Web-Site: https://t.co/B6CSDMH9jr
@aytoviedo
 @aytoviedo
Jun 29, 2023

Oviedo se suma hoy a la celebración del #DíaMundialdelaEsclerodermia con el objetivo de dar visibilidad a esta enfermedad rara que afecta a 14.000 personas en España #DMEsclero2023 #BloomWithScleroderma

aytoviedo's tweet image. Oviedo se suma hoy a la celebración del #DíaMundialdelaEsclerodermia con el objetivo de dar visibilidad a esta enfermedad rara que afecta a 14.000 personas en España #DMEsclero2023 #BloomWithScleroderma
aytoviedo's tweet image. Oviedo se suma hoy a la celebración del #DíaMundialdelaEsclerodermia con el objetivo de dar visibilidad a esta enfermedad rara que afecta a 14.000 personas en España #DMEsclero2023 #BloomWithScleroderma
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NCAresearchNHS's profile picture. Research & Innovation at Northern Care Alliance NHS Foundation Trust-Salford, Oldham, Fairfield, Rochdale. Also at https://t.co/alxEttueS8.
NCA Research NHS
 @NCAresearchNHS
Jun 29, 2023

We’re marking #WorldSclerodermaDay2023 ⁦@SalfordCO_NHS⁩ with an open day supporting patients to keep healthy & active. Here’s Sister Hayley Fox, ready to give advice on all things pulmonary #BloomWithScleroderma ⁦@SclerodermaM⁩ ⁦@WeAreSRUK⁩ ⁦

NCAresearchNHS's tweet image. We’re marking #WorldSclerodermaDay2023 ⁦@SalfordCO_NHS⁩ with an open day supporting patients to keep healthy & active. Here’s Sister Hayley Fox, ready to give advice on all things pulmonary #BloomWithScleroderma ⁦@SclerodermaM⁩ ⁦@WeAreSRUK⁩ ⁦
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NCAresearchNHS's profile picture. Research & Innovation at Northern Care Alliance NHS Foundation Trust-Salford, Oldham, Fairfield, Rochdale. Also at https://t.co/alxEttueS8.
NCA Research NHS
 @NCAresearchNHS
Jun 29, 2023

Top tips on managing Raynaud’s - Dr Mariam Al-Attar warmly recommends stoping smoking ( with NHS help if needed) and layering up, as well as only using online advice from trusted organisations: esp ⁦@WeAreSRUK⁩ #BloomWithScleroderma

NCAresearchNHS's tweet image. Top tips on managing Raynaud’s - Dr Mariam Al-Attar warmly recommends stoping smoking ( with NHS help if needed) and layering up, as well as only using online advice from trusted organisations: esp ⁦@WeAreSRUK⁩ #BloomWithScleroderma
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NCAresearchNHS's profile picture. Research & Innovation at Northern Care Alliance NHS Foundation Trust-Salford, Oldham, Fairfield, Rochdale. Also at https://t.co/alxEttueS8.
NCA Research NHS
 @NCAresearchNHS
Jun 29, 2023

Barry’s top tip for living well with scleroderma - keep active. He swims and walks as well as keeping busy with his GB Taekwondo work and leading walks around the statues of Manchester! #BloomWithScleroderma ⁦@SclerodermaM⁩ ⁦@WeAreSRUK⁩ ⁦@VersusArthritis⁩

NCAresearchNHS's tweet image. Barry’s top tip for living well with scleroderma - keep active. He swims and walks as well as keeping busy with his GB Taekwondo work and leading walks around the statues of Manchester! #BloomWithScleroderma ⁦@SclerodermaM⁩ ⁦@WeAreSRUK⁩ ⁦@VersusArthritis⁩
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Fscleroderma's profile picture. Federation of European Scleroderma Associations aisbl is working to make scleroderma a well-known disease.
Fesca
 @Fscleroderma
Sep 27, 2022

Huge thank you to @toiapatrizia for these insightful opening remarks. #BloomWithScleroderma

Fscleroderma's tweet image. Huge thank you to @toiapatrizia for these insightful opening remarks. #BloomWithScleroderma
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Fscleroderma's profile picture. Federation of European Scleroderma Associations aisbl is working to make scleroderma a well-known disease.
Fesca
 @Fscleroderma
Sep 27, 2022

The realities of #SystemicSclerosis…what are your thoughts? #BloomWithScleroderma

Fscleroderma's tweet image. The realities of #SystemicSclerosis…what are your thoughts? #BloomWithScleroderma
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NCAresearchNHS's profile picture. Research & Innovation at Northern Care Alliance NHS Foundation Trust-Salford, Oldham, Fairfield, Rochdale. Also at https://t.co/alxEttueS8.
NCA Research NHS
 @NCAresearchNHS
Jun 29, 2023

Psychologists from ⁦@NCAlliance_NHS⁩ now advising on managing negative thoughts - we can’t control these thoughts popping up but we do have a choice about how we react #BloomWithScleroderma

NCAresearchNHS's tweet image. Psychologists from ⁦@NCAlliance_NHS⁩ now advising on managing negative thoughts - we can’t control these thoughts popping up but we do have a choice about how we react #BloomWithScleroderma
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NCAresearchNHS's profile picture. Research & Innovation at Northern Care Alliance NHS Foundation Trust-Salford, Oldham, Fairfield, Rochdale. Also at https://t.co/alxEttueS8.
NCA Research NHS
 @NCAresearchNHS
Jun 29, 2023

Daily stretching exercises help to maintain hand mobility, says ⁦@PhysioWillGreg⁩ - watch some helpful videos on @wearesruk website #BloomWithScleroderma ⁦@SclerodermaM⁩

NCAresearchNHS's tweet image. Daily stretching exercises help to maintain hand mobility, says ⁦@PhysioWillGreg⁩ - watch some helpful videos on @wearesruk website #BloomWithScleroderma ⁦@SclerodermaM⁩
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NCAresearchNHS's profile picture. Research & Innovation at Northern Care Alliance NHS Foundation Trust-Salford, Oldham, Fairfield, Rochdale. Also at https://t.co/alxEttueS8.
NCA Research NHS
 @NCAresearchNHS
Jun 29, 2023

Mouthcare is important but can be tricky with scleroderma - there were lots of samples and expert advice on hand here ⁦@SalfordCO_NHS⁩ today. The stall looks a lot emptier now! #BloomWithScleroderma ⁦@SclerodermaM⁩

NCAresearchNHS's tweet image. Mouthcare is important but can be tricky with scleroderma - there were lots of samples and expert advice on hand here ⁦@SalfordCO_NHS⁩ today. The stall looks a lot emptier now! #BloomWithScleroderma ⁦@SclerodermaM⁩
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reuma_santpau's profile picture. Rheumatology Department. Hospital de la Santa Creu i Sant Pau & Hospital Dos de Maig, Barcelona. Spreading information about our activities.
Reumatologia Sant Pau-Dos de Maig
 @reuma_santpau
Jun 29, 2022

Nos unimos a la @AEEsclerodermia a apoyar la iniciativa #BloomWithScleroderma #DME2022. Seguimos trabajando unidos con nuestros pacientes 💪🏻. Os dejamos un podcast de @SusanaF_enfreu con @SEReumatologia spoti.fi/3HK0RiT sobre cómo vivir y cuidar la #Esclerodermia.

reuma_santpau's tweet image. Nos unimos a la @AEEsclerodermia a apoyar la iniciativa #BloomWithScleroderma #DME2022. Seguimos trabajando unidos con nuestros pacientes 💪🏻. Os dejamos un podcast de @SusanaF_enfreu con @SEReumatologia spoti.fi/3HK0RiT sobre cómo vivir y cuidar la #Esclerodermia.
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NCAresearchNHS's profile picture. Research & Innovation at Northern Care Alliance NHS Foundation Trust-Salford, Oldham, Fairfield, Rochdale. Also at https://t.co/alxEttueS8.
NCA Research NHS
 @NCAresearchNHS
Jun 29, 2023

A big thank you to all the team who made today’s patient information day a success. We’re hearing great feedback that it was useful & inspiring, with lots of positive stories, top tips & some fantastic research in place for the future #BloomWithScleroderma ⁦@SclerodermaM⁩

NCAresearchNHS's tweet image. A big thank you to all the team who made today’s patient information day a success. We’re hearing great feedback that it was useful & inspiring, with lots of positive stories, top tips & some fantastic research in place for the future #BloomWithScleroderma ⁦@SclerodermaM⁩
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Fscleroderma's profile picture. Federation of European Scleroderma Associations aisbl is working to make scleroderma a well-known disease.
Fesca
 @Fscleroderma
Jun 1, 2023

Celebrating #Scleroderma Month! 🌼 Join us in raising awareness, fostering unity, and advocating for a brighter future for those affected by this rare disease. Together, we can make a difference! #BloomWithScleroderma

Fscleroderma's tweet image. Celebrating #Scleroderma Month! 🌼 Join us in raising awareness, fostering unity, and advocating for a brighter future for those affected by this rare disease. Together, we can make a difference! #BloomWithScleroderma
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NCAresearchNHS's profile picture. Research & Innovation at Northern Care Alliance NHS Foundation Trust-Salford, Oldham, Fairfield, Rochdale. Also at https://t.co/alxEttueS8.
NCA Research NHS
 @NCAresearchNHS
Jun 29, 2023

Lots of practical tips today at ⁦@SalfordCO_NHS⁩ scleroderma patient day. Many thanks to Sue and Lisa from Me Time Salon iwho are offering advice on looking after your hair and skin if your movement is limited by scleroderma #BloomWithScleroderma ⁦@SclerodermaM⁩

NCAresearchNHS's tweet image. Lots of practical tips today at ⁦@SalfordCO_NHS⁩ scleroderma patient day. Many thanks to Sue and Lisa from Me Time Salon iwho are offering advice on looking after your hair and skin if your movement is limited by scleroderma #BloomWithScleroderma ⁦@SclerodermaM⁩
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AEEsclerodermia's profile picture. ASOCIACIÓN ESPAÑOLA DE ESCLERODERMIA A.E.E., asociación sin ánimo de lucro constituida el 3 de febrero de 1995, en las Rozas (Madrid), de ámbito nacional.
A. E. Esclerodermia
 @AEEsclerodermia
Jun 29, 2022

Hoy es el #DiaMundialEsclerodermia. Un día para mostrar la solidaridad con todos los que conviven con esta enfermedad. Para que puedan Encontrar la Luz para Brillar. #BloomWithScleroderma #DME2022 Más información: AEE ▶️acortar.link/ombxPs FESCA ▶️tinyurl.com/3cn93hbb

AEEsclerodermia's tweet image. Hoy es el #DiaMundialEsclerodermia. Un día para mostrar la solidaridad con todos los que conviven con esta enfermedad. Para que puedan Encontrar la Luz para Brillar. #BloomWithScleroderma #DME2022 Más información: AEE ▶️acortar.link/ombxPs FESCA ▶️tinyurl.com/3cn93hbb
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Fscleroderma's profile picture. Federation of European Scleroderma Associations aisbl is working to make scleroderma a well-known disease.
Fesca
 @Fscleroderma
Sep 27, 2022

@frk_bibo shares her inspiring story, giving us the strength to continue in our fight to help raise awareness for Systemic Sclerosis. #BloomWithScleroderma

Fscleroderma's tweet image. @frk_bibo shares her inspiring story, giving us the strength to continue in our fight to help raise awareness for Systemic Sclerosis. #BloomWithScleroderma
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NCAresearchNHS's profile picture. Research & Innovation at Northern Care Alliance NHS Foundation Trust-Salford, Oldham, Fairfield, Rochdale. Also at https://t.co/alxEttueS8.
NCA Research NHS
 @NCAresearchNHS
Jun 29, 2023

Great to hear about patient involvement (using their lived expertise and experience) shaping #scleroderma research, including in putting systems in place for earlier diagnosis through nailfold capillaroscopy ⁦@SalfordCO_NHS⁩ #BloomWithScleroderma

NCAresearchNHS's tweet image. Great to hear about patient involvement (using their lived expertise and experience) shaping #scleroderma research, including in putting systems in place for earlier diagnosis through nailfold capillaroscopy ⁦@SalfordCO_NHS⁩ #BloomWithScleroderma
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Fscleroderma's profile picture. Federation of European Scleroderma Associations aisbl is working to make scleroderma a well-known disease.
Fesca
 @Fscleroderma
Jul 13, 2023

🙏 A big thank you to @DeirdreCluneMEP (@EPPGroup, IE) for advocating for scleroderma patients and supporting our campaign! Read her thoughts on how we can improve the quality of life for people with scleroderma: #BloomWithScleroderma

Fscleroderma's tweet image. 🙏 A big thank you to @DeirdreCluneMEP (@EPPGroup, IE) for advocating for scleroderma patients and supporting our campaign! Read her thoughts on how we can improve the quality of life for people with scleroderma: #BloomWithScleroderma
Fscleroderma's tweet image. 🙏 A big thank you to @DeirdreCluneMEP (@EPPGroup, IE) for advocating for scleroderma patients and supporting our campaign! Read her thoughts on how we can improve the quality of life for people with scleroderma: #BloomWithScleroderma
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NCAresearchNHS's profile picture. Research & Innovation at Northern Care Alliance NHS Foundation Trust-Salford, Oldham, Fairfield, Rochdale. Also at https://t.co/alxEttueS8.
NCA Research NHS
 @NCAresearchNHS
Jun 29, 2023

A scleroderma diagnosis hasn’t held patient Barry Wright back - he’s retrained as a teacher, worked at the Commonwealth Games and is now part of the back room team for GB Taekwondo. He also does charity work and supports research here ⁦@SalfordCO_NHS⁩ #BloomWithScleroderma

NCAresearchNHS's tweet image. A scleroderma diagnosis hasn’t held patient Barry Wright back - he’s retrained as a teacher, worked at the Commonwealth Games and is now part of the back room team for GB Taekwondo. He also does charity work and supports research here ⁦@SalfordCO_NHS⁩ #BloomWithScleroderma
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Fscleroderma's profile picture. Federation of European Scleroderma Associations aisbl is working to make scleroderma a well-known disease.
Fesca
 @Fscleroderma
Sep 27, 2022

Representing the #SSc patient community @iaiaraia highlights the need for registries that collect epidemiological data to inform policy decisions. #BloomWithScleroderma

Fscleroderma's tweet image. Representing the #SSc patient community @iaiaraia highlights the need for registries that collect epidemiological data to inform policy decisions. #BloomWithScleroderma
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