#scleroderma 검색 결과
Biologic Therapy for Refractory Juvenile Scleroderma” by Dr. Munirah Al Marri was accepted at #ACR25 – Chicago 🇺🇸! The world’s main rheumatology conference, covering both adult & pediatric advances. A proud step forward in improving care for young patients. #Scleroderma…
Systemic Sclerosis–Associated ILD Watch Alicia Hinze, MD, share personalized strategies for managing Systemic Sclerosis–Associated ILD. Sponsored By: Boehringer Ingelheim buff.ly/w9qmEr7 #ILD #Scleroderma
Hey everyone! Today is #WorldSclerodermaDay I’m raising awareness about this debilitating disease! I’m in my 4th year. Don’t give up hope! We will find a cure. I’m happy to be thriving. Thanks for the love! ❤️🙏🏼#scleroderma
🧵1/ 👁 Ever wanted to see autoimmune Microvascular dysfunction in action? Nailfold Videocapillaroscopy (NVC) gives us a live look into systemic vascular health. A powerful, non-invasive window for early diagnosis in CTDs. Let’s walk through what it reveals in #Scleroderma.…
2 years ago,I was invited onto @BBCSheffield Paulette's show to talk about my #scleroderma I've kindly been invited back on to talk about allsorts this Wednesday morning! Wish me luck !!
Happy Monday friends! #Scleroderma Awareness Month still! Busy week for me! @SusanLovesPinot @MaryannDonie @SnoozeGirl7 @angel80197423 @rosavil17613516 @soulsister420 @Irma_Spikeymama @medic2RN_RJC @PopPuffsPotAlot @GSmokesweed1 @Floor_model @KarenMOshaugh @Pville_Sandy
Excited to present data from RESET-SSc in #scleroderma #eular2025. CAR-T was well tolerated with beneficial effects on skin/ FVC. Exciting data on U-M IIS with LN bx showing complete depletion of B cells at 3 weeks and NFC showing normalization of capillary density and size
Excited to present WIN #scleroderma #eular2025. This slide highlights the opportunities in drug development in SSc. Come and join on Saturday 6/14 at 9 AM CET.
Delighted to present the @bmsnews data on #scleroderma #eular2025. Breakfree-1 data showing CAR-T is well tolerated with beneficial effects on skin and FVC and composite endpoint, the revised CRISS.
The 3rd #Scleroderma_preceptorship_program The journey of enhancing and optimizing the care of #Scleroderma patients in Saudi Arabia continues to show more promise 💐 Big thanks to: Patients, attendees, speakers and chairpersons @ssrsa_org for facilitating @Boehringer…
Prophylactic ACEi in #Scleroderma? No benefit, worse outcomes in renal crisis! #Rheumatology #MedTwitter #BSR25
🧵 Skin Manifestations of Systemic Sclerosis (SSc) The skin is often the first—and most revealing—organ affected. Here’s a layered look at what to watch for 👇 #Rheumatology #Scleroderma #MedTwitter @IhabFathiSulima @Janetbirdope @DrAkhilX @Drkhenaizan @MattersRheum
Controversies afternoon keynote lecture delivered by @MarbanLab discussing the development of a new #ncRNA drug to treat #Scleroderma/#SystemicSclerosis
🎊 Congratulations to Dr @Huda_Alfaris on the successful completion of the @UofTRheum #Scleroderma Fellowship! @SchroederInst @UHN_Research @SclerodermaCAN @CSRG2022
While NSIP & UIP are common patterns on HRCT, COP, LIP & DIP can occur in #Scleroderma-ILD. Neither NSIP nor UIP are independent predators of survival. @HanaRheum #EULAR2025
🆕CD19 CAR T Cell treatment -A potentially promising future treatment in #SLE #scleroderma #myositis -Needs close collaboration with haematology Great explanation by @chriswincup #ACR24 #Lupus #SystemicSclerosis #IIM
Fantastic lecture on treatment of #scleroderma digital ulcers by @ESuttonrheum at #NationalSclerodermaConference @SclerodermaCAN @SclerodermaATL @CSRG2022
Sastanak grupe za sistemsku sklerozu 13.11.2025. na kojem je gost bila prof. dr Dragana Jovanović, internista-pulmolog, možete pogledati na YouTube kanalu youtu.be/sxNIyZXLlxA?si… i na sajtu ors.rs u odeljku vesti. #scleroderma #plucnafibroza #reumatologija
Important data for SSc-ILD community: PFD added to MMF didn’t yield significant FVC gains, but trends in physical function are worth noting. Highlights the ongoing need for robustly powered studies to refine combination therapy strategies. #Ssc #Scleroderma #ILD #SARDILD
Randomized phase 2 trial of pirfenidone (PFD) or placebo along with MMF in SSc-ILD: doi.org/10.1002/acr2.7… • no statistically or clinically significant difference in FVC% improvement from baseline • mean time to ≥3% improvement in FVC% was numerically shorter with MMF+PFD •…
👉 Our December literature search identified 94 new papers in #Scleroderma! View the results by clicking the link here: 🔗scleroderma-forum.com/resources
Une voie moléculaire identifiée comme facteur clé de la cicatrisation dans la #sclérodermie.#scleroderma Étude : Les traitements inhibiteurs pourraient contribuer à atténuer la fibrose dans de nombreuses pathologies sclerodermanews.com/news/molecular…
There are many #nutrition challenges for people with #systemicsclerosis. Our most recent article in collaboration with colleagues from @Aristoteleio, @unithessaly and @harokopio_ , explores these in detail: mdpi.com/2072-6643/17/1… @WeAreSRUK #scleroderma
Looking for the latest insights in #scleroderma? Our new slide deck and literature highlights are live on the #SclerodermaForum. Access these valuable resources today: 🔗ow.ly/iAxi50XrF53
Primary Raynaud's is not correlated with any underlying medical condition, whereas secondary Raynaud's is causally connected to another medical condition, such as #scleroderma or #lupus. Read more, here: bit.ly/3bL8xkT #raynaudsphenomenon #frosties #healthtwitter
raynauds.org
Frequently Asked Questions - Raynaud's Association
Need a PDF of all Frequently Asked Questions about Raynaud’s shown on this page? Click on the button below. This content is also available in our Guide: The Cold Facts on Raynaud’s (and strategies...
What do scleroderma & PH have in common? A lot. Kate Salonga shares her takeaways from the Scleroderma BC 2025 AGM—and why rare disease communities need to learn from each other. 👉 Read: ow.ly/RoHN50XyMVi #RareDisease #PHACanada #Scleroderma #PulmonaryHypertension
Primary Raynaud's is not correlated with any underlying medical condition, whereas secondary Raynaud's is causally connected to another medical condition, such as #scleroderma or #lupus. Read more, here: bit.ly/3bL8xkT #raynaudsphenomenon #frosties
raynauds.org
Frequently Asked Questions - Raynaud's Association
Need a PDF of all Frequently Asked Questions about Raynaud’s shown on this page? Click on the button below. This content is also available in our Guide: The Cold Facts on Raynaud’s (and strategies...
If you've read my blog 1 Day 1 Week you know my mom has #Scleroderma & related Interstitial Lung Disease. Another beautiful mom -- this one of @IAMQUEENLATIFAH also suffered from these & is the inspiration behind this wonderful, important video. youtu.be/flHQSBc6KQ4
Dive into the latest research on #scleroderma with our new in-depth slide deck and literature highlights! Available now for free on the #SclerodermaForum: 🔗ow.ly/SUHJ50XrF3M
A New York Minute for Cool Comedy Hot Cuisine. 💙 @srfcure #CCHC #SRFCure #scleroderma #sclerodermaresearch #NYC #NewYorkCity #Comedy #NikkiGlaser #AdamDuritz
Primary Raynaud's is not correlated with any underlying medical condition, whereas secondary Raynaud's is causally connected to another medical condition, such as #scleroderma or #lupus. Read more, here: bit.ly/3bL8xkT #raynaudsphenomenon #frosties
raynauds.org
Frequently Asked Questions - Raynaud's Association
Need a PDF of all Frequently Asked Questions about Raynaud’s shown on this page? Click on the button below. This content is also available in our Guide: The Cold Facts on Raynaud’s (and strategies...
This insightful study explores endothelial cell heterogeneity and #ImmuneMetabolic interactions in scleroderma using single-cell RNA sequencing. #Scleroderma #SingleCellRNA #PrecisionMedicine @ZainKhalpey @sclerodermaUM @SclerodermaCAN @SclerodermaNews @Worldsclerofnd
🧫 Endothelial cell heterogeneity in scleroderma 🔍 Insights from single-cell RNA sequencing ⚡ Reveals immune-metabolic interactions 🧠 Potential for novel therapeutic targets #EndothelialCells #SingleCellRNA #Immunometabolism 👉Read more: oaepublish.com/articles/2574-…
#Scleroderma and #SIBO present an intriguing challenge. The connection between systemic sclerosis and microbial imbalance in the gut is crucial for symptom management. Have you seen recent studies highlighting bacterial culture analysis in SSc patients? This ties into broader…
🆕#EULAR 2024 recommendations for treatment of #SystemicSclerosis #Scleroderma slide produced by @RheumNow #ILD #Raynauds #pulmonaryhypertension #DigitalUlcers
Biologic Therapy for Refractory Juvenile Scleroderma” by Dr. Munirah Al Marri was accepted at #ACR25 – Chicago 🇺🇸! The world’s main rheumatology conference, covering both adult & pediatric advances. A proud step forward in improving care for young patients. #Scleroderma…
Hey everyone! Today is #WorldSclerodermaDay I’m raising awareness about this debilitating disease! I’m in my 4th year. Don’t give up hope! We will find a cure. I’m happy to be thriving. Thanks for the love! ❤️🙏🏼#scleroderma
Systemic Sclerosis–Associated ILD Watch Alicia Hinze, MD, share personalized strategies for managing Systemic Sclerosis–Associated ILD. Sponsored By: Boehringer Ingelheim buff.ly/w9qmEr7 #ILD #Scleroderma
Great @SmidtHeart #research seminar by X. Mike Jones. Lead #ncRNA compound TY1 reverses the key manifestations of #scleroderma in two complementary mouse models! It even works orally. Next goal: first-in-human studies in #systemicsclerosis patients! @CedarsSinaiMed
Bang-up @MarbanLab mtg presentation by @nih_nhlbi #T32 fellow @XMichaelJonesMD gives new hope for #scleroderma. In two #mouse models and human #SSc #macrophages (🙏@fboinMD), #ncRNA drug TY1 attenuates #DNAdamage and reverses disease. 👍. Thanks Mike for your great work!…
Excited to present WIN #scleroderma #eular2025. This slide highlights the opportunities in drug development in SSc. Come and join on Saturday 6/14 at 9 AM CET.
🆕 @RheumatologyUK 2024 #SystemicSclerosis guidelines academic.oup.com/rheumatology/a… By Prof Chris Denton &Colleagues #scleroderma #PAH #ILD #Raynauds #arthritis
#Scleroderma specific autoantibodies in predicting prognosis/survival ➡️ almost all #ANA positive 📈 Best survival in anticentromere group 📉 Diffuse subtype carries a worse prognosis especially Anti-Scl70, anti-RNA polymerase III & If 🫁 ILD present [AL Herrick]
Big kudos to our esteemed faculty members @RobFairchildMD & @ChungLorinda, for their outstanding presentations at the 8th Scleroderma World Congress in Prague last weekend! Proud moment for @StanfordMed showcasing expertise in #rheumatology #scleroderma #POCUS #ILD #MSKUS.
🧵1/ 👁 Ever wanted to see autoimmune Microvascular dysfunction in action? Nailfold Videocapillaroscopy (NVC) gives us a live look into systemic vascular health. A powerful, non-invasive window for early diagnosis in CTDs. Let’s walk through what it reveals in #Scleroderma.…
Excited to present data from RESET-SSc in #scleroderma #eular2025. CAR-T was well tolerated with beneficial effects on skin/ FVC. Exciting data on U-M IIS with LN bx showing complete depletion of B cells at 3 weeks and NFC showing normalization of capillary density and size
Prophylactic ACEi in #Scleroderma? No benefit, worse outcomes in renal crisis! #Rheumatology #MedTwitter #BSR25
On #WorldSclerodermaDay let's spread awareness about #Scleroderma! Early diagnosis focuses on detecting symptomatic patients as early as possibile, it is the key to make a significant difference in treatment outcomes!
Happy Monday friends! #Scleroderma Awareness Month still! Busy week for me! @SusanLovesPinot @MaryannDonie @SnoozeGirl7 @angel80197423 @rosavil17613516 @soulsister420 @Irma_Spikeymama @medic2RN_RJC @PopPuffsPotAlot @GSmokesweed1 @Floor_model @KarenMOshaugh @Pville_Sandy
Alain Lescoat sharing new PRO for limited #scleroderma! #acr2024 Thanks to SCTC, @Worldsclerofnd @Fscleroderma and @srfcure for supporting the work
My dear son in law. Waiting for #lungtransplant #scleroderma #VGH grateful to donors grateful to doctors
#OTWeek2023 "It sounds daft doesn't it...but that's the thing I most want to be able to do again" How would you feel if you couldn't hold a cup of tea to enjoy a brew? Working with this #scleroderma patient to find a mug that he can hold himself @SalfordCO_NHS @RCOT_TMH @theRCOT
#scleroderma 1. why is SSc- a 'fibrotic disease' treated with immunosuppressive? 2. Why dont every patient with early SSc respond to immunosuppressive? the lessons lie in understanding the underlying mechanisms of early SSc and molecular heterogeneity. @IRACON24Blr
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