#knowscleroderma search results
This weather is a nightmare for Sclero symptoms, esp Raynauds Syndrome or as I would say blue fingers. My fingers used to go numb, l couldn’t feel them, couldn’t hold anything. I had to constantly sit with a hot water bottle. Alhamdulillah #KnowScleroderma #SclerodermaAwareness
Joined the amazing @JoannaBarry8 Matthew Barry & friends for a 6.6 mile walk @ryeharbour_NR as part of her 100 mile walk raising funds for #SclerodermaAwarenessMonth #KnowScleroderma Thanks it was great fun @WeAreSRUK
Tad bit slower; very slow eater and slow walker. I may have to slow down but I never stopped. I catch up, and I also lead(I believe ☺️) I have learnt to use the slow pace and adjust. #KnowScleroderma #ScleroSmile #SclerodermaAwarenessMonth
Please help us raise awareness - it takes less than a minute! Watch & share our animation highlighting the key symptoms to look out for. Think SO RARE. If you experience these please tell your GP & ask about scleroderma. #knowscleroderma #sclerosmile
June is Scleroderma Awareness Month. We'll share your stories, host webinars to join and we'll be launching our SRUK Walk. Throughout the month we aim to Educate, Engage and Empower. World Scleroderma Day is 29th June. Lots more info coming soon! #knowscleroderma #sclerosmile
🌻Scleroderma will not take my smile🌻 World Scleroderma Day - introduced by us 10 years ago! Paul Klee made painting his life’s work. He was strongly influenced by his illness, systemic scleroderma. He died June 29, 1940. #sclerosmile #KnowScleroderma #doyouknowscleroderma
This #WorldSclerodermaDay we’re coming together to raise awareness of #scleroderma – a condition that can cause pulmonary arterial hypertension. Join us in getting to #knowscleroderma today.
This arrived yesterday, thank you @AmberRuddHR for the recognition, if you would like to know more about Scleroderma and how you can help its sufferers please get in touch. #KnowScleroderma @WeAreSRUK
June is Scleroderma Awareness Month! I'm in the fight of my life, but I WILL WIN! Check out @scleroderma and/or @srfcure for more information. . . #Scleroderma #SclerodermaWarrior #KnowScleroderma #SclerodermaAwarenessMonth 💚🦋💙
June 29th is World Scleroderma Day. Scleroderma is the chronic hardening and tightening of the skin and connective tissues. #KnowScleroderma, #SclerodermaAwarenes
Watch & share this short animation to help us raise awareness of scleroderma & 3 symptoms to look out for. Think SO RARE. If you experience these please tell your GP & ask about scleroderma. Thanks to @senatemediauk and @Fscleroderma #knowscleroderma #sclerosmile
I was interviewed by @Barcroft_TV for their Shake My Beauty series. Watch it: youtu.be/yz8SwNrKRRc Massive thanks to the entire team. Pic: Juozas Cernius/Barcroft Tv #KnowScleroderma #InspireLife
Today is World Scleroderma Day, this is for all the Scleroderma warriors out there including my son Mat #knowscleroderma #slcerodermaAwarenessmonth @WeAreSRUK
🎓Educational day for patients by the Spanish #Scleroderma Association @AEEsclerodermia 👉🏻Interesting conversation: patients, psychologists and rheumatologists. 👉🏻Understanding the disease better and increasing social awareness. #KnowScleroderma #WorldSclerodermaDay #Sclerosmile
What you've been saying! Thanks to all those helping us raise awareness for Scleroderma Awareness Month. Keep the conversations going, keep commenting and telling us why raising awareness is so important to you. Our community is so powerful together #knowscleroderma #iammypassion
🌻 Today is the beginning of our Scleroderma Awareness Month Throughout the month we will be posting a "Did you know?" about scleroderma - let's share with our community and spread awareness! #KnowScleroderma #srukpassiton #sclerosmile
Join us June 29th as we light up New York State in teal for World Scleroderma Day! #TealforScleroderma #KnowScleroderma
Day 13 walk tonight, thank you to my cousin Becky and Bethany for coming with me and even Mat joined us on his skateboard This walk is dedicated to @hollieowen11 as she had been going through a tough time lately. #KnowScleroderma #SclerodermaAwarenessMonth #100milesforScleroderma
June is #SclerodermaAwarenessMonth, but of course each and every single day is important for each and every one of us suffering from this condition. The next post in my series breaks down how I came to be diagnosed and the symptoms: buff.ly/2Kt0YVa #KnowScleroderma @SRUK
June 29th is World Scleroderma Day. Scleroderma is the chronic hardening and tightening of the skin and connective tissues. #KnowScleroderma, #SclerodermaAwarenes
June is #SclerodermaAwarenessMonth, so we're sharing information to answer questions around what #scleroderma is, diagnosis, treatment and more. Click the link provided to learn all about scleroderma 👇 bit.ly/3qit2k9 #KnowScleroderma @WeAreSRUK
Amazon ended its Amazon Smile program in February 2023. Please add use as your charity and when you check out on Walmart online you can round up your payments. walmart.com/.../147aecbd-5… #SayScleroderma #KnowScleroderma #sclerodermawarrior #teameuice #nosamadevfdn #walmart
Thank you for taking to the highways and byways to spread the word about #KnowScleroderma. 200,000 steps to go - you can do it! 😊
Though it's no longer June, you don't have to stop #WalkingForSRUK! The ladies aiming to complete 1 million steps For The Love of Alice started in April and finish in August. They've done over 800,000 steps so far, and spread the word about scleroderma: bit.ly/39je6Kf
Scleroderma is one of the known causes of pulmonary fibrosis. Join us today as we recognize all in the pulmonary fibrosis community and beyond who have been impacted by scleroderma. #KnowScleroderma
We in @BU_BMC_Rheum are proud to be New England's largest #scleroderma program, providing multidisciplinary care and engaging clinical, basic, and translational research to improve the lives of those living with this rare disease. #KnowScleroderma
Scleroderma is an autoimmune disease that affects more than 50 million Americans. #Scleroderma can take many forms and affect different areas of the body, making it difficult to diagnose. Know more: bit.ly/3Nh4GNK @scleroderma #knowscleroderma #sclerodermaawareness
#TealForScleroderma NYC Building Lightings to support Scleroderma Awareness! Come join us and #KnowScleroderma Thank you #helmsleybuilding #pier17
June is Scleroderma Awareness Month. Scleroderma is one of the known causes of pulmonary fibrosis. You can read all about Scleroderma-Associated Interstitial Lung Disease (SSc-ILD) in our free, downloadable fact sheet. pulmonaryfibrosis.org/patients-careg… #KnowScleroderma
Thank you to NYC Mayor Eric Adams for supporting World Scleroderma Day. The National Scleroderma Foundation & our community of patients appreciate the acknowledgment and support in raising awareness for this rare and incurable disease. #TealForScleroderma #KnowScleroderma
Join us June 29th as we light up New York State in teal for World Scleroderma Day! #TealforScleroderma #KnowScleroderma
A huge thank you to Colorado Springs Mayor John Suthers for formally recognizing June as Scleroderma Awareness Month! @cityofcos #KnowScleroderma #TealForScleroderma #ColoradoSpringsmayor #scleroderma #RockyMountainscleroderma
June is National Scleroderma Awareness month, an annual joint initiative of the Scleroderma Foundation, Scleroderma Canada, and the Scleroderma Research Foundation to raise awareness of scleroderma around the world. scleroderma.org/knowscleroderm… #KnowScleroderma
June is Scleroderma Awareness Month. This autoimmune condition causes thickening and tightening of the skin on the fingers and other parts of the body. It is also a known cause of pulmonary fibrosis. Read more about it at pulmonaryfibrosis.org/autoimmune #KnowScleroderma
June is Scleroderma Awareness Month! I'm in the fight of my life, but I WILL WIN! Check out @scleroderma and/or @srfcure for more information. . . #Scleroderma #SclerodermaWarrior #KnowScleroderma #SclerodermaAwarenessMonth 💚🦋💙
Spreading awareness about Scleroderma and other autoimmune disorders is my goal and I am only just beginning. #knowscleroderma #sclerodermaawarenessmonth
Joined the amazing @JoannaBarry8 Matthew Barry & friends for a 6.6 mile walk @ryeharbour_NR as part of her 100 mile walk raising funds for #SclerodermaAwarenessMonth #KnowScleroderma Thanks it was great fun @WeAreSRUK
@WeAreSRUK The early warning signs of scleroderma are often there, Raynaud's being one of them. This image shows the most common three: #KnowScleroderma #raynauds bit.ly/2d6QRlJ
When #scleroderma affects the lungs, it may cause symptoms such as fatigue, shortness of breath, or cough, and is usually associated with interstitial lung disease (pulmonary fibrosis) and/or pulmonary hypertension. #ATSLungFact #KnowScleroderma @scleroderma
This arrived yesterday, thank you @AmberRuddHR for the recognition, if you would like to know more about Scleroderma and how you can help its sufferers please get in touch. #KnowScleroderma @WeAreSRUK
June 29th is World Scleroderma Day. Scleroderma is the chronic hardening and tightening of the skin and connective tissues. #KnowScleroderma, #SclerodermaAwarenes
🌻Scleroderma will not take my smile🌻 World Scleroderma Day - introduced by us 10 years ago! Paul Klee made painting his life’s work. He was strongly influenced by his illness, systemic scleroderma. He died June 29, 1940. #sclerosmile #KnowScleroderma #doyouknowscleroderma
Today is World Scleroderma Day, this is for all the Scleroderma warriors out there including my son Mat #knowscleroderma #slcerodermaAwarenessmonth @WeAreSRUK
This #WorldSclerodermaDay we’re coming together to raise awareness of #scleroderma – a condition that can cause pulmonary arterial hypertension. Join us in getting to #knowscleroderma today.
Day 13 walk tonight, thank you to my cousin Becky and Bethany for coming with me and even Mat joined us on his skateboard This walk is dedicated to @hollieowen11 as she had been going through a tough time lately. #KnowScleroderma #SclerodermaAwarenessMonth #100milesforScleroderma
June is #SclerodermaAwarenessMonth, so we're sharing information to answer questions around what #scleroderma is, diagnosis, treatment and more. Click the link provided to learn all about scleroderma 👇 bit.ly/3qit2k9 #KnowScleroderma @WeAreSRUK
A huge thank you to Colorado Springs Mayor John Suthers for formally recognizing June as Scleroderma Awareness Month! @cityofcos #KnowScleroderma #TealForScleroderma #ColoradoSpringsmayor #scleroderma #RockyMountainscleroderma
🌻Did you know? Every day this June, as part of Scleroderma Awareness Month we will be posting a "Did you know?" about scleroderma - you may already know them. Share with your community so everyone can learn! Keep the conversation going #KnowScleroderma #srukpassiton #sclerosmile
June is Scleroderma Awareness Month. We'll share your stories, host webinars to join and we'll be launching our SRUK Walk. Throughout the month we aim to Educate, Engage and Empower. World Scleroderma Day is 29th June. Lots more info coming soon! #knowscleroderma #sclerosmile
Day 17 walk done today a breezy 4.12 miles @Winchelseabeach a total of nearly 60 miles so far. If you would like to donate to support Scleroderma research please see my Just Giving page justgiving.com/Joanna-Barry1 #KnowScleroderma #SclerodermaAwarenessMonth @WeAreSRUK
Today’s walk, early this morning only 1.2 miles done today, but looking forward to walking with @FarrSue01 and Amy from @WeAreSRUK on Sunday #knowscleroderma #SclerodermaAwarenessMonth
Do You #KnowScleroderma? Improve your knwoledge during #Scleroderma awareness month with NHSScotland free access to @BMJBestPractice - summarising evidence for diagnosis and treatment so you can support your patients 👍 ow.ly/5EUz50uO7Gr @WeAreSRUK
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