#spooniechat search results
A2. I'm just out here trying to function. Here's a video of me being wheeled out of my last chemo on Monday. #SpoonieChat
Q2: Where is your time and attention these days? Is something new on the horizon? Or please share a family-friendly pic off your device. I'll go first. We have lots of nasturtiums in the yard. They're easy to grow, and the bright cheerful colors can't be beat! #SpoonieChat
A2: My time and attention has been on my brother, who's dealing with a cancer diagnosis. #SpoonieChat
Q2: Where's your time & attention these days? Is something new on the horizon? Or share a family-friendly pic. Here's some of my pain stuff for Pain Awareness Month. Mine is one of millions of #RealPainStories lived every day. My pain goes everywhere I do. #SpoonieChat
Related. I wrote the following for my husband and kids to understand SPOON theory but in a way they could understand #SpoonieChat #nerds #chronicillness
Autistic Lexicon Spoons A metaphorical unit of capacity used by the disabled community. When you are out of “spoons” you are “done” … whatever form that takes. Many Autists are frustrated by the “spoon” unit and choose a personal variation, like “spell slots”
A1: I’m Jan - Currently working on a Lego replica of my house. #SpoonieChat
Q1: Please share something about yourself. Disclosure of diagnosis or specific circumstances is NEVER required. Extra points for things we might not suspect about you. #SpoonieChat
Next up for #ArthritisAwarenessMonth: Do you experience residual symptoms even after finding the right treatment? How do you communicate them to your doctor? #Arthritis #spooniechat #creakychats
Save the date for #CreakyChats discussion on Wednesday, February 28th at 2PM ET. We'll be digging into all things pain, with our "Cloudy with a Chance of Pain" Twitter discussion. Our community is here for you, whether you're seeking advice or solidarity. #NEISvoid #Spooniechat
Yeah no I don't like that. Community helps us survive, yes. But it's not supposed to be a substitute for the services we deserve for being humans on earth. Community is bigger than that. But. Many people view community through a capitalist lens. #SpoonieChat
I hate this narrative that disabled people should build community so we won't have to rely on services. Maybe instead, people should be focusing on the people that abandon their friends and community members when they become too disabled. Disability is isolating.
A3: we’re not equipped for chronic pain, but neither is the system. Sometimes we come off as “desperate” or something worse just because we’re frustrated with the healthcare we get, and then they use that to deny our care. #spoonieChat
Q3: Sptember is Pain Awareness Month! In your opinion, what does our society, culture, and medical system get wrong about pain and the patients who live with it?#SpoonieChat
Another patient perspective on what finding the right treatment feels like - A little bit goes a long way! #ArthritisAwarenessMonth #Arthritis #spooniechat
A3. I love when we support each other and uplift each other awareness months. I dislike when we're expected to transform bigots. Hateful people are not operating from a place of reason. #SpoonieChat
Q3: It's Pain Awareness Month 2024! How do you feel about awareness months in general. In your opinion, what are some good ways to do pain awareness? And what should we skip? #SpoonieChat
A2: just in surviving right now, been a rough week. Looking forward to a potential weekend away this fall. #spooniechat
Q2: Where is your time and attention these days? Is something new on the horizon? #SpoonieChat
Be sure to join us tomorrow as we guest host #CreakyChats tomorrow, Monday January 30, 2023 at 7PM Eastern Time. We’ll also be joined by our #MigraineChat and #SpoonieChat fam! #LupusChat
🤗 We’re excited to join @CreakyJoints for a joint #CreakyChats discussion on January 30th at 7 PM eastern time co-hosted with our friends #MigraineChat & #SpoonieChat! We’ll be talking about all things “symptoms.” You won’t want to miss it so save the date! #LupusChat
#SpoonieChat I am just learning about the Spoon Theory and I don’t yet know how many spoons different activities require. All I know is I’m now in constant pain. I had two DVT Thrombectomy and now I can’t walk on my right leg without a walker. It’s swollen, tight and hurts.
Juiced wheatgrass with veggie & fruit juices every 3 weeks—restored much of my eyesight! Not medical advice—consult a doctor. Share your hacks & see my pinned tweet! #HealthJourney #SpoonieChat #ChronicIllness #InspiringStories
Water planted wheatgrass for juice caused headaches—poor nutrients! Proper wheatgrass helped my vision #HealthJourney. Not medical advice—consult a doctor. Share your tips & see my pinned tweet! #SpoonieChat #ChronicIllness
Car up onto me spot in front of my building. She parked across the street and then left the block when I was getting out of my car. I think she saw me getting my Rollator of out of my back seat. I wish that the police would ticket if they go by & not have us call in. #spooniechat
A7: I hope to remain connected with people, or find them again. I wish the blue place were more like Twitter, or that people would come back and reclaim Twitter. I’m grateful for the time we’ve had together. #SpoonieChat
Q7: It's time for Closing Thoughts, new topics, dreamy moonshots, and Spoonie Fairy Godmother requests. macmillandictionary.com/us/dictionary/… #SpoonieChat #Disability #DisCo
A5: I miss the people who left, as their Twitter selves. The same people (mostly) feel too curated on the blue place—like “no bad vibes allowed.” It isn’t quite toxic positivity but it doesn’t feel like the raw, come-as-you-are energy from OG Twitter. #SpoonieChat
Q5: What's something you miss from OG Twtter and other previous incarnations of social media platforms you're familiar with? #SpoonieChat
A6: The value of community, being seen, and finding other people who share some of your experiences. Not surprising, just affirming. #SpoonieChat
Q6: What's the most important thing you've learned in our many years together here? Any surprises? #SpoonieChat
Out of spoons. Started a new biologic med yesterday. I’m on most social platforms under SocialMediaShan or my full name in my profile. Catch y’all on the flip side! #SpoonieChat
#SpoonieChat, thanks for an amazing 12 years on here! Now it's time to go get it over on the blue place. Starting again isn't easy, but that's okay. We can do hard things. Love you!
Until Next Time May you love and be loved. May butterflies greet you. May you sparkle like moissanite! May your burdens be few. May your needs be met. May joy, kindness, and peace find you. See you soon! #SpoonieChat x.com/DawnMGibson/st…
A8: You can find me at oakandredwood9 in the blue location OakAndRedwood9 on IG songspinner9 on Tumblr #SpoonieChat
Q8: #SpoonieChat Alert: Please let us know where and how to find you. I'll go first. Medium medium.com/@dawnmgibson Tumblr webauntie.tumblr.com Linktree linktr.ee/dawnmgibson Facebook: facebook.com/profile.php?id…
A3: Having a private chef…I could handle that! I’m really picky about food. Love high protein meals + grilled or roasted veggies. I’d love an architect to rip out my bathroom and start over, lol. #SpoonieChat
So glad to have you! #SpoonieChat
Hah - same here. Long day of teaching and my brain is just…done. 🤷🏼♀️ #SpoonieChat
Until Next Time May you love and be loved. May butterflies greet you. May you sparkle like moissanite! May your burdens be few. May your needs be met. May joy, kindness, and peace find you. See you soon! #SpoonieChat x.com/DawnMGibson/st…
Until Next Time May you love and be loved. May butterflies greet you. May you sparkle like moissanite! May your burdens be few. May your needs be met. May joy, kindness, and peace find you. See you soon! #SpoonieChat
I can't leave the chat without tagging @Tinu one last time. She has flown, but she will never leave my heart. Goodnight. #SpoonieChat
A2: I lack the spoons to think of anything! What a great question, though! #SpoonieChat
A1: I’m Shannon, very late for #SpoonieChat! #JPsA #hEDS I’m a dog mom restoring a 1911 bungalow with my husband. We have two pups, a #bassethpund + a #minidachshund. I am into legislative advocacy for access to healthcare for #arthritis patients.
Q8: #SpoonieChat Alert: Please let us know where and how to find you. I'll go first. Medium medium.com/@dawnmgibson Tumblr webauntie.tumblr.com Linktree linktr.ee/dawnmgibson Facebook: facebook.com/profile.php?id…
A7: I have to get some tests done next week that I’m stressing about. 🤞🏻They go well. See y’all on the flip side - I’m over in the blue place with the same handle. #SpoonieChat
Q7: It's time for Closing Thoughts, new topics, dreamy moonshots, and Spoonie Fairy Godmother requests. macmillandictionary.com/us/dictionary/… #SpoonieChat #Disability #DisCo
This could help justify my battle to avoid abandoning my patients by suddenly having my State CDS suspended. The head of the State Board at the time just said abandoned patients could go to the ER for care. I laughed at that one.
norml.org/news/2024/03/1… #Migraines #MigraineRelief #SpoonieChat #ChronicIllness #Spoonie #Canada #Relief #Wellness #ONHealth #Headaches #Headache #Migraine
A2. #SpoonieChat Got lucky with the weather on my most recent garden visit!
Q2: What's something that's feeding your heart and soul these days? #SpoonieChat
Music has always been grounding & a spark of hope for me. I’m so incredibly grateful for all the amazing memories & friends from the years. I strive to make the scene more accessible. #SpoonieChat
A6: Someone in my family gave me this gift recently - a beautiful handmade mug from a local potter's show. They know me well! #SpoonieChat
Check out this adorable pill minder made by @PillJoyShop !! #Mushrooms #ChronicIllness #SpoonieChat #ITakeSoManyPills #LikeSeriouslySoMany
A2: I’m giving myself lots of gentle grace right now. It’s been a hellacious last mo. w/surgical recovery, job stress, kid stress & parent stress. Just gentle self care for now. Pic of a variety of types of Hanukkah cookie dough I aspire to make, but prob won’t. #SpoonieChat
A1: I'm so tired. Came from a doctor's appointment today where it was the wild wild (unmasked) west. But over the weekend, I had my graduation, and my blog, #Fashionablyill ®, celebrated 11 years. #SpoonieChat
Q1: Please tell us something about yourself. Disclosures of DX, Tx, or other personal info are NEVER required on #SpoonieChat.
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