#spoonie search results

I audited @perplexity_ai Health vs @GuavaHealthInc. The results? 🧵 Research is great, but management is life. Full breakdown here: nixonspeechandlanguage.com/research-vs-re… #Spoonie #HealthAI #MedTwitter #ChronicIllness

“My symptoms can flare daily and my pain can be off the charts. I can go from being able to walk with aids to being completely crippled. It’s scary at how quickly my physical symptoms worsen.” My #ChronicIllness Rule Book buff.ly/aPB6hAS @My_MedMusings #spoonie

SUNDAY TRIVIA! This one’s easy. Your “funny bone” is not a bone, it is the ulnar nerve. That tingling shock down your arm is nerve irritation, a simple example of how nerve pain can feel. #medicaltrivia #chronicpain #spoonie #medicalstudent #nursepractitioner

Leave a 🛏 in the comments if naps count as exercise in your life. #Spoonie

You don’t need a pain specialist right away. But if pain lasts months, isn’t improving, or starts affecting sleep and function, it’s time to look deeper. Earlier intervention can make a big difference. #painmanagement #chronicpain #spoonie #backpain #neckpain

"I was terrified of doing something wrong..It felt like my #body had become a science proj for others to monitor. Each appt felt like an exam I was failing. I felt betrayed by my own body, & worse, as if I was betraying my #baby": buff.ly/qCFDH6l via @tinybuddha #spoonie

From @onelife_livedwell on IG: The criteria took 30 years to catch up to what patients already knew. This means if you’ve ever walked into an appointment knowing something was wrong & walked out feeling unheard, you might just have been ahead of the science.💛 #mecfs #spoonie 1/

“The whole thought process of a #chronicallyill person is vastly different from a “healthy” person… they have no idea what it’s like—there may be 20 or more decisions you need to process before you can walk out your door.” 🔗 buff.ly/46vXYyv @KimberlyJPenix #Spoonie

Leave a 💤 in the comments if your new motto is “nap now, adult later.” #Spoonie

“Becoming suddenly #disabled means I’m currently bedbound and unable to walk…my room feels like a benevolent prison. My skin presses against my bedsheets all day… Everything seems so near yet so far…every minute…excruciatingly slow.” buff.ly/3BlF6Vp @AChVoice #spoonie

My energy has a high interest rate, and I’m bankrupt. 💅 #Spoonie #EnergyAccounting #ChronicIllness #Relatable #LifeLessons

“Someone may appear to be functioning completely normally and without pain… yet inside they are suffering… Despite the tough face [we] put on to get through the day, that there is a lot they aren’t witness to behind the scenes.” buff.ly/3OLs5rl #ChronicPain #Spoonie

Living with chronic illness isn’t a life half-lived; it’s an opportunity to redefine what it means to be truly alive, resilient, and whole. #Spoonie

He only asked one question — and Bumbly’s whole life started shifting. “Are you surviving… or actually living?” Lyra Lights the Fuse is a soft, sharp story about access, friendship, and the moment comfort stops being enough. sarclusion.com/blogs/spoonie-… #Spoonie #AccessIsLove

Must see film if you struggle with #chronicpain - "Pain Matters" Great to share with friends & family tinyurl.com/2f7k477r #painmatters #spoonie #opioids #RSD #fibromyalgia #endometriosis #migraines #pain #crps #lupus #womeninpain #hope

I'm so grateful for this vacation—and I'm also still tired. Living with chronic illness means joy and fatigue can exist at the same time. Today I’m choosing to pace: no overdoing it, just one breath and one moment at a time. 💜 #DrBlied #ChronicIllnessWarrior #Spoonie

Let's take a deep breath & remember: ✨ We are all doing our best. 🧠 Migraine is a complex neurological disease, not a personal failure or something we bring on ourselves. 🚫 There is no room for guilt in #migraine management! #migrainemeanderings #Spoonie #migrainelife

There’s no easy answer here. Both sides take a toll in very different ways, and a lot of people are living somewhere in between. #chronicpain #mentalhealth #spoonie #wouldyourather #medicalstudent

Leave a 🎬 in the comments if you’re Oscar-worthy at hiding pain. #Spoonie

I just wanted to wish Sheryl - a wonderful friend, advocate & #blogger (@AChVoice) - a very Happy Birthday! 🥳🎈Times have been so tough for you & I just hope there are some brighter days ahead yet this year. Sending love xx #chronicillness #spoonie #Disability #happybirthday

News Release 9-Mar-2026 Telemedicine remains popular, but who uses it varies widely eurekalert.org/news-releases/… “Telemedicine is no longer just a pandemic workaround—it has become a routine part of care delivery,” #chronicillness #Spoonie

I’ve finally completed a New Year’s resolution to get in control of my disease #IBD #spoonie #invisibleillness #stoma #colitis #weightloss #crohnsandcolitisawareness #tranformation @ColostomyUK @CrohnsColitisUK @CrohnsColitisA

🧵 "The Quiet Art of Extending a Life: Notes on Assistive Tools, Capacity, and the Dignity of Support" onelifelivedwell.substack.com/p/the-quiet-ar… Another thoughtful post from this OT who specialises in ME/CFS & long Covid She calls such devices "capacity extenders". #chronicillness #Spoonie 1/

Every 1 to 2 weeks for about 9 years now, I've been willingly jabbing myself in the leg with what feels like a bee sting just to be able to function on some level. Shout-out to all others out there battling invisible illnesses ✊️ #spoonie #chronicillnesswarrior

#Spoonie Price List PRICE LIST Showering 7 spoons Cooking 6 spoons Getting Ready 4 spoons Going Out 15 spoons Chill Day 1 spoon Credit Unknown #SpoonieLife #SpoonTheory #MySeveralWorlds #ChronicLife

Mary has ME and she has given us the following description to use when we are highlighting it: "A fictionalisation of the struggles of a woman with Myalgic Encephalomyelitis (ME), and the obstacles she faces on a daily basis as a wheelchair-using mature student” #PwME #spoonie

I was really excited about a replacement SI brace I got and I thought it was comfy enough to wear next to my skin... The blistering welts tell me I was mistaken 😬 #spoonie #hEDS

“I’ve lost track of the number of times in my life that I’ve wanted to give up. The number of days, of moments, when I felt I could no longer tolerate the #pain… But I’m STILL here… Just like you can’t see my illness, you can’t see my strength.” buff.ly/2Q9W4vQ #spoonie

Must see film if you struggle with #chronicpain - "Pain Matters" Great to share with friends & family tinyurl.com/2f7k477r #painmatters #spoonie #opioids #RSD #fibromyalgia #endometriosis #migraines #pain #crps #lupus #womeninpain #hope

A good reminder. #MS #Spoonie #SpoonieLife #ChronicIllness #InvisibleIllness #Bionews

A Dutch patient who asked not to be named sent me this ingenious method they have found to vacuum using less energy. Well done to them 👏 #MEcfs #Spoonie

"When Home Becomes a Healing Space" by an OT who specialises in ME/CFS & long Covid. onelifelivedwell.substack.com/p/when-home-be… This particular article is pretty general and suitable for people with lots of chronic illnesses #chronicillness #Spoonie

Grief and complex chronic illness often go hand in hand. We know we are feeling some heavy grief right now. We have a workshop on grief with author Marisa Renee Lee available for you: youtu.be/0EbpE9Zj0V0 #pwME #pwLC #Spoonie #Grief

What a weekend, Wasn't able to stream because of how busy it was and my body was outta spoons 😅 It's you Egirl #Spoonie here to remind you.. That thing you wanna try? FUCKIN DO IT. Worries about failing? ITS APART OF LIVING. It's okay to fail, GET BACK UP. ✨It's Time

To Ground Research in the Lived Experience of Patients and Caregivers, Give Us a Voice! by @JeffLubell_C19 Screenshot from February 2026 AMMES newsletter annfammed.org/content/23/6/5… #chronicillness #Spoonie

#spoonie #cat

Must see film if you struggle with #chronicpain - "Pain Matters" Great to share with friends & family tinyurl.com/2f7k477r #painmatters #spoonie #opioids #RSD #fibromyalgia #endometriosis #migraines #pain #crps #lupus #womeninpain #hope

"When I Don't Feel 'Disabled Enough' as Someone With a Chronic Illness" themighty.com/topic/fibromya… "How many of you who have fibromyalgia or similar chronic illness sometimes feel like you’re judged for not being 'disabled enough?'” #invisibleillness #Spoonie

A quick guide for looking after yourself when living life with chronic illness : instagram.com/p/DPtw3TUjCUf/… #chronicillness #chronicpain #spoonie #disability #life #mentalhealth #SelfCareSunday #sundayvibes #quotes #inspiration

What would your conversation hearts for our community say? Happy Valentine's Day! This is your reminder that you are loved, valued, needed, and wanted. The love, belief, acceptance, & support offered in this community is truly beautiful! #PwME #Spoonie #Valentine