#fragilexpedition search results
Just run my first mile (and a bit) for #fragileXpedition! Every mile helps towards our mission to raise awareness of Fragile X all the way around the UK
5 #fragileXpedition Kms this morning via @cardiffparkrun #parkrun #5k Raising awareness of Fragile X Syndrome with my #fragileXtraordinary t-shirt!
We want to raise awareness of Fragile X Syndrome all the way around the UK... and we need your help! Find out more at everydayhero.co.uk/event/fragileX… #fragileXpedition #fragilexawareness
Please help support #fragileXpedition, add a #Twibbon now! twibbon.com/support/fragil…
It's also Fragile X awareness Day. The most common cause of inherited learning disability. It comes with it's own mental health issues yet hardly anyone has heard of it. A mention would be just brilliant! #fragileXpedition
You can read for of our #fragileXpedition stories here...everydayhero.co.uk/event/fragileX… Big thank you to everyone who got involved. #fragileXtraordinary
Happy Monday! Wednesday is Fragile X Syndrome Awareness Day in Europe. We want to say a huge THANK YOU to all of those that have participated in the #fragileXpedition to help raise awareness and vital funds. What can you do this week to help raise awareness? #MondayMotivation
Another FragileXpedition achieved. Well done to my mum and her gang totaling 56 miles between them through the Windrush Valley. #fragileXpedition #Asthall #goodfood @MaytimeInn fragilexpedition.everydayhero.com/uk/rosie-martin
Wow! Thank you to our amazing #fragileXpedition participants who have so far raised over £4,300 and taken on all sorts of amazing challenges to raise awareness of Fragile X! everydayhero.co.uk/event/fragileX…
Fragile X-Associated Tremor/Ataxia Syndrome #fxtas: a condition affects a proportion of Fragile X premutation carriers. 1 in 250 women and 1 in 800 men are carriers of Fragile X. Link explains more about this under-recognised condition #fragileXpedition fragilex.org.uk/single-post/20…
Today is the launch of our annual #fragileXpedition event! Join us on our mission to raise awareness of Fragile X Syndrome all the way around the UK! Find out more about the event and how you can help at: everydayhero.co.uk/event/fragileX… #fragilexawareness @everydayheroUK
5 #fragileXpedition Kms this morning via @cardiffparkrun #parkrun #5k Raising awareness of Fragile X Syndrome with my #fragileXtraordinary t-shirt!
Proud to support @fragilexuk #fragileXpedition campaign. I can see the negative that a lack of understanding of Fragile X has upon the lives of individuals & families. I want to help change that by raising awareness, as well as funds to tackle this issue. fragilexpedition.everydayhero.com/uk/becky-s-fra…
Save the date - the annual FragileXpedition is about to launch on 20th August! To find out what, when, why, where and how, visit everydayhero.co.uk/event/fragileX… #FragileXpedition #fragilexawareness
Wanted a way to raise awareness of #fragilex during @Woburn_Abbey @triforlifeuk triathlon next week... Got myself some temporary tattoos to wear with my trisuit! #fragileXpedition @fragilexuk fragilexpedition.everydayhero.com/uk/becky-s-fra…
#fragileXpedition is a campaign to help raise much-needed awareness of Fragile X Syndrome and Fragile X-Associated conditions. What is the #1 thing YOU want people to know about Fragile X? everydayhero.co.uk/event/fragileX…
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