#pwlc risultati di ricerca

#MutualAid thread for #PwLC x.com/LongCovidAidBo…

People ignore SARS-CoV-2 in order to ignorantly live a “normal” life. It’s obviously not working out. The virus is year round, reinfecting people, and persisting in people. Get a grip! We need to address the virus head on, there’s no other way forward. #LongCOVID #pwLC #COVID

Initially, I could manage leaning over the bath to have it washed. Then even that required more stamina than I had. So this is my new set up. It’s very much a working prototype, but being able to lie back & have my weight fully supported is bliss. /2 #HairWash #pwME #pwLC

@polybioRF, I know you’re studying #LongCovid, including #LongCovidKids. Know of anyone I should follow and tag!? @id_cure as well. #pwLC. @dysclinic

Finally, someone is being honest. Long Covid is not ME/CFS. Stop the conflation. Stop co-opting Long Covid. There is no Long Covid without Covid. #longcovid #pwlc

For anyone feeling particularly ill or overwhelmed or lost, I hope this most perfect little hoglet offers a moment of lightness. 💙🫂 He approaches Honeysuckle & the water bowl, then explores each nest box. Curled up, he’s the size of a tennis ball. #pwME #pwLC #ChronicIllness

Thank you from myself and #pwLC!!!

Start asking your doctor to help you get early access. #pwlc shionogi.com/us/en/innovati…

This needs to be EUA stat! This is being used in Japan to treat Covid for pediatric cases. #longcovidkids need this now. #pwlc need this available like Japan for prophylatic for exposure exist and to treat Covid. shionogi.com/us/en/news/202…

I will never give up fighting for #pwlc and #longcovidkids. I have lived a lot of my life…the kids never stood a chance. I won’t let the kids be forgotten.

Where have you been while Long Covid pts were harassed, cyberstalked, doxxed, placed on block lists and bullied out of mutual support and aid by legacy orgs and sickfluencers? We have been screaming about this for more than 2 years. Better late than never. #pwlc #longcovidkids

People are isolating themselves more, but they are missing why some of us are choosing to do so. #pwlc #covidcatious youtu.be/Umc1adOQ-r8?si…

I know lots of patients and several LC docs that say that only capillary pO2 is normal but the less common venous pO2 is pretty much always too low in #pwLC. For me this is a very cheap lab value showing that something is wrong. Thoughts on this anyone? @PutrinoLab?

This article looks at the science behind the recent announcement of a blood test for ME. news-medical.net/news/20251007/… #pwME #pwLC #MyalgicEncephalomyelitis

Aufgrund schlafloser Nächte suche ich ein neues Schlafmittel. Was war/ist euer bestes Schlafmittel bisher? Gerne in die Kommentare genaueres dazu. #mecfs #pwlc

$48 rec from N, TY! $1477’s needed for food,basics, incl glasses & work tools. #ShopSmall #PWLC #Artist #Art mayasdivinedesignstoo.square.site #WearableArt legaleriste.com/mayas.divine.d… #DigitalArt: Ko-Fi mayasdivinedesigns (also P/C/V) Tips linktr.ee/mxmd1 #Music truthbytwo.bandcamp.com

Please @neilcgray take this mum up on her offer! Politicians, stop ignoring the heartbreaking reality of #LongCovid in children. Stop allowing the neglect of these families! #Covid #pwLC

Some people have been wondering how difficult it is to wear a mask (Kn95 or better is best) to protect themselves & others against SARS-CoV-2 infection when in a public space. Here is a video that answers this complex question. #LongCOVID #pwLC #MaskUp #CleanTheAir

School is starting for many soon. With that comes the spread of SARS-CoV-2. It’s harmful to adults, but it’s also a major concern for kids. Millions of children in the U.S. are suffering with #LongCOVID, some too unwell to attend school. 🧵 #pwLC #LC #CleanTheAir

#3 is “Ozone” in our series “A Long COVID patient tries …” In this series we break down therapies a COVID Long Hauler has tried. The rationale & how it helped them, or didn’t, will be discussed & more. #LongCOVID #pwLC #LC #Ozone #ALCPT 🧵🧵🧵

This is our first in a series called: “A Long COVID patient tries …” Where we break down things a COVID Long Hauler has tried. The rationale & how it helped them, or didn’t, will be discussed & more. #1 “Monoclonal Antibodies” #LongCOVID #pwLC #LC #mAbs #ALCPT 🧵🧵🧵

Dec 3: @LBC presenter @_NatashaDevon is #ThereForME! Her message: “For people affected by ME and Long Covid, please know that you are in my thoughts this Christmas and I will continue to advocate for you whenever I can. Sending you so much love, Natasha Devon” #pwME #pwLC

Just got my #microclot results back - headed to #TT soon… 4 out of 4. Scared. If you have done triple anticoagulant therapy / please give me feedback. #pwLc #pwME #NEISvoid (feel free to RT).

Wow I’m so beyond upset, I just got a book given to me by someone who is supposed to care for me. Now I’m gonna be sending them articles bcuz I have kept to myself for yrs, they opened pandora’s box. So send links I need some help. DM I’m heartbroken #longcovid #pwLC

Another new doctor appointment. Another disappointing experience. Where are all the proactive and knowledgeable professionals? #COVID19 #LongCOVID #pwLC #YallMasking #MaskUp

Twitter (or "X" I guess) has become so toxic. MDs mocking disabled people for not wanting to get COVID and recommending "exposure therapy" is sad to see. It's no surprise that #pwLC, #pwME and other chronic complex illnesses experience serious medical trauma.

Today's last day to restore $800 heat... offices reopen Mon. We're 2 Black #pwLC just endured high-heat summer & now a winter sick & fatigued, no heat, basic clothes, or housing secured for when lease ends in Jan. PLS, show care-- even $2! We need $4.8k in 8 days, inclds rent!

🧵🧄 THREAD: GARLIC: Interferon x H₂S/NO x micro-clots Synergy: a cure for acute Covid & #LongCovid 🚨 My personal case study: ≥ 20 marinated cloves day shut down acute COVID in 7 days & strongly diminished Long COVID after other things failed. #TeamClots #pwLC #pwME #MECFS

This article looks at the science behind the recent announcement of a blood test for ME. news-medical.net/news/20251007/… #pwME #pwLC #MyalgicEncephalomyelitis

🔥 Please share - Very important care campaign for anyone with ME #pwME #pwLC ♥️💙🫂 "Campaigning for ME (Myalgic Encephalomyelitis) to be medically managed safely, to protect families from permanent disability or death from neglect of the illness" justice4me.uk

A huge study published this week put Long Covid prevalence at 4% in kids & 10-26% in adults. Media is mostly absent compared to a recent, minuscule "LC study" lying about 4.5% MECFS prevalence #LongCovidKids & #pwLC needed Sx for 3-6+ mos to be Dx'd. But ppl only needed "ME…

There are multiple studies showing few #pwLC recover even after 2 years. Multiple papers are also showing SARS-CoV-2 persistence almost 2 years after infection. Entire conferences are dedicated to the pathology of #ViralPersistence...but fine ignore me.

Liebe #pwLC, #pwME, Mein Tipp des Tages, lasst bitte mal Eure Immunglobuline bestimmen, falls Ihr es noch nicht gemacht habt. Konkret IgM, IgA, IgG, und insbesondere IgG Subklassen! Das Beispiel hier ist von Biovis, das bieten aber viele Labore an. Kostet unter 100€.

Hey #pwLC and #pwme , just came across the latest Health Rising Interview with Dr Nancy Klimas. She mentioned a 3 layer approach to come back to homeostasis

#pwME and #pwLC A community note has been proposed on one of Garner's latest posts. If you have CN, rate it. If not, sign up so we can make sure this kind of disinformation is flagged.

It’s @JoPlattLeigh, MP for Leigh & Atherton! Jo is a @UKLabour champion in parliament for #pwME & #pwLC + new chair of the APPG on ME. Her message: “My Christmas wish is for people with ME and Long COVID to be recognised and supported through healthcare and the workplace.”

Post Exertional Malaise NOT just exaggeration of "Boom and Bust", energy averaged out over time out. My PEM in blue below shows I am wrecked for a MUCH LONGER period than the exertion over my baseline. Why do even the most recent official documents get this wrong? #pwME #pwLC

Hey guys Can you drop some feedback and tell us what you think of these two designs for the hospital billboard? I will probably run a poll for people to vote on them but right now just looking for general feedback on these drafts. What do you think? #LongCovid #MECFS #pwlc