#pwlc wyniki wyszukiwania

Since Kristaps Porzingis is the talk of the town, we repost this thread regarding NBA illness. Notably, in the 2024-25 season 217 players were on IR due to illness. 0 were reported as COVID illness. It seems as if the NBA is purposefully ignoring COVID. #LongCOVID #pwLC

Everyone should be demanding why @fda @nih @hhs @RobertKennedyJr aren't doing something about letting Americas continue to die from and be disabled from Covid. Especially the kids. Stop condemning them to this purgatory of Long Covid. #pwlc #longcovidkids

Please kindly also focus on lived experience of #pwME people with ME/cfs and #pwLC Long Covid as so many are housebound or bedbound with virtually no support 🙏. Be assured - I’ve never considered any friends & colleagues who’ve had cancer as malingering or faking for benefits.

Julie, I skimmed (very quickly) and couldn't see if this is only US or if #pwLC from other countries could participate. Thanks! :)

Couple of activities that require little exertion. I hope others appreciate when #pwLC leave a message, comment or share. We are giving our life force to share. We are burning fuel we are already low on. Appreciate it, appreciate all of it🙏 I imagine these from bed❤️‍🩹✊🏼

Focusing on specifics will be the only way to get solutions for Long COVID. That means: - Specific biomarkers & testing for Chronic SARS-CoV-2 & LC - Specific treatments for SARS-CoV-2 & LC - Mitigation of SARS-CoV-2 infections Put your effort there. #LongCOVID #pwLC #LC…

Not all #pwLC people have ME/CFS. #LongCovid

It is so ironic that a certain long Covid=me/cfs is wondering about Covid toes amongst other concerning symptoms. It’s unfortunate that her crew’s efforts wasted years and condemned #pwlc to suffering and disability through erasure of long Covid.

$1427’s needed in 10 days, $300 of it’s needed today, I had to use the $24 rec Sun for a few food items. #ArtShop, #NewMusic sales, tips are needed now! #PWLC #Art mayasdivinedesignstoo.square.site #WearableArt legaleriste.com/mayas.divine.d… #DigitalArt: Ko-Fi mayasdivinedesigns (also P/C/V)

Schlag voll in die Fresse von #pwLC/#pwME! #Medizinbrennt lichterloh! wir sind mit #ME #MECFS #chronischkrank #chronischignoriert #chronischunversorgt #chronischAmArsch und ihr labert was von "Hightech-Land"?!? macht doch endlich mal eure politisch verblendeten Augen auf!

In case anybody was curious... Some long haul Long Covid #pwLC patients can understand the concept of #AirborneAIDS Why the FUCK can't you, dumbfuck? Neurological Complications of HIV ninds.nih.gov/health-informa… #NINDS

to my #pwLC #pwME when was your first infection?

@DNAComplete I want the full refund of my test. You failed to provide with an address to deliver my sample. You are making a sick person sicker. I gave you 24 hours and it’s been longer than that. #MECFS #pwME #pwLC don’t buy a test from this people, they are not legit

For all the #pwlc warriors out there.

Curious about the subset of #pwLC who do not seroconvert? I remember many of them back in 2020, but i think they were only testing spike protein antibodies early on? Also Nucleocapsid IgG wanes after a few months just like the spike protein IgG right?

#pwlc and #covidaware predicted years ago that the press would introduce the public to the consequences of Covid as if they were due to new variants, to hide their complicity. Today the new symptom they are ascribing to the variants is tooth pain. mirror.co.uk/news/health/co…

I’ll have access to HBOT soon! #pwME #pwLC what are the best resources/people for developing a protocol? @SalvMattera @chydorina @grok

Addressing these challenges requires infection control measures, research into treatments & biomarkers for persistence, cumulative infection burden & naivety. The consequences of unchecked SARS-CoV-2 may continue to undermine global health for decades. #LongCOVID #pwLC #LC

Let’s dive into: “COVID-19 is ‘Airborne AIDS’: provocative oversimplification, emerging science, or something in between?” ajpmfocus.org/article/S2773-… #LongCOVID #pwLC #LC #Immunodeficiency 🧵🧵🧵

📢An alle, aber va an meine #pwME #pwLC-Bubble mit 💚Parteibuch! Bis 22.10. könnt ihr 1 von insg 6 Stimmen für Antrag V08 (ME/CFS/LC/Schule) abgeben, damit er auf der BDK diskutiert wird! 🚨 Nur 6 von 75 Anträgen kommen weiter. Also schnell abstimmen, teilen, und unterstützen! 🌻

School is starting for many soon. With that comes the spread of SARS-CoV-2. It’s harmful to adults, but it’s also a major concern for kids. Millions of children in the U.S. are suffering with #LongCOVID, some too unwell to attend school. 🧵 #pwLC #LC #CleanTheAir

#pwME and #pwLC A community note has been proposed on one of Garner's latest posts. If you have CN, rate it. If not, sign up so we can make sure this kind of disinformation is flagged.

Twitter (or "X" I guess) has become so toxic. MDs mocking disabled people for not wanting to get COVID and recommending "exposure therapy" is sad to see. It's no surprise that #pwLC, #pwME and other chronic complex illnesses experience serious medical trauma.

Just got my #microclot results back - headed to #TT soon… 4 out of 4. Scared. If you have done triple anticoagulant therapy / please give me feedback. #pwLc #pwME #NEISvoid (feel free to RT).

Another new doctor appointment. Another disappointing experience. Where are all the proactive and knowledgeable professionals? #COVID19 #LongCOVID #pwLC #YallMasking #MaskUp

Today's last day to restore $800 heat... offices reopen Mon. We're 2 Black #pwLC just endured high-heat summer & now a winter sick & fatigued, no heat, basic clothes, or housing secured for when lease ends in Jan. PLS, show care-- even $2! We need $4.8k in 8 days, inclds rent!

I have a local friend who has been dealing with LC since March 2022. She avoids LC groups bc they depress her, so she hadn't heard of #nattokinase / #serrapeptase and this is what she sent me last night after I recommended it! #pwLC #Dysautonomia

🔥 Please share - Very important care campaign for anyone with ME #pwME #pwLC ♥️💙🫂 "Campaigning for ME (Myalgic Encephalomyelitis) to be medically managed safely, to protect families from permanent disability or death from neglect of the illness" justice4me.uk

There are multiple studies showing few #pwLC recover even after 2 years. Multiple papers are also showing SARS-CoV-2 persistence almost 2 years after infection. Entire conferences are dedicated to the pathology of #ViralPersistence...but fine ignore me.

Here is the one pager we handed out during the Long COVID Roundtable discussion with HHS and company. Of course more is needed, but these are 7 important needs for the Long COVID community. The time is now for testing, trials, & treatments. #LongCOVID #pwLC #HHS #Roundtable

Wow I’m so beyond upset, I just got a book given to me by someone who is supposed to care for me. Now I’m gonna be sending them articles bcuz I have kept to myself for yrs, they opened pandora’s box. So send links I need some help. DM I’m heartbroken #longcovid #pwLC

Liebe #pwLC, #pwME, Mein Tipp des Tages, lasst bitte mal Eure Immunglobuline bestimmen, falls Ihr es noch nicht gemacht habt. Konkret IgM, IgA, IgG, und insbesondere IgG Subklassen! Das Beispiel hier ist von Biovis, das bieten aber viele Labore an. Kostet unter 100€.

Hey guys Can you drop some feedback and tell us what you think of these two designs for the hospital billboard? I will probably run a poll for people to vote on them but right now just looking for general feedback on these drafts. What do you think? #LongCovid #MECFS #pwlc

Hey #pwLC and #pwme , just came across the latest Health Rising Interview with Dr Nancy Klimas. She mentioned a 3 layer approach to come back to homeostasis

It’s @JoPlattLeigh, MP for Leigh & Atherton! Jo is a @UKLabour champion in parliament for #pwME & #pwLC + new chair of the APPG on ME. Her message: “My Christmas wish is for people with ME and Long COVID to be recognised and supported through healthcare and the workplace.”

Post Exertional Malaise NOT just exaggeration of "Boom and Bust", energy averaged out over time out. My PEM in blue below shows I am wrecked for a MUCH LONGER period than the exertion over my baseline. Why do even the most recent official documents get this wrong? #pwME #pwLC

After 1 week, we now have 71 responses, 27 #pwlc and 44 #pwme thank you. The survey is open for another 3 weeks it would be great to double those numbers. Please fill out even if you have only been trialling for a short time, all experiences important. Thank you @PhysiosForME

Thanks to @BFWoodburn for creating this graphic for @LCMEBillboards !! This has all details of the 4 leaflet distribution groups for #LongCovidAwareness. If this could be shared around socials etc, much easier!! #pwME #pwLC #LongCovid

I have never met a #pwME (or #pwLC) that have showed resistance to considering alternative diagnoses. They would love nothing more than to have either the totality of their symptoms (or even some part of them) to be treatable or curable. But that is often not the case.

It’s green 👍🏼 Merry Christmas to all #pwLC #pwME & all chronic illnesses that makes holiday time a difficult time. I hope you find little pieces of joy today & can stay safe. Thank you to everyone in the covid aware community who advocates for us day in day out ❤️