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Wow I’m so beyond upset, I just got a book given to me by someone who is supposed to care for me. Now I’m gonna be sending them articles bcuz I have kept to myself for yrs, they opened pandora’s box. So send links I need some help. DM I’m heartbroken #longcovid #pwLC

Some people have been wondering how difficult it is to wear a mask (Kn95 or better is best) to protect themselves & others against SARS-CoV-2 infection when in a public space. Here is a video that answers this complex question. #LongCOVID #pwLC #MaskUp #CleanTheAir

Just a reminder: Chronic illness will never be solved in any significant way if chronic & reactivated pathogens don’t have good mainstream testing & treatments. … Right now many don’t, such as: SARS-CoV-2, Borrelia, EBV, & on & on & on. #TreatChronicPathogens #LongCOVID #pwLC

Hey #pwLC and #pwme , just came across the latest Health Rising Interview with Dr Nancy Klimas. She mentioned a 3 layer approach to come back to homeostasis

It’s @JoPlattLeigh, MP for Leigh & Atherton! Jo is a @UKLabour champion in parliament for #pwME & #pwLC + new chair of the APPG on ME. Her message: “My Christmas wish is for people with ME and Long COVID to be recognised and supported through healthcare and the workplace.”

Hello friends #pwME #pwLC, I'm trying to find a sustainable way to have my hair washed. Does anyone have a nifty hack to lie back & have their hair washed over the bath? I'm thinking a cushioned bench with some sort of back support 👇. I need to be able to just lie there 😅#MECFS

🧵🧄 THREAD: GARLIC: Interferon x H₂S/NO x micro-clots Synergy: a cure for acute Covid & #LongCovid 🚨 My personal case study: ≥ 20 marinated cloves day shut down acute COVID in 7 days & strongly diminished Long COVID after other things failed. #TeamClots #pwLC #pwME #MECFS

Thanks to @BFWoodburn for creating this graphic for @LCMEBillboards !! This has all details of the 4 leaflet distribution groups for #LongCovidAwareness. If this could be shared around socials etc, much easier!! #pwME #pwLC #LongCovid

Question for fellow #pwME #pwLC who track smartwatch data: does anyone else have messed up respiration while sleeping? Mine's a steady c. 13 brpm while awake, spikes to 18-24 while sleeping, except when I'm in PEM and it'll have large dips down to 6 or so. Any theories?

🎁🕊️The Gift of Peace & Warmth🕊️🎁 Welcome to AidBot's Dec 📌🧵! 🎄This space is open to ALL who need support this season - #pwLC, neighbors, anyone catching up or in need of care. 🕊️Share your: 📌Pinned needs 🎁Wishlist links 🕯Words of hope #LongCovidAid #MutualAidThread

CONGRATULATIONS to NCNED Researcher Breanna Weigel who submitted her PhD Thesis last Wednesday! Her Thesis investigated the health related quality of life of #pwME and #pwLC to gain further insights and to improve healthcare policies in Australia. #GriffithUniversity #GriffithUni

Accounts seemingly which appear out of nowhere barely a year old and speaking with authoritative we and our about long Covid patients aren’t sus at all. Especially when these accts are dismissive of the history of #pwlc Check out the dates of the accts you are engaging with.

🔥 Please share - Very important care campaign for anyone with ME #pwME #pwLC ♥️💙🫂 "Campaigning for ME (Myalgic Encephalomyelitis) to be medically managed safely, to protect families from permanent disability or death from neglect of the illness" justice4me.uk

#3 is “Ozone” in our series “A Long COVID patient tries …” In this series we break down therapies a COVID Long Hauler has tried. The rationale & how it helped them, or didn’t, will be discussed & more. #LongCOVID #pwLC #LC #Ozone #ALCPT 🧵🧵🧵

So many amazing people have been working hard to make this event impactful and safe. If you're in SoCal for #LongCovidAwarenessDay, come make your voice heard! bit.ly/LCLieDown #pwLC #CureLongCovidNOW #LongCovidMakesUsOne #LongCOVIDSupport #LongCovidMassFollow

Here is the one pager we handed out during the Long COVID Roundtable discussion with HHS and company. Of course more is needed, but these are 7 important needs for the Long COVID community. The time is now for testing, trials, & treatments. #LongCOVID #pwLC #HHS #Roundtable

School is starting for many soon. With that comes the spread of SARS-CoV-2. It’s harmful to adults, but it’s also a major concern for kids. Millions of children in the U.S. are suffering with #LongCOVID, some too unwell to attend school. 🧵 #pwLC #LC #CleanTheAir

And #pw LongCOVID please also help me with a brief anon survey. DWP’s response to my FOI request 👇🏽implied that v few #pwLC access PIP DLA and many will lose this with the cuts. To act, I’d first like to understand what’s up… focussing on severe LC. 🙏🏽 forms.gle/YFoK9diPBBVfNJ…

For anyone feeling particularly ill or overwhelmed or lost, I hope this most perfect little hoglet offers a moment of lightness. 💙🫂 He approaches Honeysuckle & the water bowl, then explores each nest box. Curled up, he’s the size of a tennis ball. #pwME #pwLC #ChronicIllness