#pwlc ผลการค้นหา

@DNAComplete I want the full refund of my test. You failed to provide with an address to deliver my sample. You are making a sick person sicker. I gave you 24 hours and it’s been longer than that. #MECFS #pwME #pwLC don’t buy a test from this people, they are not legit

For all the #pwlc warriors out there.

Curious about the subset of #pwLC who do not seroconvert? I remember many of them back in 2020, but i think they were only testing spike protein antibodies early on? Also Nucleocapsid IgG wanes after a few months just like the spike protein IgG right?

#pwlc and #covidaware predicted years ago that the press would introduce the public to the consequences of Covid as if they were due to new variants, to hide their complicity. Today the new symptom they are ascribing to the variants is tooth pain. mirror.co.uk/news/health/co…

I’ll have access to HBOT soon! #pwME #pwLC what are the best resources/people for developing a protocol? @SalvMattera @chydorina @grok

Addressing these challenges requires infection control measures, research into treatments & biomarkers for persistence, cumulative infection burden & naivety. The consequences of unchecked SARS-CoV-2 may continue to undermine global health for decades. #LongCOVID #pwLC #LC

Let’s dive into: “COVID-19 is ‘Airborne AIDS’: provocative oversimplification, emerging science, or something in between?” ajpmfocus.org/article/S2773-… #LongCOVID #pwLC #LC #Immunodeficiency 🧵🧵🧵

📢An alle, aber va an meine #pwME #pwLC-Bubble mit 💚Parteibuch! Bis 22.10. könnt ihr 1 von insg 6 Stimmen für Antrag V08 (ME/CFS/LC/Schule) abgeben, damit er auf der BDK diskutiert wird! 🚨 Nur 6 von 75 Anträgen kommen weiter. Also schnell abstimmen, teilen, und unterstützen! 🌻

I have no idea if this is part of the “October slide” but the muscle cramps have been awful. Feels like my leg is going to snap from the contraction. Any other #pwLC deal with this? Shouting into the void since about 10 people will see this…

I find it extremely strange that some people are much more concerned with SARS-CoV-2 having parallels drawn to HIV (same people cool if you do it with the symptomatic syndrome of ME/CFS though) than that SARS-CoV-2/Long COVID causes immunodeficiency. #LongCOVID #pwLC #LC…

THIS! Long Covid is not ME/CFS. We know Long Covid only exists because of Covid. We know the trigger. Conflation does not serve either Long Covid or ME/CFS. #pwlc #longcovidkids

#pwME #pwLC the fact that I damage myself systemically, inflammationally, every time I move or think or have an emotion is overwhelming. It is so difficult to live thru. Thinking of all of us. We need treatments NOW 😩 There is nothing else like this

It’s been 4 days without aid, months w/no sales. I must raise $1427 for food & other basics, $300 of it’s needed now for food which is almost out + expedited renewal of ID doc to prepare to relocate for safety. Please help! #PWLC #EmergencyCrowdfund #Art mayasdivinedesignstoo.square.site

Good thought. 💭As someone with pre-existing primary mitochondrial disease and #LongCovid 🧠 fog, and recently learned these organelles contribute to blood-brain barrier integrity as well as specifically long COVID fatigue, why would these drugs HARM **SEVERE** #pwLC ⁉️🤔

If you don’t think COVID & Long COVID is unique … the word “think” in that sentence may be too strong of a word choice on my part. Long COVID is a unique kind of hell. #LongCOVIDIsUnique #LongCOVID #pwLC #LongCOVIDKills #LC #AntiviralsNow

Silence from the legacy orgs who tried to co-opt Long Covid as "nothing new" or "just a bad hangover" or Long Covid is ME/CFS in a misbegotten One Name campaign. This is Long Covid. There is no Long Covid without Covid. This is a global catastrophe we are seeing happen. #pwlc

A signaling pathway is a series of events on and within a cell that conveys information and leads to a specific function or response. Learn more about signaling pathways and a study investigating the tetrahydrobiopterin (BH4) pathway: ow.ly/2i6A50XbPsq #pwME #pwLC #BH4

A signaling pathway is a series of events on and within a cell that conveys information and leads to a specific function or response. Learn more about signaling pathways and a study investigating the tetrahydrobiopterin (BH4) pathway: ow.ly/2i6A50XbPsq #pwME #pwLC #BH4

Dicke #Followempfehlung für alle #pwLC und #pwME für die wunderbare @mi_r_ja! #MECFS (Gerne teilen!) ❤️

Olive Oil fasting youtube.com/watch?v=x0qJSC… #LongCovid #pwLC #pwME Anti Inflammatory, mTor inhibition, autophagy acceleration, mimicks fasting

Twitter (or "X" I guess) has become so toxic. MDs mocking disabled people for not wanting to get COVID and recommending "exposure therapy" is sad to see. It's no surprise that #pwLC, #pwME and other chronic complex illnesses experience serious medical trauma.

Just got my #microclot results back - headed to #TT soon… 4 out of 4. Scared. If you have done triple anticoagulant therapy / please give me feedback. #pwLc #pwME #NEISvoid (feel free to RT).

#pwME and #pwLC A community note has been proposed on one of Garner's latest posts. If you have CN, rate it. If not, sign up so we can make sure this kind of disinformation is flagged.

Another new doctor appointment. Another disappointing experience. Where are all the proactive and knowledgeable professionals? #COVID19 #LongCOVID #pwLC #YallMasking #MaskUp

Today's last day to restore $800 heat... offices reopen Mon. We're 2 Black #pwLC just endured high-heat summer & now a winter sick & fatigued, no heat, basic clothes, or housing secured for when lease ends in Jan. PLS, show care-- even $2! We need $4.8k in 8 days, inclds rent!

School is starting for many soon. With that comes the spread of SARS-CoV-2. It’s harmful to adults, but it’s also a major concern for kids. Millions of children in the U.S. are suffering with #LongCOVID, some too unwell to attend school. 🧵 #pwLC #LC #CleanTheAir

This is our first in a series called: “A Long COVID patient tries …” Where we break down things a COVID Long Hauler has tried. The rationale & how it helped them, or didn’t, will be discussed & more. #1 “Monoclonal Antibodies” #LongCOVID #pwLC #LC #mAbs #ALCPT 🧵🧵🧵

Post Exertional Malaise NOT just exaggeration of "Boom and Bust", energy averaged out over time out. My PEM in blue below shows I am wrecked for a MUCH LONGER period than the exertion over my baseline. Why do even the most recent official documents get this wrong? #pwME #pwLC

There are multiple studies showing few #pwLC recover even after 2 years. Multiple papers are also showing SARS-CoV-2 persistence almost 2 years after infection. Entire conferences are dedicated to the pathology of #ViralPersistence...but fine ignore me.

A huge study published this week put Long Covid prevalence at 4% in kids & 10-26% in adults. Media is mostly absent compared to a recent, minuscule "LC study" lying about 4.5% MECFS prevalence #LongCovidKids & #pwLC needed Sx for 3-6+ mos to be Dx'd. But ppl only needed "ME…

Liebe #pwLC, #pwME, Mein Tipp des Tages, lasst bitte mal Eure Immunglobuline bestimmen, falls Ihr es noch nicht gemacht habt. Konkret IgM, IgA, IgG, und insbesondere IgG Subklassen! Das Beispiel hier ist von Biovis, das bieten aber viele Labore an. Kostet unter 100€.

Wow I’m so beyond upset, I just got a book given to me by someone who is supposed to care for me. Now I’m gonna be sending them articles bcuz I have kept to myself for yrs, they opened pandora’s box. So send links I need some help. DM I’m heartbroken #longcovid #pwLC

I have never met a #pwME (or #pwLC) that have showed resistance to considering alternative diagnoses. They would love nothing more than to have either the totality of their symptoms (or even some part of them) to be treatable or curable. But that is often not the case.

After 1 week, we now have 71 responses, 27 #pwlc and 44 #pwme thank you. The survey is open for another 3 weeks it would be great to double those numbers. Please fill out even if you have only been trialling for a short time, all experiences important. Thank you @PhysiosForME

It’s @JoPlattLeigh, MP for Leigh & Atherton! Jo is a @UKLabour champion in parliament for #pwME & #pwLC + new chair of the APPG on ME. Her message: “My Christmas wish is for people with ME and Long COVID to be recognised and supported through healthcare and the workplace.”

Hey #pwLC and #pwme , just came across the latest Health Rising Interview with Dr Nancy Klimas. She mentioned a 3 layer approach to come back to homeostasis

Hey guys Can you drop some feedback and tell us what you think of these two designs for the hospital billboard? I will probably run a poll for people to vote on them but right now just looking for general feedback on these drafts. What do you think? #LongCovid #MECFS #pwlc

This chart shows the % of ME/CFS-related papers mentioning Post-Exertional Malaise (PEM) 🛏 It really took until 2008-12 for this term to be established in the literature. It's now at ~9% of papers, and growing 📈 More please!!! #mecfs #pwme #pwlc #longcovid

Dec 22: it’s Rachel Parris! @rachelparriscom is an English comedian, musician, actress and presenter! Her message: “I wish peace, relief, support and to be heard. I hope Santa brings you real help, systemic change and JOY where possible.” #PatientSafety #pwME #pwLC #ThereForME

Heute Laktatwert gemessen in Ruhe: 4,0mmol/L (oberer Grenzwert wäre 2,2) Kann auf Mitochondrien-Fehlfunktion hinweisen 😖 Hat sonst noch jemand #pwLC #pwME seinen Laktatwert mal gemessen und möchte das teilen?