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School is starting for many soon. With that comes the spread of SARS-CoV-2. It’s harmful to adults, but it’s also a major concern for kids. Millions of children in the U.S. are suffering with #LongCOVID, some too unwell to attend school. 🧵 #pwLC #LC #CleanTheAir
Wow I’m so beyond upset, I just got a book given to me by someone who is supposed to care for me. Now I’m gonna be sending them articles bcuz I have kept to myself for yrs, they opened pandora’s box. So send links I need some help. DM I’m heartbroken #longcovid #pwLC
🎃🐈⬛🍬 Isolation is the TRICK - Solidarity is the TREAT! 🍬🐈⬛🎃 🧵 Welcome to #LongCovidAidBot's October 📌🧵! 🍬 If you're a #pwLC, share your: 📌Pinned tweets 🎃Current needs 🍭Wishlist links Let's fill each other's treat bags! #LongCovidAid #MutualAid
Silence from the legacy orgs who tried to co-opt Long Covid as "nothing new" or "just a bad hangover" or Long Covid is ME/CFS in a misbegotten One Name campaign. This is Long Covid. There is no Long Covid without Covid. This is a global catastrophe we are seeing happen. #pwlc
“We may be witnessing the emergence of a population-level acquired immune deficiency — not sexually transmitted, but airborne.” That line isn’t from a tweet. It’s from a peer-reviewed paper in AJPM Focus (2025). A short thread 🧵 on why this framing matters 👇
🧵🧄 THREAD: GARLIC: Interferon x H₂S/NO x micro-clots Synergy: a cure for acute Covid & #LongCovid 🚨 My personal case study: ≥ 20 marinated cloves day shut down acute COVID in 7 days & strongly diminished Long COVID after other things failed. #TeamClots #pwLC #pwME #MECFS
Here is the one pager we handed out during the Long COVID Roundtable discussion with HHS and company. Of course more is needed, but these are 7 important needs for the Long COVID community. The time is now for testing, trials, & treatments. #LongCOVID #pwLC #HHS #Roundtable
#3 is “Ozone” in our series “A Long COVID patient tries …” In this series we break down therapies a COVID Long Hauler has tried. The rationale & how it helped them, or didn’t, will be discussed & more. #LongCOVID #pwLC #LC #Ozone #ALCPT 🧵🧵🧵
We need better antivirals for SARS-CoV-2. It’s a persistent virus that also reinfects people that doesn’t seem to be going anywhere. Treatments are a necessity! #LongCOVID #pwLC #LC #AntiviralsNow sciencealert.com/mans-covid-inf…
Hey #pwLC and #pwme , just came across the latest Health Rising Interview with Dr Nancy Klimas. She mentioned a 3 layer approach to come back to homeostasis
Question for fellow #pwME #pwLC who track smartwatch data: does anyone else have messed up respiration while sleeping? Mine's a steady c. 13 brpm while awake, spikes to 18-24 while sleeping, except when I'm in PEM and it'll have large dips down to 6 or so. Any theories?
@DarainChains is a hero. anyone attacking her needs to check themselves. I am proud to be her friend and fight for #pwlc. This is exactly what toxic sick influencers do they punch down or the stand on the sidelines silent while it happens. youtu.be/mBFIdK46tc0?si…
youtube.com
YouTube
Long Covid Awareness Demonstration 2024: Dara York
It’s @JoPlattLeigh, MP for Leigh & Atherton! Jo is a @UKLabour champion in parliament for #pwME & #pwLC + new chair of the APPG on ME. Her message: “My Christmas wish is for people with ME and Long COVID to be recognised and supported through healthcare and the workplace.”
Initially, I could manage leaning over the bath to have it washed. Then even that required more stamina than I had. So this is my new set up. It’s very much a working prototype, but being able to lie back & have my weight fully supported is bliss. /2 #HairWash #pwME #pwLC
Dicke #Followempfehlung für alle #pwLC und #pwME für die wunderbare @mi_r_ja! #MECFS (Gerne teilen!) ❤️
It’s green 👍🏼 Merry Christmas to all #pwLC #pwME & all chronic illnesses that makes holiday time a difficult time. I hope you find little pieces of joy today & can stay safe. Thank you to everyone in the covid aware community who advocates for us day in day out ❤️
Hello friends #pwME #pwLC, I'm trying to find a sustainable way to have my hair washed. Does anyone have a nifty hack to lie back & have their hair washed over the bath? I'm thinking a cushioned bench with some sort of back support 👇. I need to be able to just lie there 😅#MECFS
🔥 Please share - Very important care campaign for anyone with ME #pwME #pwLC ♥️💙🫂 "Campaigning for ME (Myalgic Encephalomyelitis) to be medically managed safely, to protect families from permanent disability or death from neglect of the illness" justice4me.uk
I wish people would put to death “brain fog” and start taking about neuro Covid and the brain damage that results. #pwlc cell.com/cell-host-micr…
Silence from the legacy orgs who tried to co-opt Long Covid as "nothing new" or "just a bad hangover" or Long Covid is ME/CFS in a misbegotten One Name campaign. This is Long Covid. There is no Long Covid without Covid. This is a global catastrophe we are seeing happen. #pwlc
“We may be witnessing the emergence of a population-level acquired immune deficiency — not sexually transmitted, but airborne.” That line isn’t from a tweet. It’s from a peer-reviewed paper in AJPM Focus (2025). A short thread 🧵 on why this framing matters 👇
A signaling pathway is a series of events on and within a cell that conveys information and leads to a specific function or response. Learn more about signaling pathways and a study investigating the tetrahydrobiopterin (BH4) pathway: ow.ly/2i6A50XbPsq #pwME #pwLC #BH4
A signaling pathway is a series of events on and within a cell that conveys information and leads to a specific function or response. Learn more about signaling pathways and a study investigating the tetrahydrobiopterin (BH4) pathway: ow.ly/2i6A50XbPsq #pwME #pwLC #BH4
Dicke #Followempfehlung für alle #pwLC und #pwME für die wunderbare @mi_r_ja! #MECFS (Gerne teilen!) ❤️
Olive Oil fasting youtube.com/watch?v=x0qJSC… #LongCovid #pwLC #pwME Anti Inflammatory, mTor inhibition, autophagy acceleration, mimicks fasting
youtube.com
YouTube
Olive Oil Fasting Doubles Autophagy and Stops Insulin Resistance...
@DarainChains is a hero. anyone attacking her needs to check themselves. I am proud to be her friend and fight for #pwlc. This is exactly what toxic sick influencers do they punch down or the stand on the sidelines silent while it happens. youtu.be/mBFIdK46tc0?si…
youtube.com
YouTube
Long Covid Awareness Demonstration 2024: Dara York
$1427’s needed for food & basics, including accessibility tools. #ShopSmall #supportsmallbusiness #PWLC #Art mayasdivinedesignstoo.square.site #WearableArt legaleriste.com/mayas.divine.d… #DigitalArt: Ko-Fi mayasdivinedesigns (also P/C/V) Tips linktr.ee/mxmd1 #Music truthbytwo.bandcamp.com
#MutualAid thread for #PwLC x.com/LongCovidAidBo…
🎃🐈⬛🍬 Isolation is the TRICK - Solidarity is the TREAT! 🍬🐈⬛🎃 🧵 Welcome to #LongCovidAidBot's October 📌🧵! 🍬 If you're a #pwLC, share your: 📌Pinned tweets 🎃Current needs 🍭Wishlist links Let's fill each other's treat bags! #LongCovidAid #MutualAid
People ignore SARS-CoV-2 in order to ignorantly live a “normal” life. It’s obviously not working out. The virus is year round, reinfecting people, and persisting in people. Get a grip! We need to address the virus head on, there’s no other way forward. #LongCOVID #pwLC #COVID
Initially, I could manage leaning over the bath to have it washed. Then even that required more stamina than I had. So this is my new set up. It’s very much a working prototype, but being able to lie back & have my weight fully supported is bliss. /2 #HairWash #pwME #pwLC
@polybioRF, I know you’re studying #LongCovid, including #LongCovidKids. Know of anyone I should follow and tag!? @id_cure as well. #pwLC. @dysclinic
Finally, someone is being honest. Long Covid is not ME/CFS. Stop the conflation. Stop co-opting Long Covid. There is no Long Covid without Covid. #longcovid #pwlc
The German MECFS expert is now talking about 10–20%, after having spoken of 50% herself for years. Why artificially inflate the numbers? That will harm both ME & LC. And yes, this is what downplaying Covid and Long Covid looks like. LC has more in common with AIDS than with ME.
For anyone feeling particularly ill or overwhelmed or lost, I hope this most perfect little hoglet offers a moment of lightness. 💙🫂 He approaches Honeysuckle & the water bowl, then explores each nest box. Curled up, he’s the size of a tennis ball. #pwME #pwLC #ChronicIllness
Start asking your doctor to help you get early access. #pwlc shionogi.com/us/en/innovati…
This needs to be EUA stat! This is being used in Japan to treat Covid for pediatric cases. #longcovidkids need this now. #pwlc need this available like Japan for prophylatic for exposure exist and to treat Covid. shionogi.com/us/en/news/202…
I will never give up fighting for #pwlc and #longcovidkids. I have lived a lot of my life…the kids never stood a chance. I won’t let the kids be forgotten.
#LongCovidStars 🌟✨ From the artist: ‘I wrote my poem 'I am forgotten' about my experience with long covid. About how I feel like I am being left behind from my peers. About how I'm feeling ignored and forgotten by the people who are supposed to see me the most, by the people
Where have you been while Long Covid pts were harassed, cyberstalked, doxxed, placed on block lists and bullied out of mutual support and aid by legacy orgs and sickfluencers? We have been screaming about this for more than 2 years. Better late than never. #pwlc #longcovidkids
School is starting for many soon. With that comes the spread of SARS-CoV-2. It’s harmful to adults, but it’s also a major concern for kids. Millions of children in the U.S. are suffering with #LongCOVID, some too unwell to attend school. 🧵 #pwLC #LC #CleanTheAir
Just got my #microclot results back - headed to #TT soon… 4 out of 4. Scared. If you have done triple anticoagulant therapy / please give me feedback. #pwLc #pwME #NEISvoid (feel free to RT).
Wow I’m so beyond upset, I just got a book given to me by someone who is supposed to care for me. Now I’m gonna be sending them articles bcuz I have kept to myself for yrs, they opened pandora’s box. So send links I need some help. DM I’m heartbroken #longcovid #pwLC
This is our first in a series called: “A Long COVID patient tries …” Where we break down things a COVID Long Hauler has tried. The rationale & how it helped them, or didn’t, will be discussed & more. #1 “Monoclonal Antibodies” #LongCOVID #pwLC #LC #mAbs #ALCPT 🧵🧵🧵
Another new doctor appointment. Another disappointing experience. Where are all the proactive and knowledgeable professionals? #COVID19 #LongCOVID #pwLC #YallMasking #MaskUp
Twitter (or "X" I guess) has become so toxic. MDs mocking disabled people for not wanting to get COVID and recommending "exposure therapy" is sad to see. It's no surprise that #pwLC, #pwME and other chronic complex illnesses experience serious medical trauma.
Today's last day to restore $800 heat... offices reopen Mon. We're 2 Black #pwLC just endured high-heat summer & now a winter sick & fatigued, no heat, basic clothes, or housing secured for when lease ends in Jan. PLS, show care-- even $2! We need $4.8k in 8 days, inclds rent!
🧵🧄 THREAD: GARLIC: Interferon x H₂S/NO x micro-clots Synergy: a cure for acute Covid & #LongCovid 🚨 My personal case study: ≥ 20 marinated cloves day shut down acute COVID in 7 days & strongly diminished Long COVID after other things failed. #TeamClots #pwLC #pwME #MECFS
There are multiple studies showing few #pwLC recover even after 2 years. Multiple papers are also showing SARS-CoV-2 persistence almost 2 years after infection. Entire conferences are dedicated to the pathology of #ViralPersistence...but fine ignore me.
Hey #pwLC and #pwme , just came across the latest Health Rising Interview with Dr Nancy Klimas. She mentioned a 3 layer approach to come back to homeostasis
Liebe #pwLC, #pwME, Mein Tipp des Tages, lasst bitte mal Eure Immunglobuline bestimmen, falls Ihr es noch nicht gemacht habt. Konkret IgM, IgA, IgG, und insbesondere IgG Subklassen! Das Beispiel hier ist von Biovis, das bieten aber viele Labore an. Kostet unter 100€.
#3 is “Ozone” in our series “A Long COVID patient tries …” In this series we break down therapies a COVID Long Hauler has tried. The rationale & how it helped them, or didn’t, will be discussed & more. #LongCOVID #pwLC #LC #Ozone #ALCPT 🧵🧵🧵
It’s @JoPlattLeigh, MP for Leigh & Atherton! Jo is a @UKLabour champion in parliament for #pwME & #pwLC + new chair of the APPG on ME. Her message: “My Christmas wish is for people with ME and Long COVID to be recognised and supported through healthcare and the workplace.”
#pwME and #pwLC A community note has been proposed on one of Garner's latest posts. If you have CN, rate it. If not, sign up so we can make sure this kind of disinformation is flagged.
Post Exertional Malaise NOT just exaggeration of "Boom and Bust", energy averaged out over time out. My PEM in blue below shows I am wrecked for a MUCH LONGER period than the exertion over my baseline. Why do even the most recent official documents get this wrong? #pwME #pwLC
Hey guys Can you drop some feedback and tell us what you think of these two designs for the hospital billboard? I will probably run a poll for people to vote on them but right now just looking for general feedback on these drafts. What do you think? #LongCovid #MECFS #pwlc
I have never met a #pwME (or #pwLC) that have showed resistance to considering alternative diagnoses. They would love nothing more than to have either the totality of their symptoms (or even some part of them) to be treatable or curable. But that is often not the case.
After 1 week, we now have 71 responses, 27 #pwlc and 44 #pwme thank you. The survey is open for another 3 weeks it would be great to double those numbers. Please fill out even if you have only been trialling for a short time, all experiences important. Thank you @PhysiosForME
This chart shows the % of ME/CFS-related papers mentioning Post-Exertional Malaise (PEM) 🛏 It really took until 2008-12 for this term to be established in the literature. It's now at ~9% of papers, and growing 📈 More please!!! #mecfs #pwme #pwlc #longcovid
Reposting my reply for anyone Professor Garner has blocked. #MECFS #pwME #pwLC #LongCovid #chronicillness #MyalgicEncephalomyelitis
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