#pwlc 搜索结果
Are you a #pwME / #pwLC / #NEISvoid, desire to be involved in advocacy or community in some capacity, but unsure how to get started or where to go? Please feel free to reach out / DM me anytime if applicable [asterisk being for US residents] #MyalgicEncephalomyelitis #LongCOVID
For #pwlc with skin issues and personal care product sensitivities. Try not using soap. I suggest Sebamed’s eczema and sensitive skin line. Many people will use the liquid wash as their shampoo. sebamedusa.com/new-eczema-and…
I thought about this long and hard. This is actively unaliving long Covid patients. That’s right ACTIVELY. Assisted unaliving through “research”. Eugenics. #pwlc
Project Warp Speed had one clear objective, to save lives. After 6 years, it’s hard to draw any other conclusion than project LongCOVID has the opposite objective, which is to let people suffer and die. clinicaltrials.gov/study/NCT05931…
And back then, ppl having trouble recovering after an infection were often packed off to a sanitorium and told to rest. Probably the best thing for them, especially if they had ME❗️Nowadays, medics worship exercise & pushing through - harming many #pwME and some #pwLC 😏
Join me for trivia. #pwlc
I am game to work to try for trivia again. Gives me something positive to work towards. Set a reminder for my upcoming Space!
#pwLC #pwME #NEISVoid Nomination time! Submit names for the NASEM Standing Committee on Emerging Infectious Diseases by Jan 9th. Details here: survey.alchemer.com/s3/8098105/Sta…
So no fevers in #pwME/#pwLC isn’t only linked to low norepinephrine in the brain stem (x.com/a_n_natomy/sta…) but also to EDS and MCAS? How come no one has connected the dots yet?
Holy sh*t! Everything relates back to EDS. Just saw a video saying people with MCAS have a low fever response! I rarely get fevers. And when I was younger my baseline temperature was 98.6 now (ever since getting “the big sick”) it’s more like 97.6 so even 99 degrees (F) is warm…
The ultimate uno reverse would be for those with #LongCOVID to start being the main advocates for ME/CFS (with the understanding it’s a symptomatic syndrome with different underlying ongoing causes). Non-LC orgs & people do it to us with LC, so why not … #pwLC #UnoReverse
C0VID alone can do this. The virus has a reservoir in the bone marrow, where it disturbs the formation of the cells. This is why I remind people that Long C0VID is not all Long C0VID vaxx. This is a consequence of C0VID. #pwLC #LongCovidIsReal x.com/polybioRF/stat…
“At least 2/3 of individuals with Long COVID contained [SARS-CoV-2] infected megakaryocytes,” says Dr. Morgane Bomsel. “This suggests that megakaryocytes form reservoirs in LC patients—which may produce platelets sheltering infectious SCV2.”
“Imagine plugging in a dead cell phone over night. When you awake, you expect it to be at 100%. But when you wake, it’s only at 9% and you have to try and function on that 9%. You’re never fully charged.” buff.ly/3rRDYWM #chronicillness #severeME #pwLC
#pwLC take note!!! Please share especially with BIPOC participants who may be interested. This is very exciting to see such quick recruitment!
We're now over 900 LoCITT-T participants & close to a last call for new participants! We're still hoping to enroll folks from ND, MS, & PR & more BIPOC participants. More info, lots of FAQs & screening survey here: longcovid.scripps.edu/locitt-t
🪡 P.S. #pwLC & friends: Follow boost share and support #MutualAidBoost #MutualAidRequest #HelpFolksLive2025 #AltUBI and #AltUBIGoal to weave stronger nets of care this season. 🕊️🎁🕯️🎄🕊️🎁🕯️
🎁🕊️The Gift of Peace & Warmth🕊️🎁 Welcome to AidBot's Dec 📌🧵! 🎄This space is open to ALL who need support this season - #pwLC, neighbors, anyone catching up or in need of care. 🕊️Share your: 📌Pinned needs 🎁Wishlist links 🕯Words of hope #LongCovidAid #MutualAidThread
If you really look around, you’ll see the vast amount of unnatural illness & death too. It may not look exactly like your Long COVID, but it’s there. #LongCOVID #pwLC #LC #AntiviralsNow #TimeIsTicking #LongCOVIDIsEverywhere
I’m NOT fan of Amazon but don’t have choice as a bedridden #PwME #PwLC If you wish to gift me a different ecard usable online in Australia, it’s welcome! I’m already registered with prezzee.com.au which has a universal no fee card if that’s helpful. 🤷♀️ #MutualAid
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