#pwlc Suchergebnisse

Are you a #pwME / #pwLC / #NEISvoid, desire to be involved in advocacy or community in some capacity, but unsure how to get started or where to go? Please feel free to reach out / DM me anytime if applicable [asterisk being for US residents] #MyalgicEncephalomyelitis #LongCOVID

For #pwlc with skin issues and personal care product sensitivities. Try not using soap. I suggest Sebamed’s eczema and sensitive skin line. Many people will use the liquid wash as their shampoo. sebamedusa.com/new-eczema-and…

I thought about this long and hard. This is actively unaliving long Covid patients. That’s right ACTIVELY. Assisted unaliving through “research”. Eugenics. #pwlc

Aww! Mark, I’m a huge Catastrophe fan and this just made me 🥹😭 as a #pwLC #pwME. Thank you!!!

And back then, ppl having trouble recovering after an infection were often packed off to a sanitorium and told to rest. Probably the best thing for them, especially if they had ME❗️Nowadays, medics worship exercise & pushing through - harming many #pwME and some #pwLC 😏

Join me for trivia. #pwlc

Win Alert 📈 A trader on Moby Mobile just closed a position of $pwc with a PnL of +177.43%.

#pwLC #pwME #NEISVoid Nomination time! Submit names for the NASEM Standing Committee on Emerging Infectious Diseases by Jan 9th. Details here: survey.alchemer.com/s3/8098105/Sta…

3. #PWL Another IPO setup with high liquidity ..... Momentum above 139

So no fevers in #pwME/#pwLC isn’t only linked to low norepinephrine in the brain stem (x.com/a_n_natomy/sta…) but also to EDS and MCAS? How come no one has connected the dots yet?

The ultimate uno reverse would be for those with #LongCOVID to start being the main advocates for ME/CFS (with the understanding it’s a symptomatic syndrome with different underlying ongoing causes). Non-LC orgs & people do it to us with LC, so why not … #pwLC #UnoReverse

C0VID alone can do this. The virus has a reservoir in the bone marrow, where it disturbs the formation of the cells. This is why I remind people that Long C0VID is not all Long C0VID vaxx. This is a consequence of C0VID. #pwLC #LongCovidIsReal x.com/polybioRF/stat…

“Imagine plugging in a dead cell phone over night. When you awake, you expect it to be at 100%. But when you wake, it’s only at 9% and you have to try and function on that 9%. You’re never fully charged.” buff.ly/3rRDYWM #chronicillness #severeME #pwLC

#pwLC take note!!! Please share especially with BIPOC participants who may be interested. This is very exciting to see such quick recruitment!

🪡 P.S. #pwLC & friends: Follow boost share and support #MutualAidBoost #MutualAidRequest #HelpFolksLive2025 #AltUBI and #AltUBIGoal to weave stronger nets of care this season. 🕊️🎁🕯️🎄🕊️🎁🕯️

🎁🕊️The Gift of Peace & Warmth🕊️🎁 Welcome to AidBot's Dec 📌🧵! 🎄This space is open to ALL who need support this season - #pwLC, neighbors, anyone catching up or in need of care. 🕊️Share your: 📌Pinned needs 🎁Wishlist links 🕯Words of hope #LongCovidAid #MutualAidThread

This is what living in long Covid land and being CC is like. #pwlc

Just got my #microclot results back - headed to #TT soon… 4 out of 4. Scared. If you have done triple anticoagulant therapy / please give me feedback. #pwLc #pwME #NEISvoid (feel free to RT).

Twitter (or "X" I guess) has become so toxic. MDs mocking disabled people for not wanting to get COVID and recommending "exposure therapy" is sad to see. It's no surprise that #pwLC, #pwME and other chronic complex illnesses experience serious medical trauma.

Another new doctor appointment. Another disappointing experience. Where are all the proactive and knowledgeable professionals? #COVID19 #LongCOVID #pwLC #YallMasking #MaskUp

Today's last day to restore $800 heat... offices reopen Mon. We're 2 Black #pwLC just endured high-heat summer & now a winter sick & fatigued, no heat, basic clothes, or housing secured for when lease ends in Jan. PLS, show care-- even $2! We need $4.8k in 8 days, inclds rent!

Wow I’m so beyond upset, I just got a book given to me by someone who is supposed to care for me. Now I’m gonna be sending them articles bcuz I have kept to myself for yrs, they opened pandora’s box. So send links I need some help. DM I’m heartbroken #longcovid #pwLC

There are multiple studies showing few #pwLC recover even after 2 years. Multiple papers are also showing SARS-CoV-2 persistence almost 2 years after infection. Entire conferences are dedicated to the pathology of #ViralPersistence...but fine ignore me.

My thoughts today are with the #LongCovidMoonshot heroes who attended the HELP hearing, and are now suffering from the resulting PEM 💙 @LCMoonshot @MamaSitaa__ @SawyerBlatz @coco_chatel @loscharlos @mild #LongCovid #pwLC #MECFS #pwME

It’s @JoPlattLeigh, MP for Leigh & Atherton! Jo is a @UKLabour champion in parliament for #pwME & #pwLC + new chair of the APPG on ME. Her message: “My Christmas wish is for people with ME and Long COVID to be recognised and supported through healthcare and the workplace.”

Liebe #pwLC, #pwME, Mein Tipp des Tages, lasst bitte mal Eure Immunglobuline bestimmen, falls Ihr es noch nicht gemacht habt. Konkret IgM, IgA, IgG, und insbesondere IgG Subklassen! Das Beispiel hier ist von Biovis, das bieten aber viele Labore an. Kostet unter 100€.

Dec 22: it’s Rachel Parris! @rachelparriscom is an English comedian, musician, actress and presenter! Her message: “I wish peace, relief, support and to be heard. I hope Santa brings you real help, systemic change and JOY where possible.” #PatientSafety #pwME #pwLC #ThereForME

#pwME and #pwLC A community note has been proposed on one of Garner's latest posts. If you have CN, rate it. If not, sign up so we can make sure this kind of disinformation is flagged.

Hey #pwLC and #pwme , just came across the latest Health Rising Interview with Dr Nancy Klimas. She mentioned a 3 layer approach to come back to homeostasis

This is our first in a series called: “A Long COVID patient tries …” Where we break down things a COVID Long Hauler has tried. The rationale & how it helped them, or didn’t, will be discussed & more. #1 “Monoclonal Antibodies” #LongCOVID #pwLC #LC #mAbs #ALCPT 🧵🧵🧵

After 1 week, we now have 71 responses, 27 #pwlc and 44 #pwme thank you. The survey is open for another 3 weeks it would be great to double those numbers. Please fill out even if you have only been trialling for a short time, all experiences important. Thank you @PhysiosForME

Hey guys Can you drop some feedback and tell us what you think of these two designs for the hospital billboard? I will probably run a poll for people to vote on them but right now just looking for general feedback on these drafts. What do you think? #LongCovid #MECFS #pwlc

Post Exertional Malaise NOT just exaggeration of "Boom and Bust", energy averaged out over time out. My PEM in blue below shows I am wrecked for a MUCH LONGER period than the exertion over my baseline. Why do even the most recent official documents get this wrong? #pwME #pwLC

Hello friends #pwME #pwLC, I'm trying to find a sustainable way to have my hair washed. Does anyone have a nifty hack to lie back & have their hair washed over the bath? I'm thinking a cushioned bench with some sort of back support 👇. I need to be able to just lie there 😅#MECFS

This chart shows the % of ME/CFS-related papers mentioning Post-Exertional Malaise (PEM) 🛏 It really took until 2008-12 for this term to be established in the literature. It's now at ~9% of papers, and growing 📈 More please!!! #mecfs #pwme #pwlc #longcovid

Thanks to @BFWoodburn for creating this graphic for @LCMEBillboards !! This has all details of the 4 leaflet distribution groups for #LongCovidAwareness. If this could be shared around socials etc, much easier!! #pwME #pwLC #LongCovid

#pwME #pwLC #NEISVoid WE NEED YOUR HELP! It’s far past time more media shone a light on what @GeorgeMonbiot called "the #GreatestMedicalScandal of the 21st century." We want to show TV producers that #MyalgicEncephalomyelitis #ME #MECFS deserves a primetime spot. (1/5)