#pwlc risultati di ricerca
Wow I’m so beyond upset, I just got a book given to me by someone who is supposed to care for me. Now I’m gonna be sending them articles bcuz I have kept to myself for yrs, they opened pandora’s box. So send links I need some help. DM I’m heartbroken #longcovid #pwLC
🎁🕊️The Gift of Peace & Warmth🕊️🎁 Welcome to AidBot's Dec 📌🧵! 🎄This space is open to ALL who need support this season - #pwLC, neighbors, anyone catching up or in need of care. 🕊️Share your: 📌Pinned needs 🎁Wishlist links 🕯Words of hope #LongCovidAid #MutualAidThread
Hey #pwLC and #pwme , just came across the latest Health Rising Interview with Dr Nancy Klimas. She mentioned a 3 layer approach to come back to homeostasis
🧵🧄 THREAD: GARLIC: Interferon x H₂S/NO x micro-clots Synergy: a cure for acute Covid & #LongCovid 🚨 My personal case study: ≥ 20 marinated cloves day shut down acute COVID in 7 days & strongly diminished Long COVID after other things failed. #TeamClots #pwLC #pwME #MECFS
Just a reminder: Chronic illness will never be solved in any significant way if chronic & reactivated pathogens don’t have good mainstream testing & treatments. … Right now many don’t, such as: SARS-CoV-2, Borrelia, EBV, & on & on & on. #TreatChronicPathogens #LongCOVID #pwLC
Some people have been wondering how difficult it is to wear a mask (Kn95 or better is best) to protect themselves & others against SARS-CoV-2 infection when in a public space. Here is a video that answers this complex question. #LongCOVID #pwLC #MaskUp #CleanTheAir
It’s @JoPlattLeigh, MP for Leigh & Atherton! Jo is a @UKLabour champion in parliament for #pwME & #pwLC + new chair of the APPG on ME. Her message: “My Christmas wish is for people with ME and Long COVID to be recognised and supported through healthcare and the workplace.”
Thanks to @BFWoodburn for creating this graphic for @LCMEBillboards !! This has all details of the 4 leaflet distribution groups for #LongCovidAwareness. If this could be shared around socials etc, much easier!! #pwME #pwLC #LongCovid
Question for fellow #pwME #pwLC who track smartwatch data: does anyone else have messed up respiration while sleeping? Mine's a steady c. 13 brpm while awake, spikes to 18-24 while sleeping, except when I'm in PEM and it'll have large dips down to 6 or so. Any theories?
Accounts seemingly which appear out of nowhere barely a year old and speaking with authoritative we and our about long Covid patients aren’t sus at all. Especially when these accts are dismissive of the history of #pwlc Check out the dates of the accts you are engaging with.
Dec 22: it’s Rachel Parris! @rachelparriscom is an English comedian, musician, actress and presenter! Her message: “I wish peace, relief, support and to be heard. I hope Santa brings you real help, systemic change and JOY where possible.” #PatientSafety #pwME #pwLC #ThereForME
Hello friends #pwME #pwLC, I'm trying to find a sustainable way to have my hair washed. Does anyone have a nifty hack to lie back & have their hair washed over the bath? I'm thinking a cushioned bench with some sort of back support 👇. I need to be able to just lie there 😅#MECFS
Here is the one pager we handed out during the Long COVID Roundtable discussion with HHS and company. Of course more is needed, but these are 7 important needs for the Long COVID community. The time is now for testing, trials, & treatments. #LongCOVID #pwLC #HHS #Roundtable
CONGRATULATIONS to NCNED Researcher Breanna Weigel who submitted her PhD Thesis last Wednesday! Her Thesis investigated the health related quality of life of #pwME and #pwLC to gain further insights and to improve healthcare policies in Australia. #GriffithUniversity #GriffithUni
School is starting for many soon. With that comes the spread of SARS-CoV-2. It’s harmful to adults, but it’s also a major concern for kids. Millions of children in the U.S. are suffering with #LongCOVID, some too unwell to attend school. 🧵 #pwLC #LC #CleanTheAir
🔥 Please share - Very important care campaign for anyone with ME #pwME #pwLC ♥️💙🫂 "Campaigning for ME (Myalgic Encephalomyelitis) to be medically managed safely, to protect families from permanent disability or death from neglect of the illness" justice4me.uk
So many amazing people have been working hard to make this event impactful and safe. If you're in SoCal for #LongCovidAwarenessDay, come make your voice heard! bit.ly/LCLieDown #pwLC #CureLongCovidNOW #LongCovidMakesUsOne #LongCOVIDSupport #LongCovidMassFollow
We hope you're enjoying the #ThereForME Advent calendar! It's the mid-Advent weekend and we have 2 questions for you: 1. Who else would you like to see on the Advent calendar? 2. Which message has meant the most to you so far? #pwME #pwLC #PatientSafety
Variant connective tissue as a risk factor for #longCOVID: a case-control study of data from a retrospective online survey of adults in the USA and UK | BMJ Public Health New paper from @BendyBrain 🙏🏻 #pwLC bmjpublichealth.bmj.com/content/3/2/e0…
And back then, ppl having trouble recovering after an infection were often packed off to a sanitorium and told to rest. Probably the best thing for them, especially if they had ME❗️Nowadays, medics worship exercise & pushing through - harming many #pwME and some #pwLC 😏
If you're interested, please come!🤟🏻🤟🏻 #PondPhuwin #ปอนด์ภูวินทร์ #ppnaravit #phuwintang
ปอนภูวินจะมอบเซอร์ไพรส์มากมายให้เรา อยากสนุกไปกับช่วงเวลานี้กับฉันไหม? Pond,Phuwin will bring us many surprises. Would you like to enjoy this moment with me? 😍😍😍 #PondPhuwin #ปอนด์ภูวินทร์ #ppnaravit #phuwintang
Join me for trivia. #pwlc
I am game to work to try for trivia again. Gives me something positive to work towards. Set a reminder for my upcoming Space!
Win Alert 📈 A trader on Moby Mobile just closed a position of $pwc with a PnL of +177.43%.
PWBTC/PLS lookin like it wants to make the big W if we pop through the yellow line...
#pwLC #pwME #NEISVoid Nomination time! Submit names for the NASEM Standing Committee on Emerging Infectious Diseases by Jan 9th. Details here: survey.alchemer.com/s3/8098105/Sta…
Physicswallah Limited Schedules Earnings Conference Call for Q2FY26 Results. PWL : ₹135.86 (+0.68%)
So no fevers in #pwME/#pwLC isn’t only linked to low norepinephrine in the brain stem (x.com/a_n_natomy/sta…) but also to EDS and MCAS? How come no one has connected the dots yet?
Holy sh*t! Everything relates back to EDS. Just saw a video saying people with MCAS have a low fever response! I rarely get fevers. And when I was younger my baseline temperature was 98.6 now (ever since getting “the big sick”) it’s more like 97.6 so even 99 degrees (F) is warm…
In observance of the International Day of PwD, #PwCIF celebrates the journey of individuals with disabilities who are transitioning into confident, contributing members of society. Click to read: bit.ly/4iSSgx3 #EnablingPwD
ถึง....คุณศิลปินคนโปรด 🤍 รักนะ 🕊️🐈 #PAILIU #her_hling
ขอให้ศิลปินคนโปรดมีแสงส่องถึง มีคนค้นพบเขา มองเห็นเขาในทุกวัน ขอให้มีคนตกหลุมรักเขามากขึ้น มองเห็นความน่ารักของเขา และรักเขาให้มากๆ เหมือนที่เรารักด้วยนะ
The ultimate uno reverse would be for those with #LongCOVID to start being the main advocates for ME/CFS (with the understanding it’s a symptomatic syndrome with different underlying ongoing causes). Non-LC orgs & people do it to us with LC, so why not … #pwLC #UnoReverse
C0VID alone can do this. The virus has a reservoir in the bone marrow, where it disturbs the formation of the cells. This is why I remind people that Long C0VID is not all Long C0VID vaxx. This is a consequence of C0VID. #pwLC #LongCovidIsReal x.com/polybioRF/stat…
“At least 2/3 of individuals with Long COVID contained [SARS-CoV-2] infected megakaryocytes,” says Dr. Morgane Bomsel. “This suggests that megakaryocytes form reservoirs in LC patients—which may produce platelets sheltering infectious SCV2.”
“Imagine plugging in a dead cell phone over night. When you awake, you expect it to be at 100%. But when you wake, it’s only at 9% and you have to try and function on that 9%. You’re never fully charged.” buff.ly/3rRDYWM #chronicillness #severeME #pwLC
Wow I’m so beyond upset, I just got a book given to me by someone who is supposed to care for me. Now I’m gonna be sending them articles bcuz I have kept to myself for yrs, they opened pandora’s box. So send links I need some help. DM I’m heartbroken #longcovid #pwLC
Just got my #microclot results back - headed to #TT soon… 4 out of 4. Scared. If you have done triple anticoagulant therapy / please give me feedback. #pwLc #pwME #NEISvoid (feel free to RT).
Another new doctor appointment. Another disappointing experience. Where are all the proactive and knowledgeable professionals? #COVID19 #LongCOVID #pwLC #YallMasking #MaskUp
Today's last day to restore $800 heat... offices reopen Mon. We're 2 Black #pwLC just endured high-heat summer & now a winter sick & fatigued, no heat, basic clothes, or housing secured for when lease ends in Jan. PLS, show care-- even $2! We need $4.8k in 8 days, inclds rent!
My thoughts today are with the #LongCovidMoonshot heroes who attended the HELP hearing, and are now suffering from the resulting PEM 💙 @LCMoonshot @MamaSitaa__ @SawyerBlatz @coco_chatel @loscharlos @mild #LongCovid #pwLC #MECFS #pwME
Twitter (or "X" I guess) has become so toxic. MDs mocking disabled people for not wanting to get COVID and recommending "exposure therapy" is sad to see. It's no surprise that #pwLC, #pwME and other chronic complex illnesses experience serious medical trauma.
There are multiple studies showing few #pwLC recover even after 2 years. Multiple papers are also showing SARS-CoV-2 persistence almost 2 years after infection. Entire conferences are dedicated to the pathology of #ViralPersistence...but fine ignore me.
Hey #pwLC and #pwme , just came across the latest Health Rising Interview with Dr Nancy Klimas. She mentioned a 3 layer approach to come back to homeostasis
Liebe #pwLC, #pwME, Mein Tipp des Tages, lasst bitte mal Eure Immunglobuline bestimmen, falls Ihr es noch nicht gemacht habt. Konkret IgM, IgA, IgG, und insbesondere IgG Subklassen! Das Beispiel hier ist von Biovis, das bieten aber viele Labore an. Kostet unter 100€.
#pwME and #pwLC A community note has been proposed on one of Garner's latest posts. If you have CN, rate it. If not, sign up so we can make sure this kind of disinformation is flagged.
It’s @JoPlattLeigh, MP for Leigh & Atherton! Jo is a @UKLabour champion in parliament for #pwME & #pwLC + new chair of the APPG on ME. Her message: “My Christmas wish is for people with ME and Long COVID to be recognised and supported through healthcare and the workplace.”
🧵🧄 THREAD: GARLIC: Interferon x H₂S/NO x micro-clots Synergy: a cure for acute Covid & #LongCovid 🚨 My personal case study: ≥ 20 marinated cloves day shut down acute COVID in 7 days & strongly diminished Long COVID after other things failed. #TeamClots #pwLC #pwME #MECFS
Hey guys Can you drop some feedback and tell us what you think of these two designs for the hospital billboard? I will probably run a poll for people to vote on them but right now just looking for general feedback on these drafts. What do you think? #LongCovid #MECFS #pwlc
Honestly it’s looking like a lot of #pwLC have a bone marrow reservoir… wouldn’t be at all surprised if I do #longcovid #SARSCoV2
No, #LongCovid (PASC) is real! Now, a new, cellular level study has also proved that! The study finds that altered mitochondrial respiration in peripheral blood mononuclear cells of LongCovid patients may be contributing to the etiology of PASC. 1/
This chart shows the % of ME/CFS-related papers mentioning Post-Exertional Malaise (PEM) 🛏 It really took until 2008-12 for this term to be established in the literature. It's now at ~9% of papers, and growing 📈 More please!!! #mecfs #pwme #pwlc #longcovid
Post Exertional Malaise NOT just exaggeration of "Boom and Bust", energy averaged out over time out. My PEM in blue below shows I am wrecked for a MUCH LONGER period than the exertion over my baseline. Why do even the most recent official documents get this wrong? #pwME #pwLC
Reposting my reply for anyone Professor Garner has blocked. #MECFS #pwME #pwLC #LongCovid #chronicillness #MyalgicEncephalomyelitis
🚩🚩🚩📣 #pwME #pwLC COMMUNITY NOTE ALERT! Pacing is not graded exercise or "pacing centric exercise"... These people need to stop talking about 💩 about stuff they know nothing about. #GreatestMEdicalScandal #MyalgicEncephalomyelitis
Thanks to @BFWoodburn for creating this graphic for @LCMEBillboards !! This has all details of the 4 leaflet distribution groups for #LongCovidAwareness. If this could be shared around socials etc, much easier!! #pwME #pwLC #LongCovid
#pwME #pwLC #NEISVoid WE NEED YOUR HELP! It’s far past time more media shone a light on what @GeorgeMonbiot called "the #GreatestMedicalScandal of the 21st century." We want to show TV producers that #MyalgicEncephalomyelitis #ME #MECFS deserves a primetime spot. (1/5)
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