#pwms نتائج البحث

Falls die wieder meine #Maske ansprechen - frage ich dann, wieviele Zigaretten ich rauchen soll, um meine Krankheitsangst zu überwinden? #pwME #pwMS

How much time do you need in the morning to function? #thisisms #pwms #fatigue 🫠

Seen my dentist today. He referred me to a myofacial specialist. Have you ever been to one? For years I've dealt with a very tight jaw. And now nerve issues in my face. #trigeminal #thisisms #pwms

I spent the day in the ER after having non stop chest pains for 24hrs. 😢 Had a full work up. She did mention possibly from MS #musclespasms Diagnosis was slight Pneumonia in my right lung. Have you ever had constant stabbing chest pain from MS #pwMS #thisisms #antibiotics

🚨 Are you a retailer selling or hiring powered wheelchairs or mobility scooters? We provide free training that helps you recommend safer, more suitable equipment & promotes your commitment to customer care. 👉 vist.ly/3n8h8sk #MobilityScooters #PWMS #DrivingMobility

I think we can all say that this weekend was rough! 🥵 #thisisms #pwMS My MS was acting up for a week or two prior. This weekend though was the topper! I am back and forth. Desk to study and back in bed.

Do any #pwMS see a Functional Holistic Neurologist?? I do very much respect and trust my current Dr. I am though looking. One that focused on treating the body as a whole. Without the use of DMT! Maybe have both? 💁‍♀️ #thisisms

Chronically ill but chronically fabulous! #sillygoose #honk #Pwms facebook.com/share/p/1EprXr…

🔥 Ketones this morning! 🔥 1.5 was my starting goal for #therapeuticketosis I want to get to 2.5-3.0 I definitely can tell im running on ketones! #thisisms #pwms #keto

Sometimes #RWE and off-label strategies are the way for improving outcomes (safety, tolerability, pregnancy). Thnx for the opportunity to share or experience on the use of #OCR in 305 #pwMS from our centre, now extending to their 5th year of follow-up @NeuroinmunUC @IntNatlWiMS

Happy Friday Friends! How is everyone doing? Any weekend plans? Its beautiful today in MN 🌤️ I am though, as usual, inside studying Finally out of the #ocrevus fog! 🙏 #thisisms #pwms

The findings of this trial will be vital in guiding the future treatment of #MultipleSclerosis to lower the risk of secondary health complications and, therefore, improve treatment outcomes. Sofía’s PhD research is sponsored by @MS_Australia and the NCNED. #MS #pwMS #2025AAN

Sofía’s poster shared preliminary findings from a clinical trial investigating the potential role of combined alemtuzumab and rituximab therapy in reducing the incidence of secondary autoimmunity among people receiving treatment for #MultipleSclerosis. #MS #pwMS #2025AAN

NCNED PhD Candidate, Ms Sofía Jimenez Sanchez, presented at the 2025 American Academy of Neurology in San Diego, California last week. 📖 Read Sofía’s abstract in the conference journal here: doi.org/10.1212/WNL.00… @SJimenezS__ #MultipleSclerosis #MS #pwMS #AANConference2025

When I’m in a car - i wear a seatbelt. When I’m riding a bike - i wear a helmet. When I’m on the tube - i wear a mask. Simple as that. Keeps me safer. Keeps my brain safer. Does not make me invincible. Does not mean I live my life in fear. #MaskUp #pwME #pwMS #easy

Das Leben der anderen geht weiter. Wâhrend meines pausiert. Ich bin froh, dass Friends sich noch melden, also sage ich nicht, wie neidisch ich bin. Aus Angst, dass sie sich dann nicht mehr melden. #pwME #pwMS #fatigue #chronical

Happy Sunday Friends ☕️ #pwMS How are we all doing? I'm fighting fatigue DAILY! It's been a beast! #crapgap Coming off #ocrevus #thisisms

Was a Lumbar Puncture (spinal tap) part of your diagnosis? Did you have oligoclonal bands present in your spinal fluid? #thisisms #pwMS

Montag: Bin ich vielleicht nur faul? Könnte ich nicht doch vielleicht arbeiten? … Mittwoch: verbringe den Tag mit geschlossenen Augen im Bett. #pwMS #fatigue #ChronischKrank #chronicillness

~7 yrs ago I had 1st symptoms of CIS/#RRMS. Had 8 mo old & my🌎turned upside⬇️. Impt things said to me early on/helped me/have been true that I think all #PwMS should 👂/try to let sink in, & be reminded of frequently by❤️ones/care team (esp.early days after getting diagnosed):

🤍🤍🤍 #thisisms #pwms

What week are you having? #pwms My week has been productive 🙏

Sofía’s presentation provided an interim update on the findings of the RAMBLE clinical trial. This collaborative initiative undertaken at the NCNED led by Prof Simon Broadley aims to mitigate autoimmunity in #pwMS treated with Alemtuzumab. #MultipleSclerosis #MS #MSawareness

I'm over these HOT temps! 🔥 My body hates me when it's this hot! 😪 #pwms

Here we go! Started infusion about 10min ago. 🙏 #Ocrevus #thisisms #pwms

Merry Christmas and Happy Holidays 🎄🎅🤍 #Christmas2024 #pwms #msfam

Calling all scientists interested to what it is like to have #MS What question would you like me to put to our community of people with MS #pwMS in the CCMR symposium? Reply here or DM @CentreMyelin @mssocietyuk @MStranslate @MSTrust @CamNeuro @Pluchinolab @Cambridge_Uni

These early appointments are rough! I got up at 5AM. My brain and body is still struggling. #thisisms #pwms

Later than expected but #Ocrevus underway 💪🥰 #MS #pwMS

It's been a busy day! A TWO heating pad kind of day! I stopped taking Opioids willingly about 8 years ago, no regrets! I manage pain best I can. #thisisms #pwms

That time already. We are not doing steroids this time. It makes me miserable for days following infusion. #Ocrevus half dose #2 #thisisms #pwms

I have this rash that showed up today. Did anyone get this after #ocrevus One week post second half dose #thisisms #pwms

Do you all ever look at your lab results. I know we were depleting but to 0? I don't fully understand these test as there is a ton but 0? #thisisms #pwms

I take 5g in my coffee every morning Link in comments #thisisms #pwms #creatine

Well I'm here. Not feeling well or 100% on my decision. Skipped solumedrol. Had IV benadryl in its place #thisisms #ocrevus #pwms #rrms

22) Here’s what’s up with #fenebrutinib, a drug with no Ph 2 trials in #pwMS, but with extensive data in automimmune disease, particularly #RA and #SLE:

Interesting that in a review of outcomes in exercise trials in #pwMS there were 15 different outcomes used to measure fatigue! @LornaPaul

I am not a journal kind of person. I am though trying to find ways to be more productive. My day just vanishes! This will help plan out my day with a schedule. #brainfog #thisisms #pwms

I spent the day in the ER after having non stop chest pains for 24hrs. 😢 Had a full work up. She did mention possibly from MS #musclespasms Diagnosis was slight Pneumonia in my right lung. Have you ever had constant stabbing chest pain from MS #pwMS #thisisms #antibiotics