B Rob
@AlpineOpen
I read the science. I’ve had ME/CFS since 1989. From bad health to good. Only to be undone by a flu shot in 2016, severely & permanently worsening the disease.
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I see multiple ME/CFS, Long Covid researchers & patients are moving to the ‘Threads’ and ‘BlueSky’ apps due to too many Far Right bigots on X trolling us Let’s set up there before an algorithm here prevents us mentioning those apps by name #longCovid #MECFS #ClimateAction #ME
This guy explains why everything we know about addiction is actually wrong
@njfatigue met with Bill Cassidy’s office weeks ago to discuss the urgent need to fund and prioritize #MECFS research. It’s clear that our engagement is breaking through! This is #NotJustFatigue
David Tuller has battled for us ME/CFS patients for many years. But he can only do it with crowd funding. We are lucky UC Berkeley back his work. We need David to keep fighting this fight. Donation link in the feed
Clip of David Tuller tearing up the PACE trial at the Invest in ME conference in 2017. David has been calling out bad #MECFS research for nearly a decade & his work is more important than ever. I've just donated to his crowdfunding campaign - please consider doing so if you can
A letter from @Nina_Steinkopf prompted New Zealand GP group to disavow apparent Lightning Process endorsement. Also, BBC takes a look at LP and interviews @oonagh_cousins: virology.ws/2025/04/16/tri…
Trump just pardoned crypto firm BitMex for violating money laundering laws — making him potentially the first president in American history to pardon a corporation. It's truly a new Golden Age for corporate crime.
Last year @TheLancet published an intervention trial for "persistent physical symptoms." Clinically insignificant findings were promoted as a result showing effectiveness. @joan_crawford1 and I responded, and they "rebutted": virology.ws/2025/04/04/tri…
The real story here is the cruel reality of ME/CFS. Severe long covįd has similar effects. They are absolute torture. The worst of it is the denial sufferers face, the lack of medical expertise or treatments, and likely surge in cases as covįd continues. 1news.co.nz/2025/03/12/i-c…
#LongCovid #MECFS don’t push through as you never want to end up this severe!!!
I wonder how many people have ever experienced their brain physically running out of energy making it so they cannot use their mind and have to lie still, unthinking, unfeeling - merely existing in a body. This I believe is a torture no one but #MECFS patients understand.
Worth being aware of this ongoing battle
A letter to Cochrane requesting withdrawal of its flawed, outdated 2019 review of exercise therapy for chronic fatigue syndrome, in the wake of the organization's abrupt Christmas decision to abandon a planned update. virology.ws/2025/02/20/tri…
Unfortunately the pharmaceutical companies can’t see that if one of their drugs helped improve or even cure long Covid or ME/CFS then they would become many times richer than they are already. But for some reason they have the heads in the sand. cen.acs.org/pharmaceutical…
Tonight, I am kicking off my coast-to-coast Fighting Oligarchy tour in Nebraska. I hope you’ll join us.
And 35 years later we're still being insulted and bullied.
The Cambridge Evening News, England. 23rd January 1990. #mecfs #myalgice #cfsme #myalgicencephalomyelitis
The biggest political divide in America isn't "left" versus "right." It's the American people versus the oligarchy.
85% of #longCovid patients improved on this treatment (in the trial). Hopefully it can be repeated by other researchers and we see research discover why there’s improvement #pwME #MECFS sleepreviewmag.com/sleep-treatmen…
Great this is getting exposed on a much larger scale. The hard work of many including the epic work of UC Berkeley’s David Tuller who provided Monbiot with much the information in his recent articles. That work is starting to pay off!! #MECFS #LongCovid
New Video: @GeorgeMonbiot describes the treatment of #MECFS as "The Greatest Medical Scandal of the 21st century". Watch the introduction to a new 27 minute explainer video about the scandal from reframing a recognised neurological illness to the withdrawal of harmful treatments.
Always worth reading David Tuller’s blog. #LongCovid #MECFS
The REGAIN study claimed its multi-disciplinary intervention was clinically effective for Long Covid. That claim had many problems! The BMJ has corrected the paper's effort to extrapolate its findings to all LC patients: virology.ws/2024/11/18/tri…
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