SarahFrisonHC's profile picture. #POTS #MastCellActivation #glutenfree

Newsletter 👉http://sarahfrison.com/newsletter (very, very few emails)

@planmadesystem (sorry, isn't updated anymore)

Sarah

@SarahFrisonHC

#POTS #MastCellActivation #glutenfree Newsletter 👉http://sarahfrison.com/newsletter (very, very few emails) @planmadesystem (sorry, isn't updated anymore)

Sarah reposteó

I’m less than £1.5k away from my £13k target for my new powerchair 👩🏻‍🦼 My current powerchair causes me so much pain and is dangerous to use. I’m so close now - Please help me get there gofundme.com/f/sarah87 #MutualAidRequest #DisabilityCrowdFund


People who track their REM sleep, what do you use? Smartwatch? Good ones/ones to avoid? Also with skin that reacts to a lot of stuff. Thanks! #NEISvoid


Sarah reposteó

Please share widely!! Please help our friend @Mae_DayJ eat! We all need to eat! Mae provides a space for disabled and chronically ill people with @ChronicLoaf_ , let's be here for her! 💖💖💖💖🌟🌟🌈🌈🦋🦋



Sarah reposteó

A voice filter to match the cognitive dissonance of “immunity deficit.”


Sarah reposteó

Tell me why tiktok took this video down?

This “immunity debt” is total bullshit and just sounds like a continuation of the rhetoric the “wellness” industry uses to sell you teas and such. Your immune system is fragile and many of yours and your children’s is shot.



Sarah reposteó

I’m selling floral embroideries and all proceeds go towards my powerchair that I desperately need as it is unsafe to use You can purchase them directly from my website and it’d really help me out fromsarahlex.com/floral-embroid… Please RT #DisabledCreator #NEISVoid

fromsarahlex's tweet image. I’m selling floral embroideries and all proceeds go towards my powerchair that I desperately need as it is unsafe to use

You can purchase them directly from my website and it’d really help me out fromsarahlex.com/floral-embroid…

Please RT #DisabledCreator #NEISVoid

Update: heard back from my doctor, can't say much more other than it's good the ORS helps which means dehydration is a factor. What is happening? Why is my heart rate so high and do I feel so awful when I was fine for a year after forgetting 1 dose? Thoughts welcome! #NEISvoid

Anyone🙏? Heard back from my doctor who said it should take a few days but less than a week. It's been more than a week and my heart rate is still 135-145 in the morning. #NEISvoid



Anyone🙏? Heard back from my doctor who said it should take a few days but less than a week. It's been more than a week and my heart rate is still 135-145 in the morning. #NEISvoid

People with #POTS who are stable on their meds, if you've forgotten a dose, how long until things stabilized again? Took the next dose 18h later. 5 days now, went from working-ish to praying I don't need to get an IV. Better than day 1 but not stable at all #NEISvoid please help.



Sarah reposteó

Some disability related embroidery hoops available on my shop - all proceeds go towards my new powerchair that I desperately need. PLEASE RT! fromsarahlex.com/disability-emb… #DisabilityTwitter #ChronicLife #neisvoid #DisabledCreator

fromsarahlex's tweet image. Some disability related embroidery hoops available on my shop - all proceeds go towards my new powerchair that I desperately need. 

PLEASE RT! fromsarahlex.com/disability-emb… #DisabilityTwitter #ChronicLife #neisvoid #DisabledCreator

People with #POTS who are stable on their meds, if you've forgotten a dose, how long until things stabilized again? Took the next dose 18h later. 5 days now, went from working-ish to praying I don't need to get an IV. Better than day 1 but not stable at all #NEISvoid please help.


Sarah reposteó

Anyone who kicks the #MECFS or #POTS community when we’re down (which is always, seeing as we have the LOWEST quality of life scores of any chronic illness) is VILE. When you do it from a position of extreme wealth & privilege though…I just don’t have words. #BoycottHerBooks


Sarah reposteó

If you’re newly disabled from COVID, please heed my warning: take a step back and understand this new reality before advocating.


United States Tendencias

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