Scleroderma Sask
@SaskScleroderma
Official Scleroderma Association of Saskatchewan. Follow us here for updates.
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Thank you @CityofMooseJaw for help raise awareness for this rare disease. Patients and caregivers in Saskatchewan appreciate it 💙
To recognize #Scleroderma Awareness Month we are illuminating landmarks across Canada. Tonight (June 10) at dusk is City Hall & clock tower in #MooseJaw #Saskatchewan. Keep watching for more!
Great news!!! Better late than never. This fantastic news for patients needing this important treatment.
Great news! Saskatchewan and British Columbia have become the latest provinces to reimburse the cost of @BoehringerCA's OFEV (nintedanib) for treatment of progressive fibrotic interstitial lung diseases (PF-ILD)! Canada Graphic: Canadian Pulmonary Fibrosis Foundation.
Approx 40% of #scleroderma patients will develop PH. Join Jamie Myrah & Darren Fisher on Facebook Live 12pm EDT facebook.com/PHACanada for #WorldPHDay discussion + highlights from the Canadian PH Community Survey summary report: The Impact of Pulmonary Hypertension on Canadians
Registration for #MakeAMoveForScleroderma is officially OPEN! Head over to MakeAMoveCanada.ca to register. You can join with a team or as an individual! No matter what, your participation will help raise awareness and critical funds to find a cure for #Scleroderma.
More great new! Hopefully @SKGov joins the other provinces in covering this valuable treatment.
More great news! New Brunswick has become the next province to reimburse for @BoehringerCA's OFEV (nintedanib) in treatment of progressive fibrotic interstitial lung diseases (PF-ILD). Scleroderma Canada continues to work with leaders to ensure better access to treatments.
Excellent news: The province of Ontario will now reimburse for @BoehringerCA's OFEV (nintedanib) in treatment of progressive fibrotic interstitial lung diseases (PF-ILD). Scleroderma Canada continues to advocate to government across Canada for access to treatments. #scleroderma
More Great News! We hope @SKGov joins the other provinces soon. @SaskHealth
Effective immediately the province of Newfoundland & Labrador is reimbursing @BoehringerCA's OFEV for treatment of progressive fibrotic interstitial lung diseases (PF-ILD). Scleroderma Canada continues to advocate to governments across Canada in this endeavour. #scleroderma
More Great News. Hope @SKGov joins the other provinces soon.
Effective immediately the province of Newfoundland & Labrador is reimbursing @BoehringerCA's OFEV for treatment of progressive fibrotic interstitial lung diseases (PF-ILD). Scleroderma Canada continues to advocate to governments across Canada in this endeavour. #scleroderma
It can limit mobility and cause painful knots to develop.” On Sat, Apr 23 we will be joined by physiotherapist Jaime Angus, & will discuss the benefits of myofascial release & importance of movement, pointers for posture, & breathing techniques for those living w/ scleroderma. 3/
Another great initiative by @spinsclero working to help Scleroderma patients. Get involved to help yourself and help others.
Effective immediately the province of Newfoundland & Labrador is reimbursing @BoehringerCA's OFEV for treatment of progressive fibrotic interstitial lung diseases (PF-ILD). Scleroderma Canada continues to advocate to governments across Canada in this endeavour. #scleroderma
What Great News 👏
Great news! Effective immediately, reimbursement of @BoehringerCA's OFEV has been approved for NIHB First Nations and Inuit for treatment of PF-ILD. Scleroderma Canada continues to work with leaders to ensure better access to treatments.
What a great location for the informative event. Can’t wait to reconnect with our Scleo-friends from across 🇨🇦 and beyond.
Rooms are available ➡️now⬅️ for the Bi-Annual National Scleroderma Conference, Sept. 16-17, 2022, Sheraton Fallsview Hotel, #NiagaraFalls. Reserve yours at a special rate using this link: marriott.com/event-reservat… #scleroderma
Rooms are available ➡️now⬅️ for the Bi-Annual National Scleroderma Conference, Sept. 16-17, 2022, Sheraton Fallsview Hotel, #NiagaraFalls. Reserve yours at a special rate using this link: marriott.com/event-reservat… #scleroderma
What is the rarest M&M colour? ... That's right - brown! @SclerodermaCAN VIRTUAL TRIVIA NIGHT is a few weeks away! We have lots of great prizes! Register now for a fun night of #trivia with folks across Canada! Visit bit.ly/3fDVa8I to learn more or register.
This such a significant statistic. Please consult you physician about getting vaccinated. Protect yourself and protect the vulnerable who can’t. #stickittocovid
In June, approx 81% of reported COVID-19 cases in SK were unvaccinated, or had their 1st dose less than 3 wks before. For fully immunized residents, that # drops to 1.8%. SHA encourages all residents to be immunized with both doses as soon as you are eligible.
Always check with your physicians first but it is good to know that in many cases it is not only safe but recommended for #scleroderma patients to be vaccinated.
📣Individuals with rheumatic diseases are encouraged to get vaccinated! 📣 #sclerodema #sle #lupus #rheumatoidarthritis 🦠🥊
On July 23rd, we hope you will join with the Foundation to celebrate World Sjögren’s Day and the birthday of Dr. Henrik Sjögren, the Swedish ophthalmologist who first identified the disease. #WorldSjögrensDay Learn more: sjogrens.org/get-involved/s…
Do you or a member of your family have PH? Are you attending @PHACanada's national conference? Take a second to answer their survey ⤵️
Final reminder! The Conference survey closes on Sunday, July 11. So, don't forget to provide us with your input regarding the #PHConference2021. Fill out the Conference survey at: ow.ly/fCIo50FpjJV.
Thank you John and the team @SclerodermaCAN for all the hard work. Together we will do great things for #scleroderma patients.
THANK YOU EVERYONE 50in50for50k #scleroderma hardword.ca HUGE SUCCESS @ToffKX947 @MelissaKX947 @sylvie_lendvay @AnnetteHamm @JayOnTheRushTO @ryandoyleshow @MarilynDenisCTV @RodBlackTSN @Sid_Seixeiro @breakfasttv #hardwordharderdisease #makeamoveforscleroderma
Many #scleroderma patients experience #PH
Living with #PH and want to learn about exercise? Are you traveling in the future & have questions regarding your oxygen? Have you visited the ER recently? Join @teamphhope for a virtual town hall to hear from experts on these topics. Register now at forms.gle/uiER61bktMCSga…
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