Scleroderma
@SclerodermaSCal
We provide peer-to-peer patient support service, educational programs, and raise funds to support the Foundation’s research and awareness.
قد يعجبك
Thank you PatGuerre and Gina Raring-GuerreGina from Kneading Hope for all of your sincere support, beautiful art and genuine love for the patients and families living with scleroderma. We are proud to know you,... facebook.com/380369600801/p…
7 'Spoon-Saving' Gadgets for Cooking With Chronic Illness themighty.com/2019/05/gadget…
themighty.com
7 'Spoon-Saving' Gadgets for Cooking With Chronic Illness
A young woman living with Ehlers-Danlos syndrome and neuropathy reveals seven gadgets she uses to make cooking with chronic illness easier.
'Peppa Pig' Introduces New Recurring Character With a Disability themighty.com/2019/04/peppa-…
Sold out game, sold out tailgate party, plenty of food and fun to STRIKE OUT SCLERODERMA! Thank you all for coming and supporting. Congratulations to Team Patty for winning biggest team and fundraiser. And a big... facebook.com/380369600801/p…
Carrie Ann Inaba, a judge on “Dancing With the Stars” and co-host on “The Talk” opened up about living with chronic illness, including Sjögren’s syndrome, fibromyalgia and rheumatoid arthritis. themighty.com/2019/05/dwts-j…
Strike Out Scleroderma Petco Park is officially SOLD OUT! But you can still help and support by donating to the event, teamS, or particpants. Go to scleroderma.org/sossandiego to help us reach our goal and STRIKE OUT SCLERODERMA!
Take Your Laughter More Seriously michellestortz.com/2019/04/22/tak…
michellestortz.com
Take Your Laughter More Seriously
Every day, in my yoga-for-cancer work, I’m with people who are trying to take care of their bodies, quiet their minds and find some peace. So I think a lot about what it means to be healthy and hap…
How Chronic Illness Grows Your Mind scleroconnect.com/home/how-chron…
Mattel Adds Two Barbies With Disabilities to Its New Line of Dolls themighty.com/2019/02/mattel…
In the Land of Rare Disease youtube.com/attribution_li…
youtube.com
YouTube
In the Land of Rare Disease
Breathing in a Second Chance at Life scleroconnect.com/home/breathing…
scleroconnect.com
Breathing in a Second Chance at Life
Pulmonary hypertension and interstitial lung disease can affect many patients with scleroderma. Some cases become so severe, a lung transplant is needed. This is decided by the doctor if a patient...
Almost sold out! get your tickets before they are gone! and if you can't make the game please consider donating so we can hit our goal and Strike Out Scleroderma! scleroderma.org/sossandiego
Almost sold out! Get your tickets now and help us Strike Out Scleroderma! scleroderma.org/sossandiego scleroderma.org/sossandiego
Dad Turns Board Games into Bed Sheets So Sick Kids Lying in Hospitals Won't Get Bored goodnewsnetwork.org/dad-turns-boar…
goodnewsnetwork.org
Dad Turns Board Games into Bed Sheets So Sick Kids Lying in Hospitals Won't Get Bored
As a means of fighting the tedium of plain white hospital rooms, this entrepreneur was inspired to create interactive bed sheets for young patients.
Enjoying our day at the Carl Pearson Symposium representing the Scleroderma Foundation — at Marina del Rey Marriott facebook.com/380369600801/p…
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قد يعجبك
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SRFCure
@srfcure -
Raynaud's Assn.
@raynaudsorg -
Scleroderma News
@SclerodermaNews -
World Scleroderma Foundation
@Worldsclerofnd -
Dr. Dinesh Khanna
@sclerodermaUM -
EUSTAR
@EUSTAR_org -
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@SclerodermaRF -
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@scleroderma_vic -
Flavia Castelino, MD
@drcastelino -
Scleroderma Manitoba
@MBScleroderma
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