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TheMECFSNet's profile picture. @NIH-funded network that fosters collaborative research in partnership with individuals and advocacy groups to improve the diagnosis and treatment of #MECFS.

ME/CFS Research Network

@TheMECFSNet

@NIH-funded network that fosters collaborative research in partnership with individuals and advocacy groups to improve the diagnosis and treatment of #MECFS.

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TheMECFSNet's profile picture.
ME/CFS Research Network
 @TheMECFSNet
Nov 5

💞November is National Family Caregivers Month, a time to honor those who give so much of themselves to support loved ones. To every caregiver supporting someone with #MECFS, you are the quiet heroes behind every act of care.

TheMECFSNet's tweet image. 💞November is National Family Caregivers Month, a time to honor those who give so much of themselves to support loved ones. To every caregiver supporting someone with #MECFS, you are the quiet heroes behind every act of care.
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TheMECFSNet's profile picture.
ME/CFS Research Network
 @TheMECFSNet
Oct 31

📢Mark your calendars! for the @ICanCMEResearch Canadian Collaborative Conference on Myalgic Encephalomyelitis - Nothing About Us Without Us; November 4-6, 1-5pm ET. This 3 day event is free to register and virtual to attend. Register today: ow.ly/XjSF50XlgbF

TheMECFSNet's tweet card. 2025 ME Conference - ICanCME
2025 ME Conference - ICanCME
Source: icancme.ca
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TheMECFSNet's profile picture.
ME/CFS Research Network
 @TheMECFSNet
Oct 31

📢Attention researchers! Data from @CornellMECFS's study on circulating cell-free RNA signatures in #MECFS is available now on #mapMECFS. #MECFS #MECFSnet Apply for access today: ow.ly/fMj450XjRVv

TheMECFSNet's tweet image. 📢Attention researchers! Data from @CornellMECFS's study on circulating cell-free RNA signatures in #MECFS is available now on #mapMECFS. #MECFS #MECFSnet Apply for access today: ow.ly/fMj450XjRVv
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TheMECFSNet's profile picture.
ME/CFS Research Network
 @TheMECFSNet
Oct 27

🎉Exciting news! The newly modernized #searchMECFS tool is live! The redesigned tool offers an enhanced user experience and helps investigators easily find #MECFS biospecimens for use in their research. Explore now: ow.ly/gHjO50XhNXK

TheMECFSNet's tweet image. 🎉Exciting news! The newly modernized #searchMECFS tool is live! The redesigned tool offers an enhanced user experience and helps investigators easily find #MECFS biospecimens for use in their research. Explore now: ow.ly/gHjO50XhNXK
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TheMECFSNet's profile picture.
ME/CFS Research Network
 @TheMECFSNet
Oct 22

🎉The wait is over! The #IACFSME2025 Virtual Conference kicks off today! Researchers, clinicians, and advocates from around the world are coming together to advance understanding of #MECFS and accelerate research and progress towards better diagnosis, treatment, and care.

TheMECFSNet's tweet image. 🎉The wait is over! The #IACFSME2025 Virtual Conference kicks off today! Researchers, clinicians, and advocates from around the world are coming together to advance understanding of #MECFS and accelerate research and progress towards better diagnosis, treatment, and care.
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TheMECFSNet's profile picture.
ME/CFS Research Network
 @TheMECFSNet
Oct 11

🌍✨Today we honor the resilience of those living with #MECFS and the importance of mental well-being for everyone. Let's continue to show compassion, share support, and check-in with one another.

TheMECFSNet's tweet image. 🌍✨Today we honor the resilience of those living with #MECFS and the importance of mental well-being for everyone. Let's continue to show compassion, share support, and check-in with one another.
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TheMECFSNet's profile picture.
ME/CFS Research Network
 @TheMECFSNet
Oct 10

✨It's here! The latest #MECFSnet Newsletter is live. Find out what we've been up to. #MECFS #PwME #ResearchCollaboration 👉ow.ly/wjNl50Xa28o

TheMECFSNet's tweet image. ✨It's here! The latest #MECFSnet Newsletter is live. Find out what we've been up to. #MECFS #PwME #ResearchCollaboration 👉ow.ly/wjNl50Xa28o
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TheMECFSNet's profile picture.
ME/CFS Research Network
 @TheMECFSNet
Aug 15

✨Exciting news! New research highlights AI tool that detects #MECFS with 90% accuracy. Congrats to our legacy partners at @jacksonlab! nature.com/articles/s4159…

TheMECFSNet's tweet card. Nature Medicine - Analysis of a deeply phenotyped, longitudinal cohort of 249 participants elucidates the network of concurrent molecular and macroscopic patterns related to insurgence and course...
AI-driven multi-omics modeling of myalgic encephalomyelitis/chronic fatigue syndrome
Source: nature.com
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ME/CFS Research Network
 @TheMECFSNet
Aug 14

🗓️ Happening today, in one hour! Don't forget to register! ow.ly/G4L550WFrO5

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TheMECFSNet's profile picture.
ME/CFS Research Network
 @TheMECFSNet
Aug 13

Heard the news? DecodeME #MECFS Study released initial genetic results! Discover what it means for ME/CFS. Summary of findings: ow.ly/n7Hz50WFrwL Preprint publication: ow.ly/MS1W50WFrwN FAQs: ow.ly/gjqa50WFrwM

TheMECFSNet's tweet image. Heard the news? DecodeME #MECFS Study released initial genetic results! Discover what it means for ME/CFS. Summary of findings: ow.ly/n7Hz50WFrwL Preprint publication: ow.ly/MS1W50WFrwN FAQs: ow.ly/gjqa50WFrwM
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TheMECFSNet's profile picture.
ME/CFS Research Network
 @TheMECFSNet
Aug 13

🗓️Don't forget to register for tomorrow's DecodeME - Genetic Results Webinar! Link: us02web.zoom.us/webinar/regist…

DecodeMEstudy's profile picture. The world's largest study ever into #MEcfs. #pwME #DecodeMEStudy #pwME #MillionsMissing
DecodeME the ME/CFS Study
 @DecodeMEstudy
Aug 13

Join us TOMORROW for our genetic results webinar! Register here: shorturl.at/fnB67 There are limited spots to join on Zoom (registering does not guarantee a spot). Don’t worry though, we will be recording it and we will also be sharing it live on Facebook at the time.

DecodeMEstudy's tweet image. Join us TOMORROW for our genetic results webinar! Register here: shorturl.at/fnB67 There are limited spots to join on Zoom (registering does not guarantee a spot). Don’t worry though, we will be recording it and we will also be sharing it live on Facebook at the time.
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DecodeMEstudy's profile picture.
DecodeME the ME/CFS Study
 @DecodeMEstudy
Aug 13

Join us TOMORROW for our genetic results webinar! Register here: shorturl.at/fnB67 There are limited spots to join on Zoom (registering does not guarantee a spot). Don’t worry though, we will be recording it and we will also be sharing it live on Facebook at the time.

DecodeMEstudy's tweet image. Join us TOMORROW for our genetic results webinar! Register here: shorturl.at/fnB67 There are limited spots to join on Zoom (registering does not guarantee a spot). Don’t worry though, we will be recording it and we will also be sharing it live on Facebook at the time.
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TheMECFSNet's profile picture.
ME/CFS Research Network
 @TheMECFSNet
Aug 13

📢Research news! The #MECFS Research Network Investigator Meeting convened @NIH leaders and network members @CfSforMECFS, @CornellMECFS, @ICanCMEResearch, and @RTI_Intl's DMCC for study updates on August 4. Collaboration fuels discovery! #MECFSnet #PwME #LongCOVID

TheMECFSNet's tweet image. 📢Research news! The #MECFS Research Network Investigator Meeting convened @NIH leaders and network members @CfSforMECFS, @CornellMECFS, @ICanCMEResearch, and @RTI_Intl's DMCC for study updates on August 4. Collaboration fuels discovery! #MECFSnet #PwME #LongCOVID
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TheMECFSNet's profile picture.
ME/CFS Research Network
 @TheMECFSNet
Jul 21

🔎Looking for accurate summaries of published #MECFS research? Check out the ME/CFS Research Chatbot! It relies solely on PubMed abstracts. Also access data table with abstracts. S/O to Tracy Duvall for creating this new tool!

TheMECFSNet's tweet image. 🔎Looking for accurate summaries of published #MECFS research? Check out the ME/CFS Research Chatbot! It relies solely on PubMed abstracts. Also access data table with abstracts. S/O to Tracy Duvall for creating this new tool!
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TheMECFSNet's profile picture.
ME/CFS Research Network
 @TheMECFSNet
Jul 18

📢Research news! New study from #MECFSnet partners @CornellMECFS. Post-exercise changes in extracellular vesicles reveal biological disruptions in men with #MECFS. Read full study! ow.ly/WK6150Ws3Ex

TheMECFSNet's tweet card. EVs were isolated from plasma of ME/CFS patients and healthy controls at baseline, and 15 min and 24 h postexercise. Untargeted proteomics revealed dysregulation in energy metabolism, the complemen...
Extracellular vesicle proteomics uncovers energy metabolism, complement system, and endoplasmic...
Source: onlinelibrary.wiley.com
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TheMECFSNet's profile picture.
ME/CFS Research Network
 @TheMECFSNet
May 26

🇺🇲Today we honor and remember the brave men and women who made the ultimate sacrifice for our country.

TheMECFSNet's tweet image. 🇺🇲Today we honor and remember the brave men and women who made the ultimate sacrifice for our country.
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PlzSolveCFS's profile picture.
Solve ME/CFS Initiative
 @PlzSolveCFS
Apr 30

🎥 The recording of "Investigating Immune Dysfunction & T-Cell Exhaustion via Single Cell Immune Profiling in #MECFS & #LongCOVID," w/panelists from @Selin Lab, @HiFiBio, & patient reps @Rivkatweets & Dr. Megan L. Fitzgerald, is online now. Watch here: youtu.be/2DQZp48fyek

PlzSolveCFS's tweet image. 🎥 The recording of "Investigating Immune Dysfunction & T-Cell Exhaustion via Single Cell Immune Profiling in #MECFS & #LongCOVID," w/panelists from @Selin Lab, @HiFiBio, & patient reps @Rivkatweets & Dr. Megan L. Fitzgerald, is online now. Watch here: youtu.be/2DQZp48fyek
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OpenMedF's profile picture.
Open Medicine Foundation
 @OpenMedF
Apr 18

🤝 Accelerate Research: OMF StudyME is a free global participant registry bridging the gap between individuals living with #MECFS, #LongCOVID and related diseases, and the researchers working tirelessly to uncover effective treatments. 👉Sign up today: omf.ngo/studyme/.

OpenMedF's tweet image. 🤝 Accelerate Research: OMF StudyME is a free global participant registry bridging the gap between individuals living with #MECFS, #LongCOVID and related diseases, and the researchers working tirelessly to uncover effective treatments. 👉Sign up today: omf.ngo/studyme/.
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TheMECFSNet's profile picture.
ME/CFS Research Network
 @TheMECFSNet
Apr 17

🗓️Mark your calendars for these important #MECFS events!

TheMECFSNet's tweet image. 🗓️Mark your calendars for these important #MECFS events!
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