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#MEcfs SYMPTOMS YOU SHOULDN'T IGNORE! It appalls me the NHS still don't tell new patients this #pwme @drphilhammond
Great podcast - Luke’s narrative really captures it #LongCovid
I spoke to the @guardian's award-winning Today in Focus podcast about my experiences with long-tail #Covid-19: "It's like falling into a medieval wall painting". Features fellow long haulers @PaulGarnerWoof and Iulia Hammond. Thanks @guardianaudio theguardian.com/news/audio/202…
theguardian.com
The Covid long haul: why are some patients not getting better? – podcast
When the Guardian’s Luke Harding began suffering symptoms of Covid-19 he assumed he would be laid low for a couple of weeks. Five months later he is still unwell, and has found hundreds of people...
So excited about this FB group for physical and occupational therapists. Their mission is to educate PTs & OTs on how to care for people with #MECFS #POTS #EDS #LongCovid across the spectrum of severity. It involves many PTs & OTs who have ME themselves.
I spoke to the @guardian's award-winning Today in Focus podcast about my experiences with long-tail #Covid-19: "It's like falling into a medieval wall painting". Features fellow long haulers @PaulGarnerWoof and Iulia Hammond. Thanks @guardianaudio theguardian.com/news/audio/202…
theguardian.com
The Covid long haul: why are some patients not getting better? – podcast
When the Guardian’s Luke Harding began suffering symptoms of Covid-19 he assumed he would be laid low for a couple of weeks. Five months later he is still unwell, and has found hundreds of people...
How many people want to take part in #DecodeME? There are now more than 18,800 people with #MECFS based in the UK who have signed up on our website! BUT we still need lots more... Why is that? ⬇️ (1/3)
Personal experience with #longCovid - a spectrum of conditions needing protocols for assessment and urgent guidance for GPs and patients @LSTMnews
NEW DAILY: Some COVID suffers are reporting a disturbing post-viral syndrome that has been dubbed "long-COVID". @PaulGarnerWoof of @LSTMnews chats to @pimlicat about his own 10-week COVID experience, and why employers need to take it seriously. Listen: kite.link/thebunker
No coherent and safe guidance in #longcovid fatigue for GPs or patients. We need help with pacing-the one thing that helps me stop symptoms returning. It Isn’t even endorsed by NICE
Clinician's Letter to NICE Results in Statement on Graded Exercise for Post-Covid-Syndrome meassociation.org.uk/2020/07/clinic…
⚠️ Warning: this tweet contains details some GPs might find hard to believe. Yesterday, I had sex (for the first time this year).🥰 Today, I can't lift a mug of tea or stand unaided.😭 #pwME #MEcfs #MyalgicE #MedEd #MedTwitter #LongCovid
Get Involved - DecodeME Sign up here if you want to take part in this study decodeme.org.uk
Anyone wondering why a lot of mild mannered lefty women have allegedly become raging bigots & TERFs recently should read this article on some of the actual real life implications of applying Gender Theory to kids.
The NHS has quietly changed its trans guidance on hormone therapy for children. That raises many questions. spectator.co.uk/article/the-nh… via @spectator
#MEAction UK's #MilllionsMissing 2020 event Dionne Joseph talks about the appalling struggle she and her family underwent to convince hospital staff that her daughter Gigi's ME was NOT a psychological illness Many thanks to Dionne for sharing her experience with us #pwME
Apparently I have the “long tail” version of #COVID with a “recrudescence of symptomatology”... #pwme
The NHS has quietly changed its trans guidance on hormone therapy for children. That raises many questions. spectator.co.uk/article/the-nh… via @spectator
⭐️Celebrating 1000 Followers⭐️ We are giving away: 👏All three of these books 👏A three month members book subscription 👏1 YEAR online membership All you have to do is: 📚 Like & RT this tweet! 📚 Tag 1 friend, author, book shop, or publisher! Close 21/5!
Following on from the previous post, the first symptom of ME we are sharing is Post Exertional Malaise. This is a delayed onset of symptoms after physical or mental exertion. If you are comfortable enough, share how PEM affects you in the comments. #MESymptoms #MECFS #MEAW
We are excited to announce the funding of a new research study that will examine the feasibility of measuring various physiological data during daily activity in people with M.E. Funding for this new study has come from the MEA Ramsay Research Fund. meassociation.org.uk/2020/05/mea-re…
We have a new Factsheet available, titled "What the research is telling us about the pathology of ME." This leaflet provides a summary of what biomedical research is telling us about M.E. It is now available to download on our website: meassociation.org.uk/2020/05/me-awa…
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