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endocommunity's profile picture. Creating a safe space for persons living with endometriosis and sharing my endometriosis journey.

endocommunityindia

@endocommunity

Creating a safe space for persons living with endometriosis and sharing my endometriosis journey.

32Posts 76Followers 452Following
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endocommunity's profile picture.
endocommunityindia
 @endocommunity
Oct 25, 2022

If you are ever thinking, Am I talking too much about my disease Darling, you are talking way less because you are still giving importance to other people opinions. Talk too much!! Spread the awareness!! #EndoCommunityIndia #Endometriosis #ChronicIllness #spoonie #endo

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endocommunity's profile picture.
endocommunityindia
 @endocommunity
Sep 1, 2022

I am sick of explaining not every illness is visible, that's why it’s called invisible illness Me looking good is not equal to no pain. I am always in pain. #health #ChronicIllness #InvisibleIllness #Endometriosis #PCOS #Women #EndoCommunityIndia #MentalHealth #EndoWarriors

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endocommunity's profile picture.
endocommunityindia
 @endocommunity
Aug 26, 2022

Living with chronic illness is questioning every pain of yours. You never know if it's illness induced or a regular pain.🤦‍♀️🤦‍♀️ #EndometriosisIndia #EndoCommunityIndia #Endometriosis #ChronicIllness #InvisibleIllness #WomensHealth #SpoonieLife #BodyCare #BodyAwareness #health

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endocommunity's profile picture.
endocommunityindia
 @endocommunity
Jun 25, 2022

I am gonna say it! Fertility is not the 1st priority of every endo patient. Some are just trying to carry out their daily task without pain. Doctors have no right to withold other treatment options and information without consent. *Info is patient's right*

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endocommunity's profile picture.
endocommunityindia
 @endocommunity
Apr 21, 2022

Endometriosis affects - Mental health -Relationships -Friendships -Social life -Work life -Lifestyle -My Diet -My periods -My whole body -My existence IT'S NOT A PERIOD PROBLEM!!!!!!! #Endometriosis #endometriosisawareness #endolife

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endocommunity's profile picture.
endocommunityindia
 @endocommunity
Apr 8, 2022

What to do when you experience medical gaslighting? Runnnnnnnnnnn...... You don’t need that kind of negativity. (Call them out, if possible) . . . #Endometriosis #EndoCommunityIndia #EndometriosisAwareness #MedicalGaslight #WomenHealth #Health #EndometriosisCommunityIndia

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intractablepain's profile picture. Writer/Speaker/#ChronicPain Advocate—Heather Grace has #IntractablePain #CRPS #EhlersDanlos #Autoimmune Issues 💜🦓💥❄️ #CPP #ChronicIllness

Heather—PAINadvocate

@intractablepain
CollegeCeliacKC's profile picture. #College #celiac blogger writing about #glutenfree, #vegan and #paleo recipes, living with a #chronicillness and general #health and wellness!

Casey Cromwell

@CollegeCeliacKC
drunkitty2000's profile picture. Blogging at https://t.co/NxnA8YoE1K about life with #chronicillness #fibromyalgia #tmj #endometriosis #migraine and #clusterheadaches - I choose #Happiness

Julie Ryan

@drunkitty2000
ChronicSexChat's profile picture. On Bluesky (not active here) | Run by sex educator @graysongoal | Education on #ChronicIllness, #Disability, #Selflove, #Relationships, and more! | 18+

Chronic Sex - graysongoal.bsky.social

@ChronicSexChat
elitabaldridge's profile picture. Former healthy macroecologist & @weecology alum, current goat herder w/ #chronicillness. Interested in #ecology, #data, #programming, #openaccess & #goats.

Elita Baldridge

@elitabaldridge
swiftxdebnam's profile picture. Don't call me kid, don't call me baby #mentalhealthmatters #multifandom

Tαnjα ❤️‍🔥

@swiftxdebnam
beautifu75's profile picture. #Spoonie #MS #recipe #blogger #chronicillness #spooniestyled loves coffee, creating healthy recipes, diy projects

BeautifulButterflies

@beautifu75
spoonie_life_'s profile picture. A place where spoonies can connect. #SpoonieCommunity #invisibleillness #chronicpain #chronicillness #URnotALONE #Support #NoJudgementZone

Spoonie Community

@spoonie_life_
mandyistired's profile picture. Blind, musician, sound artist, software tester, gamer & avid reader. #ChronicIllness #RareDisease #AxenfeldRieger #ADHD #PTSD #lowVision #ipp

Mandy is Tired🦯

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joalchin's profile picture. Find me on the #Fediverse at @jo@blahaj.zone or Discord jo (she/her)#8692 Bluesky @joalchin.au 🏳️‍⚧️Late 40s. Queer. Cat mum of 4. 🏴🚩 🔞DNI

Jo Alchin

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annaverbee's profile picture. I'm nobody! Who are you? #SouthDilliFilmClub #DiliReadingGroup #ChronicIllness #MentalHealth #Disability A rebel by temperament but not by trade.

एना Maria 🌈 🇵🇸

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KarinaSturm's profile picture. Freelance #journalist and #chronicillness advocate living with #EhlersDanlosSyndrome besides others. She/her. Profile Pic: @ohrenflimmern

Karina Sturm

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greenecharmer9's profile picture. I want a happy, peaceful life! 24 years of neurological problems #chronicillness #disabled♿️ #fibro #dyslexic #dyspraxic #ME Mother of 5❤,nana.🇧🇧

Lina

@greenecharmer9
menhavlupus's profile picture. #Lupus hits men as often but harder than women. We will not be silent until the #stigma is gone! If you have #ChronicIllness, know you're not alone!

Men Have Lupus

@menhavlupus
DrFrancesRyan's profile picture. Guardian columnist and journalist. Commentator of the Year 2024. Author of Who Wants Normal? and Crippled. E: frances.ryan.freelance@guardian.co.uk

Frances Ryan

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VilissaThompson's profile picture. #DisabilityTooWhite Creator • Founder of @RampYourVoice! • #Disability_Rights #Consultant • Social Worker • #Writer • https://t.co/ek0V03OIoO

Vilissa Thompson

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DisabledAcadem's profile picture. We're a group of disabled undergrads, grad students, faculty, and independent scholars. If you'd like to join, DM us or see our website! @Nicole_Lee_Sch hosts

Disabled Academic Collective

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shengokai's profile picture. Martial artist, motorcyclist, and comics philosopher. Areas: Japanese phil, race, gender, disability, and tech/AI. Pragmatic Dragon. He/Him/His 🏳️‍🌈

Dr. Johnathan Flowers, Sword Bisexual

@shengokai
theCatGang3's profile picture. We are Texas Riley Alaska Bianca Binx Bella 🇸🇪 we love food, treats and naps and being meowdels. 😉 If you love cats, follow us 🩷 🌈Klumpen 🐈‍⬛🌈Ricco 🐕

the CatGang 🇸🇪🌈Klumpen 🌈Ricco 🌹🌈🐈‍⬛🐕

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Elizabe29713381's profile picture. We are 2 rescued kittens, now cats volunteering @stockport_uff Mental Health Charity #ambassacats Stockport Cheshire #SuperSeniorCatsClub##

Elizabeth & Victoriaq. 🌈

@Elizabe29713381
ElizGriff2016's profile picture. Automotive engineering professional, Harley Davidson enthusiast, Mama of two Birmans - Aristotle and Calliope and wife of UAW retiree Glen (The Butler) No DM’s

Elizabeth Griffith

@ElizGriff2016
FartyCheddarCat's profile picture. Fearse zombee fiter #ZSHQ, Gween Ops Ninja, #weeti, #IFC, Sooper Hewo, Ham Luver. My stor: https://t.co/N4jtNRBpUZ My paytweeyon: https://t.co/qe936CkgRN

Cheddar

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AllotmentCat's profile picture. Robert went to the Rainbow Bridge in 2022. His friends Janet and Amanda look after his account now. Also at bluesky Allotment Cats

Robert Allotment cat,now helped by Janet & Amanda

@AllotmentCat
IFAiArthritis's profile picture. International Foundation for Autoimmune & Autoinflammatory Arthritis “We don’t represent the patient voice, we ARE the patient voice.”

AiArthritis

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meghanor's profile picture. Author of NY Times Bestseller THE INVISIBLE KINGDOM: REIMAGINING CHRONIC ILLNESS, a finalist for the National Book Awards. Editor, The Yale Review.

Meghan O'Rourke meghanor.bsky.social

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stacy_hurt's profile picture. Chief Patient Officer @Parexel 🫶 Cancer survivor, Rare disease mom/caregiver, Advocate for the unseen/unheard in healthcare 📣 Opinions are my own

Stacy Hurt (she/her)🌻

@stacy_hurt
EMoriartyWade's profile picture. Comms Dir at @carrainc - @AtlBizChron and @Columbia alum - mom of child w/#raredisease - #pinksocks @savvy_coop & #scleroderma workgroup. Chicagoan in FL. 🌊

Erin Moriarty Wade

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sicklessons's profile picture. #LifeLessons from living with #ChronicIllness, #MentalIllness & #disability - Check the #podcast out! #SelfImprovement #PersonalGrowth #PersonalDevelopment

Sick Lessons

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teamfibro's profile picture. We educate, advocate, research & empower. No one fights fibromyalgia alone! Taking action!💜 501(c)(3) organization for the fibromyalgia community.

Fibromyalgia National Health Organization

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sabkin12's profile picture. Trying my best to love, help, & respect others in this crazy world. #RareDisease #PatientVoice #FabryDisease #EhlersDanlos #MentalHealth #HealthEquity

Sabina Kineen

@sabkin12
shopshi's profile picture. td fan spurs fan retired nurse gardener Northampton MA resident RA has affected my heart and lungs

ann wall

@shopshi
aboutIBD's profile picture. #UC '89, #jpouch '99. Creating evidence-based #IBD patient education to help you know more about IBD. Find #AboutIBDPodcast in any podcast app and on YouTube.

About IBD (Amber): Writer, Advocate, Podcast Host

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the_tweedy's profile picture. Corin • PhD studying cat geographies • almost never post here anymore

The Tweedy Mutant

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PutrinoLab's profile picture. We make people (and technology) better at Mount Sinai. Opinions are my own.

Putrino Lab

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socialhealthnet's profile picture. A community for patients, caregivers & healthcare professionals with the goal of bringing empathy & humanity to healthcare.

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benh_mecfs's profile picture. ME/CFS patient advocate, @OpenMedF science correspondent. Bedbound. Former biochemist in training, physiology, powerlifter, PT/gym manager. Musician. F1/Boxing.

Ben H

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exceedhergrasp1's profile picture. Scientific Director, #MEAction Stanford Med TIME100 Health 2024 #ME, #EDS, #POTS, #LongCOVID Views my own exceedhergrasp1@bsky.social (really not on X anymore!)

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drclairetaylor's profile picture. Doctor|Special interest in Long Covid,POTS,ME/CFS&MCAS| neuroscientist🧠Long Covid kids champion|long Covid clinic🏴󠁧󠁢󠁳󠁣󠁴󠁿Views my own

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MECFSNews's profile picture. I used to post news and interesting information on ME/CFS but have retired to focus on other things.

ME/CFS News

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stephlvsbooks's profile picture. UNC Tarheel Almna 🐏Mom💙💙💗📚 English Lit Professor, PhD.📖Book Lover📚 Coffee Addict ☕Siberian Husky puppy mom 🐶

Stephanie

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KatanaHugo's profile picture. @Sager_MSL , pictures, animals,... @LaurenVictorita @zazaFontaine42 @Shockinginfos Visit https://t.co/615tBAaYXD Naissance le 3 janvier

Alessandro ⚓️ NO DM

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