shelley-lee waller
@shellchat
Former journo/editor, advocate for health equity, mother of two teens (Korean adoptees), p/time worker in health - full time 🕵️♀️ sleuth of ME/POTS/MCAS/SjD
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Hi yes - when persistent SARS-CoV-2 is identified in #LongCovid tissue, the immune response near identified virus can be downregulated. Thus a drug like ANKTIVA that supports NK & CD8T cell activity can potentially help clear the virus (even if the reservoir is in a potentially…
RECOVER Brain Fog Trial. Conclusions and Relevance: This phase 2 randomized clinical trial (10wk trial): 🔔FAILED (tx did not improve brain fog) 1️⃣online cognitive training, 2️⃣a structured cognitive rehabilitation program, and 3️⃣tDCS for cognitive Long COVID.
Sobering for the neurologists who consider #LongCovid psychosomatic – to be trained away with cognitive behavioral rehab. „None of our rehabilitation approaches to treatment for cognitive Long COVID proved to be effective.“ 3 rigorous trials. Bang. recovercovid.org/news/recover-n…
"I say to them, what have you given up?" Patients with #CSFleaks are often forced to adjust their lifestyles drastically - giving up family activities, hobbies, fitness, professions, and their life as they knew it. Watch our new documentary via our YouTube from 3rd Dec.
1 in 4 people with #MECFS are housebound or bedbound. 💙 @EmergeAus’s evidence-based guide offers strategies for daily care, communication, & managing sensitivity, while protecting both patient & caregiver wellbeing. Read more: bit.ly/4nD2Add #UnitedForME
1) A paper from earlier this year reported that ME/CFS patients have a much bigger risk of cardiovascular disease than controls (adjusted odds ratio of 3.26). The study used data from the National Health Interview Survey (NHIS), however, which has some big limitations...
COVID-19 accelerates Parkinson's Disease in susceptible individuals by promoting gut dysbiosis, chronic immune activation, and blood–brain barrier dysfunction... link.springer.com/article/10.100…
Sleep Dysfunction in ME/CFS and Long COVID Sleep dysregulation in ME/CFS and LC is due to: 1. Impaired circadian signaling 2. Autonomic imbalance 3. HPA-axis disruption 4. Reduced slow-wave sleep and alpha intrusion 5. Neuroinflammation destabilizing sleep architecture
#ME #LongCovid Something to remind the health care professionals who continue to run basic tests and then decide it’s all psychosomatic.
Nationals leader David Littleproud claims Labor’s net-zero plan will cost $9T. We did the maths.👇@10NewsAU
Diabetes continues to affect our families and communities, but we’re changing that together. Through the NACCHO–Bupa Foundation partnership, we’re backing community-led solutions, training health workers, improving prevention, and strengthening care. naccho.org.au/naccho-media-r…
New discoveries have flipped the story of DNA upside down. From the Human Genome Project to the ENCODE study, researchers are uncovering that so-called junk DNA is anything but useless.
Stanford Medicine scientists tie lupus to EBV.They found fewer than 1 in 10,000 of a typical EBV-infected - but otherwise healthy individual’s B cells - hosting a dormant EBV viral genome. Would ❤️ to see Robinson new v high-precision sequencing to ME/POTS med.stanford.edu/news/all-news/…
What if SARS-CoV-2 doesn’t just infect - but also self-assembles into molecular structures that keep the immune system burning? Zhang showed that after the virus breaks apart, some of its fragments re-form peptide-RNA nanocrystals that potently activate TLR3, even without live…
No one has yet explained the unique nano-crystals and how that drives inflammation 🧐🧐 doi.org/10.1073/pnas.2…
Korea National Institute of Health researchers gave SARS-CoV-2 spike protein to rats and found it entered the brain, disrupted synapses, triggered Alzheimer’s and Parkinson’s-related protein buildup, and impaired memory Metformin prevented these effects journals.plos.org/plosone/articl…
Long COVID in women and men are not the same disease. They share symptoms, but diverge in biology - immune, hormonal, and genetic. After months since the preprint - peer-reviewed study is now out in Cell Reports Medicine.🧵
A new study from Tokyo offers hope for people with #LongCOVID. ➡️ It found that recovery might depend less on how many vaccines you’ve had — and more on how your immune system resets itself. ➡️ Researchers studied 105 Long COVID patients. Those who recovered were more likely…
1) Interesting interview of Prof. Brian Hughes by David Tuller. In his new book Hughes argues that psychology is not woke but that its methods are essentially conservative because it focuses on an individualistic view and ignores social context.
Brilliant news. Traces of gluten cause migraine w aura, loss of speech, low BP, nausea, severe gastro (2days near toilet). The way docs say “patients who can’t bear to consume gluten” as if some mild inconvenience. 🙄 I wldnt sleep, work or eat to consume enough gluten 2 test!
You heard it here first - a simple blood test (similar to Quantiferon) that can accurately diagnose coeliac disease, even in those on a gluten free diet. 📸: @AGA_Gastro gastrojournal.org/article/S0016-…
Many with excessive thirst get the "psychogenic polydipsia" label slapped on them. Yet experiments in the early 1800s showed excessive thirst can be relieved with IV water or saline – seems medicine has regressed! Tune in tomorrow for more chat about thirst regulation 👇
Very excited for this: Wednesday 5th November at 6pm (GMT) I'll be talking to @BinitaKane about all things hydration, appetite, and blood sugar in POTS. Link to join live on YouTube: youtube.com/live/Ar0X_N3T2…
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