#endmecfs search results
We didn't start the fire, but we looked away and let it burn #CovidIsntOver #EndMECFS
Today is Severe #MECFS Awareness & Remembrance Day. Let's honor those suffering from this debilitating illness and remember the ones we've lost. Your support and understanding can make a difference. #EndMECFS #MECFSawareness #TiredAF
Today is Severe #MECFS Awareness & Remembrance Day. Let's honor those suffering from this debilitating illness and remember the ones we've lost. Your support and understanding can make a difference. #EndMECFS #MECFSawareness #TiredAF @alwaystirednfts @MEActNet
These slides from @DrDenDunnen presentation at #UniteToFight2024 will be taken for today's HOPE to #EndMECFS Really would like to see ME/CFS ICC/CCC with 2-Day CPET as comparator group and or Dr. Moreau's 11 MicroRNAs subgroupings. Possible Objective Diagnostic test - 🥳
Und es Interessiert niemanden. Seit Jahrzehnten krepieren junge Menschen an einer schweren Erkrankung und es ist egal. Was sind Menschenleben wert aber wenn selbst die KK von Wirtschaftlichkeit spricht, wundert mich gar nichts mehr #endmecfs
My brain sometimes feels like an idea factory on how to help #EndMECFS- without a battery to run the body to make those ideas possible. ☹️
#FckTheNIH Support @OpenMedF omf.ngo/the-end-mecfs-… Their #EndMECFS project has so many initiatives now I can't properly take a screenshot with all of them in it!
omf.ngo/the-end-mecfs-… What Mr. Sharpe does is not science. It's pseudoscience. This is the #EndMECFS project from omf.ngo This is one of the places where the real #MECFS research is occurring.
omf.ngo We are not alone. You are not alone. Every day people get up and fight in a small way to #EndMECFS We are with you in spirit.
What could our version of the #icebucketchallenge be for ME? #endMECFS
Wie kann es sein, dass #MECFS auch Ende 2023 noch immer nicht als der Notfall begriffen wird, der er ist? #MEAwarenessHour #endMECFS
The #MECFS Art & Crafts auction is now officially OPEN! It runs until July 7th and all proceeds go towards @OpenMedF & @PIzSolveCFS. Be sure to visit our Facebook group to list or bid on items: facebook.com/groups/mecfsar….. #endmecfs #artauction #MyalgicEncephalomyelitis #MECFS
Much love to Soph. Sending her strength in spirit from afar. 🙏🏼 #endMECFS #findacure #MECFS #Trauma #pwme
It's so clear who is on the side of drilling down to #EndMECFS and who isn't Thank you for trying Superman.
Ron Davis called up Avi Nath at the beginning and offered to help him and make sure the study included everything and had the right inclusion criteria but he never got called back.
Are you an artist/artisan? @aliimrie, Em and I are hosting the 3rd annual #MECFS Art & Crafts auction from June 30th-July 7th. All proceeds go towards @OpenMedF & @PIzSolveCFS. Visit the Facebook group : facebook.com/groups/mecfsar… for more details! #endmecfs #artauction
August 8, 2024 Severe ME Day Please give a voice to those suffering from severe ME. Become an ally today. #SevereMEday #StandByMEcfs #EndMEcfs
You are not forgotten I see your faces, I know your names, I remember your stories. #StandByMEcfs #StillSickStillFighting #MillionsMissing #TeachMETreatME
A beacon in the night...a voice in the wilderness...a voice of reason among the chaos that is the world of #MECFS. @DecodeMEstudy FINALLY gave this disease some credibility on a global scale. Time to build on the foundations and #EndMECFS!
(1/2) We have been blown away by the public response to our initial DNA results. We’ve been delighted to be featured in a range of news outlets, radio programs & articles. A huge thanks to those who helped spread the word & have helped us put ME/CFS research into the public eye.
Excellent question! Follow @CortJohnson as he tweets from the Keystone Long Covid Symposium on #MECFS and #LongCovid. Or, check his page and digest it as you are able. Some interesting stuff! #EndMECFS #EndLongCovid
Keystone Long COVID POST Acute Infection Syndromes Symposium - Peluso #longCOVID #MECFS - how does such a small microbe produce such long and often devastating results?
#MECFS made the front page of The Guardian! #DecodeME #EndMECFS #GreatestMEdicalScandal
@DecodeMEstudy is making a global mark on news! 🌎 All a-Twitter...all a-buzz...can't ignore us any longer! It's NOT all in our heads (although it IS in our brains!) and we're NOT lazy or attention-seeking! Neither are #pwLC! #EndMECFS 🆘@NIHDirector_Jay @SecKennedy @DrOzCMS 🆘
This mornings DecodeME news coverage. All I can do is produce this image which represents about half of the articles around from around the globe. Never seen anything like this on ME/CFS before.
ahhh....taking a shower, meeting friends for pizza, and maybe taking a stroll and talking...for hours. With #MECFS, you never know when the last time you did something will be the very last time. The 'little things' really are the most important. 🆘#EndMECFS
Congratulations to Dr. Susan Monarez, PhD on becoming the Director of @CDCgov! Praying she will be instrumental in finding real answers and treatment options for #MECFS! 🆘She and @SecKennedy could pave the road to make millions world-wide healthy again!🆘 #EndMECFS #EndLongCovid
Alrighty then! Can't wait to hear what @DrMaureenHanson's team comes up with now! Go, Columbia #MECFS (and #LongCovid) CRC!! 🔬 🆘#EndMECFS 🆘#EndLongCovid @SecKennedy @DrOzCMS @NIHDirector_Jay @SenCapito Get @WVUMedSchool involved!!!
🚀 Current Projects (Pt. 2): 🔹 🌍 Joint Actions: Planning coordinated actions across different countries. 🔹 🆔 Digital ID: Setting up a secure system for voting & organizing. #EndMECFS #JointAction #DeSci #MEcfs 4/5
Are the stars aligning? Prayers being answered? Aha! moments bearing fruit? I'd love to be a 'fly on the wall' of that zoom call!! #EndMECFS 🧩🙏 @MaxNits @chydorina @PhillyPhile215 @atranscendedman @bhanlon15 @RenegadeRes @TomKindlon @NeurologistMom @CureLongCovid @minadjenkins
I just talked to Ron and Rob about this. It’s another possible feedback loop that could count for the chronicity of the disease. They’re excited to talk to these researchers tomorrow on a zoom call. We are really getting some good collaborations lately!
What could our version of the #icebucketchallenge be for ME? #endMECFS
Absolutely!! I love this sculpture in Philadelphia, PA. It's called "Freedom". I think it totally represents us when we finally find answers/treatment/cure! Released from our prison! I want to go there and take a picture with it WHEN I'm better! #EndMECFS
Today is Severe #MECFS Awareness & Remembrance Day. Let's honor those suffering from this debilitating illness and remember the ones we've lost. Your support and understanding can make a difference. #EndMECFS #MECFSawareness #TiredAF
The #MECFS Art & Crafts auction is now officially OPEN! It runs until July 7th and all proceeds go towards @OpenMedF & @PIzSolveCFS. Be sure to visit our Facebook group to list or bid on items: facebook.com/groups/mecfsar….. #endmecfs #artauction #MyalgicEncephalomyelitis #MECFS
Today is Severe #MECFS Awareness & Remembrance Day. Let's honor those suffering from this debilitating illness and remember the ones we've lost. Your support and understanding can make a difference. #EndMECFS #MECFSawareness #TiredAF @alwaystirednfts
Today is Severe #MECFS Awareness & Remembrance Day. Let's honor those suffering from this debilitating illness and remember the ones we've lost. Your support and understanding can make a difference. #EndMECFS #MECFSawareness #TiredAF @alwaystirednfts
These slides from @DrDenDunnen presentation at #UniteToFight2024 will be taken for today's HOPE to #EndMECFS Really would like to see ME/CFS ICC/CCC with 2-Day CPET as comparator group and or Dr. Moreau's 11 MicroRNAs subgroupings. Possible Objective Diagnostic test - 🥳
#FckTheNIH Support @OpenMedF omf.ngo/the-end-mecfs-… Their #EndMECFS project has so many initiatives now I can't properly take a screenshot with all of them in it!
omf.ngo/the-end-mecfs-… What Mr. Sharpe does is not science. It's pseudoscience. This is the #EndMECFS project from omf.ngo This is one of the places where the real #MECFS research is occurring.
"Hold the Line!" Thank you for using your precious energy to write a post to engage our warrior spirits! #FightMECFS #EndMECFS #FuckTheNIH
Today is Severe #MECFS Awareness & Remembrance Day. Let's honor those suffering from this debilitating illness and remember the ones we've lost. Your support and understanding can make a difference. #EndMECFS #MECFSawareness #TiredAF @alwaystirednfts
Are you an artist/artisan? @aliimrie, Em and I are hosting the 3rd annual #MECFS Art & Crafts auction from June 30th-July 7th. All proceeds go towards @OpenMedF & @PIzSolveCFS. Visit the Facebook group : facebook.com/groups/mecfsar… for more details! #endmecfs #artauction
Today is Severe #MECFS Awareness & Remembrance Day. Let's honor those suffering from this debilitating illness and remember the ones we've lost. Your support and understanding can make a difference. #EndMECFS #MECFSawareness #TiredAF @alwaystirednfts @MEActNet
Today is Severe #MECFS Awareness & Remembrance Day. Let's honor those suffering from this debilitating illness and remember the ones we've lost. Your support and understanding can make a difference. #EndMECFS #MECFSawareness #TiredAF
Today is Severe #MECFS Awareness & Remembrance Day. Let's honor those suffering from this debilitating illness and remember the ones we've lost. Your support and understanding can make a difference. #EndMECFS #MECFSawareness #TiredAF @alwaystirednfts
Over 20 million people have #MECFS worldwide, 25% of whom are homebound & bedbound indefinitely. There are no treatments or cures. It's time for change. Learn more and join the cause to #EndMECFS by donating to support research today: omf.ngo #PwME #CFS
Absolutely!! I love this sculpture in Philadelphia, PA. It's called "Freedom". I think it totally represents us when we finally find answers/treatment/cure! Released from our prison! I want to go there and take a picture with it WHEN I'm better! #EndMECFS
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