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It can be difficult to keep a kitchen clean for every showing. Here are some organization tips to help your sellers maintain order. ow.ly/BUZG50D3TQI
Join us this Saturday for Sarah's talk on make up.
🎉 Thank you Canada! Your generosity has raised $175,000 for #scleroderma research, education and awareness. Help us keep the momentum going! sclerodermawalkrun.ca #SclerodermaAwarenessMonth
From diagnosis to living with scleroderma in day-to-day life, there have likely been a lot of changes. Watch our May webinar to hear from Dr. Maureen Mayes about how scleroderma symptoms evolve over the first five years. buff.ly/2SCN9WF
A new stem cell transplant that's commonly known to treat cancer is improving the quality and quantity of life for those with scleroderma. wndu.com/content/news/N…
wndu.com
New technique developed to treat hardening of internal organs
In mild cases, scleroderma causes areas of hardened skin. But in severe cases, it can also cause deadly hardening of internal organs like the lungs.
"Even though I am happy and excited, I do feel pain today. I felt it all day yesterday." Katie Kinison opens up about her daily battle with #scleroderma on @syttd. Learn more here: ow.ly/iLxh50yszCC
Building resilience helps those living with a chronic illness take steps toward accepting their illness, being more mindful and learning to live a life filled with a positive attitude. Research shows that a positive attitude can favorably effect the immune system.
Join the search for a possible SCLERODERMA THERAPY. If you are a patient or know a patient with diffuse SSc, call 203-737-5571 or email [email protected]
Rep. Peter T. King & Sen. Kirsten Gillibrand introduced identical bills titled the "National Commission on Scleroderma & Fibrotic Diseases Act of 2019. Reach out to your own representative and let them know that this legislation matters to you. bit.ly/30rqbnZ
To support the Michigan Chapter’s advocacy efforts, Michael Bessert, Cynthia Peppers, and David Murad met with Senator Peters to discuss scleroderma and its many effects.
Wow! Successful trip to Capitol Hill! We got to talk directly with Senator Portman today and meet with many other Congressional aides yesterday. In addition, Senator Portman's Legislative Director lined up a tour of the Capitol building for us today.
Join me and #BeAVoter in the U.S. election. Get started by registering to vote here twitter.turbovote.org
Pics from 2018 National Conference in Philly! It was fantastic and we brought home an award - our Board President, Debbie Metz, was awarded the Chapter Volunteer of the Year!
Haley is 16, learning how to drive and will be a junior this fall. A spot on her chin unrelated to a tooth issue until earlier this year, led recently to a diagnosis of scleroderma. Now Haley and her family learning about #scleroderma together. Read more: scleroderma.org/site/DocServer…
We’re at the @scleroderma conference being wowed by one story after another! Visit booth #100 to share how you are #MorethanScleroderma, and hear the stories of others living with #scleroderma here: bit.ly/2HExuyv
ICYMI: discover 5 things foundations want you to know about #patientengagement on @fastercures' blog! bit.ly/2kqFoFb
Just arrived in Philly for the @scleroderma National Patient Education Conference! It’s my first time here. Looking forward to connecting with like-minded folks! #scleroderma
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내가 좋아할 만한 콘텐츠
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World Scleroderma Foundation
@Worldsclerofnd -
Scleroderma Victoria
@scleroderma_vic -
EUSTAR
@EUSTAR_org -
SclerodermaSalfordManchester
@SclerodermaM -
JCR: Journal of Clinical Rheumatology
@JRheumatology -
The Journal of Rheumatology
@jrheum -
Raynaud's Assn.
@raynaudsorg -
ClinRheumatol
@ClinRheumatol -
SRFCure
@srfcure
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